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All Trials Registered | All Results Reported


Health & Wellness  (tags: medicine, research, protection, treatment, health, healthcare, risks, safety, study )

Veerle
- 531 days ago - alltrials.net
It's time all clinical trial results are reported. Patients, researchers, pharmacists, doctors and regulators everywhere will benefit from publication of clinical trial results. Wherever you are in the world please sign the petition.



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Comments

Veerle D. (119)
Saturday October 12, 2013, 1:50 am
It's time all clinical trial results are reported.
Patients, researchers, pharmacists, doctors and regulators everywhere will benefit from publication of clinical trial results. Wherever you are in the world please sign the petition:
Thousands of clinical trials have not reported their results; some have not even been registered.
Information on what was done and what was found in these trials could be lost forever to doctors and researchers, leading to bad treatment decisions, missed opportunities for good medicine, and trials being repeated.
All trials past and present should be registered, and the full methods and the results reported.
We call on governments, regulators and research bodies to implement measures to achieve this.
The petition has also been translated into many different languages
 

AniMae Chi (441)
Saturday October 12, 2013, 1:51 am
Thank you, AniMaeChi.
Your signature has been added.
 

Past Member (0)
Saturday October 12, 2013, 6:15 am
I hope this doesn't get buried... this news item deserves promotion as it is really important to expose a lot of the "clinical trials" and having them registered means they cannot be quietly expunged from the record when things go really wrong.

I know someone who is employed by a well-known pharmaceutical company... it is his job to manage trials and to nullify them and kill all the reports when they go wrong. It is largely done on the quiet so that newspapers don't get a hold of any results. He laments that for once, he'd like to work on something that works... in the 6 years I've known him, this hasn't happened!

We should all be concerned by how big pharma operates and this call for registering trials, will at least open the door a crack!
 

Veerle D. (119)
Saturday October 12, 2013, 7:59 am
Hi Col, Thank you for your comment. I have worked at a big pharma company myself at the start of my career.
I have seen and heard things that I would label as bad science or even fraud. Not only clinical trials should be registered, all (Phase I to IV) trials should be published.
 

chantal v. (334)
Saturday October 12, 2013, 12:09 pm
Thank you, chantal.
Your signature has been added.
 

Annemie O. (161)
Saturday October 12, 2013, 3:25 pm
N & S
 

Monica T. (278)
Sunday October 13, 2013, 10:05 am
Noted and signed! Thank you, Veerle
 

KAREN SickAgain G. (218)
Sunday October 13, 2013, 10:30 am
S&N Thank you Monica for the forward
 

Debbie Williamson (286)
Sunday October 13, 2013, 10:34 am
Signed and noted. Thank you Veerle, and thank you, Monica for forwarding.
 

. (0)
Sunday October 13, 2013, 10:34 am
trials are often repeated until the desired results are achieved, leading to deaths and disaster
 

Gloria picchetti (302)
Sunday October 13, 2013, 10:35 am
I signed to prevent double or more tests on the same topic.
 

Danilo Paganelli (407)
Sunday October 13, 2013, 10:38 am
thanks
 

Frances Darcy (217)
Sunday October 13, 2013, 10:39 am
Very informative, Veerle
 

Ed V. (191)
Sunday October 13, 2013, 10:42 am
Signed & noted,
 

Past Member (0)
Sunday October 13, 2013, 10:42 am
noted + signed, thanks
 

Marija Mohoric (47)
Sunday October 13, 2013, 10:43 am
thank you, noted
 

Richard S. (209)
Sunday October 13, 2013, 10:44 am
I signed because pharmaceutical companies cannot be trusted to voluntarily make negative information about their products available to physicians and patients.
 

Angelika R. (146)
Sunday October 13, 2013, 10:51 am
Signed-for same reasons as Richard S. Thx. Big Pharma is in fact one of the worst corporate elites with likely the most fraud.
 

GGmaSheila D. (169)
Sunday October 13, 2013, 10:52 am
Thank you Veerle and Monica for bringing this to our attention. Agree this is important and the need is great to know what really is going on with the meds we put in and on our bodies. Big Pharma can't be trusted to tell us the truth about anything.
 

Mike M. (56)
Sunday October 13, 2013, 10:52 am
N&S
 

Inge Bjorkman (153)
Sunday October 13, 2013, 10:53 am
Signed

Love
 

Laura T. (105)
Sunday October 13, 2013, 10:53 am
done&done. thanks for sharing, it is wise to record all results as some side effects to ertain chemicals that may be used in many medicines only effect a small percentage of the population adversely but by recording such results corolations between chemical combinations&effectsare noted faster
 

Past Member (0)
Sunday October 13, 2013, 11:05 am
Signed and shared - thanks!
 

. (7)
Sunday October 13, 2013, 11:07 am
Noted and signed, thanks.
 

