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Aug 3, 2013

Focus:Health
Action Request:Donation
Location:Virginia, United States
It is with a heavy heart that I send out this message and a plea for help...

In June, my sister-in-law, Ashley, and my brother, Adam, went for an ultrasound appointment. At the time, Ashley was five months pregnant with their first child (he's due on my birthday!). It was then that they received a life-changing diagnosis...

My nephew has HLHS (Hypoplastic Left Heart Syndrome) ... meaning the left ventricle of his heart hasn't developed. It's not something that will correct itself or something he'll grow out of. If untreated he won't survive.

We were totally caught off guard. We're sad, stressed, shocked, scared, but most of all...hopeful. This WILL be okay. It will all turn out the way it's supposed to, we just have to stay positive and have faith.

You can look up the condition and read about the three-stage surgery that's required and the statistics involved, there is a lot of information readily available. He has a chance. He has a GOOD chance and we are staying positive. There are a number of survivors...the oldest are in their twenties and thirties because the procedure wasn't started until 1985 so we don't know exactly what the future may bring...but who does?

This condition only affects about 960 babies born in the US each year. The journey will be long and hard, but we are bracing ourselves for it, which is where you come in...if you choose to. I'm hoping to be able to raise enough money to help them with medical expenses.

So I ask for your help. As much or as little as you can give. Every penny counts.

Thank you for taking the time to read my message and considering a donation. Please pray for my brother and his wife, but most of all my nephew...and help them get through what promises to be a challenging time.

~Shari

P.S. If you are unable to donate, you can still help by sharing his Facebook page (https://www.facebook.com/AHeart2Build) and/or the "A Heart to Build" page (http://www.gofundme.com/Heart2Build) with anyone and everyone your know. E-mail, Facebook, word of mouth...anything you can do to spread the word and get people to donate is greatly appreciated.
Visibility: Everyone
Posted: Saturday August 3, 2013, 7:35 am
Tags: family love help heart baby surgery charity infant donate Cardiac pediatric hlhs [add/edit tags]

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Shari Robinson
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USA
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