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Mar 14, 2012
Focus: Health
Action Request: Visit - online
Location: Utah, United States

I am helping kids fighting cancer, I'm a volunteer with the St. Baldrick's Foundation. Please support me! With head-shaving and other fundraising events, this volunteer-driven charity funds more in childhood cancer research grants than any organization except the U. S. government. Your gift will give hope to infants, children, teens and young adults fighting childhood cancers. So when I ask for your support, I'm really asking you to support these kids. Thank you! Click "Make a donation" to give online, or donate by phone or mail.

http://www.stbaldricks.org/participants/mypage/participantid/545904

Mar 21, 2011
Focus: Government
Action Request: Various
Location: United States

On Friday March 17. 

Fourty-six members of the diverse childhood cancer community met in Washington D.C.

Bob Casey (D-PA) introduce Creating Hope Act 2011. 

Cosponsored by Senators Scott Brown (R-MA), Sherrod Brown (D-OH), Al Franken (D-MN) and Johnny Isakson (R-GA).

The bill would encourage the development of new treatments for rare and neglected diseases that disproportionately affect children.

"Millions of Americans are affected by rare diseases and neglected conditions for which there is currently no hope because there is no treatment,” said Senator Casey. 

More than 20 million Americans have a rare disease.

Of the nearly one in 10 Americans with rare diseases, approximately two-thirds are children.

An estimated one billion people worldwide suffer from a neglected tropical disease, and its children  that are most frequently and profoundly affected by these conditions.

Few treatment options exist for these small patients.

Creating Hope Act of 2011, will help develop better treatment for children, by providing critical important new ways to help engage scientists in the biopharmaceutical industry.

The PRV program will create a stronger incentive for companies to invest in new treatments for rare diseases affecting children and neglected tropical diseases.

This legislation will expand priority review vouchers to include treatments for pediatric rare diseases, so that there is greater incentive to close the devastating treatment gap for kids.

Thank you to the following groups and businesses that endorsed the Creating Hope Act 2011:

Aeras Global TB Vaccine Foundation, Association of Pediatric Oncology Social Workers, American Society of Clinical Oncology, American Society of Pediatric Hematology and Oncology, American Society for Tropical Medicine and Hygiene (ASTMH), Bio Ventures for Global Health, Chai Lifeline, Children's Brain Tumor Foundation, Children’s Hospital of Philadelphia, Children’s Hospital of Pittsburgh of UPMC, CureSearch, GlaxoSmithKline, Genzyme, Kids v Cancer, Leukemia & Lymphoma Society, The National Association of Children’s Hospitals, The National Children's Cancer Society, National Organization for Rare Disorders, Novartis, Medicines for Malaria Venture (MMV), Merck, Metronomix, Sarcoma Foundation of America, Pennsylvania BIO, Shire, CSL Behring, TB Alliance.



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Posted: Mar 21, 2011 1:06pm
Mar 14, 2011

Japan has often donated when other countries have experienced disasters, such as when Hurricane Katrina impacted the United States. CLICK ON THE LINK TO DONATE TO organizations that are working on relief and recovery in the region.

http://news.yahoo.com/s/yblog_newsroom/20110311/wl_yblog_newsroom/japan-earthquake-and-tsunami-how-to-help

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Posted: Mar 14, 2011 1:50pm
Mar 12, 2011

As we continue the battle against childhood cancer, we invite you to experience the many ways the
St. Baldrick’s Foundation, with your support, is making a difference. On behalf of the Foundation and the children we serve, we would value your participation at one of our events.
http://www.stbaldricks.org/teams/mypage/teamid/69564

Worldwide, 160,000 children are diagnosed with cancer each year and despite tremendous progress, cancer remains the number one disease killer of children in the U.S. and Canada. One of the ways the St. Baldrick's Foundation raises funds for childhood cancer research is by hosting worldwide head-shaving events, where volunteers shave their heads in solidarity with the children who typically lose their hair during treatment. These “shavees” receive pledges of financial support from their friends and family and in turn their generous donations help fund life-saving pediatric cancer research.

St. Baldrick’s events have raised approximately $90 million, providing research grants to doctors and scientists at over 230 institutions to pursue the most promising new cures for childhood cancers and to help make clinical trials available to more children than ever. Since 2000, St. Baldrick’s has hosted more than 3,200 head-shaving events, shaving  nearly 145,000 heads in 28 countries and 50 U.S. states.

I hope you will agree to be a representative for the Foundation in 2011. Although you may not be able to shave your head, there are many ways to participate and your involvement could significantly help raise awareness that childhood cancer is the preeminent disease killer of children in the U.S. and Canada. If you accept this invitation to join us, we fully welcome your creativity and ideas that are sure to enhance the fun at our events.

If you have been touched by a child with cancer you know the urgency for finding a cure. Together we can support this vital research and give our children back their dreams.

Thank you for your support. Together, let’s Conquer Kids’ Cancer!

 (¯`v´¯ Respectfully,
  `*.¸.*
 ¸.•´¸.•*¨ ¸.•*¨ Ashleigh Sinclair
(¸.•´ (¸.•´ .•´ ¸¸.•¨¯`•.

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Posted: Mar 12, 2011 2:24am

 

 
 
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Author

Ashleigh Sinclair
, 1, 2 children
Cottonwd Hgts, UT, USA
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