
http://www.care2.com/greenliving/strained-sibling-relationships-with-an-alzheimers-parent.html
Strained Sibling Relationships with an Alzheimer’s Parent

By Paula Spencer, Caring.com
Siblings have a “strength in numbers” advantage over only children when a parent develops Alzheimer’s — but for every additional family member in the mix of caregivers, there’s also an increased chance of communication snafus and discord in decision-making. Here’s how to keep everyone in the loop and on speaking terms:
Agree to disagree
It’s a blessed but rare family where everyone is in agreement about every decision pertaining to a parent’s care. Differences of opinion are liable to crop up on any number of issues, large and small. This is only logical because although you might have been born into the same family, you each have different personalities, life experiences, and relationships with your parent. Your age, marital situation, birth order, financial history, and a hundred other details inform how you see a situation. And everyone brings this baggage to the difficult situation of caring for an ill parent.
Accepting that there will be disagreements is the first step in getting along better. You may win some, you may lose some. There’s rarely one right way to handle things. The primary goal is that something gets done.
Outgrow old expectations
A common problem occurs when adult children revert to their childhood roles and perceptions. For example, other siblings perceives a successful lawyer as the “baby” of the family and don’t take even her legal advice seriously. Or they expect the oldest, by default, to make the hard decisions, while they exclude the “black sheep.”
Be aware that sometimes the damage is self-inflicted, and we limit ourselves by slipping into our childhood roles or seeing through the lens of family history.
Another inadvertent expectation is gender stereotyping. It’s not necessarily the daughter to whom care should fall, while the son handles the money.
Everyone involved should have a say in what transpires. If you see someone getting left out, lightly point out that it’s happening and help everyone correct course. If it’s your parent who clings to rigid expectations from the past, it’s important for all siblings to gently set him straight.
Realize that you need one another
It’s virtually impossible for a single individual to provide Alzheimer’s care for the duration of the disease. That’s because 24-7 care is extremely stressful, and becomes more so as the disease progresses.
If you’re the sibling who is the primary caregiver, provide candid appraisals of the situation for your brothers and sisters. Learn how to ask for help; often family members don’t volunteer because they aren’t sure what to do and from a distance can’t see how taxing Alzheimer’s care can be.
If you’re not the primary caregiver, it’s important to support the person who is, in words and deeds (and dollars, if possible). Caregiver burnout is a leading reason people with Alzheimer’s move from a home to a nursing facility. Don’t assume everything’s going fine: ask, visit, call. Alzheimer’s is not a onetime problem to solve; because it’s progressively debilitating, your parent’s situation (and the kind of help she needs) can change from month to month or year to year.
Be careful not to criticize a sibling’s efforts. If you feel she needs more financial, emotional, or practical support, be prepared to offer it, research it, arrange it, rather than sitting in judgment.
Figure out how to divide the labor
Rather than having everyone involved in every step of the care process, consider the “divide and conquer” approach. Talk over each family member’s skills, strengths, and life situation. A sibling who lives far away or who is a single parent shouldn’t be expected to make exactly the same kind of contributions as one who lives next door to the parent, for example. One sibling may be most suited to discussing your parent’s condition with medical personnel because he works in medicine or has had other firsthand experience with a medical crisis. Another may be more comfortable providing hands-on care, researching housing options, or working through financial and insurance matters.
Some families worry about placing a disproportionate burden on one sibling. That can happen to some extent; the person doing hands-on primary care has the toughest task. If one sibling feels resentful of doing more than the others, or feels guilty that she’s doing less, there are ways to even things out. These might include financial contributions, providing relief care, or rotating schedules for care.
Share vital information
Putting key information in writing gives everyone access to the facts, while also leaving a paper trail in the event of disagreements later. Ideally, hands-on caregivers use e-mail to CC everyone at the same time. Even if you’ve all been in on a conversation, it can be helpful to have a written record afterward. Here are some examples of information to share:
- Medical history, including dates of critical doctor visits and a list of medications with dosages
- Results of doctor appointments
- Outcomes of meetings with therapists or eldercare consultants
- Impressions of your parent’s condition following a visit
- Financial information, including the costs of care and discoveries about a parent’s financial situation
- Contact information for health professionals and others involved in your parent’s case
If you’re the primary caregiver, sound out your siblings on the depth of information they feel they need. While regular updates are important, they may not care to receive a daily report about diet, activities, and so on.
Check in regularly
Communicate beyond solely crisis points. Even if you’ve lost touch over the years and aren’t in the habit of regular communication, do so now for your parent’s benefit. Agree to revisit the care plan you’ve put in place every three months — and mark it in your calendar.
Try to avoid side conversations, by phone or in person or via e-mail, in which you make major decisions without all siblings involved. It’s normal for some sibling relationships to be closer than others, but in the long run, you need to make decisions regarding your parent’s care jointly.
