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Kim June 19, 2013 11:35 PM

Hello Kim. Sorry this took so long but I have been in the hospital and then rehab center for daily PT because of a lot of falls I had been taking. First of all, one of the reasons they may have been asking for banking information is because as of next month, the Social Security will no longer be sending out a monthly check to anyone. All checks will either be direct deposit into your banking account or put on a paid Visa card each month. Also even though you were not sure, I would more to believe in this case of all what has happened, your daughter was getting SSI benefits and not SSDI. I would make sure with your local Social Security office which one she is getting. Since her benefits have been lowered, I would have her apply for the other benefits as if she is eligible, she can have both SSDI and SSI benefits. Just something I would look into. Let us know if we can be of any more help to you. Michael B.

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 March 29, 2013 5:22 PM

Hi, I am new to this site.My daughter has autism and and was receiving ssdi if i am correct but turned 18 and had review. Case manager went thru all this finanical and then advised me to ignore first letters said they would call me when all was completed.

So i received the letters lowering her payments now due to 1/3rd rule or what ever because she lives at home ( well where else would she live) and today i receive a letter for financial info for bank account that does not exist to sign and return. I had told him this with review , it was last case managers  error and she advised to disregard due to we do not have a account at this bank. They also had did review in june financial and then we just had to do it again.

This whole process is confusing to me. So now that she is considered adult disabled with no work history and non promising they lower her payments .. how does she survive and i am not sure if this letter is accurate because he told me to ignore them.

Anyone know how this process works for her. plus they are requesting info from last june which i had already provided then and in march of this year

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Info for SSD time frame and percentage February 02, 2012 12:14 PM

Hi Michael,

I actual saw this groups discussions a couple of days ago when I was googling about wanting to know the percentage of how many people actually get there SSD when they are at the stge I am at, and voila!, I had a whole bunch of info to sort through here

What I am wanting to know (even though I saw a post on this early on but a lot can change in 7 years) is about what is the percentage of people who apply for SSd get awarded at the stage I am in.  I applied for the third time in October 2008 was denied about this same time in 2009.  Got an attorney (did not get one for the first 2 times since I did not know you could appeal the decisions).  She asked for a hearing.  Had that in August of 2010.  Got the decision from the judge about a year ago in January.  My attorney appealed shortly after.  Now it is around 11 months waiting on the decision.  I called SS to find out how long it takes at the point I am at and the person there said 11 months.  I was wondering what the percentage of people at my stage get there disability.  I have a brain injury and had doctors that had treated me somewhat in the past but I have not been able to see them these past few years, no money to.  My attorney was recommended from a brain injury support group and she is knowledgeable in this area and has done plenty of SSD.

I guess I would just like to hear your opinion.  Do you think they will take age in to this now.  I am 50, if that helps but was over 42 years old when I had the accident.

Thank-you for having this topic and advice.  I greatly appreciate it.

Sincerely,  Kris

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Does the SSA take away your SSI if you decide not to send in the papers applying for SSDI? December 26, 2011 2:13 PM

Donna, Then they are really lying when they say that you can get more income if you were disabled before the age of 22 and you switch from SSI to SSDI. My son is now 48 years old and his father doesn't get SSDI but is retired so the SSA said they would use his father's work record as a way to make him eligible for SSDI. I still don't know if SSA can take away his SSI if I don't file for him to get SSDI. Then they were judging me by saying if I don't sign the papers and send them back, then he might need a new payee because I wouldn't be doing what's best for him. I just don't want to have to put him through all this again but SSA won't let me back out of it now and cancel the process without his SSI being cut off. At least that's what they told me but I don't know if this is true. Thank you for any advice you can give me.

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ssdi and ssi December 26, 2011 1:30 PM

SSD is also known as SSDI.  My youngest son gets SSI and SSDI.  He qualifies for SSDI off of my SSDI income.  I also got a notice that he could qualify for additional income.  The fact is, if your son has no work credits, he won't be switched over from SSI to SSDI.  He will continue to get SSI; but, he can get SSDI off of his dad's SSDI.  But, his SSI income will be affected.  My son does not get anymore income than if he would just be getting SSI.  The SS adjudicator had also told me that he would be getting a little more income.  This is not true.  For example, if his SSDI income is $200, then that amount would be deducted from his SSI.  SSI is income based.  SSDI is not income based.  I hope this helps.

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Need help for my son. Please help! December 26, 2011 12:49 PM

     My son receives SSI and I recently received a paper from the SSA office (I'm his payee) stating on the page that if you were disabled before the age of 22 you might be able to receive more benefits. I was curious about this and wanted to help him out. He did not receive SSI before the age of 22 but has documentation that shows he was disabled then too. I called the SSA office and spoke to someone. They said this would switch him over to SSD and they would use his father's work record. The questions they were asking me sounded like they were going to review his case all over again as if he's reapplying for SSI and not just looking at his records from before the age of 22. They asked for doctor's phone numbers. I realized as I was talking to her that my son had a few jobs before the age of 22 and worked for a year at a time for some of them. The process seemed more complicated and involved than I had hoped and I decided to call her back and tell her that I do not want to go forward with this. At this point she told me that they sent out the application and if I don't sign it and go through with the process, then he will definitely lose the SSI payments that he gets now. They said they've seen this happen before. Can they really do this lawfully? Is this true? I'm afraid what the stress of all of this will do to him and to me.  

Thanks for your help.

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Thanks Donna November 30, 2011 5:09 AM

Thanks Donna:

Thank you for posting these links for people.  It is good that people understand that if they are able to get SSI or SSDI or even both in some cases, that if they have any children under the age of 18, those children than are able to collect SSI benefits up until the month they turn 18.  Only if they are disabled and could collect SSI on their own would it continue past that time, but it would come to an end if they ever were to get married, then it would end in the month of their marriage.

Michael B.

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ssdi and ssi September 01, 2011 7:42 AM

Hi Michael, my oldest son is disabled and has been since he was at least a toddler.  He is under 25; but, doesn't qualify for SSDI because he has no work history.  He gets SSI.

When I first started my application for SSDI benefits, my DSHS case manager encouraged me to also apply for benefits for my 3 sons.  My youngest son was approved with the initial application.  It wasn't until several months later, when he saw a specialist, that my son was given the autism diagnosis.  He started getting SSI.  At some point,  when I was on a phone interview with the ajudicator, I was told that he was also eligible to receive benefits off of my SSDI.  So, he started getting that payment as well.  However, the total of the two payments was not more than what he was getting with just SSI alone. 

I found some web sites that explain the difference between SSI and SSDI and how a person with disability qualifies for each. 

Can I copy the web site links here?

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 September 01, 2011 12:38 AM

Hello Brevin:

Thanks for coming to the group and looking for information on your childs father and his possible ssi and or ssdi. If he did become disabled before the age of 25 and has filed for benefits, he would not need any credits to get SSDI for 25 is the cut off age at where credits begin to be manatory.  I would ask him though if he has applied for SSI and or SSDI.  If not, he should apply right away.

There is some good news here and some bad news.  The bad news is that even if he applies and gets approved, you would not be able to force him to pay you a set amount for child support or garnish his bank account because Social Security Benefits can not be garnished by anyone other then the Federal Government themselves.  The good news is that if he can get approved for either SSI or SSDI benefits, then as long as you can prove that he is the father of your child, then the child will automatically get SSI benefits each month until he/she reaches the age of 18 unless the child becomes disabled before the age of 18.

Michael B.

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thank u July 31, 2011 8:12 AM

i guess i should call social securety department but i think thats a lil premature im unsure what kind weather its ssi or ssdi thats hes trying for hes not approved if im not mistaken he hasent signed up yet n as far as his working past my son is 2 he has not worked in them 2 yrs n hes under 25 the last job i know of him having was right before i got pregnant n then he would have 22 ish so not alot of working credits i just feel like im getting screwed .... its not far he help make this child he should have to help raise him w support right ssi or ssdi or not but i seriously apprecheate u talking to me no one else will n i need somthing or someone to at least make me feel better about this mess

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thank u July 31, 2011 8:12 AM

i guess i should call social securety department but i think thats a lil premature im unsure what kind weather its ssi or ssdi thats hes trying for hes not approved if im not mistaken he hasent signed up yet n as far as his working past my son is 2 he has not worked in them 2 yrs n hes under 25 the last job i know of him having was right before i got pregnant n then he would have 22 ish so not alot of working credits i just feel like im getting screwed .... its not far he help make this child he should have to help raise him w support right ssi or ssdi or not but i seriously apprecheate u talking to me no one else will n i need somthing or someone to at least make me feel better about this mess

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child support July 30, 2011 8:48 AM

Blevin, if your child's dad was working, of course, the state would be able to garnish his wages to get child support.  I only get $41/month for my son and it's because the state is garnishing my ex's wages.  But, at one time the back pay was over $3,000 and the state took it out of his tax refund.  I never saw any of it.  SSDI is like an insurance program which working people pay into their entire working lives.  While they are working, they are earning something called work credits.  They have to have a certain amount of work credits to qualify for SSDI.  The insurance that goes with SSDI is Medicare. 

SSI is something that is awarded to people who are disabled who do not have enough work credits.  Medicaid is the insurance that goes with SSI.  A child of a disabled adult can get some income benefits from SSDI; but, not SSI.  Call the Social Security Administration.  There is a toll free number listed in most phone books.

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replying July 30, 2011 6:40 AM

thanks i didnt know if anyone would help and info is a great help no though im not his father has epilepsy and has been able to work before but since my son has been in this work n thats been 2 years he hasent worked so child support has racked up to lil over 5 grand n now his epilepsy is gotten so worse that he cant work so now my sons father is going after ssid or ssi still unsure whats what mean while ive been told many diffent storys telling me that i cant get any of his fathers ssi or ssid for child support that they dont make him pay anything when hes on ssid meaning im all olone taking care of him with no help from his father n another story ive heard was that id only 50 bucks which the child support he was suppose to be paying to before was 2 hundred something so thats a far cry from 200 then other people are telling me that i can draw from his ssid for my son im worried n dont know what to do n free lawyers are hard to get in ohio n i work as a factory worker n i go to school money is already tight

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REPLYING July 30, 2011 6:34 AM

thanks i didnt know if anyone would help and info is a great help no though im not his father has epilepsy and has been able to work before but since my son has been in this work n thats been 2 years he hasent worked so child support has racked up to lil over 5 grand n now his epilepsy is gotten so worse that he cant work so now my sons father is going after ssid or ssi still unsure whats what mean while ive been told many diffent storys telling me that i cant get any of his fathers ssi or ssid for child support that they dont make him pay anything when hes on ssid meaning im all olone taking care of him with no help from his father n another story ive heard was that id only 50 bucks which the child support he was suppose to be paying to before was 2 hundred something so thats a far cry from 200 then other people are telling me that i can draw from his ssid for my son im worried n dont know what to do n free lawyers are hard to get in ohio n i work as a factory worker n i go to school money is already tight

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re: still don't know what to do July 28, 2011 9:38 PM

Brevin, I'm having a bit of trouble understanding what you are asking in you previous post.  Are you on SSDI?  I am on SSDI, my 17 year old son gets a small payment off of my SSDI.  Of course, that income does affect his SSI.  