Waltraud U. (83)
Sunday October 13, 2013, 11:20 am
done ty
 

Kathy B. (106)
Sunday October 13, 2013, 11:21 am
What a great idea. As it stands one has to be their own 'dective' and read up on medications Drs. prescribe. Many times even my Dr. doesn't know all of the side effects, or forgets to tell me things I need to know.

I'd love to see this extended to all trials of GMOs being published as well.
 

Jude Hand (56)
Sunday October 13, 2013, 11:22 am
Noted, signed and tweeted.
 

Mary T. (329)
Sunday October 13, 2013, 11:25 am
Signed & noted & shared on FB - thank you Veerle and Monica for forwarding
 

Mike H. (239)
Sunday October 13, 2013, 11:31 am
noted + signed, thanks
 

Marina M. (142)
Sunday October 13, 2013, 11:36 am
Signed,
 

kate k. (486)
Sunday October 13, 2013, 11:36 am
Also signed and noted
 

Sarah Addis (35)
Sunday October 13, 2013, 11:38 am
All done, thanks Monica x
 

Birgit W. (157)
Sunday October 13, 2013, 11:43 am
Signed.
 

Lydia Bereaved M. (83)
Sunday October 13, 2013, 11:56 am
Noted, Signed & Very Strongly Commented upon..

I have Twice Taken part in Clinical Trials, Both which went badly wrong.. Never Again..!!!!!

They then tried to brush their 'Mistakes' under the carpet, as though it hadn't happened at all.. :-(
Until I Demanded to see the Surgeon, who couldn't even look me in the eye, whilst he hung his head in shame..

Immediately after our brief meeting, he Disappeared from the hospital, Never to return again.
His Error was Not even written up in my notes.. But I Insisted this was changed, just for the Record..

And over these years, found time & time again that Doctors Do Not Want to talk about it and I was told back then, I Could Not Claim Compensation for Medical Negligence, as I Signed Up to have the Trials..

Personally, I would Urge Anybody & Everybody to Think Twice about taking part, to Reconsider and to Think. What if it all goes wrong ??? Ones Life could be changed forever, with Consequences to suffer Forever...

His Error has had a Devastating Effect for me, causing me to have Bad Life Changing Consequences, ever since 1985.. I Never had any After Care but was just left to Get On with my Limited & Painful Life..

I Repeat.. Never Again.. !!! :-(
 

June M. (111)
Sunday October 13, 2013, 11:58 am
Thank you, June.
Your signature has been added
 

Bee S. (209)
Sunday October 13, 2013, 12:02 pm
S,TY
 

Ana F. (26)
Sunday October 13, 2013, 12:03 pm
Signed and noted!
 

Elizabeth McGowan (27)
Sunday October 13, 2013, 12:03 pm
Signed
 

. (0)
Sunday October 13, 2013, 12:12 pm
Signed and Noted.
 

cynthia B. (241)
Sunday October 13, 2013, 12:18 pm
important info thanks for posting signed!
 

Malgorzata Zmuda (183)
Sunday October 13, 2013, 12:23 pm
petycja podpisana
 

Gabriela Baldaia (104)
Sunday October 13, 2013, 12:25 pm
Signed and noted.
Thank you !
 

Barbara V. (189)
Sunday October 13, 2013, 12:38 pm
Signed & noted, Thank you.
 

Dandelion G. (399)
Sunday October 13, 2013, 12:44 pm
Signed
 

Shelli S. (364)
Sunday October 13, 2013, 12:50 pm
Signed & noted
 

Hugo L. (266)
Sunday October 13, 2013, 12:51 pm
Noted & signed, thanks Veerle
 

Nils Anders Lunde (570)
Sunday October 13, 2013, 12:52 pm
N&S
 

Anette S. (23)
Sunday October 13, 2013, 12:53 pm
done
 

Cinzia Palamara (52)
Sunday October 13, 2013, 12:57 pm
Signed & shared. Thank you very much Monica for forwarding and Veerle for sharing
 

Jane Williams (165)
Sunday October 13, 2013, 1:00 pm
Signed and noted. Thanks for sharing. I never knew this type of information was not shared. I wonder how many people/animals were harmed because of it?
 

Vivian B. (160)
Sunday October 13, 2013, 1:04 pm
This is a very important article and should be the headline in all media! The mistakes and failures of medical research should be recorded along with the success
 

Vivian B. (160)
Sunday October 13, 2013, 1:11 pm
We need to know what medical research has uncovered, good and bad! I was in a trial for work done on my back and my doctor was sued out of practice. Not by me, but for the abundant mistakes he made in other cases! He was a great orthopedic doctor, but let the money from rich clients be his downfall.
All research has its place. To help stop the repeat of undesirable outcomes and the desired ones taken into practice.
Thanks for the chance to air my story.
Keep on posting, Veerle!
 

