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Petition | FDA: Save 12-Year-Old McKenzie Lowe; Grant Her Compassionate Use of Antineoplastons | Change.Org


Health & Wellness  (tags: FDA, Diffuse Intrinsic Pontine Giloma, DIPG, Inoperable brain tumor, Antineoplastatons therapy, life saving, Compassionate use exemption )

Krish
- 289 days ago - change.org
12-year-old girl was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable brain tumor. has hope in the form of Antineoplastons therapy if the FDA grants her "compassionate use" exemption



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Comments

Krish Away (43)
Saturday November 30, 2013, 10:17 pm
Signed
with 46,013 supporters
53,987 NEEDED
 

Lydia S. (172)
Saturday November 30, 2013, 10:47 pm
Signed, I hope it helps .
 

Rose NoFWDSPLZ (273)
Sunday December 1, 2013, 1:36 am
Thanks for signing
 

AniMae Chi (407)
Sunday December 1, 2013, 3:00 am
Signed
with 46,242 supporters
53,758 NEEDED
 

Natasha Salgado (520)
Sunday December 1, 2013, 3:51 am
S+S-thx Krish
 

Alan Lambert (91)
Sunday December 1, 2013, 5:16 am
Signature 46354 and noted
 

jess b (24)
Monday December 2, 2013, 12:34 am
signed.Thank you
 

Gloria picchetti (290)
Monday December 2, 2013, 4:52 am
Signed.
 

Fi T. (16)
Monday December 2, 2013, 5:39 am
Everybody deserves their right of survival
 

Rhonda B. (98)
Monday December 2, 2013, 5:52 am
Please save McKenzie.
 

Mike M. (53)
Monday December 2, 2013, 5:53 am
N&S
Signed
with 47,873 supporters
52,127 NEEDED
 

Chetna P. (306)
Monday December 2, 2013, 6:29 am
Signed thank you
 

Theodore Shayne (56)
Monday December 2, 2013, 6:41 am
Done
 

Aaron Bouchard (130)
Monday December 2, 2013, 8:17 am
signed and noted thanks
 

Angelene B. (144)
Monday December 2, 2013, 8:35 am
signed
 

BarbCat SunshineLady (1647)
Monday December 2, 2013, 9:13 am
Why would the FDA DENY McKenzie the meds/help she so desperately needs? So SIGNED!! Thnx Kirsh!
 

caroline s. (80)
Monday December 2, 2013, 10:55 am
Signed!!!
 

Apolonia Pl (400)
Monday December 2, 2013, 1:13 pm
Signed with 48,412 supporters, 51,588 NEEDED
 

norma laborie (32)
Monday December 2, 2013, 1:18 pm
signed
 

Lois Jordan (55)
Monday December 2, 2013, 1:34 pm
Signed & noted. Thanks, Krish.
 

Kathleen R. (138)
Monday December 2, 2013, 1:57 pm
signed & noted
 

Lynne Buckley (0)
Monday December 2, 2013, 2:01 pm
Signed
 

Birgit W. (144)
Monday December 2, 2013, 3:18 pm
Signed.
 

Angeles Madrazo (292)
Monday December 2, 2013, 3:41 pm
Signed!
 

Ken L. (74)
Monday December 2, 2013, 3:46 pm
Signed and Noted.
 

Vicky P. (464)
Monday December 2, 2013, 5:36 pm
noted, signed
 

Patsy Olive (0)
Monday December 2, 2013, 6:50 pm
Noted,signed,& tweeted.
 

Angelika R. (143)
Monday December 2, 2013, 7:25 pm
signed! thx Krish. I think they perhaps should not wait till the other 50K sigs. arrive. It would be better to have individual letters/ emails sent to the FDA, like we did in the Eteplirsen case for the boy.
 