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still dont know what to do July 28, 2011 8:37 PM

from the previous post of i dont know what to do writen last saturday did the discussion end or does noone have any advice for i need some im worried and lost

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dont know what to do July 23, 2011 1:45 AM

I am 26 years old college student whom also holds down a factory job for 6 years and I have a 2 year old with a father whom has a order of child support out since my son has been 1 I didnt start the process right away because i knew he would be a deadbeat n there was nothing i could do but soon quicly found out it is hard with one income from myself living in the basement of my parents house. I then fileled the papers n started the process when he was 10 months n it got finalized  oct 2011 meanwhile i got rewarded back support n so he owes 5,459.54 n has never made any payment not even after it was final (other than the 200 his granny paid to help me out while he was in jail) n i had every intention on putting this in to a starting of a college fund for him id rather struggle a little n make a future for him n make his life not be like this when he is older. meanwhile i just got wind that my sons father is now appiying for ssid for the epilepsy hes had all of his life but its got so bad n  now so bad hes unable to work at all not that he would work if he even could.i am unsure of what to do child support says they cant enforce the order if he is on ssid  n neither will the court n so that to me means pretty much do it on your own or live off welfare im not against welfare but thats last resort option for me, its getting harder n harder as he gets older , the father has not seen him in 8 months n dont help at all n my son is 2 n his father has had a baby n another on its way pretty much he can make them but cant take care of then . i know i sound horriable saying this but even when the father could have worked to provide he didnt n wouldnt n now hes getting free ride in life n is telling me that Traylin (thats my sons name) is not gonna get anything, (meaning any kind of support) im not never getting the back support, n that he didnt work enough in his life for my son to collect any kind of money through his ssid. i feel my son is entitled to somthing i didnt make this kid by myself. please help  [ send green star]
 June 12, 2011 3:10 AM

Hello Carmen:

If you got a notice that your bank account had been set up, then you should have received a notice of approved case, as they don't set that up until after you have been awarded approved case.

Michael B.

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SSDI May 06, 2011 4:07 AM

I applied for disability in Sept 2010 and was denied, I then filed an appeal and hadn't heard anything back. However, I did receive a letter stating that my bank / direct deposit info had been processed. Does anyone know what that means? I'm really hoping that it means that they are going to approve my case. In case anyone is wondering, my disability is brain cancer.

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Hi still trying to figure this out March 31, 2011 12:20 AM

Hello all and what a great sight, I was diagnosed with a disability that takes me out of the work force, I am not happy about this, and have tried to make the best of it like all of you I am sure.   My son is not disabled, but I am, I lost my husband due to divorce and need to find out if my son can receive any benefits, I was told that he is not eligible by social security, but when I read some of the posts it sounds like he is, would someone please clarify this thank you so muhc, also how do I upload a photo...thanks to all

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SSDI and SSI March 30, 2011 11:04 AM

I just went through this last year with my 17 year old son and his SSI benefits.  The adjudicator told me that he would be eligible for benefits off of my SSDI.  He is already on SSI for his disability. 

She said that it would give us a little more income.  However, the SSDI income that he gets now is deducted from the SSI income that he would be getting if he were not getting SSDI. 

So, the total income that he now gets is the same as what he was getting when he was just getting SSI.  Remember that SSI is income based.  All income that comes into a family is counted to determine what SSI amount is paid. 

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Hi question about childrens benefits March 30, 2011 10:54 AM

Hi I read in one of your older posts Michael that o SSID you can get support for children?  I have been told over and over again by SS that that is not true, could you please advise me of where I could get the information you are getting because now my son will be 17 and I am not getting that info thank you

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 February 25, 2011 5:35 PM


Thank you for your question.  When you call Social Security, you will tell them that you want to apply for both Social Security Disablity and for Supplemental Security.  They will ask you some question, please answer them to the best of your ability.  Also you may want to have your doctors name and address and phone number handy. 

Once you have done this, they will send you the application in the mail for you to sign.  Make sure you sign it and send it back right away.  Keep a file on dates of when you have sent thinks back to them and also any and all doctor visits you have between that time and when you are approved for benefits, this will help if they want updated information.

Please remember that most people are denied the first time around, but do ask for the reconsideration if you get a denial right away.  At that time you may want to seek help from a lawyer who specializes in Social Security Cases.

Michael B.

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New to the ss life February 05, 2011 7:10 PM

Hi. Iam a 36 old man who has lost a lot of my centeral vision  . My  doctor said when i sign up for ssd to just give them his card because whatever i give them they will want something else . I see that everone has a different term what i would like to know is term that i need to sign up for. Ihear the horror stories and i am not a lawyer fan and want to do this on my own and not mess up. ALL HELP IS GREATLY ACCEPTED.

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SSI December 27, 2010 1:45 PM

My daughter turns 18 in May and we were wondering what will happen with her SSI payment.  She is currently studying to get her GED and will be going to the community college in the fall (2011).  Also, what about her health insurance coverage (medicaid)?  Her medicines are over $3k a month and I am starting to get worried.  She doesn't work and I am single mom of four earning about $29k a year.

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 December 23, 2010 1:14 PM

Hello Vincent.

When you are getting SSDI it is always based on only one (1) persons account, and it will always be the one who has the highest amount available thus you get the highest amount of money that you and your family would be eligible for.  If at anytime you feel that the other persons account would be higher you can always call SS and they will look into it and make any changes if you are getting a smaller amount then what is due to you.

Michael B.

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 December 23, 2010 1:10 PM

Group History  Tuesday, 1:07 PM


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SSDI November 22, 2010 5:48 PM

Both me and wife recieve SSDI, we have 4 children, I was wondering how family benifits are calulated. I understand they go off the higher of our 2 incomes, but does my maximum family total go up because we are now both disabled? Or is it still based on 1 income only?

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Represenative Payee June 28, 2010 4:46 PM

I've been on SSI for years now ( living with depression) and I've had a payee who was (my aunt) abusing my benefits and lying to me and SSI for years. As for an emergency effort I had my grandmother become my payee. She's unable to do it now. I was told before that I didn't need a payee because I'm not 17 years anymore, I didn't take the offer because I didn't know enough about SSI to do it on my own. Now I've obtained enough understanding, now their saying that I need a payee and that I need a doctors note to have her name taken off. I just want to get my life on track and take care of myself. No one can take care of me but me. I wasn't allowed to see a doctor for years, I just started seeing a dentist. My social number has been ruined by my family from them using my name and social for utilities, cable, phone and not paying for it. I have bad credit and never had a chance at life. I need to fix their mess myself, but I need her name taken off my checks first. Where to obtain a doctors note? I can't even afford one and the one's around where I live don't take Masshealth. What should I do? I just want to live my life now and get away from these people that abused me and get the help I needed.

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 June 11, 2010 1:51 AM

Hello Amps:

Thank you for your question.  This is one that can be very difficult to do much about.  What I would do to start with is to call your local Social Security Office and find out who her worker is.  Talk with this person and tell them what is going on.  They maybe able to switch things back into your name under these conditions.  If not, I would then contact the local or state child abuse line.  They do also handle adult Disabled and Elderly cases and report what you feel is going on and they can look into this.  It is always good to have them reporting this to Social Security also.

Keep us posted on what happens.

Michael B.

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just turned 18 and on ssi May 29, 2010 10:38 AM

can someone please answer

my daughter just turned 18 met her boyfriend barely 2 months ago moved in with him. took me off as her  payee and now her boyfriends mother is the payee. there stranger,s and she young what can I do. because the way I see it there just trying to take advantage of her pls help

This post was modified from its original form on 29 May, 10:41  [ send green star]
 March 18, 2010 5:06 PM

There is hope Tuesday, 11:59 PM


Because the process takes sooooo long, & most are denied 1st round, I wanted to update the Group.  I was approved 1st time (thank God).  So it can happen!

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Group History FYI Wednesday, 12:12 AM


Sorry, approved for: SSDI, Social Security Disability Insurance.  New York State.  It is still a long process and demands time/work from the Applicant.  Nothing comes easy!

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 August 17, 2009 11:04 AM


First of all, I am so glad that you were approved when you filed the second claim.  As you have seen, it does take a long time with each step, and this is because so many people are appealing their cases, including thousands of people who really are not eligible.

I am sorry to have to tell you this, but this is the way the system works.  When you first apply for benefits, if you are denied, you can appeal the denial like you had been doing, all the way up to appealing in Federal Court.  But if you are tired of waiting and you go and file a new case then your old one is automatically cancelled and will go no further.  So in your case, the old case has been cancelled effective the date you reapplied.  So your lawyer gave you false information, and if he/she were a expert in Social Security Cases, they should have known that before telling you to reapply.  So know your back pay can go no further then the month you reapplied unless the Judge at the Administrative Level approved for it to go back any further, so know that you have been approved, your benefits go back no futher then what you have already got.  You old case if not been done already, will be cancelled and not heard before the Federal Court.

Michael B.

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This is what i have been told August 12, 2009 8:06 AM

I told you that my lawyer had me filed a new case, because my old case was finally going to federal court. Which is the final step. My old case went too federal court and my lawyer had me do a whole new case, while the other one is at federal court. I was told federal court could take as long as 2 years before i hear anything back. I did a new case in 2006 to 2008 and the new case was approved. The thing i was wondering about first my lawyer that had me do a new case said the federal court was waiting to see what happened with this newer case to determine the older one. Nothing new as in information for my newer case same as older case. I was told first if the newer case went through the old one would also. Well that isn't the case.

The old case wasn't approved again. So its still heading to federal court and there's about 1 more year for me too wait to hear back on it.

the papers i got saying it was denied was all lies. I mean  complete lies and there were people i never spoke too one thing that i found hilarious was i fought verbally with someone and said he was savy and bias cause he also worked for SSI.. some lawyer. Funny thing is i never spoke too this man, and savy isn't a word that i would use...A-hole would be somehting if you new me would be coming out of my  mouth. I mean it's hard for me too understand how they can make up lies to suit them, when we have to be so honest when filing for this. It's not fair. They should be held accountable for their own lies.

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 August 01, 2009 3:57 AM

Hello Jill:

Sorry it took so long to get back to you.  In most cases like this the extra money that you are missing has gone to your local department of Human Services (Social Services) to pay them back for any money you got from them while you were waiting.  If you did not get any money from them, then they will be sending you a check very soon for the difference.  I would check with your food stamp worker to see if they got a check from Social Security.  If not, I would go down to your local Social Security office and take your letters with you and tell them that you have not recieved all the money they showed you were due in back pay.   You might also check with your lawyer to see if they may have gotten it as extra money to help pay for any medical bills you had outstanding as this might also be a possiblity.  Although they should have told you this.