Constance F. (428)
Sunday October 13, 2013, 1:18 pm
Yes, signed , thank you
Thank you, Constance.
Your signature has been added.
 

Lois Jordan (58)
Sunday October 13, 2013, 1:29 pm
Signed & noted. Thank you, Veerle.....and Monica for the link.
 

Esther Z. (96)
Sunday October 13, 2013, 1:47 pm
Noted and signed with comment. Thanks to Monica for the forward and Veerle for posting the petition.
 

Lisa sick Windsor (149)
Sunday October 13, 2013, 1:58 pm
S&N, ty Veerle and Frances for forwarding!
 

Madhu Pillai (22)
Sunday October 13, 2013, 1:58 pm
Signed
 

JL A. (278)
Sunday October 13, 2013, 2:22 pm
s&n thanks ed
 

Ruth M. (252)
Sunday October 13, 2013, 2:24 pm
Done thanks Monica
 

Nicole W. (659)
Sunday October 13, 2013, 2:41 pm
Thank you, Nicole.
Your signature has been added. ~ ty Veerle for posting and Monica for forwarding
 

Autumn Away S. (151)
Sunday October 13, 2013, 2:52 pm
signed and noted
 

Bryna Pizzo (139)
Sunday October 13, 2013, 3:34 pm
Thank you! (s, n, p, t)
 

John Holton (357)
Sunday October 13, 2013, 3:56 pm
signed
 

Gysele van Santen (213)
Sunday October 13, 2013, 4:10 pm
signed. thnx for the fwd, Monica.
 

Laetitia schartner (171)
Sunday October 13, 2013, 4:20 pm
signed, TY
 

Teresa GarcĂ­a (39)
Sunday October 13, 2013, 4:50 pm
S & N :)
 

DORIS L. (61)
Sunday October 13, 2013, 4:59 pm
Signed.
 

Sandi C. (223)
Sunday October 13, 2013, 5:24 pm
done
 

No Fwds Please --Erin (171)
Sunday October 13, 2013, 5:35 pm
n & s
 

Peta Clarke (30)
Sunday October 13, 2013, 5:39 pm
Noted and signed thank you.
 

Allen O. (200)
Sunday October 13, 2013, 6:20 pm
signed
 

Lydia S. (161)
Sunday October 13, 2013, 6:23 pm
Signed , I hope it helps .
 

Maricruz Lopez (59)
Sunday October 13, 2013, 6:43 pm
Thanks Monica for the forward signed & shared
 

A F. (130)
Sunday October 13, 2013, 7:07 pm
Noted, signed, thanks Ed V for the forward!
 

Past Member (0)
Sunday October 13, 2013, 8:34 pm
Thank you, Lynn.

Your signature has been added.
 

. (0)
Sunday October 13, 2013, 9:37 pm
𝕾𝖎𝖌𝖓𝖊𝖉 𝖆𝖓𝖉 𝖓𝖔𝖙𝖊𝖉. 𝕿𝖍𝖆𝖓𝖐𝖘 𝖁𝖊𝖊𝖗𝖑𝖊!
 

Jens H. (241)
Sunday October 13, 2013, 10:28 pm
signed
 

Past Member (0)
Monday October 14, 2013, 12:17 am
Signed and noted.
 

Neill Abayon (697)
Monday October 14, 2013, 12:28 am
Signed, noted and shared. Thanks.
 

sharon wardle (108)
Monday October 14, 2013, 12:32 am
Signed, shared & noted. Thanks
 

Ruth L. (321)
Monday October 14, 2013, 12:42 am
Signed/noted. Thanks you Veerle and thanks Cheryl for the forward
 

Jonathan Harper (0)
Monday October 14, 2013, 2:21 am
ty
 

Iona Kentwell (134)
Monday October 14, 2013, 3:11 am
.Pharmaceutical companies need to be accountable. Reporting ALL clinical trials implies full and open disclosure including honest reporting of "side" effects.
 

Emma S. (233)
Monday October 14, 2013, 3:31 am
Done! Thank you, Veerle - and to Kate for forwarding.
 

William Barratt (48)
Monday October 14, 2013, 3:56 am
Signed
 

William Barratt (48)
Monday October 14, 2013, 3:57 am
Signed
 

Bob P. (410)
Monday October 14, 2013, 4:47 am
signed
 

John Holton (357)
Monday October 14, 2013, 4:56 am
signed
 

Lona Goudswaard (85)
Monday October 14, 2013, 5:00 am
S&N
 

Ana R (220)
Monday October 14, 2013, 5:45 am
No doubt done.
Thank you!
 

Winn Adams (210)
Monday October 14, 2013, 7:09 am
Signed!
 

Maria S. (95)
Monday October 14, 2013, 7:15 am
Noted & signed. Thanks Veerie & Cheryl!
 

