Wednesday December 3, 2008, 8:58 pm
FROM: http://cherylspeaksout.blogspot.com/ Cheryl Speaks Out

WHAT CHERYL NEEDS ~ HOW YOU CAN HELP
~ Petitions will be set up to get so I get the extensive neurlogical medical care I have been denied, although all politicians and others have been written to for years, as well as media,, advocates and activists. All are scared of the Canadian Medical Protection Association, their provincial associations and doctors who are above the rule of law in Canada and being sued. It is past time for suing. When Petitions are posted please forward widely.

With that said, all politicians and other avenues have been tried repeatedly, heart-breakingly for several years and 6 hosptials were involved as well as several doctors.

No one can force a doctor or hospital to do anything, except the Medical Associations, which is rare indeed

We are trying again, we tried through government in 2004 and 2005, through two political parties the NDP and Liberals to no avail.

Perhaps with a public push, it may happen, the guarantee of honest neurlogical and medical tests though as proven impossible so far even by government.

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~ The economy is presently in crisis, but still hopeful a Sponsor comes forward for ~: a hosptial advanced expertise in M.E./CFIDS/FM/MCS, HepC and extensive neurlogical damage from prescribed medications, dystonia's, dykensia's, seizures, the extensive muscle ligament damage. Also need to be admitted for a period of time for extensive diagnostic testing, treatment, getting the dyskenia's, dytonia's stablized and damage mitigated, which is not being allowed and low functioning levels repeatedly not taken into consideration from discrimination regarding M.E./CFIDS/FM, and since the brain damage, purposely knowing I am unable to. I also have HepC. Anyone else with Aquired Brain Injuries (A.B.I.) get top extensive neurological diagnosis, treatment facility, care and extensive recovery programs at paces they can handle as well as support for family members. I have received none.

A hosptial that has extensive neurlogical AND medical facilities. HepC has worsened and am taking natural treatments and non-invasive testing for this. My true medical history taken - my medical records are badly falsified, some miscontrued - and observed as well as movement disorders. I need to be listened to regarding the knowledge of my illnesses, and the damage done, and what I experience, worsens the damage done or improves it. As well the extensive list of adverse drug reactions on put on my medical files ASAP.

The amount of tests that are needed, illnesseses and complicated damage and with limited functioning level, as much as possible needs to be done while admitted in hosptial that can accomodate most, if not all of the honest testing, diagnosis. Treatments, care and on my way to the best recovery possible and eventually the extensive physiotherapy I have been denied for years when I have improved enough, my illnesses and damage, setting the pace

If this can not be done in Canada, there are several Neurlogical Medical facilities in the USA that have the tests and knowledge needed and are up-to-date on M.E. (CFIDS), CNS damage, and extensive neurological damage from psychiatric drugs as well as movement disorders and extensive diagnositc tests, some very specific. At this point any hosptial in the world that is advanced in areas l need and can accomodate me. The majority of the Sponsorship funds can be left directely at the hosptial, the Mayo or Cleveland Clinic's, my mother Janet Benson has set up a Trust Fund at the Toronto Dominion Bank for any costs incurred legally, getting help, and/or sponsorship, presently please email for details.

Transportation & care provider to accompany mother is too ill. Myocolonic convulsions, seizures & condition has to be stablized long enough for transportation, I have gotten the severity of them reduced from natural treatments, however they are still on-going almost daily, I have been repeatedly cut off all medications, and the myocolonic convulsions, dyskenisa/dystonia never stablized 24/7 nor body damage, cognitive,speech therapy, and also cut off regular medications including for lungs, pain, and immune therapy as well as others.

Just cut off medications again the 2 afforded me in 2006, and no damage on disability papers which are due to be signed every year or gets cut off, pension as well as other coverage I paid for as insurance while working, as well as government documentation that needs signing, others that have been falsified by doctors and needs correcting - that is December/08 or January/09 folks for my disability papers, every year.

I have low blood and oxygen levels, and orthostatic-hypertention and with the exception of helping to stablize for transportation, do not want sailine, so that true tests, observations, diagnosis and medications dosing are given. I will not be able to tolerate medications that increase blood volume, which is a major underlying problem as well. I have had M.E./CFS, F.M. and MCS for 17 years and mostly house and bed ridden increasingly over the years, also HepC. Since the first brain damages in 2003 and ongoing there-after I have been 99.99% housebound and bed confined or ridden.

That is the equivalent of 5 years jail time (think about the 17 years with severe M.E./CIFDS/FM with discrimination, no research, funding, few treatments), with serious illnesses and extensive damage left untreated and years of extreme suffering.

