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My Experience
Aug 28, 2006

My mother has was diagnosed with ALS on May 5, 2005.  Since that time she has gotten progressively worse, and it is quite difficult to watch her loose her freedom.  I hope that anyone who is affected by this disease will please feel free to share their feelings.  I have many emotions, which you are sure to eventually read about.  For now I want to ask anyone who can relate or provide some words of encouragement to those who are suffering to please add your blog.   

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Posted: Monday August 28, 2006, 5:31 pm
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Anna N. (22) 		Sunday February 19, 2012, 7:29 am
It's nice (in a bittersweet way) to find someoneelse who has been affected by this disease. My cousin is in the later stages of ALS and it was awful to see someone so full of life struck down in the prime of her life (at only 31 and while pregnant).

It seems this is a poorly known and little talked about disease, so it's great that this group is here.

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Kelli McCoy
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female, age 32, committed relationship, 2 children
Aiken, SC, USA
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