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Hi everyone! June 08, 2012 11:31 AM

My name is Joanna and I'm a 31-year-old CT resident living with lupus, polymyositis and chronic fatigue. I was diagnosed just after graduating college, although looking back, I definitely started getting symptoms well before that.

I do what I can to help promote chronic diseases - currently, I've got a petition going right here. Please take a moment to sign it if you can! Every signature matters.

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 May 02, 2012 7:19 PM

Hello I'm Karen
I'm a mother of eight children and I've been dealing with chronic pain since 2003. Would like to learn more about pain relief without drugs.

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My name is Jessie, December 27, 2010 5:57 PM

Hi...I'm Lotacats..

I hear you on a doctor not friggin' knowing what's going on.  I have an unusual spasm, known as "The Beast" that attackts and goes

on for a good 24 hours at a crack... that is controlled by opitaes because it blocks the signal that fires it up and the doctors

trying to figure that one out was a joke.  

It was a dentist who explained why something like a tylenol #3 shut this nightmare off that caused me to go into disability.  

You'd think these guys had more information about something as chronic and horrible as this thing has been.  Go figure. was like the dumb club for doctors.  For the most part these interns and residents were under the contol of a doctor who

hated the use of aopitaes.  I ran into that sometime before I tried the clinic in town and that one was also a narcophob.

 Funny thing is...I never once, in the entire time I was trying to find out what was happening to me did I ask for pain meds.  I

wanted to know why "The Beast" did what it did and does it have a name and what is it and what to do to stop it.  Clinic docs are

pretty afraid of the drug seekers as they get a lot of them but their first clue should have been that I never, ever asked for

anyhing....just an answer and what to do.

"The Beast" was not the only problem...I had over the years been developing odd ball pain and was getting more and more cripple.  

I had knees swelling for no other reason then they felt like it...or something.  Xrays looked good but MRI told a different story.

 Degeneration was happening and fast....lots of goodies were breaking down on me.  

The neuro guy at that clinic was not even a joke...pathetic....I put a great deal of hope in this guy.  He did a perfuctory nero

check and started to walk out without a word...I said...wait...whoa...what are we looking at....he says..."Daily stressors".

Heaven help me..."Daily Stressors".    Crap.  I didn't tell him I use to be an ICU nurse before all hell broke loose on me...and

did far more extensive neuro exams then he did for me.  So...I wasn't impressed.  A lady doc who worked with me was really trying

and beleived me.  When she learned what he had said she was angry....really mad.  So...I hear you.  Loud and clear.  I was also a

certified Psych nurse who understood the concept of "stressors"....this was so lame and so very pathetic.  

The story went on for years...and years.  In all my pain issues started about 1990 when "The Beast" first came into my life at

work like a bat out of hell.  Literally.  It's neuro.  No doubt about that.  

I won my disability...and just as I was about to leave the clinic who left me in agony...I had an infection ..and the darndest

thing happened...the narcophobic doctor let me have some Tylenol #3's.  When "The Beast", who's pain is almost impossible to

describe...pitcure clawing at the air and screaming into pillows and back arching for a 24 hour live electric wires

going nuts....but I had those t3's and took a couple hopeing against hope it would make this beast attact tolerable.  

It stopped it cold.  Did not mask the was like turning off a light by pulling the plug out.  Here was a perfect

opportunity for doctors to understand it....but noooooooooo.  Dumb.  The dentist understood what happened...but the clinic docs

remained clueless and just wanted to move on to someone they could fix.  I was not fixable.   

I won my disability and got my old family doc back and we went to work.  He knows me, I've worked with him and he knows I wouldn't

lie about any of this.  But we kept using the Tylenol #3's and controlled the beast and it also helped with increasing joint pain

and muscle pain and lo......I was seen by a pain specialist and trigger points galore.  Sent me right thru the roof.

We have a diagnosis of sever Fibromyalgia and Myofacial Pain Syndrome.  It's possible "The Beast" hails from those.  It is Neuro.

