START A PETITION 25,136,189 members: the world's largest community for good
START A PETITION
x

Researchers Find Possible Biological Basis for Fibromyalgia


Health & Wellness  (tags: fibromyalgia, discovery, biological bases, skin, potential for cure, not in the head )

Dandelion
- 200 days ago - news.yahoo.com
Researchers have discovered a potential biological basis for fibromyalgia in patients' skin. The discovery of a potential biological basis for fibromyalgia should bring emotional relief to patients who were once told the disorder was "all in the head."



Select names from your address book   |   Help
   

We hate spam. We do not sell or share the email addresses you provide.

Comments

Kyra Hazelton (70)
Friday January 31, 2014, 7:31 am
Wow I certainly hope this leads to something useful for myself and all the other fibro suffers othere!!
 

Laura H. (880)
Friday January 31, 2014, 7:32 am
I hope they can figure this out; I've had this crap since April 1992 and it gets worse all the time.

Thanks Dandelion; I will share!
 

Beatriz Blauth (26)
Friday January 31, 2014, 8:02 am
Just like asthma... that was supposed to be "all in your head"... and for a great part of my life made me feel guilty of not being able to breath!!!!
 

Beatriz Blauth (26)
Friday January 31, 2014, 8:06 am
...and I have this friend diagnosed with fibromyalgia...and his family refers to him always as crazy, unfriendly, ... when I can see he is just in pain!!!!
 

Brad Hunter (25)
Friday January 31, 2014, 8:13 am
thanks
 

Sue H. (7)
Friday January 31, 2014, 8:51 am
Good to know that science is approaching this in a different way. Sure hope that the research results in new ways to deal wit the disease.
 

Dandelion G. (385)
Friday January 31, 2014, 10:08 am
Beatriz I'm truly sorry for what you had to endure and what that family is doing to another member when what he needs is their compassion not their ridicule. This is exactly why I posted this story, so that those who suffer or in knowing someone who has this will garner some hope from this. Too many of us, and I've been told by Dr's for an experience I was going through that it was also in my head. It wasn't and had an actual medical condition behind it that was eventually determined, but not until I went through years of suffering.
 

Mandi T. (423)
Friday January 31, 2014, 10:08 am
I hope they figure it out for all the sufferers out there.
"It's a starting point for the eventual development of new types of treatment and an opportunity for some individuals to get significant relief for the first time."
 

Debbie S. (33)
Friday January 31, 2014, 10:12 am
Thanks Dandelion.....good article. This looks promising.
 

Birgit W. (144)
Friday January 31, 2014, 10:21 am
Interesting, thanks Dandelion.
 

Kamia T. (66)
Friday January 31, 2014, 11:25 am
There has also been some interesting research done that suggests there is a link between the acute sensitivities of those with autism and fibromyalgia -- that it is the body super-firing nerve endings inappropriately, and that once this occurs, the pathways are just being constantly reinforced, which is why it tends to get worse and worse if not adequately addressed early enough on. Such a difficult disease. Kudos to anyone with it who can keep going day-to-day with any semblance of grace or humor.
 

Deb E. (64)
Friday January 31, 2014, 11:30 am
I was diagnosed with Fibro over 14 years ago. There are actually many, many illnesses which can cause most all of the symptoms of Fibromyalgia Syndrome. This particular finding is probably one more common symptom of the deeper reasons for the Syndrome. It is very good to finally have research being done so that people who suffer with this can "maybe" be taken seriously, and I thank you very much, Sheryl, for posting this. 14 years after my diagnosis of "classic" Fibromyalgia Syndrome, they have found that I actually have 5 different autoimmune diseases going on, and some symptoms I have now are the result of treatment for Grave's Disease, which is hypothyroidism. It can cause every one of the symptoms of Fibromyalgia. Many doctors miss hypothyroidism for a diagnosis because the lab tests used for detection are 100% inaccurate.
 

GGmaSheila D. (149)
Friday January 31, 2014, 11:35 am
About time...
 