Keep us posted.

Michael B.

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Can Someone out there please help me .I have exhasuted all my options! I recieved my award letter and won my case on May 15th 2009. I had waited in the state of Az for 3 yrs my award letter  said my backpay was $28.934 . I have recieved my first check in which was for $323.60 and a check from SSD for $10,392 and $5300.00 was paid to BINDER&BINDER . I was homeless and had no income for 4 yrs . I a have recieved 40 different letters and been told 40 different things regarding the rest of the money for backpay .I am being told SSD sent $5300.00 to my attorney and $323.60 and $10,392 to me and the rest went to SSI to payback anything .I have recieved while I was homeless which was just 200 a month in food stamps and I went to my local office and they are saying .I don't recieve the rest of the money not one letter or person I have tallked to has been correct. I have no idea what I am supposed to do. Please someone help Thanks Jill   

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Can Someone out there please help me .I have exhasuted all my options! I recieved my award letter and won my case on May 15th 2009. I had waited in the state of Az for 3 yrs my award letter  said my backpay was $28.934 . I have recieved my first check in which was for $323.60 and a check from SSD for $10,392 and $5300.00 was paid to BINDER&BINDER . I was homeless and had no income for 4 yrs . I a have recieved 40 different letters and been told 40 different things regarding the rest of the money for backpay .I am being told SSD sent $5300.00 to my attorney and $323.60 and $10,392 to me and the rest went to SSI to payback anything .I have recieved while I was homeless which was just 200 a month in food stamps and I went to my local office and they are saying .I don't recieve the rest of the money not one letter or person I have tallked to has been correct. I have no idea what I am supposed to do. Please someone help Thanks Jill   

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 June 03, 2009 8:52 AM


I am sorry to hear of your problems with your case.  I am glad that you finally did win your benefits although I don't totally understand what you were talking about in for the length of benefits.  Were you saying that you only won back benefits from 2006 to current and will not be getting any more, or are your benefits going to keep coming now? 

If you will be keeping your benefits going, then your lawyer gave you false information.  As once you have filed for a new case, your old case is automatically cancelled and can not proceded any further in appeals.  So as to fight for benefits for the years before 2006, you will not be able to do now.  We can only be glad that at least they got your benefits started if you get to keep them going and that is what it usually means when the award letter says through current.

Just for everyone else's information that is waiting for a hearing on their benefits.  This is very important, even when you have a lawyer, when your hearing is scheduled they will tell you to come in at least 30 min before your scheduled hearing time so that you can review your file.  It is important that you do so that you can find anything that is in your file that you do not agree with so that the Judge can be told before the hearing gets started that there are things in your file that you disagree with and they can go over those things and get rid of any that can not be verified.

Michael B.

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 May 24, 2009 10:38 AM

Same story here.. 25 pages of lies, twisted truths and manipulated statements in the 1st denial.

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won new ssi case, but lost old one May 24, 2009 8:25 AM

Applied for SSi back in 1991, and never stopped. i was only 21 years old, suffering from back problems, depression, and mood disorder, through out all the years i struggle from job to job, lasting a week at some too 3 weeks at others, with taking a few days off here and there.
here' the thing. i was denied several times, and finally in 2006 being denied yet again by the third law judge, i was told by my lawyer too file new case the old case would be going to Federal court. so i did. and what do you know. I was approved. but only from 2006-2008 current . this is my problem here. the old case was denied and it's a whole bunch of lies, first off they are only going back from 2001-2006  most of the doctors on it i had seen before those dates, some i have never seen nor spoke with. and then the doctors that i have seen that are important are not anywhere in the case. the one who Diagnosed with Fibromyasia, and many other things in the last few years. but the case i wanted approved because it was for years wasn't. and now it's going back too federal court too fight it. I am upset that they would make up lies because they don't want too pay. the newer case went through and the old one didn't. and i think it's all because of money issues.

 [ send green star]
2010 pay increase May 23, 2009 4:35 AM

Hello Everyone:

Just in case you have not heard, it looks as if for 2010 and possibly 2011 we will for the first time not be getting a pay increase in our Social Security Checks, even though for some, they will be receiving a increase in how much they pay for Medicare each month, so in fact you would be making less next year then you are this year if this should happen.  Some who have a small income though will have their medicare premium froze at the current rate for 2010 at least. 

This is all because of the recession we are in, so the cost of living has not gone up, but has gone down in most areas.  At least they can't take away from us when cost of living goes down other then by raising the cost for Medicare for those who have to pay.

Michael B.

 [ send green star]
 March 31, 2009 1:29 PM


The current 24 month waiting period beings the month that you first receive your first regular monthly check.  So if you get your first regular check in April of 2009, then your 24 month waiting period will be up and you will get Medicare in April of 2011.  Lets hope that Congress will make this change  to Social Security this year to end the 24 month waiting period, and if they do, then you should get Medicare within a few months from when that happens.   They at least are talking about it, so do write to your congressman and represenative to tell them to vote to end the 24 month waiting period.

Michael B.

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 March 29, 2009 1:37 PM

Thank you for responding...I feel much better knowing that!  Before my medicare comes up I will have to email you back on how to keep medicaid and get medicare...but that is awhile from they go by the date filed  for your disability or does the 24 month mean upon receiving 24 months of checks?  I was approved the first time but after the dd approved it, it was flagged and sent to Atlanta to a doctor review so it took longer the first time to be approved

 [ send green star]
 March 29, 2009 12:50 PM


As long as you are on SSDI, then your children should be able to collect SSI benefits until the age of 18 or 19 if still in school.  You will have to apply for this once you start getting your checks.  The amount they will receive will depend upon the total income coming into the household at the time.

Also, know that you have been approved for SSDI, you should be able to get Medicaid to fill in until your Medicare starts.  You will have to contact your local Social Services Department to apply.  In some cases some folks are able to even keep their Medicaid once there Medicare begins.  Myself, I have both Medicare and Medicaid.  At least Medicaid will pay for some if not all your medication with some co-pays.  I do hope that congress will change the rules so that people will not have to wait the 24 month waiting period anymore so that your Medicare can begin soon.

You should also be able to get food stamps also, check with Social Services on that and any other programs that your state offers for those who are disabled.

Michael B.

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Social Secuirty Disability Benefits March 22, 2009 9:35 PM

Hi, I live in Florida and was approved for SS disability the first time.   I have Lupus and a very severe lung problem.  They gave me ssi upon review of my medical records before they approved my reg disability based on medical requirements.  I couldnt use it because my husband made too much.  I just received my award letter.  My husband and I are divorcing and my question is someone told me I can get money for my kids this based on regular disability or ssi.  I will never qualify for ssi because my disabililty is 1200 per mo plus i will have child support but I got a letter saying my husband and i didnt qualify for medicaid (or medicare cant remember)  but my children i pay a premium for that.  I dont know if I got this based on ssi or an application filled out in the hospital because I end up in the hospital for a week once every 3 months pretty much.  with no insurance.  Will I qualify for anything when I move out.  I know I get the medical after 2 years but my meds are over 400 a month plus doc visits and I have to go every month because I get sick alot.  I am scared and trying to figure it out.  I need lung rehab but no one will even look at me there unless I have medicaid or medicare.  SS has my review for once every 5 - 7 years as they say improvement is improbable.

 [ send green star]
 September 20, 2008 1:52 PM

Cool,ty Michael,so does this mean i will get backpay from S.S.I. and S.S.?

This post was modified from its original form on 20 Sep, 13:55  [ send green star]
 September 20, 2008 10:30 AM


If you have applied for SSI and have been waiting and finally get approved, yes, you get back pay all the way back to the month that you first applied.  If you got any money help through your local Social Services agency during this time period, your back pay will go to them first and they take out what they have given you while waiting and send you the rest if any is left over, otherwise the check will come stright to you.

Michael B.

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BACKPAY FROM S.S.I?? September 12, 2008 12:56 AM

Do i get backpay from S.S.I.??

 [ send green star]
 August 25, 2008 10:30 AM

Congradulations Derek:

This is just the very reason we tell everyone to not give up when you get a denial notice.  Keep fighting to the next step, until you win your case.  And usually better to get an attorney who specializes in Social Security Cases, and don't worry about the cost because they only collect if you win and then only get 25% or $4,000 whichever is less.  So it is well worth the help of the attorney.

Michael B.

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I won My SSDI case August 17, 2008 1:15 PM

I went to trial on July 24th in Cleveland OH with my attorney.  We went befor the judge and he was really nice.  We went over my case and in the end he said i won my case.  my attorney said I needed a Payee and the Judge said the VA was to be my Payee.  ( Becuase I am a vetren and get all my care there at Bay Pines In St Petersburg FL) I still waiting for my letter and my backpay.  I also get a disability check from the VA for them hurting my knees while I was in the service.  I get 50% (728.00) from them. It took me four years to get my case heard so it is a game of patience to get it.  Fight all the way, get a good attorney, and wait is all I can say.  Good luck to everyong trying to get SSDI or SSI.

 [ send green star]
 March 27, 2008 12:39 PM


Thank you for asking a great question that would be so helpful to many who may just be starting out on Medicare. 

For those who will be starting on Medicare for the first time, you will be eligible for Medicare Part D when you Medicare begins, and you can set up this benefit in advance so that on the date your Medicare begins, so will your Medicare Part D plan.  To find a plan that is best for you, you can go to the following site and find the information you need there.

You will also find a lot of other information about Medicare at this site.

You can also find information at the regular Social Security Web site to, but I found better information at the Medicare web site.

Michael B.

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 March 27, 2008 12:27 PM

Hello Beth, and thank you for your question.

In deed what you have been told is correct.  When a married couple are both disabled and able to collect benefits, then just as their is a limit of how much a single person can make their is a higher amount that a married couple can make, and in your case when both of you are collecting, then you can only get the amount of a married couple, so they would use your SSDI amount and then from there, take the full amount allowed by law and each of you would get half of that amount in SSI benefits.  This would also apply to both of you if you were both getting SSDI benefits, for a married couple both getting SSDI benefits can only get so much per month.  The only way you husband could get more in his benefits amount would be to divorce you, then you could live together, but collect as single people.  This is one of the reason there are a lot of people who do divorce or don't get married in the first place when both are disabled because of how the system works against us.  This is something that we are trying to get congress to work on and get rules changed so that someone elses income will not count against us.  I sure do hope in time that we can get this passed and into law.

Michael B.

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I am on ssd and ssi and my husband is on ssi March 26, 2008 1:50 PM

I have been disabled for quite awhile I do get SSD and SSI . My husband gets ssi but he can only get 211.00 per month as they say that when a couple is disabled they are only allowed so much. Because I receive the two they split the ssi in half. This isn't fair he should get the entire amount. We have just as many bills as anyone else. If anyone out there knows about this matter please let me know. thank you

 [ send green star]
SSDI March 26, 2008 10:43 AM

Thanks! This is good information in this thread! Peace and blessings to you and yours, John H. Pieper, OblSB 651-330-4849 Artist/Actor Interact Center for the Visual and Performing Arts http:/ --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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Hi March 26, 2008 10:22 AM

Hello Michael, I would like to thank you all for your support. It has been a true blessing to see that we are all here for each other... I did have one more question, where do I go to see the different medicare D plans? Well should any of you need my help please let me know. I'm so happy to be a member of this group and help and support others in their disabilitie(s) cases... Sincerely, Zero Cool P.S. Yes, Michael It's a true blessing that I get Medicare in September... Amen!

