"My Rights to Honest Neurological/Medical Treatment & Independent Assisted Living Care Housing"
Toronto, ON, Canada
was Producer/Director&Prov.Gov. NOW- Ret/ill/Disabled
Joined Mar 1, 2005
don't watch tv,
reading very limited,
living observing 1 day at a time,
5 years of ongoing pursuit of my rights,
walking in apt as much as can,
mostly bedconfined as per pro
PUBLIC APPEAL FOR CHERYL'S RIGHT TO HONEST NEUROLGICAL MEDICAL CARE
My website isn't finished yet, it is very slow for me and hard to say the least as per below, so are the blogs, I have one blog open, and still needs editing.
I have worsened so much and the myocolonic & generalized dystonia are ongoing dailly since coming off the drugs in 2004, and left here with my whole body damaged, every muscle and liagemnt jjust prior, (cramping of groups of muscles) is spreading through my body now very rapidly, and paralizing increasingly I don;t know I will be able to finish the website, which isn't listed here right now.. I often can't type unless my mucles and ligaments ae softened enough, and some times type the way I speak, the wya my damaged brain chops off words. Rare I can even sit up . I am 99% bedconfined and worsening drastically and still being denied extensive neurological medical care.
http://www.youtube.com/cherylannbenson (when able will change this to only videos of my conditions and illness as they progress, and when I get treatments and they improve)
~ Introductions are needed, before friends link, and I my list is quite large as it is. See below, ABOUT ME, section for further details, wthank you.
~ Spirit soul in human body that used to work in high demanding Administrative positions in creative venues, freelance work, and a former Audio/Visual Producer and Director that had staff and freelancers working with me, working16- 18 hour day. In 1989 during the recession I competed for a job in the Ontario Provinical Government and won the position. Little did I know that the Long Term Disability I was paying for would be needed in 1994.. Now I often can’t put 2 words together, speak, read, concentrate, sit up, use my arms, legs, hands, or think straight. Often I can only copy/paste and click, often not even that, I am bed/houseconfined and have been since 1994 with alot of fluctuations until 2003, with the first brain body damage not on my records as in no diagnosis, and more damage was done and I was left here very damaged and convulsing everyday, I also endured several years of severe seizures coming off the drugs, I still have them, not that often, the myolconic dysotinia (would look like a seizure to many people, it is rapid or slow rhythmic movement of all the muscles in your body at the same time) which I wake up to daily is a nightmare, my arm sockets are badly damaged left like this and is the rest of my body and I continue to worsen.
I am a survivor of many things,, However, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CS) ended life as I knew it in 1991, a neurological illness defined by WHO and Ontario Medical Assoc. since 2005. Fibromyalgia (FM) and Multiplie Chemical Sensitivies (MCS) came with it and extensive discrimination. I also have HepC I found out in 1994. My ME/CFS was considered psychiatric or just a serotonin problem by many includng the pshycatric community, although I was diagnosied by 2 Infectious Disease Specialsts.
In 1996 I was referred toa pshcyatrist for neruolgoical problems inherent with ME/CFS, which were at first focused on, however shortly after pshcyatric drugging started without proper informed consent. I endured 8 years of adverse reactions to SSRI's and other antidepressants, and drugs that were slipped to me with out telling me what they were, which were ignored as was my FM & the cause of much damage that continues to progress.
I belong to a group of ME/CFS survivors that are drug dose sensititive or intolerant. This is backdated in medical clinical journals to 1993 which mentioned antidepressants. However, all drugs were included some years later as thousands more were being documented.
At near 50 misdiagnosed bipolar because of the drugs, and brain/body damaged repeatedly every muscle and ligament causing them to be shortened and stiff and greatly weakened in 6 days, I couldn't lift much more than a light book, prepare my own food, bath myself, or take care of myself., Acute lead pipe dystonia February 2003 & acute dystonic reaction with seziures March 2003, the dystonia and seizures lasted 2 weeks daily and never went away, the Dystonia worsened., I think the next round of drugs I was put on covered for it and did make it worse, every time I came off them, the dystonia nd seizures would come out again, until I came off the drugs, all of them in 2004 and the daily dystonia, convulsions/myoclonus , and for some time seizures were non-stop.. .
