Alert: Planned Site Outage Tonight: Tue. July 28th, 9pm-Midnight PST
my care2
make a difference
healthy & green living: more than 5,000 ways to enhance your life

customize your free newsletter

Customize your Healthy & Green Living newsletter now


What Not to Say to Someone With Cancer

posted by Mel, selected from Caring.com Jun 26, 2009 3:02 pm
What Not to Say to Someone With Cancer
14 comments

Melanie Haiken, Caring.com senior editor

Experts caution that when caring for someone with cancer, there are six things friends or family often say–in an attempt to be sympathetic, supportive, or encouraging — that can have just the opposite consequence: shutting down communication and making the person with cancer feel worse.

Psychiatrist Jeffrey Knajdl, director of psycho-oncology services at Creighton University in Omaha, Nebraska, points to these six common sayings to avoid, along with suggestions for what to say instead:

1. “Everything is going to be all right.”
You have no way of knowing if it will be or not, says Knajdl, and such a statement ends up sounding like an empty platitude — plus you establish a sense of mistrust. “It doesn’t make the person feel better,” says Knajdl, “because he knows it’s not true and it just makes him feel dismissed and not heard.”

What to say instead:
What the person really wants to hear is that you’re going to be there for him through the good times and the bad, and that he’s not going to go through cancer treatment alone. There will be days when it does feel like everything’s going to be all right, and you’ll be there to celebrate that with him, but there will be days when discouraging test results come in or he’s in pain — and you’ll be there for that, too. “When you talk to patients, their two big fears are that they won’t make it through treatment, and that they’ll be alone and in pain,” says Knajdl. “Just keep telling the person that you’ll be there with him and you’ll make it through this together.”

2. “I know how you feel.”
This is almost an automatic response for many of us when someone is sad or upset. We say it out of the best of intentions, to demonstrate our compassion, our sympathy, our sense of having been there. The problem is, it has the unintended effect of shutting the other person down, says Knajdl. “When you say, ‘I know how you feel,’ the unspoken second part of the thought is, ‘and therefore you don’t have to go into any detail about it,’” Knajdl says. “It increases the patient’s sense of isolation, because it’s like telling him you don’t want him to talk about it.”

Unless you’ve been treated for the same type of cancer and have undergone exactly the same treatment, you really don’t know how the person feels. “We have no idea what it’s like, and it’s upsetting to the patient when we act like we do,” says Knajdl.

What to say instead: A better approach, according to Knajdl, is to ask something like, “How are your mood and spirits holding up through this?” If the person you’re concerned about is anxious or sad, this gives him a chance to tell you how he feels, which can be a big relief to someone who’s trying to pretend he’s doing just fine. And even if he answers that he’s holding up pretty well, he’ll still feel better that you asked.

3. “Try to keep a positive attitude, relax, and avoid stress. It can help you heal.”
Cancer patients hear endless variations on this “mind over body” theme. There are going to be days when a patient doesn’t feel positive at all, and you certainly don’t want him worrying that he’s sabotaging his own chances of recovery. And what if he has a stressful job, or is a type A personality who reacts easily to stress — do you want him feeling guilty or worrying that his high-strung personality or tendency toward anxiety either “caused” or will worsen his cancer?

Unfortunately, an awful lot of the literature conveys, in one way or another, the underlying message to cancer patients that they may have “caused” cancer through stress, worry, or a negative attitude, and that they could heal the cancer if they’d only develop a mellow outlook or sunny disposition. All that really happens is that they feel even more anxious about trying not to be anxious, or they feel guilty for not feeling happy. Even some visualization techniques can make cancer patients feel a sense of defeat, Knajdl says, if the focus is on healing but healing doesn’t seem to be happening.

What to say instead: Suggest specific solutions. When your loved one is tense or anxious, ask him to identify what’s stressing him out and how you can help him put the worries to rest. In other words, instead of saying “relax,” help him relax by eradicating the stress trigger. For example, try refocusing any visualization he’s doing toward a concrete and reasonably accessible goal, such as comfort or sleep. Instead of trying to visualize eradicating a tumor, suggest that he visualize falling into a deep sleep in a quiet, safe, pleasant place. Sometimes you can help eradicate stress with a concrete act of assistance. Knajdl remembers one patient who was very anxious in the hospital because he felt he hadn’t put his financial house in order. His son brought all the documents to the hospital, and they took care of them one by one.