I will not see any psychatrists who are the biggest drug pushers to support their DSM and do such horrendous damage and a peusdo-science and are responsbile for the damage and making sure I did not receive honest diagnosis, treatment and care from neurologists or the neurlogical hosptial here responsbile for the first major brain damage. I will work with a pyschotherapist only and have started that does EFT and is not covered by OHIP or my Insurance, any help with donations for this so it can be on-going to work through the trauma of all this, the mental and phsysical damage, the abuse in the hosptials, focus on healing on all levels is appreciated.

I deserve better than this, there should be a public outrage at what has been done and allowed, the details of what happened and continue are horrendous and are being posted on the other sites listed here. Many I may not be able to mentioned because of the power of the Canadian Medical Protection Association and their Provincial Associations, who put doctors above the rule of law and politicians, media, even lawyers, rarely speak of what goes on.

It is long over due that people, advocacy groups, media, and politicians took a stand without fear of being 'sued' by the Canadian medical profession, politicians have a hand's off policy. The tightly knit group of health-care providers involved in the collusion to protect doctors and hosptials, that allowed abuse and helped to isloate me to hide me away leaving me to suffer daily, needlessly should be exposed not protected.

~I can walk in apartment, not always and very limited, so I need my powerwheelchair. The stiffness & strength of all muscles and ligaments flucuate, much depending on what I can take to soften them, and not always. I was been repeatedly abused, verbally and physically in hosptials and also not believing I was repeatedly brain/body damaged, had 'real seizures' or knew what acute dystonia, dyskenisa and most possibly neuroleptic magligant sydrome as it is caused by medications other than neuroleptics . Also not beleiving I could not push my manual wheelchair (collapsable), lift much or limited ability to walk, help dressing. I have been discriminated against for 17 years because of Myalgic Encephalomyelitis (M.E./CFS) and Fibromyalgia.

~ Numerous politicians, provincial and federal, media, medical associations, advocacy groups, have been contacted most repeatedly for several years and also prior looking for Sponsors until my condition worsened drastically again, last year, even earlier this year I could barely speak at all or talk on the phone. I have had some improvement with natural alternative healing and giving this another go. Medications are to be researched and discussed (as are tests and my M.E./CFS) and 2-way dialogue and at a pace I can handle, and as few medications as possible. I feel that the least pharmacetals possible is the healthiest choice, although some have to be given which will be challenging as well.

I also have had mild adverse reactions to some amino acids worsening some of the physcial neuroligical damage, dykensia's, seizures and muscle and ligament damage. I have been using them and other natural health products to help heal and create some of the medications naturally I was not getting. Also, herbs and vitamins which affect the neurlogical damage, seizures and M.E., I have extreme sensitivies as do many with M.E./CFS.

~ Human & Patient Rights Lawyers, Canadian, USA, Worldwide Advocate Groups, Individuals take a stand and show or add your support and those that can please help

please contact : publicappealforcheryl@gmail.com

Wednesday December 3, 2008, 9:02 pm
YouTube : What Kind of Seizures were They

http://www.youtube.com/watch?v=gYOuqaQlmQU

Wednesday December 3, 2008, 11:31 pm
I will not see any psychatrists who are the biggest drug pushers to support their DSM and do such horrendous damage and a peusdo-science and are responsbile for the damage and making sure I did not receive honest diagnosis, treatment and care from neurologists or the neurlogical hosptial here responsbile for the first major brain damage. I will work with a pyschotherapist only and have started that does EFT and is not covered by OHIP or my Insurance, any help with donations for this so it can be on-going to work through the trauma of all this, the mental and phsysical damage, the abuse in the hosptials, focus on healing on all levels is appreciated.

Thursday December 4, 2008, 2:13 am
Cheryl has been having a problem with this for a long time. She has been getting worse as time goes on. I remember when I first met her here at Care 2 when she wrote it was very clear and pretty precise now when she writes I notice it isn't as clear as it once was. Her health has been deteriorating from day to day over the years. She has done a great deal here at Care 2. She has tried to let others know about the drugs and the damage they do and I myself do the same thing. I was almost taken out by Lipitor. If not for someone here at Care2 telling me about the damage i could do and giving me the material to read I would have slowly lost the rest of my memory, which was going because of it and numerous other problems I had from it. After going off it I pretty much recovered except for the muscle loss which never did improve. So many drugs are extremely dangerous. Cheryl knows that all to well. She has fallen victim to them, as many others have. She is a good woman. I was fortunate enough to stop taking the drug, before I ended up with extreme problems. Cheryl wasn't so lucky.

Thursday December 4, 2008, 4:57 am
Yes The Drug's so bad,I may live in pain but not Meds thank you I watched my father and mother what they went through ty greagory for bring this to my page

Thursday December 4, 2008, 6:20 am
I watched the film right through twice - I couldn't help but notice whilst mid-seizure Cheryl appears able to put her left arm down first which has the effect of cushioning her fall. I do wonder how she is able to implement such control in the middle of what she describes as uncontrollable seizures.