 [ send green star]
 March 26, 2008 8:07 AM


That is great news.  I am so glad to hear that you will not have to wait the full 24 months and get to start Medicare in September.  Now though would be the time to start looking at all the different plans there are for Medicare Part D program so that when you get your Medicare Card you can then sign up for Medicare Part D and have it all set in advance so that you can use it in September to fill any of your prescription needs.

If we can help you any futher, don't be afriad to ask.

Michael B.

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Hi March 25, 2008 4:21 PM

Hey there Michael,

  The guy that I spoke to said my medicare would start in September... So, I guess they figured I was disabled in 2006, which is two years, plus 6 months sense the day I was accepted... Thanks for your help and Frank and everyone...

Zero Cool

 [ send green star]
 March 25, 2008 9:20 AM


When it comes to Medicare, in most cases the 24 month waiting period begins when you first start getting benefits, not the date they went back to as the onset date.  There are some cases in which they will start some right out but this is in very limited cases.  In your case, I believe that your Medicare will begin 24 months after you get your first check.

Michael B.

 [ send green star]
Hello March 25, 2008 1:32 AM

Hi everyone,

  I had a quick question. For SSDI they specified the onset of my disability as of 03/02/2006. So, does that mean I also qualify for my medicare benefits, because it's been over to 2 years or do they go by when you applied for SSDI?

Zero Cool

P.S. Sorry to hear about your 177.00 SSI payment. I'll be praying for you and hopefully, you'll receive more pay.

 [ send green star]
 March 16, 2008 1:11 PM


I can only hope that the letter they sent you about back pay they owed you is still in your file as that will work in your favor.  Generally in a case like this the only thing that would and should keep you from being approved is not having enough work credits which apply for SSDI and not SSI.  As long as you have enough credits for SSDI, and you have SSI already, then you should be approved with no problem.  The case would then be left up to the ALJ on how much back pay they would have to pay you.

As for your children, if you get on SSDI, then you will have to apply for benefits for your children.  They generally would get SSI benefits up to the amount allowed by law.  Of course this would give them all medicaid benefits also, and you should have no problem getting them approved for benefits when you have SSDI and SSI both or even just SSDI, as depending on how much your SSDI benefits will be your SSI will be reduced or stopped.

Keep us posted as how it goes for you and we will all keep you in our thoughts and prayers.

Michael B.

 [ send green star]
 March 14, 2008 7:28 PM

Karen, I will wait for someone to answer who knows more, but I will say I can relate! And best of luck to you in your upcoming hearing.

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SSDI Hearing coming April 2, 2008 March 09, 2008 9:23 PM

Hi all. My name is Karen and I am soon to be 28 years old. I am new to this discussion and I have a long story to tell so that I can perhaps get some insight before I go before the ALJ. I was diagnosed with Bipolar disorder, OCD, major depression, and I suffer from Brochial asthma since May 1997. The psych hospitals I was in and out of most of my teen years applied for SSI and SSDI for me. By the time I moved from NJ to NC, I was denied SSDI but received SSI.

Fast forward, I have been working jobs here and now with my longest job ever being 3 years. That was only because the boss was really patient with me. Anyway, back in Nov. 2005, I received a letter from SSDI saying they owed me a bunch of money. My mom and I went there as scheduled and suddenly I get a letter saying I was denied because my 5 year statue of limitiation on my denial had passed in 2003. This is all confusing to me because they were the ones that contacted me saying they owed me money.

Now, on top of my bipolar, depression, asthma, and OCD. I suffer from extreme anxiety, ADD, borderline personality disorder, and I'm clinically obese. I was denied SSDI and in August of 2006 I waited for a judge. Now, I have one on April 2, 2008 and even though I have a lawyer, Im really scared because I dont know what to expect. I really need to be approved because I cant hold a job down and making ends meet has gotten so bad that I often thought of ending my life except now I am a mother of 3 year old twins and I need to make it for them. So, my question is, being that this statue of limitations passed, what are my odds of being approved? I know they won't give me back pay from May 1997. Also, if Im approved for monthly disability, will my children get it also? Thanks for taking the time to read my story. Did I mention I was nervous?

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 January 13, 2008 3:40 PM

Sharon.  This is correct, and it is done that way in every state.  At the hearing there will always be a person who works for the state department of Vocational Rehabilition there to defend Social Security at your hearing.  Their job is to try and prove that you are not disabled under the Social Security rules because there are jobs out there that you can do, and they try to prove this fact.   This is why it is so important that we always attend our hearings.  You do not have to attend your hearing, and just let the Judge make the decision, but it is always better that you attend the hearing, because at times, just seeing you can prove your case.

As far as using Legal Aid services.  One of the main things here is that in most states, Legal Aid does not even see those people needing legal help for Social Security Cases.  They will just refer you to someone in your area who does, so when they do have someone working with them at the time who does specialize in Social Security, that is good. 

Michael B.

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 January 13, 2008 10:10 AM

I don't know if legal aid is different from one state to another. I had a lawyer from legal aid. There weren't any causes for her to bring anything up in my hearing. The Judge talked to me and that was it. They have an occupational person in the hearings, that will mention jobs you can do. How did your lawyer handle that Echo? The first time I paid a lawyer, and he had to come up with reasons, I couldn't do certian jobs. He was very good, at his job, his Law Offices, strictly did Disability. They will give you a free consultation. If you don't win the next appeal, do you have to start all over from the beggining? An Attorney will look at your case, and take it depending on if they feel you'll get declared disabiled. I would try some free consultations, and at least you'll get an idea, of how they would handle your case.  [ send green star]
 January 12, 2008 9:35 AM


I can not tell you if you need to change lawyers or not.  I can only tell you from experience of what I know of others.  The fact that Legal Aid does only charge you a fee depending upon your income, these lawyers tend to not work to help you as much as a lawyer who knows they will get a certain amount when you win your benefits.  And they want that money, so they will try even harder to make sure that the rules are followed and they get as much evidence turned into the Judges office before the due date.  From what I have heard from others over the years, 90 percent of those who used a lawyer from Legal Aid lost their cases, but won their case soon after changing to a lawyer who specialized in Social Security Cases.  This is the main reason why I always suggest to anyone who is applying for SSI or SSDI, that once they have gotten a denial at the reconsideration level, then get a lawyer right away and have the lawyer file for the hearing for you.

At least the most important thing here is that getting a lawyer in these cases, you don't have anything to lose, as if you don't win your benefits for whatever reason, the lawyer can not charge you anything, not even cost, and when you do win your benefits, they only get 25% of your back pay benefits or $4,000.00 which ever is less, plus cost, which in most cases is less then $100.00, so you still end up with around 74% of your back pay benefits to yourself by the time you pay the lawyers bill.  And these lawyers know all the rules forward and backwards, as where a lawyer who does not specialize in Social Security does not always know these rules.

Michael B.

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 January 10, 2008 2:33 PM

Michael, I am using a  lawyer from a legal aid, I was thinking I needed a more aggressive lawyer, b ut the aid jsut approved me again to represent me again because they could not believe i was denied, so I guess I just dont know what to do.

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 January 10, 2008 2:20 PM

Sharon P says

"The worse thing, is sometimes, they loose your information anyhow. "

This is sometimes very possible, and is exactly why you and your lawyer should always show up for your hearing at least 45 minutes early.  As they always allow you to review your file before the hearing.  This way you can make sure that ever report that you want used to make the decision is in your folder.  If something you know was sent to them but it is not in your folder, you then have time to work with the people working in the office to locate those reports if necessary, and of course the lawyer should have copies of them with him/her so to make more copies to add to the folder if needed as they usually date all documents on what date it was sent to the Judge to prove that it was sent in time to meet the deadline.

As you also said, the system needs a lot of changes, and that I agree with also.  Although I would agree that things should not be changed to go back to the way things use to be so that a lot more people who really do not meet the requirements were being approved benefits.  This is why a lot of these changes were made to stop this from happening.  Of course it only made it harder for those of us who really do meet those requirements to get our benefits.  Who knows what the answers will be, but improvement is in order, that is for sure.

Michael B.

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 January 10, 2008 2:06 PM


I am sorry that you had this problem also.  I had the same problem when I was applying for my Social Security Benefits, yet it was at the hearing level that I finally won my benefits, and had the Judge say right at the hearing that he knew the only way I had been denied the previous 2 steps was because they were not reviewing my medical file in its entirety, as if they would have, they would have approved me as I met the rules in his opinion, more then 100 percent.   Some of this problem I believe is caused because there are so many people applying for benefits and so little people working to approve and disapprove these cases that they don't have the time to review everyones file in its entirety, so they take bits and pieces and then make a decision.  It sounds like to me that you had a Judge at the hearing level who did the very same thing and that is a shame.  It is because of reasons like this that I always tell people to use a lawyer, and of course not to use a lawyer from Legal Aid, but to use one that specializes in Social Security Cases, as they know the rules better, and will usely try harder at putting all the important issues of your case together to make it easier for the Judge to see all of them quicker without having to read through the entire file.  But in some of our cases, it is more important to get the Judge to review our files in their entirety to see that we really do meet the requirements to get benefits.

Michael B.

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 January 10, 2008 6:29 AM

I'm sorry, you got an unfavorable decision, Echo. You still have an appeal, you can do. The letters, I received, prior to my hearing were like that, though. It's very frustating.  [ send green star]
 January 09, 2008 7:30 AM

Here is one of about 100 examples I could give.
I told them that I didnt want to be all doped up on pain killers in the afternoons because I have to take my kids to and from school. So they said that because I refuse to be on high MG pain meds 24 hours a day, that I must not be in THAT much pain!

And it goes on and on 50 pages of this stuff, its just unbelievable!
 [ send green star]
 January 09, 2008 7:28 AM

They also twist and misconstrue statements, I am in utter and complete shock at the 50+ page unfavorable decision letter I just receive twisting facts and misconstruing evidence, dismissing my family doctor's statement, dismissing the statement from their own doctor they sent me too, its simply UNREAL, even my lawyer could not believe it!  [ send green star]
 January 09, 2008 6:42 AM

You used to be able to present new information at your hearing. I haven't kept up with this at all. The worse thing, is sometimes, they loose your information anyhow. It's a system, that really needs to be altered. Last time I got SSI, I was eligible for Legal aid. I didn't have to pay the 1/3 fee Lawyers get. It needs to be brought up in Congress, get in touch with your Senator. Maybe get a petition going, and present it to Congress.  [ send green star]
 January 08, 2008 9:45 PM

Michael B.

