Hi Rain...so glad you are staying with us When I first joined in 2004, I joined so many groups and had 1500 'friends'...neither of which I could keep up with. Last February (2008) I was having many problems with my profile, so I started a brand new one. It was a blessing in disguise. With my new profile, I have about 35 friends, all of which I keep up with and am in much fewer groups.
I hope all have a wonderful day. it is raining on and off today and with my car broken down, I won't even be biking anywhere. I'm working on preparing for college.
I hope everyone had a great 4th of July weekend. Mine wasn't exactly as I had planned because the starter went on my car, so I am now stuck home. My boyfriend is away until the 14th, so it won't get fixed until then...I'm gonna go stir-crazy I don't go anywhere much, but it sure was weird not even being able to get to the supermarket today. I should be able to go tomorrow with my roommates car.
I was able to buy some plants before my car broke down, so I was able to do a little gardening, which i enjoy.
so many groups, so little time July 05, 2009 2:06 PM
Hi everyone. I have been going through my Care2 group list today. I don't know how it happens, that joining way too many groups to really make a difference. So I have been "un-joining" some to devote more of my time to those I feel the strongest about. So here I am. You are all important to me. I look forward to hearing from you. Blessings to you all, Rain
Dear Rhonda,I'm sorry to say I can't remember the name of the medication I was prescribed for my hair loss,just that it was steroid based.And I'm sure it was in liquid form where you just put a few drops on the effected areas.I don't think that I would continue with the shampoo treatment if it is causing further irritation.I must say though,I don't remember any kind of irritation on the scalp,just the hair loss,although it did get itchy as the hair grew back.
My heart goes out to you at this distressing time.I know how difficult it can be and how frightening.Please feel free to email me if you would like to talk about your problems as I will be there for you.Having a support group is very important and beneficial especially if you are feeling alienated through pain or illness.Just having someone to talk to who understands can make you feel a lot better and I hope I can help.
C.C. thankyou for the warm welcome and to all in the group,Peace and Love,Fayexxx
The nurse did scalp biopsy at derm. of. I did nto see or talk to dr. some sec. called to say it was positive for yeast. they called in shampoo and foam. use as directed but unclear on as directed and tehy are impossible to get on the phone. that is what I have been trying to use for past few days and it is burning where ever I have put it so now i am wondering what to do next
I just read the link to the name of the condition you said and decided to post again, in case you see this and could share the name of the cream if you could remember it.
One doctor at the fam pra about a yr ago told me they usually treated this with sterioids but i told him shots or pills worked hard on me, to give it a little time and I woudl do that but then that is iwhen i went to the derm. doc office.
no one has ever mentioned cream
the nurse scoffed at me and said i had a lot of hair, i was not going to bald.
but that is not true. they are not right in their assesment.
Medicare is not an appealing ins. to most new doc. I feel hopeless
Hi Rhonda,I too suffered dramatic hair loss after a particularly stressful time in my life.It was diagnosed as "alopecia areata" and was treated with steriod cream which was quite successful.It just took time to grow back.Have you had a proper diagnoses by a doctor?
I also suffer from degenerative disc disease and am sure that pain and stress have an effect on hairloss so no,you are not bonkers.I wish you the best and hope you can find a solution to this problem as I know how frightening it can be .Peace and Love Fayexxxxx
hair and chronic pain, advice, ((please)) July 01, 2009 5:47 PM
Hi all. CC, I know a Kinston. My dad used to drive there but that was in NC.
I wanted to stop in and just say hi and get to know everyone a little bit.
This week the blood work for thyroid included hormone levels because of this aggravating hair loss (sporatic bouts, now really noticable) which I first reported about 2 years ago when levels were fine. Maybe the test will reveal the same, maybe they will call tomorrow. The derm. ov was not good. A nurse saw me, a doctor never did. She did not want to test my scalp, they blew me off and told me I had alot of hair and would not go bald, well easy for them to say. Some receptoinist called to say it was positive for yeast and they called in shampoo that I used for awhile but am I supposed to use it forever? Or what.
They told me to see my hairdresser for this type of thing and he is my friend from school who told me to go to the derm to rule out fungus.
I feel ashamed and embarrassed over it. It is getting very difficult to hide the fact there is loss, I sure could use some support and advice.
