In the past 30 years, I’ve had hundreds of dislocations (ankles, knees, toes, fingers, shoulder, hips and other joints) and countless other medical problems. I’ve also struggled throughout the years with doctors that have never seen anyone else with Ehlers-Danlos Syndrome, insurance companies who don’t want to pay for my expenses, and the outside world who thinks that I look “normal” and can’t possibly have something wrong with me.
Brooklyn Mills of Oakville, Ontario is experiencing some of those same frustrations. She also has Ehlers-Danlos Syndrome, but has been unable to find doctors with the experience to treat her where she lives. Some of the best Ehlers-Danlos specialists are here in the U.S. and have treated hundreds of Ehlers-Danlos patients and know what works. But, officials at the Ontario Health Insurance Program have ruled that they won’t pay for Brooklyn to receive the out-of-country care she deserves.
The Mills family has already incurred hundreds of thousands of medical bills over the past two years since Brooklyn first starting having symptoms. She recently had a series of surgeries that greatly improved her quality of life, but officials in Ontario have not agreed to reimburse the family for those expenses. Ehlers-Danlos is a chronic, debilitating disease. There’s no quick fix and Ontario needs to recognize the long-term coverage Brooklyn is going to require.
Please sign the petition to convince Ontario Health Minister Deb Matthews to cover Brooklyn’s out of country expenses and get her and others the coverage they need.
Creative commons photo via Flickr