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Children With Brain Tumors Need Support: An Activist Spotlight

Children With Brain Tumors Need Support: An Activist Spotlight

Pediatric brain cancer is the number one cause of cancer-related death in children — yet treatment options available to pediatric low grade astrocytoma (PLGA) patients have not changed in 20 years.

The PLGA foundation is dedicated to fighting children’s brain tumors in any way possible — but they need help.

“Government funding for children’s brain tumor research is MINISCULE (the National Cancer Institute (NCI) spends less than 3% on pediatric cancer research and a FRACTION of this is used for children’s brain tumors). Scientists believe that there are existing drug compounds that COULD tangibly impact the outcome for children with brain tumors…if funding were available to test these drugs.”

Amy, of the PLGA Foundation, stresses the urgency of the petition they created:

“Current medical treatments for brain tumor kids have LITTLE impact and create huge complications, which can be permanent and life-threatening. The NCI must invest in research to find more effective treatments and a cure, which will benefit not just brain tumor kids, but patients with other pediatric and adult cancer.”

The families that fall victim to PLGA brain tumors endure the pain of a deadly illness. The last thing they should be worrying about is a lack of updated medical treatments and support.

If you want to help PLGA children receive proper funding for a chance at life, sign this petition today!

 

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Photo courtesy of the PLGA Foundation

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41 comments

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6:23PM PST on Mar 8, 2011

I have two words: Craniosacral Institute.

7:48PM PST on Jan 7, 2011

thanks for the article, petition signed.

2:29PM PST on Dec 16, 2010

" Children With Brain Tumors Need Support: "


Again, all 'Children With Brain Tumors' need is 3 weeks of ingesting hemp oil.

More here...

phoenixtears.ca

Regards...

4:48AM PST on Dec 16, 2010

Thanks for the info.

11:54PM PST on Dec 15, 2010

Noted and signed

11:54PM PST on Dec 15, 2010

the entire charity/research system is screwed up! everyone is so busy with their own limited issues, no one is willing to work together. After 50 years and hundreds of billions of dollars, cancer research should be a lot further along. we can't even cure the common cold, but we have 10 medications for erectile dysfunction? what can kill us is not a priority but sex is. got it! for every different charity or organization out there means that at least 20% of donations or more go to administrative costs.if we took all charities and made them into say 5 huge charities with different divisions, but only one administrative group, much more money would be going to service delivery. and all five groups would have to work together and share research because they would all be working together in the same building. each of the five would have a ceo, fundraiser, cfo, and the support staff, but that would eliminate literally hundreds of administrative positions in existence. they will never go for it because every charity, every organization believes they are unique, special and no one can do better than they can. the huge surprise is that is can be done much better by streamlining all of these various agencies, whose egos will not allow this to happen. it's called work smarter not harder. too bad because the people really need the solutions and not the propaganda. After 50 years and billions, most employees would have been fired years ago for failing to do their jobs, right?

10:34PM PST on Dec 15, 2010

signed and noted.thank you for alerting me to this disease/these children. I know that there is limited funding for all diseases, but I believe that diseases affecting children only or mainly MUST come first. These are children, whose lives have barely begun. Perhaps some of our Senators will consider giving their "earmark" money for these- children.-OUR children

9:32PM PST on Dec 15, 2010

Will someone, please, take John Boehner to see this little girl?

I would like to know that he cried over her dilemma, in her presence, not when he is talking on TV, with an audience.

For all of you so-called pro-lifers, place your attention where it is needed, on children already born. There are so many out there, unloved, and needing medical and emotional care. Show everyone that you REALLY care about children.

5:38PM PST on Dec 15, 2010

I'm definitly signing this petition. No kids deserves to get this!

3:59PM PST on Dec 15, 2010

I'm sad to say, but PLGA is not the only medical condition for which research is underfunded. We may feel more emotional about it because children are involved, but if we truly look closer at medical research, we will see that there are multitudes of illnesses for which research is underfunded or even non-existant. The very sad truth is that there's just not enough money (especially from taxpayers) to go around for all the diseases for which cures are urgently needed.

What makes one disease more deserving of our limited government funding than another? Is it emotion because children are involved? Is it how close the research towards a cure may be for a different disease (which might then not happen if the funding is taken away to be used elsewhere)? Should diseases that affect the most people get more funding over rare diseases that affect only a very few (if that were true, then rare diseases would never get funding)?

The situtation of government funding is very complicated, and we need to remember that with limited, finite funds available, when we petition for funding to be moved to one disease, we are simultaneously telling the government to take that money away from somewhere else.

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