4. “We can beat this.”
In our rush to be supportive, it’s all too easy to fall back on such encouraging and inspirational messages. But they can give cancer patients a deep-seated feeling of failure. “I call this the Lance Armstrong syndrome, this idea that if you have the right fighting spirit you can overcome disease,” says Knajdl. “I admire Armstrong and he’s done great things to publicize cancer, but this idea that people can triumph over cancer with will power and an upbeat attitude is just crazy. There are all sorts of factors that contribute to why some people recover and some don’t. The truth is, some people just get lucky.”

This problem tends to come up with cancer survivors in particular, who may believe very deeply that their attitude, philosophy, spiritual focus, or belief in healing helped them survive. And sometimes hearing such stories can make other patients feel hopeful and optimistic. But if things aren’t going well — if a scary test result has just come in, if chemo’s side effects are almost unbearable, if your loved one is facing the fact that his cancer may not be curable — then hearing others’ tales of triumph may not be helpful.

What to say instead: The best way to help your loved one feel positive and hopeful is to just keep reassuring him that you’re in this together, and that you’ll keep caring for him and supporting him and making him as comfortable as possible during his treatment.

5. “Now, now, don’t get yourself all worked up.”
Your loved one is scared, angry, or in tears, and you want him to feel better. But unfortunately, a statement like this makes it sound as if you want him to put his feelings, which are natural and unavoidable, under wraps. “In this situation, it’s okay to get worked up, and it’s okay to vent,” says Knajdl. “We have this fear of feelings getting out of control. But sometimes a patient needs opportunities to cry or get angry or get upset, and if you can help him express these feelings and get them out, in the end he’ll feel better.”

What to say instead: If you don’t know what to say, it’s okay not to say anything at all, Knajdl says. Just offer the comfort of your presence, a hug, or an arm around the shoulders. Allowing some silence without rushing to fill it gives the person a chance to say what’s on his mind in his own time. Perhaps he’s afraid of pain, afraid of letting you down, or frustrated by feeling incapacitated by his illness. “One patient surprised his son by saying, ‘I feel frustrated lying here in the hospital because I feel like I’m wasting my time,’” Knajdl says. “It turned out he was actually upset that he didn’t have his legal affairs in order. The son responded by saying, ‘Would you like me to get a lawyer to come in so we can take care of that?’ That made his father feel much better.”

6. “Congratulations, you’re done with chemo [or radiation].”
As a friend or family member, you’ll feel thrilled when treatment is finished, but the patient’s feelings are likely to be much more mixed. During treatment, he’s taking action. That can be empowering because the focus is on a solution, either a cure or progress in pushing back the cancer. When treatment is finished, it can feel like there’s nothing more for him to do but wait, and naturally he may feel anxious and uncertain. “Often, people don’t feel like celebrating. Instead they think, ‘Now what do I do? Just wait for the cancer to come back?’” says Knajdl.

No matter how relieved you are, try to keep it to yourself. “It’s really common to say something like, ‘Boy, am I glad that’s over,’ but that implies two things: that the treatment has been a burden on you, and that you want your loved one to be happy about it when maybe he’s not feeling happy,” Knajdl says.

What to say instead: Give the person a chance to express how he’s feeling. Try asking an open-ended question, such as, “How are you feeling now that we’re finishing up the chemo?” This way, you allow him to control the response. He might say, “I know we were talking about throwing a party when I finished chemo, but I really don’t feel like it.” The bottom line is, whatever he’s feeling is okay, and your job is to make it clear you’re ready to listen.

Caring.com was created to help you care for your aging parents, grandparents, and other loved ones. As the leading destination for eldercare resources on the Internet, our mission is to give you the information and services you need to make better decisions, save time, and feel more supported. Caring.com provides the practical information, personal support, expert advice, and easy-to-use tools you need during this challenging time.

More on Breast Cancer (51 articles available)
More from Mel, selected from Caring.com (70 articles available)

14 comments

14 comments

add your comment »
14 comments add your comment
Manuela Bortolussi

I'm a survivor of Acute Myloid Leukemia and given only a 5-10% chance of suvival. When I was sick and in the months after treatment, no one spoke about my illness it's as if it didn't exist, i guess they didn't know what to say, so said nothing except that it would be ok and at that time no one thought it would be. I remember feeling so alone, hurt and afraid. It took all my strength to carry my emotions and of those around me. Even when I cried and needed comfort even the people closest to me just walked away. It left scars that will never be healed. So my advice to anyone who has a sick friend or family - laugh with them but also cry with them they need BOTH.