For big questions, such as those regarding legal guardianship or where a parent should live, try to arrange a family conference. If you can’t all be together in one place, arrange a conference call in which everyone can speak on one line. Decide together if in-laws should take part in these conversations or not. Certainly the spouses of caregiver siblings will have insights and opinions worth hearing, since a large burden of care probably falls on them as well.
Don’t make promises you can’t keep
Geriatric care managers note that families hit two of the most common stumbling blocks when a sibling loses touch with the reality of the situation: one, a sibling is in denial about how things are going; and two, a sibling clings to a promise never to institutionalize a parent.
Denial over the decline in a parent or the suitability of a care situation can lead to hard feelings all around. A sibling may be perceived as putting up roadblocks to the family’s ability to do what’s best, stirring up guilt and resentment.
For this reason healthcare professionals often advise not to promise a parent that you’ll never put them in a nursing home. You simply can’t know what the future will bring. Besides, many facilities for assisted living and long-term care make wonderful homes. By the last stages of the disease, your parent may not really understand where she’s living.
Bring in outside help
When painful differences of opinion occur — or rivalries that have festered for decades erupt — a neutral third party can play the “mom” and restore peace. A geriatric care manager is a terrific resource for any family managing a parent’s care, especially considering that the baby boomers facing these issues may have their own families to juggle as well. An experienced professional whom you all trust can make working through snags easier.
Caring.com was created to help you care for your aging parents, grandparents, and other loved ones. As the leading destination for eldercare resources on the Internet, our mission is to give you the information and services you need to make better decisions, save time, and feel more supported. Caring.com provides the practical information, personal support, expert advice, and easy-to-use tools you need during this challenging time.
More from Mel, selected from Caring.com (70 articles available)




Robyn
Melissa
Deepak
Eric
Dave
Dr. Brent
Isha
Susan
Delia
Michelle
Wendy
Megan
Hilary
Ann
Judi
Ronnie
Kelly
Lily
Terri
Betsy
Cait
Andrew
Jana
Annie B.
Veronica
5 comments
add your comment »Like so many of the POSSIBLE effects of aging, this terrible disease should be discussed with adult children ahead of time. If you instruct your children to put you in a nursing home should this illness, and other illnesses, affect you--and even (GASP!) that you don't object to going in on medicaid--it might help to relieve their sense of guilt when the time comes.
Do some research and plan for contingencies with your kids.
send green star | flag as inappropriate
why is this inappropriate?
I work for Speechmark Publishing and we have some great activities that can be used by families with a member that has dementia/Alzheimer's - flexible resources for all those needing tools for memory activities, discussion and reminiscence with individuals or groups:
http://www.speechmark.net/publications.asp?cat=elderlycare§ion=Reminiscence&code=EL15
send green star | flag as inappropriate
why is this inappropriate?
Both my parents developed Alzhiemers but my dad declined very quickly and had to be placed into a nursing home while my mum came to live with me at my choice. I do acknowledge that my choice is not for everyone and caring for a person is a big responsibility BUT looking after someone with Alzhiemers is huge. Still it was my choice and I don't regret making that desicion.
All I ask for is, siblings and family members please say thankyou to those that have taken on such a huge responsibility. Make them feel that you support them and even though you cannot take over their job, offer your services in another way. Don't let the prime carer have the job of visiting your parent in the nursing home because you can't handle to visit there, because its not about you, its about your parent. And last but not least, don't tell the sibling or family member thats looking after your parent all the negative things that they may be doing......tell them all the good things that they are doing.
Just say thankyou!
send green star | flag as inappropriate
why is this inappropriate?
Not all siblings help. With the excuse of living in England my only brother cut off all ties with me. When at our wits end and no longer being able to cope with my mothers dementia which had become violent we placed her in a private nursing home. We struggled for about 3 years before taking this decision most certainly the most painful I've ever had to take.
But the stress causes a strain on ones marriage and health.
send green star | flag as inappropriate
why is this inappropriate?
Altzheimer's disease is a terrible thing I know two families who have gone through this with their parents.The strain on the families was horrendous and the parent that did not have the disease suffered the most.In it's advanced state it is incomprehensibel to most why one minute the sufferer can be quite lucid and carry on a coversation with their family who quite ofted mistake this as an improvment of the patient's condition and in the next minute they seem to revert back to their childhood.This has a devastating effect on their love ones who just a minute ago believed that their parent was showing signs of improvement. Then have their hopes dashed.This is a disease that needs far more research than it gets at the present time.I knew a friend who had been married for 53 years. He woke up one morning and found hia wife sitting on the floor in a state of undress.He asked her what on earth she was doing.She looked at him and started screaming and kept shouting who are you?. when his wife was removed to hospital and diagnosed with Altzhiemers it destroyed his life.A doctor once told me when I remarked that this was a terribe ordeal for the patient, he ramarked " that it isn't their disease it's yours, afterall they don't know they have it.How very sad.
send green star | flag as inappropriate
why is this inappropriate?
Facebook account: