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discussion of new treatment with victims of fibromyalgia
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Dear Care 2 Community, Why oh why do people start groups ask you to join and then there are no posts no nothing further.Maybe once in six months someone or the group owner will post two lines. Or you do something or you don't, it's getting too much for you send an email, post a message to your members that you are closing the group. There are groups out there that haven't had any activity for the last year or even more. Care2 could you also look into it , you must be able to tell where the action is or ISN'T. I've been asked to join groups dealing with a particular subject which is very dear to my heart and that is Fibromyalgia. There are a couple of groups, but nothing doing. The only time we had a group that was run as it should be was when Joyce Gibbs the most wonderful person was running one. Unfortunately she had to give it up. If someone wants to see how to run a group try looking into Angel Friends, hosted by Joyce and and co hosts [sorry can't remember all the names] or the groups hosted by Cissy B., then you will see how groups should be run. I am sure that there are many more groups out there that are running perfectly and I am either not a member or haven't come across it. I don't want to step on any toes, but I beg of you if the group gets too much for you let us know. There are specific groups about health where the members thirst for every tid bit of knowledge that might help them go one step forward or try something new., or just share an ace or pain. I know that there is knowledge out there but nothing compares to sharing your feelings, your ups and downs with people of a common interest. Here's to hoping that I didn't insult too many people, if I did I beg your collective pardons. Wishing the whole community well, Chaya Goldberger

Posted: Dec 29, 2008 1:09am | (1) | (0) |  
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