Cookie M.

Even though I a agree with most of this, and it is very helpful, as a BC survivor, I have to disagree with not saying "We can beat this." You don't need to say it when there is a turn for the worse, but initially that kind of faith really helped to keep me motivated and optimistic.

The most important thing and the most difficult for friends to do, is to be there when the going gets tough. Too many people chicken out when their support is most needed. If you can't be there physically, try a phone call, and if that is too emotionally demanding, send a card or flowers.

Syedgolam Morshed

very nice your coments. thanks

Crystal T.

Thank you for this. I've just recently reconnected with an old friend who is in the last stages and across the continent from me. I'd like to be helpful and supportive, but feel inadequate as to what to say and not say. This really helps.

Past Member

Sometimes actions speak louder than words. Offer to do the dishes, throw a load of clothes in the washer, or bring over a meal that that is ready to eat or just needs warming in the oven. Don't be afraid of silence. Sometimes just sitting there not talking is calming. When I had 2 surgeries and 33 radiation treatments for angiosarcoma in my forearm, it was the little actions that helped me feel at ease and cared for. And by all means, NEVER say how horrible a surgical scar looks. I think we're already aware we've been disfigured. All the strength you've built up coming to terms with a big crater in your body can come crashing down when someone you thought cared about you and was just as glad as everyone you survived and didn't lose your whole arm opens their mouth without connecting it to their brain first. -Proud 2 1/2 year survivor.

Joan D.
  • Joan D. says
  • Jun 29, 2009 12:33 PM

My husband died on June 18 of gall bladder cancer. What I would have liked to know was what to say when we found out that there was no more treatment options. My husband was crying and saying he didn't want to die. I just had to say that I didn't want him to either and then talk about how he would not have to be weak and helpless anymore and he wouldn't have to be in pain. I talked about him being with his grandmother again and with the pets he loved that had gone before. I don't know how much help I was. I finally just said that I would be with him every minute until the end, and I was. It was so hard. It still is.

kd didit

Good afternoon, all:

Another way to show caring for an injured or ill person is to help out with meals, laundry or dishes. Maybe run an errand to the grocery or pharmacy.

One annoying attitude is when someone tells me, "Well, you had cancer years ago..." Cancer is not like a cold when you're sick and then it's gone. No, this disease leaves scars in the body, mind and soul that take a long time to heal, as well as the possibility of a recurrence lurking in the background.

It helps me to recall that most people aren't intentionally offensive.

Dave, I always welcome offers of prayer and positive thoughts.

Kathy O., congratulations! Remember Han Solo's advice: "Never tell me the odds!" ; D

Don V.
  • Don V. says
  • Jun 29, 2009 8:54 AM

What about, "We'll be praying for you!"?

Kathy O.

I had acute leukemia (a blood cancer) 4 years ago and I agree with most of this, but here's 2 of my thoughts: first, when a patient is "finished" with their chemo treatment, the worst is not over..it takes days, weeks and even months for those treatments to get through your body, so keep in mind "it ain't over till it's over"!! And MOST important and this should be a "no-brainer"..DO NOT tell stories or mention a friend, family member, or anyone else that you heard or knew that had caner and "BUT THEY DIED" !!! Almost everyone that visited or called my husband or I did would always talk about someone they knew that had cancer and quietly, "but they died" ... I had to call a long lost friend that I knew had survived lymphoma 10 years before to hear one positive cancer out come!! I would not mention another cancer case good or bad, unless your friend/loved one's treatments were goin' well and they were in an upbeat mood and then ONLY mention a cancer survivor story, at very most!!! P.S. I was only given a 13 %, one year survival diagnosis....

Elvira S.

I had a sister-in-law who dies of breast cancer. Right up to the end we did not want to believe that she was dying and therefore did not allow her to talk about death either. Now, looking back, I can see how wrong that was and how sad for her to not be able to express her fears and pain.
I think the best advice is to really listen and allow that loved one to express their feelings, fears, hopes, and pain.

Please enter your comment.
Or, log in with your
Facebook account:
1500 characters remaining

who's talking about this story?

Disclaimer: Care2.com does not warrant and shall have no liability for information provided in this newsletter or on Care2.com. Each individual person, fabric, or material may react differently to a particular suggested use. It is recommended that before you begin to use any formula, you read the directions carefully and test it first. Should you have any health care-related questions or concerns, please call or see your physician or other health care provider.

1012396

Copyright © 2009 Care2.com, inc. and its licensors. All rights reserved