When I had explained my use of the T3's to that dentist who was to do extensive work on I explained "The Beast" and how the

codeine cut it off....and she had an answer right there as if any fool should know what was happening.  The opiates cause the

actual signal that fires up the spasms to become confused and cannot jump the synapse and that's why it cut it off...damn.  Next

to her those clinic docs...really need to go back to school for pain education.  The nuero doc needs firing.  

I've been in pain for since early 90's but my doc and I worked together on this...when I developed blood pressure problems at

home...way dangerous levels and my heart rhythm was jumping all over the place and scared the crap out of me.  My doc was out that

afternoon so I ended up in Urgent ain't gonna believe this but it proves there is hope.  I was checked over and given

an EKG with lots and lots of PVC's and critical levels on the blood pressure....the one working on me there came back in..sat down

and said....I really believe this is going on because your are under treated for pain.  WHOAAAAAAAAAA!  How often does THAT

happen?!  An honest to God diagnosis of under treated pain.   Makes a difference when your doctors aren't jaded clinic docs who

only think we want their drugs.  

I saw my doc in a few days..after using the vicodan that urgent care doc prescribes and which brought down my blood pressure and

smoothed out my heart rhythm...

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Hello December 27, 2010 6:24 AM

My name is Jessie, and chronic pain has been in my life for over a year now. It severely limits my daily activities. It kills my social life. It gets me down, and pisses me off. I am so sick of being in constant pain. To top it off, I am an alcoholic/drug addict who is in recovery, with 3 years and 10 months clean. So basically all the "good drugs" that could possibly help me feel better? I can't take them. All I can take is OTC stuff, and it sucks. I wasn't in this much pain when I was using, and it is so f***ing frustrating!!! I hate trying to explain it to everyone, and then they ask, "Well, have you seen a doctor about it?" Seriously? NO I HAVE BEEN IN SEVERE DEBILITATING PAIN FOR OVER A YEAR BUT NEVER THOUGHT TO GO TO A FRIGGIN DOCTOR. OF COURSE I'VE BEEN TO A DOCTOR I'VE BEEN TO DOZENS OF THEM. NO ONE WILL GIVE ME ANY ANSWERS OR HELPFUL ANYTHING!!!!

Here is another one of my faves: "Well, have you tried________?"  Fill in the blank with whatever you like. Chances are I've tried it, especially because people usually  say the most obvious thing that one would try for such a pain. Eye roll.

My pain is usually in my jaw, neck, and shoulders, somewhere between TMJ, muscle spasm, facial pain, blah blah bliggity blah. Whatever it is, no one is helping me feel better that's for damn sure.

I also have a loving boyfriend who is so supportive and so helpful of me, and it breaks my friggin heart that I am in so much pain all the time, and how it affects us, and how I think it affects him, although he says it doesn't bother him. I was not like this when we first started dating, so I feel ashamed and guilty that I am "not the same girl he fell in love with", since I am in so much pain so frequently. Of course, he tells me this isn't true either, which I have trouble believing, but I gues I can try to believe it.

Thanks for letting me rant. This pain sucks, and I hate talking about it to people who don't understand it. Peace out

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hi November 06, 2010 2:16 AM

i angie 47 yr, and have chronci pain  spinla stenosis, ddd,radipathym neck pain, and someother heath issue... but since this is more for pain... i been dealing more latley for the last 2 yrs of worst, i had back pain since 91 ... from ohio... and been trying to find a good pain mg dr,,, want to meet other and see how they handle things...  ang

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Hi everyone! October 17, 2010 4:29 PM

Hello everyone! I have been a member for a bit but don't think I have introduced myself, things have been very busy. I have been living with sciatica for about 2 1/2 years from 2 herniated disks. After trying lots of different things I have my pain fairly well managed with holistic methods. I am now a professional coach helping people with thier wellness goals and finding the right solutions for them in dealing with any pain or health concerns. I am hoping to be more active in this group and hope to be good support to all the great people on this site. Wishing all a pain free day! Be well- april

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 October 11, 2010 8:17 PM

Just joined.Thought I wouls intoduce myself.

I am 37 and have lived with cronic pain most of my life.I have fibromyalgia , massive migraines , damage from concussions, Nerofibramatosis that causes tumors to grow on my nerves along with a few other things.