Lona Goudswaard (68)
Friday January 31, 2014, 11:56 am
Good to hear that scientist are looking into it further despite the common belief that it is all in the patients head. And because most of them are women they are treated like the "hysterical" women of yesteryear. The more this research is corroborated by other findings, the more doctors will have to take their patients serious and the more will be done to find adequate relief.
 

linda b. (190)
Friday January 31, 2014, 11:57 am
My young sister suffers from all of the symptoms mentioned and has been ill, she's just been tested for Fibromyalgia and is waiting for the results. Thanks for a great post Kit.
 

linda b. (190)
Friday January 31, 2014, 11:58 am
Sorry, that should say thanks for a great post Dandelion,
 

Mitchell D. (130)
Friday January 31, 2014, 12:37 pm
This is good news for many people. It is also an example, if the new ideas prove to be accurate, of a fault in logic, often seen in the medical profession, but by no means limited thereto: That absence of evidence, is NOT the same as evidence of absence!
In other words: absence of evidence for a biological basis for Fibro, is not the same as "There is no such thing, and, therefore, it is all in your head."
I happen to be reading "Antifragile...," and "The Black Swan...," by Nassim Nicholas Taleb, which are involve discussions of this kind of thinking.
 

tasunka m. (334)
Friday January 31, 2014, 1:03 pm
fnally, thanks Dandelion
kinda reminds me of the discovery of hep c
they have never proved what it actually is, only that is in non hep-a/b
plus the cure which comes laden with terrible side effects, are only 50% effective
so Milk thistle and Dandelion root can be just as effective, but will a dr admit that?? never!
 

tasunka m. (334)
Friday January 31, 2014, 1:07 pm
Deb E....My ex doctor almost killed me by reading a thyroid test result ,and not thinking of the patient
( I am and have always been super thin,he said I had hypothyroid, called my pharmacist and ordered synthroid,
the pharmacist would not fill it,saving my life)
he almost killed me again trying to get me on statin drugs when my risk for heart attack was abnormally low
because the cholesterol was a point high, I am very wary of all medical standards...
 

Lauren Kozen (157)
Friday January 31, 2014, 1:17 pm
Noted & Shared. Thanks Dandelion.
 

JL A. (275)
Friday January 31, 2014, 3:04 pm
So glad progress is being made so all with the condition will be taken seriously by all
 

Tanya Selth (0)
Friday January 31, 2014, 3:11 pm
Thanks.

FM is one of my ME/CFS symptoms which interestingly in my case thou I had severe FM for many years, I now dont get it any more.. it went as my ME/CFS changed.

So I think for some of us depending on what has triggered off the FM, it doesnt have to be a permanent condition.
 

Allan Yorkowitz (452)
Friday January 31, 2014, 4:06 pm
My mother is near 80, and has suffered with this for 20 years. The suggestions are great for a younger person.
 

Shirley S. (173)
Friday January 31, 2014, 4:39 pm
The scientists would have had to realize that there was a specific cause for so many people relating the same symptoms of pain etc.
 

. (0)
Friday January 31, 2014, 4:53 pm
That's great news! Maybe they'll find a cure for it someday. Thanks for sharing, Dandelion.
 

marie tc (166)
Friday January 31, 2014, 5:57 pm
Very interesting thank you Dandelion
 

Mary T. (188)
Friday January 31, 2014, 7:36 pm
Thanks Dandelion I have been dealing with Fibromyalgia for almost seven years now.
 

Jeremy S. (2)
Friday January 31, 2014, 7:52 pm
I hope this turns out to work--I don't have fibromyalgia, but I have several relatives who do.
 

Sherri G. (111)
Friday January 31, 2014, 10:13 pm
Saying it is all in your head is another for Doctors to say "I don't know what it is". Always remember no one knows your body as well as you do. If you know something is wrong stay on them until they figure it out or direct you to someone who can. TY Dandelion Noted
 

Charlie Rush (53)
Friday January 31, 2014, 10:16 pm
One can't even imagine, what knowledge will be available, 100 years from now.
 

