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Multiple Sclerosis Info on the Web, on Twitter, on Facebook

Multiple Sclerosis Info on the Web, on Twitter, on Facebook

Multiple sclerosis information on the web… on Twitter… on Facebook… oh my!

When newly diagnosed with something like multiple sclerosis, your first task is to get educated so that you can become your own best advocate. We truly do live in the information age and the internet can be a wonderfully informative source once you weed out the clutter.

While it is up to each individual to judge these sites on their own merits, what follows is a list of some popular resources for news and information regarding MS, chronic illness, and disability issues in general.

Many of the organizations listed, like the National Multiple Sclerosis Society, also have local chapters that offer information more pertinent to your geographical area. You can generally find chapter information on the national organization’s website.

Around the web:

Chronic Disease Fund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.

Chronic Illness Career Coach – Committed to giving people who live with chronic illness the tools they need to be employed.

Consortium of MS Centers – Our core purpose is to maximize the ability of MS health care professionals to impact care of people who are affected by MS, thus improving their quality of life.

Disability.gov – Connecting the disability community to information and opportunities.

Disability Network Connections – Fighting for persons with disabilities through internet activism.

European Multiple Sclerosis Platform – News and information.

Invisible Disabilities Advocate – A non-profit organization that reaches out to people living with debilitating illness, pain and injury.

Multiple Sclerosis Association of America – A national nonprofit organization whose mission is to enrich the quality of life for everyone affected by multiple sclerosis (MS).

Multiple Sclerosis Australia (MSA) – Seeking the Cure. Providing the Care.

Multiple Sclerosis Foundation – Provides a comprehensive approach to helping people with MS maintain their health and well-being.

Multiple Sclerosis International Foundation – Independent information from MS professionals worldwide.

Multiple Sclerosis Resource Centre U.K. (MSRC) – Proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice.

Multiple Sclerosis Society of Canada – A leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.

Multiple Sclerosis Society of India (MSSI) – Promoting and funding MS Research.

Multiple Sclerosis Society of New Zealand (MSSNZ) – Educating and Advocating for people with MS and their support networks.

Multiple Sclerosis Society UK – The UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.

Multiple Sclerosis South Africa (MSSA) – South African Support Group.

Myelin Repair Foundation – Created to address the systemic problems in medical research and commercial drug development that work against the rapid delivery of patient treatments.

National Multiple Sclerosis Society – MS stops people from moving. We exist to make sure it doesn’t.

National Institute of Neurological Disorders and Stroke (NINDS) – National Institutes of Health – reducing the burden of neurological disease.

Social Security Disability Online – Information regarding benefits for people with disabilities.

If you are registered on the free micro-blogging site Twitter, please check out some of my favorite tweeters on the topic:

@CDFund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.

@EdwardJanus – Fighting for persons with disabilities through internet activism.

@MRF_Justine – Internet Strategist at Myelin Repair Foundation.

@MS_Bloggers – Multiple Sclerosis is the common thread. Blogging is the common medium.

@MSSociety – Multiple sclerosis stops people from moving. We exist to make sure it doesn’t.

@MSSocietyCanada – To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.

@MSSocietyUK – The MS Society is the UK’s largest charity for people affected by multiple sclerosis (MS).

@MyelinRepairFdn – Reducing the time it takes to discover and develop treatments for MS Patients.

@ReeveFoundation – Dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for people living with paralysis.

@WorkWithIllness – Chronic illness career coach.

Oh, and you can follow me @AnnPietrangelo, and this growing list of MS bloggers on Twitter.

If you are a Facebook user, you can add your voice to the chorus and interact with these fine organizations:

But You Don’t Look Sick! – Invisible illnesses cause others to state, “but you don’t look sick.” This group is dedicated to discussions and sharing of knowledge of chronic pain.

Chronic Disease Fund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.

CiCoach.com – Committed to giving people who live with chronic illness the tools they need to be employed.

Invisible Disabilities Advocate – A non-profit organization that reaches out to people living with debilitating illness, pain and injury.

Multiple Sclerosis Foundation – Provides a comprehensive approach to helping people with MS maintain their health and well-being.

Multiple Sclerosis Society of Canada – A leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.

Multiple Sclerosis Society UK – The UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.

Myelin Repair Foundation – Created to address the systemic problems in medical research and commercial drug development that work against the rapid delivery of patient treatments.

National Multiple Sclerosis Society – MS stops people from moving. We exist to make sure it doesn’t.

I would be remiss if I didn’t mention that there are many insightful MS bloggers — so many that to choose the “top bloggers” would be an impossible task. Lisa Emrich, of Brass & Ivory, painstakingly maintains the most comprehensive list of MS bloggers on the web for your browsing pleasure.

Don’t forget to check this space every Monday for my latest articles or bookmark this page.

It’s a great big web out there and a sure bet that I’ve left out some of your favorite sites for information and support for people living with multiple sclerosis. Please feel free to share them in the comment section below.

Writer Ann Pietrangelo embraces the concept of personal responsibility for health and wellness. As a person living with multiple sclerosis, she combines a healthy lifestyle and education with modern medicine, and seeks to provide information and support to others. She is a regular contributor to Care2.com’s Reform Health Policy blog in Causes.

Read more: Blogs, Conditions, Health, Living with MS, Multiple Sclerosis, News & Issues, , , , , , ,

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18 comments

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4:00AM PDT on Aug 7, 2010

This is a horrible disease and any accurate, easily accessable info is a blessing to those affected.
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4:34PM PST on Jan 30, 2010

Thanks.

5:05AM PST on Dec 15, 2009

MS is a horrible disease. I have seen some patients with it, and it is never pleasant for the patient or the family. I'm glad that so much support is available for them!

1:29PM PST on Dec 11, 2009

This article was full of information. Thanks

12:46AM PST on Dec 11, 2009

interesting article

5:46AM PST on Dec 9, 2009

Thank you for this list and for including me. This is particularly valuable because you went beyond MS and included the aspects of living with this disease that are part of living with most chronic illness. Rosalind Joffe

2:07AM PST on Dec 9, 2009

The more info for people who need it, the better

7:34PM PST on Dec 8, 2009

Thanks.

2:52PM PST on Dec 8, 2009

Thanks very much!

11:47AM PST on Dec 8, 2009

This is a horrible disease and any accurate, easily accessable info is a blessing to those affected.

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Disclaimer: The views expressed above are solely those of the author and may not reflect those of
Care2, Inc., its employees or advertisers.

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