Effie Ligon (57)
Monday October 14, 2013, 9:01 am
It is important to be as informed as one can be.
 

Ellen J. (78)
Monday October 14, 2013, 9:03 am
Noted & signed. Thanks Kate for the alert.
 

Charmaine Shannon (39)
Monday October 14, 2013, 9:44 am
Noted, Signed and Shared!! Thank-You....
 

Veerle D. (119)
Monday October 14, 2013, 10:21 am
Thanks everyone for signing and for some of you for sharing your story! I've been at work all day and come home to see > 100 mails in my mailbox. Kind of overwhelming :-).
I believe indeed that it is important to have all results reported. At the same time, I also believe we need more proof that 'natural medicine' really works. For those who live in Europe, check out my previous newsitem http://www.care2.com/news/member/111208029/3653067 to sign for the right to choose for your natural medicine instead of Big Pharma products.
Thanks again!
 

Theodore Shayne (56)
Monday October 14, 2013, 11:38 am
Done
 

Angeles Madrazo (293)
Monday October 14, 2013, 2:09 pm
Signed!
 

Dave C. (232)
Monday October 14, 2013, 2:24 pm
signed. thanks.
 

Susanne R. (249)
Monday October 14, 2013, 2:25 pm
I had no idea that clinical trials were so poorly regulated. This is most definitely an area that needs strict oversight. These therapies often have life or death outcomes and sometimes adversely affect the quality of life when death is not the outcome. The results of these trials, be they good or bad, need to be documented and reviewed by a regulatory agency.

Gladly signed and noted! Thanks for posting this, Veerie. Thank you, Ed, for the forward!
 

Aaron Bouchard (150)
Monday October 14, 2013, 5:05 pm
signed and noted thanks
 

Debra Tate (17)
Monday October 14, 2013, 5:46 pm
Signed and noted. Thanks.
 

Heidi Aubrey (5)
Monday October 14, 2013, 6:02 pm
Signed and noted.
 

Barbara F. (58)
Monday October 14, 2013, 6:07 pm
Signed & Noted. Thanks
 

Elisa F. (237)
Monday October 14, 2013, 6:25 pm
N&S. Thanks, Veerle. Thanks, Cynthia.
 

Bridget Robertson (106)
Tuesday October 15, 2013, 2:09 am
Signed And noted.
 

Dwain La'Brooy (331)
Tuesday October 15, 2013, 2:54 am
▀▄▀▄▀▄ ɲ+$. ţhąɲЌ$ ʍ๏ɲɨȼą + ˅€€яℓ€! ▄▀▄▀▄▀
 

Ljiljana Milic (108)
Tuesday October 15, 2013, 3:00 am
Your signature has been added.
& Thank you Veerle

 

Ros G. (88)
Tuesday October 15, 2013, 3:06 am
Thanks for the forward Dimitris..signed with pleasure...
 

Kerstin Strobl (401)
Tuesday October 15, 2013, 3:51 am
signed, thank you Veerle
 

Donna Hamilton (159)
Tuesday October 15, 2013, 6:16 am
N&S. Thanks.
 

Wendy F. (45)
Tuesday October 15, 2013, 10:52 am
Signed
 

Daniel Partlow (189)
Tuesday October 15, 2013, 11:47 am
S&N
 

Sprite D. (207)
Wednesday October 16, 2013, 1:46 pm
TY S, SH, n.
 

Ann L. (24)
Wednesday October 16, 2013, 3:37 pm
Noted signed and shared
 

LMj DoinBetter Sunshine (144)
Wednesday October 16, 2013, 5:02 pm
TY!!!
 

Chris McCabe (35)
Thursday October 17, 2013, 1:23 am
Done & shared; thanks.
 

Val away R. (254)
Friday October 18, 2013, 10:37 am
Signed, shared and tweeted. Thanks.
 

Rhonda W. (376)
Friday October 18, 2013, 6:34 pm
signed and noted
 

Lisa Zarafonetis (174)
Friday October 18, 2013, 11:38 pm
signed & shared
 

Roland L. (104)
Saturday October 19, 2013, 3:37 am
Signed & noted.
Thank you, Veerle.
 

Suheyla C. (233)
Saturday October 19, 2013, 4:21 pm
noted + signed, thanks
 

Farah Hage Ali (161)
Monday October 21, 2013, 2:53 am
noted and signed, thank you for sharing
 

Mitchell D. (130)
Thursday October 24, 2013, 12:11 pm
Signed and noted.
 

Yvonne F. (178)
Wednesday November 27, 2013, 5:50 am
So signed!!!!!!!!! Thanks Veerle
 

Marija Mohoric (47)
Friday December 20, 2013, 8:07 am
thank you
 

Gabriella Serafino (97)
Monday December 30, 2013, 4:50 am
done.
 
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