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For families of babies with heart conditions. I have learned a lot about the heart since my son was born with Hypoplastic Left Heart Syndrome. It helps to talk to others...
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{ else }   Blog: My grown up little man  

wow, has it really been 2 YEARS since I have updated anything on this page???  Sorry bout that.  Life happens, and so does death.  Not my son's, but my best friends hubby.  It's been a long year...  So, now Chris is 7.  Not the tiny baby you look at on here for sure!  Such a little man!  We had check ups the other day at Riley, and found out his blood is too thick.  So we have been recommended to see a Hemotolgist.  We have seen one before, so we requested the same one.  We are waiting for them to call us to set up an appointment now.  Then they will try to figure out why Chris's INR is so high, and how to bring it back down. It may mean another blood thinner.  He used to be on one after his stroke at 2 1/2, but it's been a while.  He had to get his little fingure poked anywhere from once every 2 weeks, to everyday sometimes, not at home, but at the hosp.  He got so used to it then, it was like nothing, but now... idk, it will be an ordeal...  Pray for him ok?  We also had a Bone Density Scan in April, because apparently kids with his heart defect sometimes have problems with bone density.  We'll find out soon what the results of that one is...

Will update again soon, I promise!

Posted: May 17, 2010 5:09am | (0) | (0) |  
Blog: next surgery  
ok, Chris had a cardio appt. yesterday.  They decided to change his pacemaker within the next month instead of June or July.  So, I have a lot of stuff to do to get ready.  ( I like to have my house somewhat clean, lol, before I go with him, so we come home to a half way clean house afterward!)  I'll update again after I get a call from scheduling. God bless!
Posted: Apr 30, 2008 6:09am | (1) | (0) |  
{ else }   Blog: Chris on his changing table  
shortly after he came home from Riley the first time
Posted: Apr 28, 2008 10:02am | (0) | (0) |  
{ else }   Blog: 10-03-02, Chris on my birthday at Riley  
This is Chris after surgery at Riley.  It's my birthday.  He was looking at me in this picture, the nurse took the picture for me. Isn't he beautiful???
Posted: Oct 18, 2007 11:51am | (0) | (0) |  
{ else }   Blog: me and Chris  
Chris and I after his surgery.  This was mine and Claudie's birthday
Posted: Sep 24, 2007 2:02pm | (0) | (0) |  
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Message: Ivemark Syndrome  

A Challenge in Life

Health & Wellness  (tags: illness )

- 5 hours ago -
Most people have never heard of Ivemark Syndrome. I had never heard of it until my daughter was born. I had never felt so numb in my life, until I had my second ultrasound. And no one ever expects to hear that something is wrong with their babies heart

Posted: Feb 2, 2009 4:10pm | (0) | (0) |  
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