Looking to get and give advice on new treatments and support when you are feeling down

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 August 28, 2010 11:21 PM

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Hello August 04, 2010 2:49 AM

My name is Beth, Just hoping to learn more.

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Hey, y'all... I'm Annie February 20, 2010 12:32 AM

I've been waiting until I wasn't in quite so much pain to post, but the weather here in St. Louis, MO, USA isn't cooperating. If I wait for a low-pain day, it might be summertime.

My alphabet soup of chronic pain conditions includes FM, CMPS, OA, DDD, along with sciatica, peripheral neuropathy, and migraines. (Did y'all get all the abbreviations? There'll be a test later. )

I approach my pain from many directions: traditional medicine, alternative medicine, mental health treatment (I also have BPD), and spiritual practices. And sometimes I just have to fall back on plain ol' pain meds. My latest tool, which I'm still learning, is Zen lovingkindness meditation. I just finished a "virtual retreat" last week. I've been meditating for a long time, so this was both a refresher course and learning a new approach.

So, that's me in a nutshell. Once I remember how to insert images in HTML, I'll use all my fancier smilies, too. I'll be able to come up with a pretty sig, then, too.

Peace & {{{Gentle Hugs}}}


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 February 06, 2010 7:25 AM

to all new members who have joined in my absence. I am sort of in-limbo right now and only have limited use of library computer, but will beginning adding more info. for yall' soon.

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 December 15, 2009 4:38 PM

Renee...Please join us in chat when you and have a chance. Please let me know if there is any specific information I may find for you also.

Peace & Prayers, C.C.

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 December 08, 2009 3:58 PM

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Juta & April...Please feel to introduce yourself here and then join me in the Chat / Support thread



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 December 03, 2009 10:32 AM

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 November 29, 2009 5:52 AM

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 November 02, 2009 6:44 AM

David H.

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 October 30, 2009 7:14 AM


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 October 26, 2009 5:47 AM

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Karen...glad to have you!!

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 October 10, 2009 5:50 PM

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David...glad you have joined us Please introduce yourself when you get a chance

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 September 30, 2009 6:44 AM


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 September 25, 2009 7:37 AM

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 September 16, 2009 6:38 PM

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 August 28, 2009 5:54 PM

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Bill...Please introduce yourself when you get a chance. Anything you can contribute regarding Holistic health would be greatly appreciated.

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 August 21, 2009 5:41 PM

Please Introduce yourselves when you get a chance

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hi everyone.....i'm back, I think August 16, 2009 1:54 PM

Kim C. hi everyone.....i'm back, I think 1:47 PM
HI everyone Kim here.......sorry to have been away so long. My surgery to replace my pump went fine but it threw me off of my sleeping etc and I went thru a time of not sleeping but being exhausted all the time. Finally back to my usual sleeping pattern thank goodness. then I came down with a cold and very bad sore throat that wiped me better now (I think) other than still being a bit tired. Thanks to CC and Rain for thinking of me and sending me notes along the way. I REALLY appreciated them. Glad to see a couple of new member intros but sorry to see not much other activity here Any ideas of how to get all the members more involved? We could be such a great support for one another. I know we all face struggles daily and this would be a great place to vent with those who understand us more than anyone. I have been struggling this week with some depression.....not really sure why it just comes over me from time to time. I feel the tears are just on the verdge all the time. Anyone else struggle with times of depression (stupid ? right?) How do you deal with it? well, I wish everyone a blessed week and hope to get to know some of you better in the months to come. God Bless

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Pam August 16, 2009 11:47 AM

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 August 09, 2009 1:18 PM

 All newest members, if you have not already, please stop by and introduce yourself. I hope you find valuable information here along with true friendship from others who truly understand your situation  [ send green star]
REPOSTED August 06, 2009 5:02 AM

Hi July 20, 2009 9:34 PM

HI there! my name is Angie Mikulcik and I suffer from chronic Paing every day...I try to do everyday activites, but I can't.. sometimes I do and just deal with the excruciating pain, for my kids and husbands sake, and I pay for it dearly for 2-3 days later.   I have RA, cervical Spinal Stenosis, Scolosis, Sclerosis, neuropathy, tourettes syndrome, fibromyalgia, and mitral valve prolapse.  believe me.. I hurt. but, I am trying to stay positive! By working online at Liveperson (tutoring english), selling Gold Canyon Candles ( need reps if anyone is intrested) and by being on here. It really helps ALOT.  I am dreading winter.. the pain is unbearable. So i am looking for people to talk to that have the same pain as I do and that can help me through the days that are going to be extremely tough!

