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Lauren S.

"Raising awareness of DMD!"

-, -, United Kingdom
female
single
Joined Oct 13, 2012
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Duchenne muscular dystrophy is fatal and there is no cure. Children are losing the ability to walk, eat, draw, play, hug and breathe every day.

This playlist has some wonderful videos about DMD:
 
www.youtube.com/watch?v=xnCvhpxsgjc&list=PLIVnkXmUlgpTdTQP2c1EcXgDNYDWPjwcJ&index=1&feature=plpp_video
The 9th video is 32 seconds long for those who are interested but would rather not watch the longer 3-5 minute videos, but I do like the first one (I guess because I'm a big sister too! :D)


Great source of information about the FDA/Eteplirsen situation:
http://cureduchenne.tumblr.com/

        Petition to the FDA for the acceptance of a potential treatment for DMD:
http://www.change.org/en-GB/petitions/fda-please-accept-sarepta-s-new-drug-application-nda-for-eteplirsen


A wonderful (and very brief) blog from a father whose son has Duchenne: http://community.parentprojectmd.org/profiles/blogs/late-night-confessions-are-hope-and-truth-compaitible


100% of donations go towards research for a cure!
http://duchennenow.org/


 
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Joined Oct 13, 2012 Activist Aspirations undeclared 
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Salvador M.

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View all: 24 friends
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Duchenne Awareness Month!
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    Comment Board
    Viewing 20 of 27: view all | add a comment »
    Sep 30, 2014 7:40 AM

    sharon w. (105)

    May 22, 2014 8:08 PM

    Salvador M. (179)



    May 21, 2014 11:04 AM

    kate a. (480)
    happy birthday dear Lauren wish you all the best sweetie

    http://media-cache-ec0.pinimg.com/originals/3d/f2/09/3df2091e7d990b5219286a5d964c5542.jpg
    May 14, 2014 5:52 PM

    Dianne Lynn E. (731)

    Apr 20, 2014 12:17 AM

    Barbara V. (178)

    Hi Lauren, It's great to meet you. Hugs, Barbara


    Apr 19, 2014 11:54 AM

    kate a. (480)
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    Apr 7, 2014 12:03 PM

    kate a. (480)
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    Mar 6, 2014 6:28 PM

    Dianne Lynn E. (731)
    Love, Hugs & Kiss MySpace Comments
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    Jan 6, 2014 11:46 AM

    kate a. (480)
    http://i415.photobucket.com/albums/pp236/Keefers_/Keefers_Good%20Morning/Keefers_GoodMorning1001.gif
    Dec 29, 2013 2:34 PM

    kate a. (480)
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    Dec 23, 2013 5:00 PM

    Ann W. (237)

    glitter-graphics.com
    Dec 22, 2013 5:34 PM

    Ed V. (180)

    Hugs, Ed & Barbara
    Dec 8, 2013 2:40 PM

    kate a. (480)
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    Dec 6, 2013 3:24 PM

    kate a. (480)
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    Dec 2, 2013 7:07 PM

    Ed V. (180)

    Hi Lauren, I hope you have a great day. Ed
    Thanks For Adding Me As A Friend Graphic


    Dec 2, 2013 4:20 PM

    Ann W. (237)

    Hi Lauren, Thank you for the friend request, the green stars and all that you do to make the world a better place. It's so very nice meeting you. I hope you have a great week. Take Care.
    glitter-graphics.com


    Dec 1, 2013 9:17 PM

    Dianne Lynn E. (731)
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    Dec 1, 2013 1:33 PM

    kate a. (480)

    Nov 29, 2013 12:35 PM

    kate a. (480)

    Nov 28, 2013 3:22 PM

    kate a. (480)

    Thank you for your friend request Lauren .Hope you have a nice day hugs 


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