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4 Countries With the Right Approach to Dementia Care

4 Countries With the Right Approach to Dementia Care

By the year 2050, 277 million aging adults are expected to be dependent on others for personal care. Of those 277 million, approximately half will be struggling with symptoms of dementia, according to the newly released World Alzheimer’s Report 2013. (Discover the common signs of dementia.)

“All governments should make dementia a priority,” according to the authors of the report, which calls upon policymakers across the globe to “transform their system of priorities” and infuse dementia research and support efforts with a tenfold increase in funding.

These statements echo the pleas made over the years by countless individuals and advocacy groups; a universal cry to address the threat of the “silver tsunami” that looms ever larger in the world’s rear view mirror.

The report itself highlights many current caregiving issues that advocates warn will only become more concerning as time goes on. Why are family caregivers so undervalued? What factors force people to place their loved one in a long-term care facility? How can we preserve the quality of life of individuals with dementia and their caregivers?

Progress is being made to address each of these problems, with different countries adopting different strategies to find a solution to the dementia care crisis.

The United States joins eleven other countries (Norway, Australia, Netherlands, Scotland, Denmark, Finland, England, Wales, France, Republic of Korea and Northern Ireland) in releasing a formal plan to address Alzheimer’s and other dementias in their respective domains.

Improving support (both financial and emotional) for those affected by dementia, enhancing the quality of care provided by long-term care facilities and reducing the overall costs associated with dementia top the lists of priorities in these plans.

Similar aims, different approaches

The global community appears to agree on the overall goals of dementia care, but a surprising number of differences in execution occur, depending on geography and cultural practices.

“Different places are going to have different variations in care,” says Cathy Greenblatt, PhD, author of Love, Loss and Laughter: Seeing Alzheimer’s Differently. “But the same things that are important in Florida are important in Bangalore.”

After watching her grandparents (both of whom had dementia) receive little more than maintenance care in a local facility, Greenblatt acquired a dim view of dementia care. “The people working with my grandparents had bought in to the idea that they were ‘gone.’ I grew up with no evidence that any kind of care could make a meaningful difference.”

After retiring from her professorial post at Rutgers University, Greenblatt—inspired by her childhood experiences with her grandparents and a budding passion for photography—crisscrossed the globe in search of examples of high quality dementia care.

Despite the cultural disparities and ideological differences of the regions Greenblatt visited there was one central theme that united them all. No matter which country she found herself in—India, Japan, France, or the Dominican Republic—Greenblatt discovered that the best dementia care practices were the ones that focused on celebrating the ongoing humanity of the person with the disease. “The things that make a difference are the things that are universal—treating people with dignity, being in the moment,” she says.

Here are just a few examples of the ways different countries are infusing dignity into dementia care:

India: Money is always a significant factor when caring for someone with dementia, no matter what side of the Equator they live on. Having fewer finances often amplifies the burden of dementia on a person and their family. But low-income elders in Cochin, India receive special treatment, thanks to a group of professional staff and volunteers from the Alzheimer’s and Related Disorders Society of India (ARDSI). While traveling around India, Greenblatt visited the home of a woman with advanced dementia whose bed consisted of little more than a wooden frame with a piece of cardboard over it. Still the woman was able to receive a treatment plan and regular in-home visits from ARDSI caregivers and social workers.

France: Greenblatt describes the remarkable transformation of a dementia-stricken Frenchman named Marcel. In a special Snoezelen room at the Villa Helios in Nice, France, Marcel, whose condition was causing him to act angry and violent, was changed into a gentler, more caring soul. Snoezelen rooms are used to calm those with cognitive disorders, such as autism and dementia. They contain an array of different sensory stimuli, including water beds, soothing scents, soft lighting, and even big water tubes with bubbles piped into them.

The Netherlands: Just beyond the outskirts of Amsterdam lies Hogewey, a quaint village occupied by just over a hundred people. The town has a theatre, a grocery store, a beauty salon, restaurants and cafes. What makes Hogewey different from the traditional European hamlet is the fact that nearly half of its inhabitants have moderate or severe dementia. The remaining “residents” are in fact specially-trained caregivers who pose as beauticians and restaurant staff, all the while making sure those with cognitive impairment remain safe and calm. The so-called “dementia village” is actually an innovative care facility designed to make those suffering from memory loss feel as though they are living regular lives and remain engaged with their environment. Residents’ rooms are decorated based on their hobbies and interests, food preparation and service are tailored towards individual preferences and there are always staff members available to provide hands-on care for those who need it. Other caregivers surreptitiously keep an eye on the residents as they go out shopping or to the salon, always ready to step in and make sure no one endangers themselves. The village’s single exit is manned by a staffer who tells any approaching resident that the door is either broken or barred and offers an alternative path. This prevents residents from wandering away and becoming lost—an especially common concern for those with profound dementia.