Group History  9:08 AM

That is alright Susan.  Sometimes we all do read things in the wrong way and it can happen even more when in cases like these where a proposed change is being asked for and we don't totally understand the way the rules are currently that are being used. 

So as of right now, you do have up to 30 days before your hearing to submit new evidence for the Judge to review before or at your hearing, but if you have new evidence and it is less then 30 days before your hearing, if you want to use it, then you have to cancel your hearing and re apply, theirby losing all of your possible back pay if you would have won your case without it.   So this change would at least give people up to 5 days before the hearing to have the new evidence used.   LIke I said, it is a place to start and I sure do hope that even in the near future that we can get even that 5 days dropped so that you can submit it at the hearing and have it used.

Michael B.

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 January 08, 2008 9:44 PM

Susan H.

Group History I think I agree Sunday, 8:06 PM

If the only change is moving from 30 days to 5 days, that indeed is good news. The way I read it (and it would not be the first time I got something wrong) was that any new information would cause you to go back to the beginning instead of being accepted later as suplimental information.

It is difficult enough to be part of the process, and almost any change would be good ... especially if they do hire more people to expidite claims.

 [ send green star]  [ send green star]
 January 08, 2008 9:43 PM

Michael B.

Group History  Saturday, 2:58 PM

I do believe that most the SS rules need some really good changes in order to make it easier to understand the rules and to help those who really are eligible for benefits get their benefits in a much more faster time period.   This is something that we have to keep working on and pushing for with our Congressmen and Senators.

But with this change that is trying to be made right now, I just can not see how any person or any organization can be complaining about this change.  It is a change for the better, not the worse.  I could see it if they were trying to change it so that all new evidence had to be into the hearing Judges office unstead of 30 days, to 35 or higher number of days, but to make is so that you have up to 5 days before your hearing which gives the person an extra 25 days to submit new evidence is at least a great start while we work toward getting the change so that you can submit new evidence on the day of the hearing.   We have to work and support any and all changes that are for the better, and only work to turn down changes that would be for the worse.

Michael B.

 [ send green star]  [ send green star]
 January 08, 2008 9:41 PM

Echo E.
StarsGold Notes

Group History  January 01, 2008 10:25 AM

Thats pretty funny and disturbingly ironic, when they want something THAT FAST yet they take years and year AND YEARS AND YEARS and YEARS to make one little decision.  [ send green star] flag for delete
Rabbit R.
StarsButterfliesGold Notes

Group History  January 01, 2008 10:25 AM

This is so disappointing and sad. Like it's not hard enough to get SS when you already don't feel good. One more thing to make it harder is just what we don't need. It takes longer than 5 days just to get records.

Thanks for bringing it up Susan. I'm going to post the Lupus page in the news section so at least we can get the word out. If there was a petition on the Lupus page I'd sign it.

Anyone else have any ideas on what we can do to fight this?  [ send green star]  [ send green star]
 January 08, 2008 9:40 PM

Michael B.

Group History  January 01, 2008 10:21 AM

I am not sure why the reply is not working in the Social Security and SSI folder, but soon as it is corrected and working, I will move all of this into the right folder thread for you all.

Thanks for submitting this information Susan.

I can tell you though that I really do hope that this will happen and that they don't take forever to make this change as it is really needed.  What a lot of people do not understand is that currently this same rule does already apply, but it is 30 days before your hearing.  So all they are doing is changing it from 30 days to 5 days.  This will give people a extra 25 days to submit any new medical evidence to the office of the Administrate Law Judges office anything they want used in making a decision on their case.  I don't think that there really would be that many who would have a report that important to be submitted that late, but just in case they do, they should be allowed to do so without having their hearing canceled and told to start all over again with their new evidence.

Michael B.

 [ send green star]  [ send green star]
Bringing this over from another folder. January 08, 2008 2:06 PM

Susan H.

Group History A new problem with Social Secuity December 31, 2007 11:10 PM

I just received this email from the Lupus Foundation of America. It talks about a proposed change in Social Security where you MUST submit all medical information no later than five days before an asminstrative review. If you do not, you may have to start the application process all over again!

I wish the article included contact information, but I think that someone here will be able to figure out how to be heard! I certainly hope so!

LFA Urges Social Security Administration Not to Adopt Proposed 5-Day Rule

As part of its mission to provide services, support and hope to all people affected by lupus, the LFA submitted comments today to Commissioner Michael Astrue of the Social Security Administration (SSA), regarding a proposed change to the rules which could make it more difficult for people appealing a Social Security Disability Insurance decision.  Read more >

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 [ send green star]
Important News January 06, 2008 9:09 AM

Hello Everyone:

I wanted to give you some news in case some of you have not already heard of a change happening over the next 2 months with ALL Social Security Checks.  If you receive your monthly Social Security check in the mail each month, then this will effect you.  In the next 2 months, people in 25 states will start receiving a debt card from Social Security and they plan on everyone in all 50 states having these debt cards if you have been getting your checks through the mail and have no bank account.  Of course, if you have a bank account, then you will have the option of either a debt card or going with direct deposit of your check.  After June of 2008, Social Security will no longer send checks to anyone.  The only two options are direct deposit or the debt card.  So if you do have a bank account and still do not have direct deposit, you should go to your bank and sign up for direct deposit as soon as possible. 

Michael B.

 [ send green star]
 December 30, 2007 1:45 PM


First of all I do hope that 2008 will end up being a much better year for you.

As a general rule, when Social Security sends you a form to be filled out by your doctor, unless specified, it should be filled out by your Primary Care Doctor.  No matter how many other doctors you see, your Primary Care Doctor will always be sent a report on any test that are done, and the findings.  If the doctor tells you he/she will not fill it out, then let your lawyer know for he/she can and will make sure the doctor fills the form out for you.   I would also request that once the form is filled out that a copy of it be sent to your lawyer and to yourself.

The doctor that Social Security is sending you to see next month will also be filling out the same form.  They sometimes will just see you the one time and then filling it out, or they may request that you go and have another x-ray or MRI done, but if they do request another test be done, this will be done at Social Securitys cost and not your insurance.  But in most cases, they do not ask for additional test so I would not worry about that at this point.

As I do remind everyone else also, do remember that each time you see a doctor or go to the ER between now and when your SSDI has been approved, make sure that your lawyer gets a copy of all reports, and call him/her to let them know of dates you were seen and why.

Keep us posted.

Michael B.

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My experience with doctors December 29, 2007 7:42 PM

When I applied for disbaility, I took with me to Social Security 14 signed consent for release of information forms ... at that time I had 16 doctors but two were not needed. They did contact the doctors, but I also had to go for an exam.

Here are two websites that might be helpful:


 [ send green star]
 December 28, 2007 2:28 PM

When I applied for SSI the first time, my attorney got my medical records, and the Social security can also obtain your records. Some hospitols will release records to you also. Call all the doctors you saw and ask them what they suggest. The new PCP, should be getting all your records, that is really odd. I had to do allot of stuff on my own. This last time I got SSI, The hospitols, and doctors sent me release forms and some sent the records to me, others  couldn't release them to me and had to send them to my new doctor. Some lawyers are good, others are not. You may have to call everywhere you have been, unfortunately. I'm sorry you are in so much pain.

God bless

 [ send green star]
 December 28, 2007 1:59 PM

Hi , My name is Kim. Ihave been on care 2 from 2004. My guestion is. I APPLIED for ssdi in oct of 2007. I went out of work on sdi in the being of feb. 2007 for treatment on chrons after being dianosted jan 2006. This was for 2 months. Meanwhile i was have nerve pain and problems using my hands at work. I had an mri done of my cevical spine in nov and told me i had three bluding discs and a pinched nerve on my c7and c6 . My pcp made  appointment with a nerosurgen in feb07 and proceeded to see him for 6 months .He then took me out of workfoe a year and a half with surgary in march of 2007. During this time i also had a ct done of my lumber spine which show 2 hurneaded discs which the nerosurgin never addresed. Because of my medical insurance being to high and living problems i went on my estranged husbend medical insurance. I then had to stat all over with drs. Due to the drs delay i now have nerve damage in both arm and both legs. I WILL NOT SEE A SPINE DR TIL JAN 7TH OF 2007 . i worked in nursing ,unable to stand . My upper range of motion is bad i, cant lift or i tried to type and my arms ache so had and sent muscle spams all over my back. I also have  fibro for 5 years. Well because i changed docs it hard for ssdi to get my medical records, they asked me to go to my current dr and get a physcial exam. I went this morning and she told me she doesn't do those a qme does. She is the one i'm seeing isn't she supposed to do that. I DO have a ssdi lawyer and left a message with her secratary and she said that was strange. I do have a physcial with ssdi on the 8th of jan. I changed and i'm on Kaiser i do know she has dropped the ball before  on me, but this takes the cake. cOULD U GIVE ME ANY info on this. Iseem not to be getting any support on this pcp and wondering if all my drs are going to give me the run around thank and have a great day.  kim  [ send green star]
 December 28, 2007 10:24 AM


I am sorry that all of this is taking so long.  It seems that way for all of us when we went through it also.

Can you tell us where you stand at this point?  Meaning, are you still in the first stage of waiting for your first approval or denial, or have you been there and in the reconsideration step, or in the longer wait for the 3rd step, The hearing before a Administrative Judge?

The last I heard, once a person gets to the 3rd step, for the hearing level, the back log of cases is now 2 1/2 to 3 years.  Social Security is trying so hard right now to get Congress to approve the hiring of at least 60 more Administrative Judges to hear cases to help clear out the back log but so far Congress is saying NO.  I have to agree, this is not right as way to many people out there that really are eligible for benefits like yourself should not have to be waiting this long period of time to get some income coming into their household.  Sure they give back pay to the date you first applied, but that doesn't help in the mean time.

I would look into seeing if your state has any type of general assistance programs for the disabled to help you out at this point.  If they do, they usually have you sign a paper so that they get paid back all the money they pay you in the mean time first.  You can find this out by calling your local Human Services Department (Social Services).  You can also apply for food stamps and Medicaid, those funds do not have to be repaid when your Social Security gets started.

Keep us posted on things.

Michael B.

 [ send green star]
 December 28, 2007 10:15 AM

This is from a net message from Susan:

What I want to say is that Greg should be able to get some assistance from the state of New York. I have a friend who lives in Staten Island, she is working and still gets health benefits from the state under a program through the office of welfare.

 [ send green star]
 December 27, 2007 6:13 AM

Sorry Greg, I forgot to mention, I was able to get state benifits, as long as a doctor says you can't work. Some states have insurance plans also. You have to pay them back, when you get your back pay from SSA. It's something though, which is better then nothing.  [ send green star]
 December 27, 2007 6:08 AM

I don't have the same disabilities as you. It took three years to get a letter from a judge saying I was disabled, then it took, another 4-5 months for my payments to start. It took a whole year to get my back pay for the three years. There was a time when certian disabilities would get it sooner. I don't know if that is happening anymore. My father has nueropathy. He is 74, he can't walk hardly at all now. He's afaid he'll fall. Good luck, and God Bless  [ send green star]
Sorry to say.... December 26, 2007 6:56 AM

3 years here and still waiting, even though at my hearing almost a year ago after waiting more than 2 and a half years just for that, they all said I was 100% disabled, including my 4 doctors, the vocational specialist and the doctor the judge sent me to.

