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Apr 18, 2006
Please help 'Quick Nick'
and others with AS

A colleague of mine has a cousin, Nick Green, in Houston who has Angelman Syndrome.  It is a genetic disorder that obviously lasts for a lifetime.  He is now 11 years old and is doing well, a happy kid, but has limited motor skills, will never be able to speak, and will always have the mental ability of a child.  His parents have joined in a national network to prepare for his future, and the one in every 15,000 children like him.

On May 20, there will be a national Walk-A-Thon in 12 cities nationally, including Orange County; see
http://www.angelman.org/angel/index.php?id=178.

My colleague, Steve Daigle, will do the march in Irvine, CA.  I and he would appreciate it if you'd be his sponsor.

His website for this event is at:
www.firstgiving.com/nickgreen

Everything can be done online from this site.  You can donate by credit card and receive a record of your donation (fully tax deductible).  All donations are secure and sent directly to Angelman Syndrome Foundation.

Information on Angelman's Syndrome can be found at:
www.angelman.org/angel
and http://www.angelman.org/angel/index.php?id=75

The official online sponsor can be accessed at www.firstgiving.com

The Web site of Nick's parents for this event is: www.firstgiving.com/quicknick

Please help so that more research can be done, more help can be accomplished and, hopefully, a cure can be found.

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Posted: Apr 18, 2006 2:40pm

 

 
 
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Author

Sharky C.
, 2
Arcata, CA, USA
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