The United Kingdom: The Pan-London Dementia Action Alliance recently announced a formal push to make London the world’s first dementia-friendly capital city. Unlike Hogewey—a self-contained village created specifically for those with dementia—London aims to integrate the cognitively-impaired into its pre-existing metropolis more effectively. This will involve the coordination of countless smaller initiatives, such as making landmarks more accessible and instructing fire fighters, policemen and bus drivers how to identify and communicate with the dementia-stricken.

Across the world, person-centered dementia care is rapidly replacing the outdated paradigms that relegated the cognitively impaired to wheelchairs in locked wards.

Greenblatt is cheered by these shifting tides because that means fewer and fewer people with dementia will be treated like her grandparents were. “It’s a tragic disease and you have no control over the cards you’re dealt. But you do have control over how you play the hand. There are ways to make the situation livable for everyone involved.”

How Different Countries Infuse Dignity into Dementia Care originally appeared on AgingCare.com.

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Read more: Aging, Alzheimer's, Caregiving, Do Good, Healthy Aging, News & Issues, , , ,

By Anne-Marie Botek, AgingCare.com Editor

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106 comments

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6:28AM PST on Dec 24, 2013

Dementia friendly cities and dementia villages. How lovely.

5:01AM PST on Nov 10, 2013

Hogewey sounds like an amazing place. Quite the concept. How is residents' care paid for?

3:57PM PDT on Oct 4, 2013

Lauren - not only cynical one. It's easy to release a plan...what is is important is the actual implementation. The GOPTP seem to not want any help given to any disabled, senior, child, and this includes dementia patients. Evidently none of them have children, parents and grandparents, or people disabled and/or with dementia of any knd. Or maybe they've warehoused them in those expensive nursing homes so their consciences can be clear...

11:05PM PDT on Oct 2, 2013

Thanks for sharing!

4:35AM PDT on Oct 2, 2013

from a personal caregiver viewpoint, caring for a dementia patient is not a walk in the park. especially if they have other health issues to contend with. Governments need to do more for their citizens, you owe then that much. financial aid is a start. preferably it is better if a family takes turn caring for our older folks. however dementia is not age-pickers. as young as a 35 yr old has dementia cos of a stroke or accident which them incapable of doing simple tasks we take for granted. dementia is a global threat. stop the stupid wars between ourselves in basis of religion and ideals. take care of our folks!

10:38AM PDT on Oct 1, 2013

the Netherlands seem to have the best system and to really care about people. The U.S. couldn't care less.

10:07AM PDT on Sep 30, 2013

Thanks for sharing

8:18AM PDT on Sep 30, 2013

Disappointed! I don't see Canada as one of the countries involved with addressing the problem of AZ & Dementia. Not surprising. I'm an adult child who is a caregiver to my dad here in Canada. As a caregiver, our voices are often ignored, sadly only heard when you are backed into a desperate situation. We are told by both Federal & Provincial governments they want seniors to be able to stay at home and that there are services, finacial aid and tax breaks to help do so. However, most of this only applies if the senior lives on their own and in their own home. The moment that senior is brought into the home of the adult caregiver, many of these incentives no longer apply as everything is then passed onto the caregiver to provide. Sadly this means we are often overly stessed and finacially pressed. Yet, instead of my country addressing the issues, Healthcare services are squeezed & slashed with no care to the harm it does.

7:57AM PDT on Sep 30, 2013

I haven't read all the comments, but I wonder if I'm the only cynical one here today? I don't know if my disabled son will get his Social Security payment tonight due to threatened gov't shutdown.
I do not know if his food stamps will be cut back- he gets 35 cents per meal, 3 meals/day.
I know at 31 he is still sharing home with me--which was not what I intended when he was growing up but divorce and single parenting and poverty changed all that.
And in 2013 we have faced discrimination- people refusing to treat him with dignity.
I would only be surprised if the U.S. WAS on the list. It would be highly suspect if it was there.

12:49AM PDT on Sep 30, 2013

Thanks for sharing.

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Disclaimer: The views expressed above are solely those of the author and may not reflect those of
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