After the first brain/body damage of January 2003, I was verbally and phsycically abused in every hosptial to keep the damage off the records or as pshcyatric and me out of the hosptials and from suing for malpractice and negligence which I had started later 2003 after getting no help from the medical community, just abused by them and no help from the government.
I dicontinued the bipolar medication and medications I was told would reverse the damage that caused the lead pipe dystonia, and generalized dystonia remained. After being damaged for life 3 times in 3 months, although I had 4 serious adverse reactions. I was refused to be hospitalized by all those involved and was left to worsen and keep the extensive physical damage off my records.
2003-2004 I was put on more drugs doing damage & left on one knowing it was doing damage & had interfered with other Meds & not told . Psychiatric had been put on my medical files for repeated misdiagnosis, unethical medical practices, adverse side effects as well as purposely falsifying records, it's called collusion..
In 2004 when I came off the remaining drugs, the left side of my body paralized and had started dragging behind me prior to coming of them and was more withered than my right side of my body, my speech was affected, and I couldn't hold my neck u right sude of body paralyzed. Speech affected My mom had to force the ER doctor to give me a catscan, he was refusing . We were told there was a lesion or ambulism on the right side of my brain. Almost month later the written report came back negative, we were told the catscan film could not be found, my medical records say I had a small stroke. The left side of my body remained weak and often drags around every day and is often a percouser to the dystonia convulsions or seizures coming on. I have several movement disorders from the drugs, myoclonic & Dystonia, and parkinsonium, tremors, seizures, dyskensia, speech problems although they started with the first brain and body damage of January 2003. The dystonia was kept hidden in ER records and left off as diagnosis, when I was clearly riddled with it since February 2003
Diagnosis/damage is not on my medical records, or as non-existant or under psychatric to cover for extensive and repeated damaged done, nor have I received the diagnosis/care afforded to those with Generalized Dystonia, seizures, or my ME/CFS/FM, HepC, extensive muscle and ligament damage, generalized dystonia, myocolonc dyksenisa/dystonia, dysksenia and I was cut off doctors, and have increasingly worsened. Instead, systemic collusion and verbal and/or physical abuse followed encompassing 6 hospitals as well as homecare. I was left severely and increasingly ill and badly damaged, with seizures, movement disorders/ convulsions, dystonia spreading through my body I endure every day.
For several years I and my mom, and one friend who stuck by me “in real life”, fought for my rights to honest neurological medical care, human rights violations against me, and quality of life, even life itself. I have boxes full of letters for help to all levels of government, and we were told to get me out of the country, or find a Sponsor to no avail, the more we asked for help from “G”overnment, medical community etc., the more I was purposely isolated. Several people behind the scenes tried to help me here, but I was just isloated more by those involved at the time.
Every document needed for government services, and much of my medical files have been falsified by the doctors, hospitals, Care Center involved leaving me with no medical care or supportive care, or government programs that help, or my personal insurance, as long as the damage is off the records.
I have been an activist for various issues during my life, mostly Human Rights, and continue during my “net life”.
I have sponsored my 2nd family/community in Africa since 1993, and had to discontinue in later 2009, I barely holding on myself.
My disability forms for LTIP have to be signed yearly by a doctor or I can be cut off even though on since 1994. I can’t get to one and still need to be hospitalized in an advanced neurological medical facility, for honest diagnosis treatment, and my falsified medical files cleaned up, and ensuring more damage isn’t done, as well as supportive care housing and a compassionate inhouse doctor that knows about ME/CFS and FM so the cycle of discrimination stops, as well my HepC has worsened, the extensive damage, everything worsened left like this. My records are so badly faslfied at this point which makes it harder, and I am a high maintenance case, I am also quite knowlegable about my illnesses and the damage done, the drugs involved and used, which is often a turn off to doctors. I don't have all the answers that's for sure to the extensive damage. I have lost my faith in the medical community and so called healthcare professionals and the government for that matter. and have been bady tramatized by the damage, the collusion, the abuse in the hosptials, my own home. They have a lot of trust earning to do.