Pat A. (117)
Saturday February 1, 2014, 1:55 am
I have suffered from fibromyalgia for decades - and been severely patronised for being like that. I have recently got back occasionally warm hands and feet (for the first time in decades) by managing to get my iodine levels up - which in turn depend on one's levels of a host of other minerals and vitamins such as Vit D3 and Vit K2, Vit A, Slelenium, Vit C, Zinc, Vit E, and pregnenolone (for women) amongst others - please get advice on the net if you are trying this as it is SOOO complicated! However the damage done by decades of useless health advice ('You'll just have to learn to live with it' - and being given prescription painkillers for decades) will carry on for years yet I'm afraid... as I still have stack of other health complications and problems!

We are all different and should take charge of our own health and research and research till we find something that works....

 

Julie W. (21)
Saturday February 1, 2014, 2:41 am
I hope this turns out to be as good as it sounds.
 

Arild Warud (163)
Saturday February 1, 2014, 3:39 am
Thanks for posting this Sheryl.
 

Abdessalam Diab (153)
Saturday February 1, 2014, 5:27 am
I hope they figure it out for all the sufferers out there. Noted. Thanks Sheryl for sharing.
 

Kerrie G. (135)
Saturday February 1, 2014, 6:22 am
Noted, thanks.
 

Lindsay Kemp (1)
Saturday February 1, 2014, 6:40 am
Thanks for sharing - a very difficult condition to deal with.
 

Angela J. (62)
Saturday February 1, 2014, 8:16 am
Thanks.
 

Theodore Shayne (56)
Saturday February 1, 2014, 8:46 am
Noted, thanks
 

Shanti S. (0)
Saturday February 1, 2014, 12:00 pm
Thank you.
 

Dustina I. (60)
Saturday February 1, 2014, 5:51 pm
Back when I first started dealing with the effects of fibromyalgia, there was very very little known about it. It was believed to be a psychological issue but after thousands of people from all over the World started complaining about experiencing the same exact identical ailments...researchers were then forced to start taking a deeper look at it. Very little progress has yet to this day to come about but hopefully in time.....they will come up with a way to treat it. That is my hope, at least.
 

Arlene C. (123)
Saturday February 1, 2014, 7:31 pm
approuvons ces recherches
 

Carol Dreeszen (364)
Saturday February 1, 2014, 11:51 pm
Thanks Sheryl!
 

Susanne R. (249)
Tuesday February 4, 2014, 2:12 pm
Sheryl, you've provided a service to many by posting this article. To suffer is bad enough, but when no one believes you, it must be unbearable.
 

Gina Caracci (231)
Friday February 7, 2014, 8:19 pm
THANK YOU Dandelion!!
I was diagnosed in 1992 after years of being told it was in my head..
Vindication...
 

Jude Hand (59)
Friday February 14, 2014, 7:28 pm
Noted. I'm fortunate that, years ago now, I was visiting my brother and Dad in North Dakota when I went to visit Dad's doctor at the teaching hospital there. He diagnosed me with fibromyalgia, instantly prescribing one of the older antidepressants, Evavil (generic: Amitriptyline) to be taken at bedtime. Over the first week, I finally was able to get the sleep I hadn't been able to get for a long time and my aches became fewer and fewer. Since, I've had a lot of doctors question it, but I stand by it. Glad to hear that science continues to verify fibromyalgia's presence as a legitimate illness.
 

Dandelion G. (385)
Friday February 14, 2014, 7:38 pm
You are most fortunate from all I've read and heard from others who has suffered so long with this with no relief. Thank you for sharing that information, perhaps it may help someone else.
 

Joanna M. (99)
Monday April 7, 2014, 7:18 am
Having recently been diagnosed with fibromyalgia myself -- in addition to the lupus I've had for over ten years now - any new research is good news to me.

Please take a moment to sign my petition - pledge to educate yourself and others about fibro and other "invisible illnesses"! So many people are being diagnosed with all sorts of diseases every day, and so many people understand next to nothing about them...

http://www.thepetitionsite.com/475/846/653/educate-yourself-and-others-about-invisible-illness/
 
Or, log in with your
Facebook account:
Please add your comment: (plain text only please. Allowable HTML: <a>)

Track Comments: Notify me with a personal message when other people comment on this story


Loading Noted By...Please Wait

 

 
Content and comments expressed here are the opinions of Care2 users and not necessarily that of Care2.com or its affiliates.