And several years ago in another state when I lost my eye sight (temporarily - had to have transplant) that took 2 and a half years to get it then.

This post was modified from its original form on 26 Dec, 6:57  [ send green star]
 December 26, 2007 5:46 AM

Wow..Oh excuse me. Hi my name is Greg. I hope that everyone who reads this had a good Christmas. Now, back to Wow. Reading these posts is kind of scary and at the same time enlightning. perhaps each state processes their paper work differently? What do I have to look forward to as far as recieving benifets and the waiting time. This is my scenario in a nutshell. I live in NYS. I am 55 and have worked practicly everyday since graduating in 1970. I have had 2 heart attacks, been diagnosed with COPD, type 2 diabetes and heart failure. In september I had to stop working because of edima in my legs and I developed ulcers in my left from what my dr. calls diabetic neuropathy. Now, at the ulcer sites I have but only one or 2 layers of skin that do not seem to heal. I am in pain/discomfort 24/7. As I mentioned this started in mid september and I had enough sick/vacation time on the books to carry me up to 2 weeks ago when the paper work for my SSD(?) benifits were sent to the appropriate offices. I am also in the process of trying to recieve emergency welfare benifits untill my SSD's are accepted. What are my chances on recieving either at this time?? I can't work and now the same symptoms are starting to show in my right leg. After reading all of these other posts I am starting to feel hopeless. I guess what really bothers me about both of these programs is the fact that those who deserve to be on these programs get such a hassle and I look around and see people in my community taking avantage of them. Some recieving assitance and working under the table and others who pass this legacy down from generation to generation. I'm truly frightened as to my future.  [ send green star]
Disabled teenage Daughter November 25, 2007 10:20 PM

Hi Michael, Thank You for your reply. First let me say that my daughter was on SSI disability way before I was, she has been on it since one year old due to her own health problems that are now becoming even more worse along with other problems. My daughter is now 16 1/2 yrs old nad has never really attended public school due to her health conditions, she always gets put onto Home Teaching every grade and is now 11th Grade on permenant Home Teaching by board of Education Public Schools and Doctors applications. Right now I am her payee but when she is 18 yrs old the checks will be in her own name. I would like to try find out some information what kind of help there is for my daughter after highschool. Were will she live? We are on the East Coast and my daughter has dreams of living on the West Coast in California. How does one go about doing this with a disabled 18 yr old young adult. How does she get a place to live, how does she get a Doctor there, were does she start. She has a few friends there but I know none of them would allow her to live there for along time so she would have to roomate or get her own place and try to manage on her own or assisted living so were does a person go to start all of this. Is there a starting point for a young child turning into an adult, relocating or, getting some kind of help. I have a feeling she will still be here with me on the East Coast but I do not want to ruin her dreams and if she can only work part time the that would be wonderful she would still be doing what she dreamt of doing and that is living and working in Ca, West Coast.

My daughter has 1 1/2 Lungs with Life threatining Asthma, Intubations, ICU and many hospital stays. Now she has Juvanile Rhumatoid Athritis, Use of Qxygen at home, IBS, and Muscle problems. We are in the middle of getting new updated tests done and it just seems to get worse as we go along with the years for such a young person.  She is a very strong headed young girl and I am told by Doctors her stregnth is what has kept her alive anhd I am very proud of her for that. She is Bi Polar and suffers from bouts of severe depression and I do understand this as she can't get to do very much. She wants to try an live a normal kids life and can't so I understand why she has some problems in that dept.

I would truly appreciate any information or advice on SSI and how to get information of children on SSI becoming an adult I do understand when she turns 18 the checks will then go in her name but she will not need to apply as an individual as she already gets it as an individual and always has done. I have only been on  SSI for the past 5 or 6 years.

Anyway any infor or advice would be gratefully appreciated.

Thank you and God Bless

 [ send green star]
 November 25, 2007 7:53 PM


First of all, if your daughter does want to try and work to see if she  can do it, she is allowed to do so as long as she does not make more then $450 per month and she will still be able to keep her SSI as long as she is getting more then that.  If she is getting less then that, then she can not make more then the amount of her checks.

Even though she is getting SSI as a child and you are getting it as an adult, basically she is getting it because of your disablity and not on her own at this point.  When she turns 18, she will have to either go to your local Social Security Office, or call them on the phone and apply for SSI as an disabled indivdual.  If she were getting SSDI, then even when she turned 18, it would automatically start coming in her own name, but it does not work that way with SSI.  Her SSI will stop either the month she turns 18, or 21 if she is still in high school.  If she were still in high school after she is 18, SSI continues until the month of graduation or her 21st birthday.  But at that time, it will stop and she will have to apply for her own SSI.  Of course, she may not get as much as she is getting right now if she is still living at home because they will have to count your SSI against her where because she is getting it because of your disability your SSI it does not come into play.

At the time that she applys for her own SSI after her 18th birthday, I would wait until after she got a denial of benefits before seeking a lawyer.  If she gets denied then I would get a lawyer, and to get one, I would just look in your local phone book and find a lawyer who specializes in Social Security.  Most all lawyers who specialize in Social Security Cases will state so in their ad in the phone book.

Another thing I would be doing as of right now is to keep a record or log of all doctors she sees, the date / the reason for the visit / all ER visits / date/times and keep a list of each and everything the doctors tell you is a medical problem, this way when she does apply, when asked what her disablity is, you list each and every medical problem any doctor has said she has.  Don't list just the worse ones, list them all.   Also keep track of all medications she is taking, for that may help some too.

Michael B.

 [ send green star]
Hi everyone November 22, 2007 6:02 AM

I joined the group awhile back but I have not been on for awhile. I would like to say I hope everything goes well for Christina and you are in my prayers.

I am on SSI and my 16 yr old daughter gets SSI and I know when she is 18 the checks go in her name. She has more health problems now than she has ever had but I still get scared and worried about how she will survive when she leaves Highschool. She can't attend school in person but she is on Home Teaching through the State and is now in 11th grade. She has been on SSI since 1 year old and of course we go through reviews every three years but I get it every eleven years now as I am older haha. and they know I will not get better now.

Is there any special lawyer links anyone could give me so I could do some research. I would like to know my daughters rights and I dont think they will take my child OFF SSI as she is worse now over the years but I would still like to try talk to a lawyer about her rights.  She wants to try a little part time job and I know she will NOT be able to do it but I will let her try and prove to her that it's going to be very hard for her.

If anyone could give me any links for lawyers that deal with SSI cases I would truly appreciate it Thank you and God Bless


Good Luck to everyone else that is also trying

 [ send green star]
Thanks Mike and Frank September 08, 2007 4:34 PM

Well you guys have lots of information. But I have not applied for social secuirty yet mabye I worded it wrong. I did try to go back to work but right now still off on my job short term disability. I still am not able to work I called soc secuirty they in June made an apt but cancelled due to I thought I could work and my job so far is still waiting. But they told me I had until dec to come in and apply. I do qulify for 1100 a month they said for regular soc security disability. Plus I may be elgible for my kids. They said they took my five highest paying years to get that amount which I had some good years several years ago in sales.

I am waiting on doctors who have not told me I can not go back to work yet. They keep saying I prob can. So I was just lost at what to do. File? what if I go back again and do ok for a while would that cancel my case out? I am sorry I guess I am just confused. lol Thanks again you guys.

 [ send green star]
 September 07, 2007 7:38 PM

Well usually, i dont have too report anything too them, they seem to pick it up before i report it. although i plan on letting them, know, oct 1, when i recieve my first check, that im drawling SSDI, and then go from there, for a family of 5, kevin is allowed too make like 4300.00 a month, and since im pregant, and due too give birth in dec, i will have 6 in my family, which will allowed us to make more, i will keep u all updated!!!..And best of luck too all the rest of you out there apply or waitin for SSDI, OR SSI!!!  [ send green star]
Ticket To Work September 07, 2007 6:42 PM

More information is at:
 [ send green star]
SSDI & Work September 07, 2007 4:26 PM

After you have been approved and are receiving SSDI you will have 9 Trial Work Months if you decide to try working again. Those months do not have to work consecutively and they are counted against you only if you exceed the amount you are allowed to earn and still keep SSDI ($860.00/month). Once the 9 Trial Work months are used up, you don't get any more, under any circumstances. It is best to make your local SSA counselor aware in writing before you start any kind of work.

There is a program called Ticket To Work. If you secure your employment through that program and during the first 3 years of working you find you can no longer work because of your disability, you can get your SSDI benefits immediately reinstated without re-applying. Ticket To Work information is found at
 [ send green star]
 September 07, 2007 3:02 PM


First I am sorry to hear that you had tried to go back to work and it didn't work out.  It doesn't always work out for the best for many of us, so please do not feel bad that it didn't work out.  At least you can say you tried.

Since you have applied for SSDI and or SSI, even if you have tried to go back to work, your claim will still go forward until you recieve a approval or denial.  Now even if you are approved and you want to try and return to work, under SSDI and SSI rules, you can still do so, but with certain rules.

With SSI, you can still collect your benefits as long as you make less then $600 per month.  Once you make more then $600 per month from your job, then you begin to lose $1.00 for every $2.00 you earn up to $800.00 per month, if you make more then $800 per month, then you lose your SSI.

With SSDI, they also allow us to go back to work part time, and if you make less then $700 per month, you will keep your SSDI benefits.  Once you make more then $700 a month, they start to take away $1.00 for every $2.00 over that you make, up to the amount of your benefit.  But if you go back to work full time, (making more then $1,200 per month), then you have just a 1-9 month period of time to try.  After the 9 months, if you still are working the full time job, you will lose your SSDI benefits.  But what a lot of people do not understand is that you only get the one try.  If you try and work only 2 months, then you forfeit the other 7 months, and can lose your SSDI benefits as soon as you return back to  a full time job the next time.  This one period of 9 months does not begin though until after you have started getting your SSDI benefits, does not include while you are waiting for your application to be approved or denied.

At this point, if at all possible, I would try and not return to work again until after your case has been either approved or denied.  And of course, if it does get denied, don't just give up and try to return to work, do appeal it, and get the help of a lawyer who specializes in SS cases if you need to.

Michael B.

 [ send green star]
 September 07, 2007 2:37 PM


Thank you once again for keeping us updated on your case.  I am glad to hear you got your award letter and your back pay check already.  That is good.

As far as your back pay still owed for the SSI, they will not take it out of your SSDI payment without first writing to you at least 30 days in advance to let you  know they plan on doing so.  They may still write you and do this, but if not, then if you have been paying them back all along, just keep doing so until told to stop.