Since 2003 to 2012 there have been 18+ attempts to have me hosptialized with honest tests and diagnosis at a pace I can handle including a former Minister of Health to no avail or abused and kicked out of the hosptials, including my mom who was assaulted.
In 2008, using alternative health medications, I got some improvement for a short period of time, and took up my cause again, albeit less than snails pace, which I had mostly given up hope on for several years. It is an extremely slow go for me. Often I can not speak, type, or sit up; cognitive problems are extreme & I am mostly bed confined often left paralyzed in it and the daily convulsions and cramping and twisting from dystonia on top of the generalized dystonia. My arm sockets are very damaged fromt the dysotnia convusling daily, full body rapid jerking has lessened as my body has become more rigid from the progression of the dystonia which is life threatening. It is beyond people’s comprehension, it has increasingly become beyond mine how I am still here and this allowed to freely go on by the Ontario and Canadian Goverment's tha t involved THOUSANDS of People
~ Like all illnesses, the severity of M.E./CFS varies from patient to patient. Dr. Paul Cheney stated he had evaluated over 2,500 ME/CFS cases and it can be a nightmare of increasing disability with both physical and cognitive components. Severe cases can have both an MS-like and AIDS-like clinical appearance. Dr. Dan Peterson, found that, “ME/CFS patients experienced greater functional severity than the studied patients with heart disease, virtually all types of cancer and all other chronic illnesses”. 20 years after the epidemic, Dr. Peterson said he has never had a patient that recovered from ME/CFS. An unrelated study compared the quality of life of people with various illnesses, including patients undergoing chemotherapy, haemodialysis, as well as those with HIV (until the late terminal stage), liver transplants, coronary artery disease, and other ailments, and again found ME/CFS patients had the lowest quality of life. Dr. Leonard Jason stated in a radio interview that ME/CFS “is actually more debilitating than just about any other medical problem in the world
~ Here are some of the best on the web for ME/CFIDS/FM/MCS/HepC and Stopping Stopping Psychiatric Abuse :
http://www.immunesupport.com Largest Research Library Worldwide, forums & natural supplements
http://www.mefmaction.net/ Canadian & Changing Canadian laws
http://www.cfids.org/ American CIFDS Org
http://www.ncf-net.org/index.html National CFIDS Org. more directed to Research & funding
http://www.fibrohugs.com Large support site & info
http://www.cfids-cab.org/MESA/index.html US, has CDN Definitions
http://www.co-cure.org/index.htm US & CDN, smaller site
http://www.care2.com/c2c/group/fm_cfs Care2 FM/CFS group
http://www.mindfreedom.org Stopping Psychiatric Abuse
f I Can't Dance Is It Still My Revolution
http://www.lloydwright.com NATURAL ALTERNATIVES FOR HEP C (and some for ME/CFS)
CANADIAN'S PLEASE WATCH:
FIRST, DO NO HARM. 5th Estate/CBC Documentary, Please watch it SO YOU KNOW HOW OUR MEDICAL SYSTEM DOES NOT WORK IN FAVOUR OF PATIENTS. PROTECTED BY POLITICIANS, DOCTORS, & SOME NURSES & HOSPTIAL STAFF FOR THE SECRET CODE OF SILENCE AND WHO ARE ABOVE THE RULE OF LAW.
