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Sara B.

"Searching for Answers"

Speaks: English
Joined Aug 30, 2007
What I Want to Do: Find a Cure for FMS

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I have Fibromyalgia and suffer with chronic pain on a daily basis.  I'm looking for information concerning a possible connection between Fibromyalgia (FMS) and Arnold Chiari Malformation (ACM).  I had an operation for Chiari in '86 and had no medical problems thereafter until a car accident in February 1994 changed my life forever.
Personal Professional Contact Singles
Joined Aug 30, 2007 Activist Aspirations Casual 
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Birthday June 08  
Languages English  
About Me I'm 5'0" and I now weigh 100lbs -- again. I've always weighed 90-95lbs my entire life, but then I got sick. As is usual for FMS patients, no one could tell me what was wrong with me until one test led them to a diagnosis of Hypothyroidism. By this time, I had gained 88lbs. and that was NOT normal for me. I guess I actually have the Hypothyroidism to thank for my Fibromyalgia diagnosis, since there is no test for FMS. I would probably still be undiagnosed if it wasn't for the unusual weight gain.
Now, with medication to curb the thyroid problem and a pain patch for the FMS, I live day to day. I never know how I'm going to feel on any given day until I actually get out of bed. This makes living LIFE rather difficult and a lot of people still don't understand that if I can't make plans it's not because I don't WANT to do this or that. It's because I CAN'T do it. I hope everybody would just understand that much of my 'invisible illness'. That alone, would make me feel so much better.
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Pets Beagle Mix, Parakeet, Cockatiel, Labrador  
Activist Aspirations Casual
Political Leaning Depends
Religions Non-Practing Catholic, Christian  
Eating Habits Chocolate - LOTS of it!  
Wild Fact About Me
My Philosophy
What Gives Me Hope
If I were Mayor, I'd make the world a better place by "...make sure that EVERYone had access to medical care, regardless of how much money they make -- or don't make."
What/who changed my life and why Fibromyalgia changed my life because I was running a small business and was planning my family when FMS first came on. I can't even imagine what pregnancy would have been like at my present pain level!
What Bugs Me "But you don't LOOK sick!"  
What Scares Me Global Warming  
Role Models  
Quotation "If there must be trouble, let it be in my day, that my children may have peace." Thomas Paine
TV Shows  
Favorite Foods Did I mention CHOCOLATE?  
Favorite Places Fort Erie near Niagara Falls  
Can't Live Without M and M's  
  Introduce yourself to Sara
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Valerie H.

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    Oct 23, 2007 4:01 AM

    Valerie H. (56)
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