Hi Edward,
I had joined another group called "Disabled Citizens Unite" on which I had shared my story. Now, if I wasn't such a computer Neanderthal, I would know how to copy and paste that story onto your site, and would happily expand on it. Unfortunately, I left the work force before this Baby Boomer learned to navigate in Cyberspace!
It is truly an honour to make your acquaintance Edward. Those of us that have been classified as "disabled", certainly still have a strong voice that needs to be heard. We cannot hide behind our pain and whither away. Kudos to you for your courage.
If you find my information at all helpful, please post it wherever it could make a difference.
Your friend,
Vera
Hi Edward,
I had joined another group called "Disabled Citizens Unite" on which I had shared my story. Now, if I wasn't such a computer Neanderthal, I would know how to copy and paste that story onto your site, and would happily expand on it. Unfortunately, I left the work force before this Baby Boomer learned to navigate in Cyberspace!
It is truly an honour to make your acquaintance Edward. Those of us that have been classified as "disabled", certainly still have a strong voice that needs to be heard. We cannot hide behind our pain and whither away. Kudos to you for your courage.
If you find my information at all helpful, please post it wherever it could make a difference.
Your friend,
Vera
Dear Vera,
Welcome and hello. Glad to have you here, sharing with us. Take your time posting your story. Because I would like to hear the 'WHOLE STORY' on the way insurance companies play with disabled people. Then with your permission, I would post it ALL OVER on all my many blogs and sites.
Love,
Edward Janus | Disability Advocate and Activist
10707 Wrightwood Ave. Northlake, IL. 60164
Founder: www.EdwardJanus.net | Disability Network Connections.
EdwardJanus@msn.com
I am quite happy to join this group. I have strong views on the way insurance companies play with disabled people. I must return to this group in a few days when I have the energy to expand on my views. I have worked in the insurance industry as a disability medical underwriter who was forced against the wall to get my disability benefit.
C.C.
Thank you for sharing. I admire you for keep on going. I know life sometimes does not seem fair. And be very, VERY hard.
They say: God would not give you anything you can't handle. I say: I wish he wouldn't trust me so much.
Love,
Edward
This post was modified from its original form on 21 Jun, 11:02
My name is C.C. I am a 40 yr. old woman who became disabled in 2003 when I ws 34 yrs. old. It started with a blood disorder called Osteonecrosis, which caused the bones in my right hip to die. A surgeon @ Duke attempted a FVFG (free vascular fibular graph) to re-grow the hip, but did so when the hip was too far gone (yes, he messed up). Anyhow, due to this mess up, I spent the next year between a walker and wheelchair and bed-ridden. In 2004 a surgeon in Greenville had to try to replace my hip, which he did, but, the damage was done...I have not been able to walk the way the majority of THR patients do, I'm in pain in the hip. I also suffer from Fibromyalgia, Osteoarthritis, Neuropathy (he cut nerves in my calf during the surgery), possible buldging disks (seeing dr. on tuesday to order xray's and mri if necessary). I have also suffered severe depression and anxiety disorder since my physical disabilities set on.
I have been fighting disability for SIX years now. If it weren't for my boyfriend, I would be homeless.
My lawyer told me last week that I am on the doctor here in our town & that it shouldn't be much longer. I hope she's right, because this is so hard and I need the benefits that are available to those receiving permanent disability.
Since we are encouraged to share our stories, I would like to tell you that I have finally got a diagnosis. I have been in a wheel chair for more than 5 years. About 8 years ago I found myself falling every now and then, I thought I was just clumsy, but little by little I realised that something was wrong. I have been through numerous examinations, and untill recently doctors could not find out what was wrong. A few days ago, however, I got the message that I suffer from Progressive Muscular Atrophy, a kind of ALS. Does anybody know anything about this disease? Of course I have searched the internet. Not nice reading!
Share Your Disability Story With Us.
I'll start this thread. I have Cerebral Palsy and an amputee (both legs) confined to a wheelchair. I am homebound, shut-in. I have worked to earn a living for almost 25 years. Then I had over ten surgeries on my cervical spinal column (neck area) in my lifetime. Now I have been on Permanent Social Security Disability since 1996. I was married and have a daughter. In 1999 an automobile while crossing a street, struck my wife. She died instantly. Now, I Live Alone. I receive only one household income. A Social Security check monthly. . I would contact people by telephone, but I am also deaf. I cannot hear very well on the phone. You can reach me by email; all my activities and tasks are via Internet. Or you may send a regular postal mail.
Sincerely, Edward Janus | Disability Advocate and Activist 10707 Wrightwood Ave. Northlake, IL. 60164 E-mails: EdwardJanus@msn.com EdwardJanus@EdwardJanus.net Home Web Site: http://www.edwardjanus.net My Care2 Page: http://my.care2.com/edwardjanus