FIRST, DO NO HARM
Watch the entire documentary online (runs appox 41:30)
CANADIANS DON'T BE COMPLACIENT: WAKE UP TO WHAT IS HAPPENING IN OUR OWN COUNTRY PLEASE! 3 in 10 of Canadians report medical errors (November 2005) by the medical profession(the Tip of the Iceberg) & that is only what gets reported/makes it to court & does not include those damaged by prescription medications, which at present is only 10% as well that are reported by doctors that they know of. There is now on Health Canada a site for Canadians to report adverse affects to medications. This is MILLIONS OF CANADIANS WE ARE TALKING ABOUT and the Canadian Medical Protective Assoc. has BILLIONS of $$ & MAKES THE LAWS HERE, are protected by the Politicians AND WE PAY THEM WITH OUR TAXES TO PROTECT THE DOCTORS & MAKE THEIR OWN LAWS & that keep us out of court! Even our government has a "hands off policy" because they have too much power and money. Don't wait until it happens to you or someone you love or know. We need or own Protective Medical Association FOR THE PEOPLE OF CANADA and which soon I hope you will be seeing a link to HERE!
Tue. May. 31 2005 ,
A recent University of Toronto study showed that up to twenty four thousand Canadians are killed each year by mistakes in the medical system. This makes it the third largest cause of death on Canada. Only cancer and heart disease claim more lives and only three to four hundred Canadians are compensated each year for medical errors. ARTICLE LINK HERE
CMPA as a Defence Organisation
The Canadian Medical Protective Association (CMPA) was founded in 1901 by a group of Canadian doctors for their mutual protection against legal actions based on allegations of malpractice or negligence.
Unlike insurance companies, the CMPA does not issue a malpractice policy to its members, nor is there a deductible. There is also no limit to coverage. While legal fees in medical malpractice cases can easily amount to hundreds of thousands of dollars, the doctor does not as a practical matter have to pay; the CMPA pays the legal fees to the doctor’s lawyers directly. If a doctor is ordered by the Court to pay money to a plaintiff, the CMPA pays, not the doctor. As an association of physicians, the CMPA feels strongly that the reputation of its members is paramount. For this reason, the CMPA will not settle a case solely because it is cheaper to pay the plaintiff than take the case to court
Continued: The Canadian Medical Association for DoctorPLEASEREAD: http://www.hartelaw.com/artl_cmpa.htm
http://www.abraham-hicks.com -free audio downloads, CD, as well as CD/Tape courses
http://www.centerpointe.com/holosync meditation Cd's - and Courses
A Course In Miracles
Bhagavad Gita As It Is
Each time a man stands up for an ideal, or acts to improve the lot of others, or strikes out against injustice, he sends forth a tiny ripple of hope...
And crossing each other from a million different centers of energy and daring, those ripples build a current that can sweep down the mightiest walls of oppression and resistance.
~Robert F. Kennedy
||Mar 1, 2005
||Meeting Friends, Professional Connections, Support a Cause
|Group Host of
(AGR) A Green Road, (APPPN) A Petition Posting & Peoples Network, 4 Writers from Writers and those who like to become writers, 9/11 CONSPIRACY ! ! !, ?Science?, A Flower Does Not Talk, A Forest in Brazil, A Picture Is Worth A Thousand Words, AHIMSA VEGAN DIVINE ~ CREATURES EARTH ~ RAINBOW LIGHT ~ PEACE LOVE !, ASSOCIATIONS AND COALITONS, Action Advocacy . . . is all about creating change!, Activists & Community Group Leaders, Activists & Damn Proud Of It!, Activists Against Factory Farming more »
||REGARDING FRIENDS PLEASE INTRODUCE YOURSELF FIRST & WHY YOU WANT TO BE FRIENDS (SPECIAL INTEREST IN CANADIANS INTERESTED IN OUR COUNTRY'S MEDICAL/HEALTHCARE/PRIVACY HUMAN RIGHTS LAWS, and PALESTINE RIGHT OF RETURN) & TAKE TIME TO READ MY PROFILE AS I WILL YOURS WHEN ABLE. IF YOU ARE NOT GETTING A RESPONSE FROM ME IT IS EITHER BECAUSE YOU HAE NOT INTORDUCED YOURSELF/READ PROFILE OR BECCAUSE MY NETMESSAGES ARE VERY BACKLOGGED AND DIFFICULT FOR ME TO KEEP UP W.THANK YOU.