Thursday December 4, 2008, 6:54 am
Cheryl we are here for you. Perhaps it is time to start petitions now and put up some of the documentation you have until your website is done and not wait. Perhaps people before making comments should watch videos on youtube on different seizures and movement disorders.

Thursday December 4, 2008, 7:03 am
yes we are here for you

Thursday December 4, 2008, 8:26 am
But why isn't the FDA here for you? Why aren't your congresspeople here for you? Your senator and your representative?

Thursday December 4, 2008, 12:03 pm
ok, this is abit soon, I have a website (this is my blog) in the process for documents, petitions, letters, help etc, that is very hard for me to do, it has been tramatizing going through all of the documents I do have and some of the videos, still alot to go. And I can barely sit up and do this inbetween convulsions, the damage and when I have enough energy and can focus which is rare


I been working on 2 more videos this afternoon which are now on youtube and my blog, http://cherylspeaksout.blogspot.com , and then rest and to the documents for the main website.

as for the 'seizure remark', they are seizures, you can have a grand mal seizure and push yourself up from the couch, you can be walking and have a seizure and remain standing. I was left seizing day after day for MONTHS and have documentatin attesting to that. I had a positive seizure test and paralized in mid-air, must have scared them, they damaged me so badly. I also have documents stating ;'seizures' and 'atpyical seizures & paralazes", they were on hopstial records by 2005 the latter I was in ICU, when we went back a week later it and they said it was all pshycatric, kicked us out, my mother was assaulted, and my brain and body damage, they had done yet another catscan for brain only for my left side of body dragging around, the firsr one said leison on right side of brain, the test result got changed to normal, they said htey lost the film. The 2nd one they said there was 'nothing big there", and no other reports.

After the first brain damage I was abused verbally and or physcially in 6 hospitals, some repeatedly my mom in 2.

While I do not mind educating the public about seizures, dystonia, damage from antidepressants, the bipolar medication I was only on for 3 months and the damaged my whole body repeatedly and started the seizures and dystonia, which most people can not tell apart including most medical so called professionals, etc,

I am not here to prove anything, there so much damage , it is extensive and complicated and I deserve the neurological and medical care afford CANADIANS AND I AM GOING TO GET IT. HONEST MEDICAL CARE WITH MY ADVERSE DRUG REACTIONS ON MY MEDICAL FILES FIRST SO THEY DO NOT DAMAGE ME MORE

I need to get documentation up on the main website to start petition.

All politicians have been contacted REPEATEDLY and cover for the hosptials and doctors that is the way it works here.

As for me worsening yes I have. However my typing abilities have been bad and flucuate as well as from the brain and speech damage, it depended on what I was on that could relax them, same as several people from care2 have been here, the same thing, the same judgements often. If they can't see it they don't believe it until they do or if they do not understand it, I have survied 17 years with ME/CFS and FM and have run the gammit on discrimination.

healing blessings, I will be doing a petition and letter campaign very soon, the typing is so hard for me, challenging isn't quite the right word, let alone websites

Sunshine Ray you all know me as aka Cheryl Benson, I recently changed to my given name because I am going public for help, so will my mom

Thursday December 4, 2008, 5:13 pm
I feel really bad for you! I am sorry so many get lost in the system or are just not helped. I also had alot of problems with doctors and medicines, and many doctor had a different opinion and word for my health problem, so it can be frustrating, expensive and sometimes you can't get the help you need, it is mostly denied! This needs to CHANGE, we all deserve medical help-no matter what our income, the insurance I have like tousands of others-"we pay into it through our employer, but it barely helps in the end result-You just get more time to pay the big bill they drop in your mailbox"! I'll sign any petition they come up with for you to get help and get relief, at least stress relief will help first, knowing we care here, until someone listens to your problem. Many prayers and blessings to you Cheryl!

Thursday December 4, 2008, 5:45 pm
do what i do i take myself off the medicine if they are affecting you a few of them put pounds on you i went off of them plus they had warnings on them if you have sugar don't take

Thursday December 4, 2008, 6:40 pm
Can someone please help Cheryl set up and edit a petition?

Sunday December 7, 2008, 3:53 am
Dear Cheryl,
don't give up, it seems that the US doctors and especially government cancels the effective medical care on purpose.... But instead of waiting for them to become responsible and fast reacting to people's pain, just visit some foreign hospitals' sites and look for your chance there! I fought for the cause of legal stem cell treatment in the USA but now I see it is a doomed cause and therefore I found other countries that have this treatment legal... It's a pity that US patients must suffer although there is a suitable treatment for them.... If you have any questions about clinics abroad, feel free to contact me!

