http://www.care2.com/greenliving/therapy-for-cfs-sufferers.html
Therapy for CFS Sufferers
Q: Have you found any therapies that have successfully treated the debilitating disease of Chronic Fatigue Syndrome? I am a long-term sufferer and the only treatment that gives me any significant improvement is acupuncture. I do yoga and Qi Gong, take walks, eat well, and work at overcoming energy draining practices. I have had hands-on healers and been anointed. I pray and say healing affirmations. I try to think positively and overcome depression when it comes periodically. I would appreciate any suggestions you might offer.
A: The amount of treatment modalities that you utilize is a true testament to how much havoc a condition like CFS can cause in your daily life. It’s a frustrating condition for physicians, too, as often nothing we suggest seems to work.
There are several pharmaceutical regimens that have had limited success in managing CFS symptoms, but it seems from your question that you wisely avoid these types of interventions.
When suffering from a chronic condition, the sufferer may start to dwell on the plight and the symptoms. You alluded to the fact sometimes you have to confront your own depressive symptoms. If you haven’t already, I would suggest you investigate cognitive behavioral therapy with a psychologist who specializes in patients with chronic illnesses. Though this will not cure your CFS, it may provide additional coping skills. A more positive outlook will alleviate some symptoms.
Dr. Brent Ridge is the health expert for Martha Stewart Living Omnimedia. You can call and ask him a question live every Tuesday at 2 p.m. Eastern on Sirius Satellite Radio, Channel 112 (1.866.675.6675). You can also follow along as he learns to grow his own food and raise goats on his farm in upstate New York by visiting www.beekman1802.com.
Got a health question for Dr. Brent? E-mail him at drbrent@care2.com.
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add your comment »Also check out the work of dr.Paul Cheney. He, and others following his work, are doing fantastic work on the idea that CFIDS is a heart condition. He, and many others believe that CFIDS is caused by a virus or other micro-organism in the heart which gives us 1/3 of the blood flow of a normal person. Dr. Cheney explains our symptoms by this lack of blood flow. (from our thinking problems, down to the simple ones such as skin problems because skin alone takes 1/3 blood flow of a normal person). Dr. Cheney began this work after having a heart transplant. He realized that only CFIDS, heart failure, and mono have this type of intense tiredness. The more I read on it the more it makes sense. He also calls CFIDS a mitochondrial disease. http://www.prohealth.com/library/showarticle.cfm?id=2966&t=CFIDS_FM
I try anything I can that won't harm me. I don't stick to just "natural" therapies because something may help or cure that is medication. Who cares where it comes from if it helps? I want to get well. Why limit my options? I'm desperate for a cure. I'm not going to pick and choose just because it's synthetic rather than natural. Cure me. I don't care how.
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I know it's frustrating, but you can't let ignorance make you mad. Remember they used to call MS the hysterical disease before they learned it was an autoimmune disease of the nervous system. They used to think syphilis was only due to over-sexuality. It was only years later that the micro-organism was discovered. Many still believe AIDS is God's punishment for homosexuality. Even though that doesn't explain why more heterosexuals have it. People want to blame disease on the people getting it because that makes them less afraid they themselves will get it. So know when someone denies you're sick, they are ignorant and afraid. We can't help them and they can't help us. Move on and ignore them. Takes practice, and they can still make me mad too, but they are a fact of life that will continue to resurface. Fear is rampant. Chronic Fatigue Syndrome is something worth fearing!!!!!!!!!!!
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thanks...
Kabin
Konteyner
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The Kadir-Buxton Method is not a treatment and no sane or legitimate physician would even consider it.
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I would like Doctor Brent to try the Kadir-Buxton Method on CFS sufferers. It is cure or treatment for most brain abnormalities and only takes thirty minutes to master.
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What is the Lightning Process?
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Did I miss something in the original letter? As a long-time sufferer of CFS, I can attest that it is depressing. Its a depressing situation: being chronically ill with little to no help and the people around you don't understand or care to understand. You'd be crazy not to be depressed.
Behavior modification is not going to help. And I resent and am angered that you even suggest it. I heard too many doctors in the early days of my CFS tell me "its all in my head" instead of helping me not to be resentful.
Nina, that is very interesting, but you need to translate it to something practical. Also, it raises some disturbing ethical questions for me: does this research entail using animals?
And I fully agree that it can be difficult to differenciate between remission, efficaciousness and placebo, I'm desperate enough to take the placebo if it doesn't cost an arm and a leg and doesn't hurt and might help, as in using vitamin D. After all, placebo works for -- 20%? One in five?
CFS sufferers are supposed to exercise, eat well, do yoga, acupuncture, walk, detox, read intensively and extrapolate, visit a variety of doctors, call upon crystals and external energies and . . . whew! I'm tired just writing this.
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Consider reading Andrew Hall Cutler's book Amalgam Illness and consider NAET www.naet.com.
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It appears that ME/CFS aka CFIDS is recognized to be in the Parkinson's, MS, and even Autism spectrum. It also appears that one of the common factors of all of these disorders is Mitochondrial Dysfunction. Look it up. And try that protocol, esp. d-ribose. Also, ME/CFS as in the other related disorders, seems to go in and out of remission. It is a real trick to differentiate among remission, placebo, and effectivenes of medicines and supplements.
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http://www.cfids.org/cfidslink/2008/121002.asp
Researcher Dikoma Shungu Continues Brain Studies with Association Grant
The preliminary study showed that brain fluid of CFS patients contains significantly elevated levels of lactate, a substance important in metabolism, with lactate concentrations increased by 348% in CFS patients compared to healthy control subjects. Results from this preliminary study, also funded by the CFIDS Association, were published in October 2008 in the journal NMR in Biomedicine (see “Association-Funded Study Published on Lactate”)
another good link:
http://www.ncf-net.org/
and another: http://www.dfwcfids.org/index.shtml
copy and paste
and remember to alkalinize your system
no sugar, flour,few fats, lots of veggies
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