As far as Medicare, since the letter did not mention it, then I guess you are right, and they are going to make you wait the 24 month waiting period, and that period begins the month you get your first regular check, so it will be September of 2009 when you will start getting Medicare.  They will also let you know at least 30 days in advance that you will start getting it and how much your premium will be at that time.

Please do remember, with your childrens Medicaid spend down case you are on for the kids, you do need to report to them the amount of money you received as back pay as well as how much you will be getting each month.  You legally have 10 days after receiving the back pay to report that income.

Hope all goes well from here on out for you.

Michael B.

 [ send green star]
 September 06, 2007 7:31 PM

Commissioner Astrue Extends Social Security’s Quick Disability Determination Nationwide -- "Final Rule Will Accelerate Benefits to Those Deemed Clearly Disabled"

Michael J. Astrue, Commissioner of Social Security, announced that Social Security has issued a final regulation to extend the quick disability determination (QDD) process to all State disability determination services. Under QDD, a predictive model analyzes specific elements of data within the electronic claims file to identify claims where there is a high potential that the claimant is disabled and where evidence of the person’s allegations can be quickly and easily obtained.

The quick disability determination has been very successful and efficient so far in New England and I am happy to say it will help people filing for disability benefits anywhere in the United States. This is a very important step we are taking at Social Security to improve our disability programs,” Commissioner Astrue said. “I also am proud of our improvements with pending disability cases that have reached 1,000 days waiting for an appeal hearing. We have aggressively worked on these cases and now have fewer than 600 pending, down from more than 63,000 cases in October of last year.”

Social Security currently receives more than 2.5 million new Social Security disability cases and more than 2.3 million Supplemental Security Income cases each year. In New England, where QDD began on a test basis, cases constituted slightly less than 3 percent of all new cases. Of those, 97 percent of the cases identified have been decided within 21 days and the average decision time is 11 days. Since the model does not yet incorporate as many diseases as it can, Commissioner Astrue has committed to expanding the number of cases that can be identified while maintaining the same level of accuracy.

“The length of time many people wait for a disability decision is unacceptable,” Commissioner Astrue said. “I am committed to a process that is as fair and speedy as possible. While there is no single magic bullet, with better systems, better business processes and better ways of fast-tracking targeted cases, we can greatly improve the service we provide this vulnerable population.”

The final regulation is effective as of September 5, 2007, and will be gradually implemented over the next several months. For more information about Social Security’s disability programs, go to

 [ send green star]
 September 05, 2007 5:39 PM

Ok Everyone, who has taken out the time too listen too me!!.I wanted to update everyone!!..And let you all know i received my back pay today, as well as a phone call from, SSDI, for the over the phone inerveiw, for my kids,!!Although i already know i wont be recieving anything on them, they still wanted me too do the appacaltion, Also they didnt take that money from me, that they said i was overpaid, from SSI, 7 yrs ago, soo im just gonna keep mailing them montly payments!!.Ive herd nothing about getting any medicare, or anything ,soo im guessing im gonna have too wait 24 months, which is ok with me i hardly ever go to the doctor anyways, and ive got medciade for the next 6 months since im pregant with my last child!!!..Well if i recieve any new infor i will be sure to post!!..Thank you all for helping me get through this!!!...Christina  [ send green star]
I have a question if someone can help answer September 04, 2007 5:07 AM

Hello everyone I have a question and not sure who can answer but I hope someone knows. I have been off work since March and tried to go back to work in april but got really ill and after four days had to leave on short term disability again. I am still off will know more in a week or so.

I am not sure my problem is not life long and I have battling to work and My question is : If I go back to work and can not do it and I have disability claim file with ss will it be cancelled?  I mean I have not even applied because I am praying I can work but all this time off if I do end up being disabled to not be able to work will my claim auto be denied and I have to start over the six months and all or do they look at the fact I was off and go back to the date. I just was not sure if any one knows please help. Thanks. This is very worryisome to me.

 [ send green star]
 September 01, 2007 6:16 PM

The amount they said i would be getting around September 6,2007 is 2147.00 and SSI saids they overpaid me before i got married, soo will i be getting 2147.00 im wondering if the 5 months have been taking out of that!!!Because no where in the award letter does it state anything about 5 months, or SSI taking money!!..Just not sure, all it states is you will receive $2147.00 around september 6,07..if that helps  [ send green star]
YO September 01, 2007 6:07 PM

ok today i recieved the AWARD letter and this is what it has too say, You are entitled too monthly disablility benefits begining April 2006.

The Date You become Disable

We Found that you become disable under our rules on April 1,2002.This is A different from the date given on the application.

Our records show that you became disable on April 1,2002.By law, we can pay benefits no earlier then 12 months before the month filing.Since you filed for Benefits on April 25,2007 monthly payments will begin April 2006.


)You will receive $****.** around September 6,2007

)This is the money you are due for April 2006 through August 2007.

)Your next payment of $177.00 which is for september 2007 will be recieve on or about the third of october 2007.

)After that you will recieve 177.00 on or about the third of each month

)These and any future payments will go too the financial institution you selected.Please let us know if you change your mailing address, so we can send you letters directly

The following chart shows your benfits amounts, before any deductions or rounding.The amount you actually receive may differ from your full benefits amounts,When we firgure how much to pay you we must deduct certain amounts.Such as medicare premuims.we must also round down to the nearest dollar.

Soo now im wondering since i was overpaid, on my SSI before they took it from me when i got married, im wondering if the amount they said i was gonna be recieving on sept 6, is what i am going too be getting after SSI takes the money i owe, or is it what i should be getting before they take the money or will they even take the money they over paid me??? from my ssdi aslo someone told me they take like 5 months of your money for the waitin period, well no where in the letter did it mention that soo im wondering the amount they said i would be getting, is that what i will be getting before they take the 5 months or after they take the 5 months?? away from me

 [ send green star]
 September 01, 2007 5:56 PM

Thanks for clearing up the difference Michael. I guess they just post it as SSA here. Thanks again.  [ send green star]
 September 01, 2007 11:13 AM


If you are on that program for the kids health insurance, this should not effect that program.  You should still be able to stay on it.  I can't imagine that the 177.00 more per month in income would make that much of a change, since with that program, they also do not count your income dollar for dollar.

Michael B.

 [ send green star]
 August 31, 2007 9:29 AM

Well right now i pay a premuim on my kids its called MC+ for kids, and soo because he fall within the protrey level, i only pay a small amount a month for them like 30.00 a month!!!..soo with me getting an extra 177.00 a month, i dont know if they are gonna take it or not!!! i still have not received my award letter yet!!!...soo im still waitin on finding out what they got too say  [ send green star]
 August 31, 2007 8:56 AM


You are most likely correct here.  You will not be able to get Medicaid for your children since the total income coming into your household is to high.  You should apply for Medicaid anyways for you and your children.  The worse they can do is turn it down, but it is with trying now that you have been approved for SSDI.  Even though their are income limits with Medicaid, they do not count income dollar for dollar. 

Another good reason for applying for your state Medicaid program for yourself and your children, especailly now that you have been approved for SSDI, you would meet the disabled requirement, and if you could get on Medicaid, then your Medicaid would pay your Medicare premiums for you so that you would lose no income once you start getting Medicare.

Just can not get it through Social Security with SSI for the children because if your husband brings home over $3,000 a month, that is to much, for the top limit is $2,000 in resources and total incoming income per month of the household is currently $623.00 per month.  And with SSI, they do count income dollar for dollar.

Michael B.

 [ send green star]
 August 31, 2007 8:47 AM

There are just the three programs for the disabled.  SSI and SSDI and Disabled Widower Benefits.

SSI (Social Security Income) is not based upon credits paid into the system, and you can collect even if you have not ever paid into the system.  The income of all members of your household count against you and the most you can collect on the federal level is $623.00 per month this year. The amount does go up each year.  Some states also include a state payment, so the total you collect would depend on if your state pays an amount or not.  California is the state that does pay the most.  Some states do not pay anything.  Here in Michigan, the state pays $14.00 per month extra, but you get 1 check every 3 months.  So per month you income would work out to be $637.00 although it could be less if you have other income coming into your household.

SSDI (Social Security Disablity Insurance) is the program for the disabled who have paid into the system.  You must have put in at least 25 credits with 20 of them being in the immediate past 10 years of when you first apply.  The amount you would receive if approved is based upon the amount of credits you have put into the system. 

There is also a program for widow and widowers.  You can apply for these benefits if you are a widow or widower and are at least 60 years old.  If you are disabled, you only have to be 50 years old.  So for those who are or have been married and are collecting either SSI or SSDI or both, and your marriage ended in death, 3 months before your 50th birthday you should apply for Disabled Widower Benefits.

Regular Social Security Benefits for those of retirement age is also based upon the total amount credits paid into the system. You need to have put in at least 40 credits to collect.

For those who are interested in knowing approx what the amount of income you would get if approved for benefits, you can call Social Security and ask that they send your Social Security Statement.  This form gives you all the information on every year you paid into the system, how much paid into the system, and a break down of how much you could possible collect in benefits.

Do remember that with SSDI, you will also get Medicare after a 24 month waiting period.  With SSI, you will automatically get your state Medicaid.

Michael B.

 [ send green star]
 August 30, 2007 5:21 PM

There are deaf people that can speak well and read lips also. Would classes for that help you? Maybe you could ask some of the resources for the deaf in your area about it.
I did used to work but like you the deterioration of my condition got worse over time and I had to stop. I thought that's what SSA was. Anyone know the difference, if there is one?
 [ send green star]
 August 30, 2007 5:09 PM

Well SSDI, means Social Security Disablity, i guess its for when you have worked, and you pay in FIDCA,soo there for when you become unable too work you get that based on how long you have worked and how much you have paid in, like if kevin was too get it,he would draw alot, like 2000.00 a month, with SSI, my parents used too draw that on me when i was younger, but when i got married they took it cause they only allowed you too make like 600 a month, soo its really for low income, and since my husband makes around 3500.00 a month we arent considered low income, although its not much for rasiing 4 little babies, but i was born with a hearing lost, and over the yrs the doctors told me that i would be complety deaf by the age of 25, since hearing aids wernt an onipion for me, with my hearing lost they dont benfit me at all, well im now 27, and just about compelty deaf, if not in the same room i cant hear my babies, my speech has gotton really bad, and ive just been lucky too have found housekeeping jobs over the last 4 yrs that i have done, but recently i havnt been able too even do them, soo here i am now only getting that amout and it sucks,,im totally bum out about it..  [ send green star]
 August 30, 2007 1:41 PM

I'm sorry that's all you're getting but I didn't think it was going to be $600. My SSI is no where near $600, not even half that. I also get SSA but that's not $600 either. I never heard of SSDI so i don't know if that's the same as SSA or not. Welcome to living under the poverty level. We don't even make minimum wage when we have no one else to rely on and no way to work. ~sighs disgusted with the system~ Best us all.  [ send green star]
 August 29, 2007 12:39 PM