Sunday December 7, 2008, 4:45 am
Here in Germany patients die if the needed medicament is not in the list of supported medicaments insurances pay for. No money - stay ill or die! That is the way it is. If you are not able, or you do not want to feed the chemical industry, either you pay your medicaments by yourself (if you can) or there is no help. Doctors only help if there is raining money on them. THey do not help you. You better get your information bout your sickness from Internet. Otherwise your doctor does not move his ass 4 2 help you.

Monday December 8, 2008, 3:57 am
Dear Sunshine....I always wonder why you keep going back to the same people who have proven themselves inept to try and find help? Aren't you ready to try something different yet? I have to wonder if the medical establishment really has the ability to help you at all. Seems to me they just keep making things worse. Something to ask yourself. There are very good alternative ways....ways which work to nourish, regenerate and rebalance the brain.

I'm saying this as a friend, as a doctor of naturopathy, and as someone recovering from brain injury myself. I just worry that you're wasting so much precious time looking for peaches in a strawberry patch.

Much love and best wishes always. I hope you know how much I care...

Vibraceous, ND
www.allnaturalhealthworks.com

Monday December 8, 2008, 5:05 am
Ii am trying to do typing more info for my website and the blog. What you are not understanding is that

1) I am Canadian WE PAY FOR HEALTH CARE WITH OUR TAXES, AND SUPPORTIVE CARE IN OUR HOMES
2) how the Canadian health care system is supposed to work, and that I should have been guarantteed propper diagnosis and tests, not my medcial records falsified and abused in 6 hospitals, some very badly and brain damaged more, and left here. M
3) MOST OF THIS IS NOT ON MY MEDICAL RECORDS WHICH MEANS:
4) I can get cut off MY DISABILITY, IT HAS TO BE SIGNED EVERY YEAR BY A DOCTOR, SO FAR THEY HAVE FRAUDED THEM SINCE I WAS REPEATEDLY BRAIN DAMAGE, No doctor wants to touch me becuase of my medical records, the hospitals are scared because they did so much damage
5) This affects, my INCOME, PENSION, MEDICAL EXPENSES, WHEELCHAIR LICENSCES, GOVERNMENT FORMS/LISCENCES, SOME LASTING FOR LIFE, AS WELL AS OTHERS I WILL NOT MENTION HERE, THAT AFFECTS MY LIFE, INCLUDING SUPPORTIVE CARE WHEELCHARI ACCESSABLE HOUSING.
6) I have gone the natural root as far as it can take me so far which has cost me a fortune not covered, I still need medications to stop the daily convulsions, dystonia I have, naturals so far have helped, some make worse.
7) I need my medical records cleanted up and the ABUSE TO STOP, NO ONE SHOULD BE SCARED TO CALL 911, BECAUSE THEY GET ABUSED IN THE HOSPTIALS EVERY TRIME THEY WENT, BECASUE THEY DAMAGED ME SO BADLY.
8) cANADIAN's have their heads in the sand most of them regarding the underbelly of Canadian health care.

There is NOTHING MORE THAT I WOULD WANT, THAN TO NOT NEED A DOCTOR, WHICH I CAN NOT GET, NOR GET TO, NOR BE DEPENDANT ON THE GOVERNMENT FOR ANYTHING AFTER WHAT HAS HAPPENED TO ME from 'the system"

Now I need to focus and find help for editing, someone I trust, some is very personal and they need alot of patience, I have been very tramatized, and it is tramatizing going through it all.

I am also hoping to have at least one petition going very soon. Someone has emailed me with yet another person to contact, however, I have little hope they will be able to help and are in Government, all appeals to them have made things worse so far.

Blessings

Monday December 8, 2008, 11:00 am
I do understand...I've been through a lot of the same...I'm just concerned for your health. My blessings are with you in all that you're trying to do. Let me know when your petition is out!

Hugs,
Vibe

Monday December 8, 2008, 5:10 pm
Hello there Cheryl, let me know when you have yor petition so I can sign it too... I live far away from your country but looking at the warnings you are posting here.. and your blog, sure I will work to let know others about this problem too. Blessings, and I will be praying for you! Eduardo.

Tuesday December 9, 2008, 7:31 pm
This is a real eye opener..i'll back whatever helps Cheryl,and others in the same position.

Tuesday January 20, 2009, 12:21 pm
my disability papers in, neurolgoist won;t sign, I can't get to him, meds cut off 2 I had, clonzpam doens't stop the dystonia, dyskensia but keeps it down, working on petition, may have to let go of the main site, it's too hard for me, there are a lot of legalities medical profession medical mafia is above the rule of law here an no one touches them

Tuesday January 20, 2009, 12:22 pm
also clear to me is no understanding how very ill nad the extensive damage as well, the convulsions every day, I didn't think i;d live through with ME/CFS and FM, let alone this