Monday January 12, 2009, 12:46 pm
I was diagnosed with Chronic Fatigue Syndrome or M.E over 10 years ago. I have been healthy for over five years now. I have no idea what caused it or why it went away. It was five years of hell.

Monday January 12, 2009, 2:38 pm
Just don't get tested at Quest Labs as they have admitted to many mistakes including Vitamin D, over and over.

Monday January 12, 2009, 4:08 pm
Congratulations, Susan!!! I am so happy for you! I, too, have CFIDS - got sick Spring 1989, dx'd 18 mo. later, had some recovery, but not enough to count. You're right - it is hell. About six months ago, my doc started me on Vit. D and I noticed a big difference in generalized pain. I'm more able to attend to daily needs. It hasn't touched the fatigue, fevers, swollen glands, brain fog, etc. Wish it would - but I'll take the reduction in pain with a big Yiii Haaa!! When a person is this sick 24/7 for all these years, ANY improvement is cause for celebration.

Monday January 12, 2009, 4:13 pm
P.S. I'm taking 2000 IU's, plus the 800 IU's in my daily vit/min. Doc also has me taking B-Complex and an additional 500 mgc. of B-12. I think some of the pain comes from advanced disc degeneration in my spine, and osteoarthritis...

Monday January 12, 2009, 6:55 pm
I think I get a lot of natural vit.D Just living in Florida.Of course you must get out in the sun!

Monday January 12, 2009, 9:28 pm
I have lived with Chronic Fatigue Syndrome and Fibromyalgia for 28 years. Back when I started displaying the symptoms, I was told by medical science (big raspberry to the so called "science") that their tests showed nothing wrong with me and I should see a psychiatrist. It was a great step forward just to have CFS finally acknowledged. I continued to work and deal with it for 19 years, until I finally collapsed. Getting my SS Disability was another hurdle and I am grateful to all who helped. I have tried vitamins, yoga, chiropractics, meditation. Nothing has helped. More alarmingly, CFS seems to worsen with age. It seems to go into remittence for awhile, then I relapse again. I have no patience anymore with the idiots who say, "but you look just fine". What is someone with CFS supposed to look like?

Monday January 12, 2009, 10:38 pm
Boy,Pamela do I know do you know what you you mean.It has happened to me several times even with my own family.I get very depressed which is just another part of it all.

Wednesday January 14, 2009, 5:23 pm
Just sending a very gentle hug for Suzybell and Pamela... I understand... when you speak of your lives, you're telling my story, too. Even the part about it getting worse with age. At the very least, I think it ages us more quickly. As for SSD, my understanding is it can take up to FOUR YEARS for claim resolution - Bush put in a hiring freeze so retirees could not be replaced, hence a major shortage of SS workers and Admin. Law Judges. Hopefully that will change and the backlog will be addressed once Obama takes office...