I have done everything to make myself as healthy as possible. I am wondering about chronic pain and hair loss. Maybe I am bonkers but it seems to start up whenever I have really bad flare up.
My back is feeling better since rest and heat pad, I just still need to pace myself better ( I can easily get hooked on the internet despite the pain, then suffer for 2 days). I laid out in the sun for about an hour (it's 94 here) and it was very relaxing. I will spend some time in groups and then prolly take a nap. We are driving out to Kinston tomorrow to see our son do a presentation to move to another level. We are very excited & proud!
Hi everyone, have not gotten emails from care2 for months any way weve been busy packing and getting rid of junk and went to court last week for the settlement, was going to be done with everything by august first and on our way to texas.... they postponed till mid august so now ive got half my stuff packed and all my winter stuff given away except one weeks worth which is packed (dont need as much where im going, here its in the 60s now! by september or october it gets into the 40s) praying we make it out of here before october. any way court was postponed not because of my lawyers request for setllement, workmans comp lawyer said to the judge it sounded fair!!!! that shocked me! but because they have to wait for medicare to tell them how much money they want for my back medical (lawyer said it can be any where from 300 to 400 thousand! because they must pay medicare for my back problems, so till they get that amount they cant settle with me, medicare would sue them.) so thats where i am, and I thought I better come by and say hi, miss you all, praying everyone is having less pain (mines worse but the weather has stunk) hugs to all. so sorry i was a bad co host but i will try to visit more often when i can, most likely after i move tho, everything is a mess here.
It has been a long day and my burrcitis and fibro is hurting pretty bad. I spent some time on the heating pad, but no pain relief...then I know it's really bad. Hopefully will find some relief tomorrow.
Welcome to all new members & I hope to see you here shortly.
I have spent the last few months in the gym fighting to maintain mobility. I found a PA that believed that I could do more than just walk in the water. She hooked me up with a sports and nutrition specialist and a young very progressive PT. It has been slow going but probably the best thing to happen for my health in years.
[ send green star]
Hi Everyone...btw, where is everyone?...anyhow, just got back from seeing my son and it was a great visit. He is doing very well
I, myself, am doing better. The medicine for my chest & sinus infection is kicking in...and I back on my regular meds for pain.
I'm gonna spend some time laying in the sun tomorrow (early as it is 100 here now)...then I'll be online tending to groups. I will start doing some home-study soon, preparing to go back to college in August, so I'm working on managing my time for everything.
I have been asked to do two volunteer positions...1st being the advocate for my county for the cancer foundation...2nd a coordinator for the American Red Cross. I am looking forward todoing some volunteering now that my pain is managed a bit better.
Still battling the flu, cannot wait to get to dr. on tuesday...I have horrible cough which hurts into the chest. I will not be online as much this weekend because I think I've been trying to stay up too much...think tomorrow will be 'movie day' in bed, with soup and water and ginger ale.
I hope all are well today...my kitties get me up early for breakfast, so i guess I need to get to sleep earlier...need my sleep! They are so sweet. I have been unable to post my 2nd kittie's pic here due to technical difficulties, but, if you'd like, I have a photobucket album which is on my page...pics of me & friends and my kittie's, Lucie & Harlie.
I'll be here as i can. Taking dayquil and resting a lot.
I hope yall' enjoy a sunny day! We are forcasted for hot & sunny, but with partly cloudy and chances of thunderstorms (which the weather man even joked and said 'that is our forecast for the next 5 months' LOL)...Anyhow, unfortunately, I am sicker this morning and am headed to the doctor (which I had to go to for my pain meds)...not sure if I'll be in after because I know it will wipe me out and generally they give me cough syrup w/ codeine, which means days of sleep & grogginess for me...Peace, C.C.
Well, I now know why my back was aching more the 2nd part of yesterday...I wuz coming down with something. Now my ears hurt, my chest and all my muscles. I so hate getting sick (which happens more since Fibromyalgia and everything else) because it 'amplifies' the symptoms.
So, I will be in bed mostly today...I hope yall' enjoy a great day!
I have been trying to catch up on some things here at the house today. it is time to rest my back for a while and watch a movie. i hope all of you are enjoying your weekend and having many pain-free moments...