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Reaching Out to Breast Cancer Patients

Reaching Out to Breast Cancer Patients

Due to the arbitrary way that Medicare and private insurance companies decide what is medically necessary and what is optional, breast cancer patients are often left paying for lymphedema sleeves – which control swelling after a mastectomy – themselves. Those who cannot afford them go without and suffer.

It Takes a Villager

Susan Niebur, astrophysicist, mother, currently undergoing treatments for a fourth reoccurence of the disease, wants to ensure that all breast cancer patients have access to lymphedema sleeves, gauntlets, and/or gloves, and she’s taken to the blogging community via her own site, Toddler Planet, to ask for help raising money to make this happen.

Using Social Media to Promote Awareness

To generate donations to organizations devoted to providing lymphedema sleeves Niebur wrote the following in a post to her readers,

Today, I am pleased to announce a NEW opportunity for breast cancer survivors who have had a mastectomy and/or axillary dissection of the lymph nodes due to breast cancer and have swelling of one or both arms but cannot afford the $200-$500+ cost for two sets of the compression sleeves and gauntlets that survivors with lymphedema must wear every day to keep the swelling in check. 

Although lymphedema sleeves are medically necessary, they are not covered by Medicare OR most insurance plans under current law, and thousands of survivors go without the sleeves, needlessly suffering congestion, swelling, and pain that interferes with their normal activities.

Two Organizations Making a Difference

Cricket’s Answer, a non-profit organization founded in memory of Cricket Julius has teamed up with LymphaDIVAs to make sure that all breast cancer survivors who need sleeves, gauntlets and gloves, will have them. People can donate through Cricket’s Answer’s website.

Niebur asked that her readers promote the cause via their blogs or other social media accounts and to email the appeal to friends. She also urged readers to contact Congress in support of the Lymphedema Treatment Act bill designed to change the rules that make it impossible for some patients to get the treatment they need.

Online communities increasingly play important roles in social change and raising awareness, but it’s thanks to bloggers like Susan Niebur that these things happen, and it’s proof that one person really can make a difference.

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Read more: , , , , , ,

Photo credit: Rockets Against Breast Cancer by Erik Carlton

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16 comments

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9:37PM PST on Jan 18, 2011

Thanx for the great article

5:02PM PST on Jan 14, 2011

Thank you for the great article.

9:07AM PST on Jan 13, 2011

I had to pay from my sleeve and boy they are not cheap. I also had to pay for my mammogram and biopsy because I was only 34 years old. Only after I was diagnosed with cancer did my insurance start covering things, and then they raised my rates.
Go Figure!

5:28PM PST on Jan 12, 2011

Correction...actually hemp oil 'IS' for everyone.

There has never been an adverse reaction to any hemp product.

Regards...

1:53PM PST on Jan 12, 2011

I am among the lucky ones, that I do not need any of these products. But there are some that need them and should not have to go with out, . Also the Hemp oil ingestion may not be for everyone. Always look in to things that people suggest before trying it.

12:25PM PST on Jan 12, 2011

" * Yvonne S. says
* Jan 12, 2011 9:00 AM

Donald MacDonald I hope you never have a relative or friend who gets breast cancer because if you did, and you suggested the 3 weeks of hemp oil ingestion to them, I think you would be wearing it (the hemp oil) on your head. "


Your words are spoken out of ignorance Yvonne...read the information below.

And yes, I lost half my family to chemo and radiation "treatments", thank you very much.



" * Mary H. says
* Jan 12, 2011 6:06 AM

Could you elaborate more on the 3 weeks of hemp oil ingestion
please Donald MacDonald. I have not heard about this.
Thanks "


Its nature's 'everything' plant Mary...its cures all disease, and can be made into anything.

Watch 'run from the cure' on youtube.

Web site phoenixtears.ca

Regards...

11:23AM PST on Jan 12, 2011

Please people, stop slicing off body parts becasue of cancer. There are alternatives to this severe measure. Start with getting regular tonal adjustments, you have to look for chiropractors proficient in this type. More protection from getting cancer in the first place. If diagnosed, look into this right away and other alt. help.

9:00AM PST on Jan 12, 2011

Donald MacDonald I hope you never have a relative or friend who gets breast cancer because if you did, and you suggested the 3 weeks of hemp oil ingestion to them, I think you would be wearing it (the hemp oil) on your head.

6:16AM PST on Jan 12, 2011

breastcancer.org

6:06AM PST on Jan 12, 2011

Could you elaborate more on the 3 weeks of hemp oil ingestion
please Donald MacDonald. I have not heard about this.
Thanks

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