Ondine J. (133)
Monday December 2, 2013, 10:11 pm
Noted and signed, thanks
 

Marie W. (65)
Monday December 2, 2013, 10:42 pm
S&N
 

Krish Away (43)
Tuesday December 3, 2013, 1:06 am
Good idea Angelika... I will write to FDA as I did for Etiplirsen.. Friends & Relatives of McKenzie are taking help of media to get their story OUT.. she'z featured on Fox News.. Huffington post live..
You can see her FB Page here
Friends of McKenzie Lowe

Her grandfather is trying to go on National media & put pressure on White House to allow compassionate use for McKenzie as well as other kids suffering with same issue..the video here shows their appeal on Fox news..
https://www.facebook.com/photo.php?v=603910529668981
 

Karen Chestney (106)
Tuesday December 3, 2013, 2:42 am
Petition...signed...and....forwarded to twitter.....thanks.
 

Lindsay Kemp (1)
Tuesday December 3, 2013, 5:13 am
Signed and noted - hope it works!
 

Winn Adams (192)
Tuesday December 3, 2013, 6:28 am
Signed
 

Dogan Ozkan (5)
Tuesday December 3, 2013, 6:51 am
noted and signed
 

Angelika R. (143)
Tuesday December 3, 2013, 9:44 am
Krish- now FAUX "NEWS" doesn't seem to exactly be the best of addresses for their appeal. I do suggest that some of us contact the family via the PA link in the petition and encourage them to write up a letter, doesn't have to be very long-that each od us can send to the FDA and perhaps to other govt officials as well.
Thx for your dedication to do that on your own initiative!
 

Lauren S. (28)
Tuesday December 3, 2013, 9:49 am
Signed! Really hope it helps- they have a lot of signatures already, so it looks hopeful for her and her family!! :) Fingers crossed it all works out for them
 

Krish Away (43)
Tuesday December 3, 2013, 10:14 am
I tried to do that.. suggest them to write to FDA soon..
Thru PA link I couldn't contact them but I got to know their FB Page.. sent a message & awaiting reply.. they should take faster action as she is soon approaching 1 year mark of her diagnosis & latest MRI revealed that the tumor has started to grow again
 

Angelika R. (143)
Tuesday December 3, 2013, 10:46 am
Exactly, Krish! and we can figure it will take a good while longer to have the other half of needed sigs for the goal-precious time, perhaps wasted!
Lauren had a special website/blog (wordpress is for everyone's use!) with such a letter prepared-that is what they should also do. Not sufficient to have FB as ONLY contact, too many are not on FB!
 

Bridget Robertson (106)
Tuesday December 3, 2013, 2:33 pm
Noted and signed, Krish. I hope she gets help soon.
 

Henrik Thorsen (28)
Tuesday December 3, 2013, 3:04 pm
Signed.
 

Barbara Goheen (0)
Tuesday December 3, 2013, 4:14 pm
Signed and noted.
 

Franshisca Dearmas (91)
Tuesday December 3, 2013, 4:15 pm
N&S TY Krish
 

Angelika R. (143)
Wednesday December 4, 2013, 8:19 am
Krish- any reply from them via FB already`?? keep pushing for it..
 

Krish Away (43)
Wednesday December 4, 2013, 8:34 am
Not yet checked just now.. I even sent them a link to this post.. Due to no public page.. We do not know whether they have contacted FDA already or not.. What their previous attempts were etc.. I will keep monitoring their FB page for any further developments..
 

Angelika R. (143)
Wednesday December 4, 2013, 9:01 am
Very good! thx, good job :) as serious and urgent as this issue is, chances are-if they're smart- they will have contacted FDA as well. But still more impact if MANY write to FDA!
 

Madhu Pillai (22)
Wednesday December 4, 2013, 1:07 pm
Signed and shared
 

Frances Darcy (218)
Wednesday December 4, 2013, 4:48 pm
signed and will share among contacts.
 

John B. (215)
Thursday December 5, 2013, 6:21 pm
Thanks Krish for the link. Signed and noted.
"Signed with 53,370 supporters. 46,630 NEEDED"
 

Nimue P. (243)
Saturday December 7, 2013, 6:58 pm
S&N
 
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