"Our ideal is not the spirituality that withdraws from life but the conquest of life by the power of the spirit." - Aurobindo.
UPDATED DEC.31/05: I was first directed here to Care2 to help find a Sponsor for a Neurological Hosptial hopefully outside of my country (which was the header on my Profile for along time & still neeeded by the way) & any means of finding alternatives & changes to my situation in my own country (which is not unique & affects millions of Canadians). At the time I could barley type, had been badly brain/body damaged & could not fend for my own rights anymore, and which continues to the present. I have a history of helping those in need and defending their rights. The cogntive/memory/brain problems were more severe and remain, although some aspects deminish during unpredicatable times. The current up date is above on my profile.
i TRYING HERE & THERE COME HERE COPY & PASTE EASIEST FOR ME CAN'T DO IF your groups don't have HTTP TAGS, TOOL/icon BAR IN POSTS TURNED ON (Group Module)- God Bless thk you for your prayers
- REMEMBER MY OWN QUOTE "PEOPLE OVERCOMING OVERWHELMING ODDS"
WE ARE NOT HUMAN BEINGS
HAVING A SPIRITUAL EXPERIENCE
WE ARE SPIRITUAL BEINGS
HAVING A HUMAN EXPERIENCE
||Introduce yourself to Cheryl
have added some protein for healing,
|Wild Fact About Me
||truth enlightment love = All That Is; FEAR is the worse 4 letter word; everything you need is within you except we have fotgotten how to access it; rights for ANY living thing/being/ on mother earth,; Re-Member; keep on going through hell & highwater
|What Gives Me Hope
|If I were Mayor, I'd make the world a better place by
|What/who changed my life and why
||Books: BE HERE NOW, Zen & the Art of Motorcycle Maintenance, Johnathan Livingston Seagull, Edgar Cayce Books; ONE, Celestine Prophecies, Course in Miracles (online course/tape,-book huge-too hard for me, lol) Conversations with God , Bhagavad-Gita, Cave In the Snow, Pure Bhakti, Everything you Know you learned in Kindergarten", A.C.Prabhupada Self REalization & Karma Free Diet & others, Paramahansa Yogananda's books, New Testament (what was allowed by the church to be printed),Complete Writings of Kahil Gibran. Louise Hay You Can Heal your Life, SETH Books, What The Bleep do YOU KNOW? ,Body Guard of Lies, Scottish/UK/Ireland/Euorpean History, History not in order as above.
|What Bugs Me
want to be outside again,
surviving 1 day @ time,
stop the daily dystonia convulsions,
supportive care housing,
getting medical neurolgical care,
but sound can hurt now,
used to be dont know anymore,
Water in nature,
|What Scares Me
||quote hound, it's a long list
too many too mention
sounds of nature,
water and wildlife,
sound of silence literally,
just about everything except heavy metal,
Marvin Gay "What's Goin On",
Slow Train Coming-Bob Dylan,
lots of 60/70/80's early 90's music,
The Princess Bride,
Fried Green Tomatoes,
What the Bleep Do We Know?,
Chariots of Fire,
Dancing with Wolves,
no TV anymore,
Nature of Things David Suziki,
Oprah (sometimes used to be regular year,
Dr. Phil (sometimes) Travel(Lonely Plane,
60 minutes (sometimes),
don't watch much TV
by/on/in the water (canoeing miss it muc,
especially in canoe or it parked by rock,
almost private beach as well on island n,
can't get to anymore but PLAN TO!
|Can't Live Without
While in this PHYSICAL BODY THIS LIFE TI,
inner spiritual strength,
medical diagnosis treatment being deni,
||Introduce yourself to Cheryl
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