Plus they sent me a letter telling me that i needed too fill out an appilction for kevin and my kids, too see if they were approved for anything, but the guy i talked too at the social s. office told me i wouldnt get anything on them, sincei  was receving the max amount...soo im sooo lost!!  [ send green star]
 August 29, 2007 12:38 PM

Well the letter i got today, only told me a i was approved, soo once again i called, and they told me my award letter will be here sometime next week,soo i went ahead and asked him at least how much a month would i be getting, and he told me 177.00 a month, because they couldnt go off of kevins,because he isnt disable,i really dont understand them,because they told me they went as far  back as consdierding me disable since the day i was born in 1980, i guess that didnt have nothing to do with it though, soo they told me since im getting the max amount that i couldnt draw it on kevin or my children....soo that i wouldnt be getting it on them, soo im really disappointed, although now im wondering since im not getting anything on my kids, does that mean i wont be getting insurance on them as well???....Now im wondering if i should appeal it or what, or just try and go on and get a job, although it isnt gonna last long, since my hearing has gotton soo bad, neither of my children have a disablity either!!....And something about there is a 5 month waitin period, well it hasnt even been 5 months since i appiled, its only been since may, now im wondering if i have too wait 5 months before i even get anything..?????  [ send green star]
 August 29, 2007 8:46 AM


Wow, you are right, this is not very much at all.  It sounds like they are giving you your SSDI off of your own SS account.  You can tell by looking at your award letter.  The case number is on the award letter and is actually a SS number followed by a letter or two.  Look at it and see if it is your SS number.  If it is, and your husband has worked longer then you have, I would call your worker to see if you could collect off of his account and collect more.  Also did the award letter say anything about Medicare?  If not, then it is actually going to be worse then what you think.  Because if all you are getting is $177.00, then when you do start getting  Medicare, they take out the $88.00 per month premium, you will only then be getting a total of $89.00 a month.  Then you will have what ever your premium will be for the Medicare Part D program, and this could end up leaving you with nothing by the time they collect the premiums for Medicare.

The reason why you are not getting anything for your children is because all they could get with you being on SSDI, is SSI until their 18th birthday.  And with the SSI rules, between your SSDI and your husbands income, you most likely make to much money for the children to collect SSI.  If any of the children are disabled though, now that you are on SSDI, you can apply for SSDI for the child off of yours or your husband account. 

Michael B.

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 August 29, 2007 7:58 AM

I got a really big disappointment today, when i got my letter, it told me i would only be getting 177.00 a month, and nothing on my children, i really dont understand this, ive been disable my entire life, and this really is a set back, im wondering if i should appeal it and get a lawyer, i thought for sure i would at least get 300.00 or 400.00 a month, no way can anyone live on that.Well thats all for now!!!..Christina  [ send green star]
 August 26, 2007 12:46 PM


Congradulations.  I am so glad that you have been told you have been approved. 

As far as the amount you will receieve, that is hard to estimate, and you will have to just wait until you get your award letter, which will tell you how much back pay you will be getting and how much your monthly benefit will be.  SSDI does not work the same as SSI, so your husbands income will not count against you in any way.  Actually, with SSDI, if your husband had worked more and paid more into SS, then they may give you benefits off of his SS record in order to give you more.  The worker usually will look at both records and will grant you SSDI off the one that would pay you the most.  Now if they are going to go back 2 years, there is the possibilty that you might start getting Medicare right away without having to go through the 24 month waiting period.  Your award letter should tell you.  Your benefit amount will be minus the amount that is taken out for your medicare premium each month.  In either case, now is the time for you to be looking into Medicare Part D to find the program that is best for you for your medications.  The best place to start is with your primary pharmacy.  Check to see which program is used most with them, and which one will cover the medications you take at this time.

To answer how much you will get is hard, but the average amount that people get on SSDI currently is around $750.00 per month, minus their Medicare premium.  You could get less or more depending on whos SS record they are using and how much they paid into the system.

Once the worker has submitted the information to the system, you should get your award letter about a week later, and your back pay within 3 to 4 weeks.  And with SSDI, you will not have a time limit put on you to get your bank account back under $2,000.00 like those on SSI do.  Remember, your husband and any one else living in your household income will not count against you with SSDI like SSI does.

Once again, Congradulations.  Let us know when you get your award letter.  Would love to know in your case if you will get Medicare right away or if they are going to make you wait the normal 24 month waiting period.

Michael B.

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 August 26, 2007 11:37 AM

hello I collect SS for disability.If you did not work enough to get a certain amount of credits then they give you ssi which is about 600 a month.  As for the 5 month waiting period, they will deduct that out of the back pay.  You should get the back pay before you actually get your monthly amount.  If they said that you are approved then it should not be too long at all.  And yes you will get an amount for each child may be around half of what you get per month.  Also your children will get back pay as well.  Now I had to go back and do all that for my daughter after my part was all settled.  hope that helps you out some!  [ send green star]
 August 26, 2007 11:20 AM

Ok, i was wondering, since ive only worked a short peirod of time like somewhere between 3 or 4 yrs off and on, my entire life does that mean that im only intitled too like 100.00 A month? i was doing some researching on some of these blogs,where people were saying the least they pay you for SSDI is like 50.00 a month. and the first 5 months they dont even pay you for? Can someone help me out here thanks!!!  [ send green star]
 August 25, 2007 4:15 PM

I found out yesterday,they are going too back pay me for 2yrs,and they said, thats all they could tell me, too just wait for my letter too arrive in the mail, soo i guess im back too the waitin game, i just really wish i would know how much they are gonna give me monthly, i really dont care if they give me back pay or not,and someone told me since i didnt work much, then my check was gonna be really small!!..although this person dont even draw SSID,OR SSI,soo i doubt they even know the truth!!,although the person doiing my case said they went as far back as to the day i was born, to condeiserd me disable!!..soo thats good, dont know if it has anything too do with how much you get though,and someone also told me since i have children, little children i should get something on them too, but they havnt said anything about that either, soo i will update more as soon as i find something eles out...Christina  [ send green star]
 August 23, 2007 5:27 PM

I'm still waitin too recevie my letter from them, although ive been tryin too do some searching on here, cause i have no clue how the two are different although i know SSI, pays you like 600.00 a month, im sooo wondering how SSDI works??? anyone i mean i really dont care if its only 50.00 a month!! a little more money is always better then nothing when your tryin too raise 4 little babies!!soo if any of you can help me out and let me know, please do soo!!!  [ send green star]
 August 23, 2007 2:19 PM

Great news Christina. I'm sure it's going to be ok. Keep the faith.  [ send green star]
 August 22, 2007 3:15 PM

ok, not that i havnt seen no one post on here in awhile, i thought i would give an update, today since i still hadnt herd anything from them,i had my husband call for me today, and the lady that was doing my case, said i was approved, and that she was gonna go back to 2002 for me, she said it was sent up to the govement and that it was approved from them, and now it was sent some where eles, like the ssni office i guess, and now all im waitin for is a letter telling me whatever eles, although i started too cry, cause its such a blessing, i still dont feel like i should be getting my hopes up, although she told me it was approved, i guess im just scared of something going wrong, but i will keep this updated, when i find out more,Christina  [ send green star]
 August 07, 2007 2:48 PM

Can you tell me how much they give you montly for SSDI??? CAUSE i think SSI its like almost 600.00 a month thanks Christina  [ send green star]
 August 06, 2007 12:51 PM

Thanks Micheal, although my parents use too get SSI on me intill i got married then they took it, no one ever told me too try and apply for SSDI,and intill recently i put back in for SSI and they denied me because of kevins income, but then sent me a packet containing infor for SSDI,and soo i filled out like all those papaers and turned them in, they told me if i  could contact doctors offices and have them fax my medical records that it would be faster, well i did, and soo that was back in may, although ive had a hearing lost, and speech impariment my entire life,though out the years ive tried bein indepenent and doing it by myself by working, but this last 2 yrs its really gotton bad, that at times i dont even understand what my little babies are tryin too say, and ive got another one on the way, and thoughout my life hearing aids werent an opion for me cause with my hearing lost they dont benfit me at all...but thanks again and i will keep you posted on what happens, and if they denie me i will appeal it...thanks christina  [ send green star]
 August 05, 2007 8:57 AM


I am wishing you the best of luck and hope for a good turn out for you.  All I can say is that if you have applied for SSDI, you still have a chance at getting your benefits.  You may have to have the help of a lawyer and fight for it, but with SSDI your husbands income will not count against you.  But the same does not apply with SSI.  For SSI, no matter what type of job your husband is doing, his income will count against you, and most likely you will not be able to collect these benefits.  So if you have not applied for SSDI, that is what I would apply for, not SSI.

Hopefully some day we can get these rules changed for the disabled so that the income of a spouse will not count against us.  Such a shame that so many people collecting SSI don't learn this lesson until its too late and even though they have been getting SSI for years, they lose it the day they get married because of their spouses income.

Michael B.

 [ send green star]
 August 04, 2007 8:50 AM

ok no problem, i'll just have too wait and see what they say, if they denie me i will just appeal it, and then if they do it again, i will hire, the lawyer who got my moms SSI for her and my cousins for her and my Aunt also!!..thanks  [ send green star]
 August 02, 2007 8:10 PM

Only the folks who evaluate your case are qualified to answer that question. I am not trained as an evaluator, so I can only give you very general information about SSA programs. It is also against the rules for us to comment on specific cases outside of official duty time.

 [ send green star]
 August 02, 2007 9:51 AM

ok thanks a lot!!! cause i was just getting worried,do u know what my chances are??? and getting it??? thanks christina  [ send green star]
 August 02, 2007 8:43 AM

I work for SSA. The average processing time for a Social Security disability or SSI claim is 180 days or four months, due to the extremely high number of cases we process. There is nothing for you to do at this point other than wait. They will send you a letter when a decision is madeon your case.  [ send green star]
 August 01, 2007 1:36 PM

Well its been since may, and its now aug, and i still havnt herd anything from them...Now im wondering what i should do? any ideas thanks Christina  [ send green star]
 July 27, 2007 11:32 AM

well. ya my husband has worked way long before i even knew him, i married him, while he was in the military, he spent 9 yrs in, and 2 yrs ago, he got out, and now works at a hospital,although he is still military hes just not active duty, anymore he is in the reserves, soo does that me i have a good chance at getting it?.....thanks buchies for all the support, im hoping that i hear something from them soon, cause i mailed in the paper work around the middle of may....  [ send green star]
Social Security Disablity and SSI 2. July 25, 2007 11:09 AM

Here is a new thread for Social Security Disabilty (SSDI) and Supplemental Security Income (SSI) questions, concerns and updates.

Please feel free to also check out the old thread to see questions and concerns that were asked in that one.

I have opened this new one because the old one was getting a little long and taking a while for those who use dial up service to read and post to it.

Thank you for your understanding and help.

Michael B.

 [ send green star]
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