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10 Tips for Managing Daily Living with Multiple Sclerosis

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10 Tips for Managing Daily Living with Multiple Sclerosis

Sometimes it’s the little things that make a big difference in quality of life and maintaining independence.

If you have relapsing/remitting multiple sclerosis, as I do, it’s easy to overlook simple things that can make life easier when in relapse. Since my own diagnosis in 2004, I have come to appreciate some simple household helpers that assist me in managing daily life with MS.

1. Tall Stool for Kitchen Work: An inexpensive solution to a big problem. If standing at the kitchen counter for any length of time is a problem, a tall stool is just the right height for kitchen duty. Get in the habit of gathering together everything you’ll need in one spot rather than making multiple trips around the kitchen. Grab the stool, have a seat and enjoy your kitchen again. Make sure the stool has firm support and no arms so you can easily maneuver. You don’t need to buy anything fancy or go to a specialty store — any tall stool will do.

2. Mobility Aids: An adjustable folding cane can be tucked away in a large purse, suitcase, or car, out of sight and out of mind until you need it. There is even a cane that folds out into a stool! They are available in lots of styles and colors, too. If you need them, lightweight, folding wheelchairs and walkers are excellent devices for people who only need them occasionally.

3. Shower Chair: If you have difficulty with balance and strength, the shower can be a little intimidating, but a small, sturdy shower chair can give you back your confidence, and can be easily moved aside when not needed. Grab bars can also boost safety. While you are thinking about the bathroom, you may want to consider investing in a blow dryer stand to relieve your uncooperative arms.

4. Handicapped Parking Placard: People with multiple sclerosis often appear healthy and strong even though they have difficulty walking for any length of time. Problems with fatigue, stamina, balance, and coordination can interfere with daily activities. If you have difficulty walking or standing for more than a few minutes, you might want to consider applying for a placard. The ability to park close to a place of business or shopping center could make all the difference in the world when it comes to maintaining a sense of independence. The information you need, along with the application, are available online from the Department of Motor Vehicles in your state.

5. Sensible Shoes: Sensible shoes don’t have to be ugly shoes. High heels and pointed toes aren’t very sexy if you teeter around on the brink of disaster all day. Opt for shoes with a low heel and sturdy construction. Shoes that have no support at the heel and do not stay put when you walk can cause trips and falls. Even flip flops can cause trouble if you have difficulty walking. For hanging around the house, lightweight slippers with flexible soles that move with your foot are comfortable and safe.

6. Cooling Products: Heat and humidity makes it even more difficult for already damaged nerve fibers to transmit electrical impulses, resulting in an exaggeration of MS symptoms (pseudo-exacerbation), which may include fatigue, dizziness, and extreme weakness. A simple rotating fan can make a big difference. Information on Cooling Programs: Multiple Sclerosis Foundation: Cooling Program, Multiple Sclerosis Association of America: Cooling Equipment Distribution Program, National Multiple Sclerosis Society: Cooling Product Information and Assistance.

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26 comments

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4:33PM PST on Jan 30, 2010

Thanks.

6:14AM PST on Jan 30, 2010

Thanks! I've got MS and have been following many of these tips for years. Learned 'em on my own, for the most part. Toileting is a problem when one has to stand long enough to pull down a Depends before landing on the seat & "accidents" are a real pain to clean up. Oh well. It's life. Better than the alternative.

7:37AM PST on Jan 26, 2010

these recommendations are also useful for people with other chronic pain disorders. I have fibro and I plan on getting a better kitchen stool so I can wash dishes.

1:47PM PST on Jan 17, 2010

confused about teh shoe recommendations: no flip flops, but light slippers ok? picture of Rockports would be better (good looking sensible shoes)

7:45AM PST on Jan 5, 2010

Thanks.

7:44AM PST on Jan 5, 2010

Good information.

1:38AM PST on Jan 2, 2010

Thank you for the info - I have had MS since 1985 and have been taking 6 fish old capsules and day (3 am - 3 pm) and also 2 multi vitamins (also one am and one pm) and do yoga at home - I find that this helps me so much - I get the vision trouble which is associated with MS but as my eyesight changes from day to day - use the different reading glasses - i also get the tiredness on certain days - but others seem to be ok - my speech sometimes seems to be affected and occasionally get a bit dyslexic - I also feel that you have to accept this and go with it - never get frustrated with it because it could make if feel worse - just go with the flow - and live each day to the hilt - do not feel sorry for yourself - life is so wonderful it is an everyday miracle....

8:26AM PST on Dec 31, 2009

noted

5:16AM PST on Dec 31, 2009

thanks for the information

12:22PM PST on Dec 30, 2009

David J:

There are medications to treat vertigo, both over the counter and prescription strength, although I have chosen not to take them.

When vertigo strikes, you want to get in a seated position -- a recliner works very well. Make sure the lights are on and try to keep your head and neck still. Lying down in the dark makes vertigo worse.

It's worth mentioning to your doctor.

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Disclaimer: The views expressed above are solely those of the author and may not reflect those of
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