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 August 06, 2009 4:26 AM

oie_doggies_vi1.jpg welcome picture by CCschenk09

Dianne & Erin. Thanx for introducing yourselves. I do hope to see both of you in chat You have both been thru so much, as we all have, and I admire your strength. Erin ~ never feel bad here about a long post...we need each other for support, understanding, and sharing information.

If you come across or have any new info. on Chronic Pain Relief, please feel free to add to our info. threads.

We are also looking for 3 more co-hosts here, if either of you (or both) are interested, plz. post in the 'co-hosts needed' thread.

Have a wonderful Thursday!

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Nice to meet you all! August 05, 2009 11:26 PM

Hi everyone!

I've been trying for weeks since I joined to get this post up but every time I tried, I fell asleep or clicked the wrong button or inadvertantly lost the whole thing, so hopefuly, it'll work this time!

My name is Erin and I am one week and a day from being 28.   I've suffered from CP for five years (it'll be six in November), from two bad disks in my lower back (L4/5 and L5/S1). It started as pain from two big herniations, but was made much worse after two bad decisions.  The first was not to get a second opinion before I had the first surgery to "fix" the problem. The second was to allow the same doctor to do the same thing a second time to "fix" the herniations that magically appeared after the first surgery.  I had a third surgery in 2002, an IDET, to fix tears in the little disk matter I had left, which helped the pain significantly for about six months before it suddenly returned with a vengence (all I did was sleep in a different bed for a week. I went on vacation to the Jersey shore in little pain and a week later, I came home with pain that was worse than it was before the IDET).

Since then, I've just been trying to survive.  I've had more epidurals than are usually recommended and been on literally every pain medication out on the market. I finally found one that worked miracles for my pain control - Opana - two years ago, and it has really helped reduce the pain to where I can function okay. I still have my really rotten days (like today, when I did something matter how careful I am, I seem to every so often do something that is just so dumb and then pay for it...) but the decent days outnumber the bad ones. My pain currently stems from the latest herniations, which ejected almost all of the disk matter I had left from the disk space, and massive amounts of scar tissue from the surgeries. I haven't had an MRI in years, so there could be other things going on that I just don't know about. I have severe pain in my low back, but the most demoralizing is the pain down my legs. I can deal with the low back pain, but the shooting pain really gets to me mentally. My prognosis is unknown right now. There's a chance we can do disk replacement, but my surgeon wants to wait until he can be sure they will last me as long as possible before they too have to be replaced (inevitable). So now, I wait.

Besides my pain, I'm a reporter for a local weekly newspaper; I'm responsible for covering three municipalities in central NJ and I really love my job. There's nothing better than seeing my byline on the front page, even though it's been there probably hundreds of times, and knowing that my story could make a difference for people. It's an awesome feeling, but also something that I don't take lightly, as it is a huge responsibility. I graduated from college two years ago, after fighting my way through four years when I was battling the CP to get to class. I thought when I was first hospitalized and when I learned what I was facing, that I'd never get back to school or get my degree. But I did it anyway. There wasn't a choice - I knew I was going to do it, no matter what I had to do to get there. That diploma means more to me than anyone could ever know. And not only did I do it, but I went from being a terrible student (with a C average, after being academically dismissed once - I had a lot of fun in college and didn't understand the 'balance') to straight As. I started my major after the CP so I use that as my gpa - it was a 3.82 when I finished. I'm still really proud of myself for finishing it. So I have a B.A. in Journalism and Public Relations (and a lot of! ).

Besides that, I enjoy hanging out with my friends and boyfriend, and relaxing as much as possible. I don't have much of a life, as I am constantly on call, and attend meetings and events on top of my regular job hours, so I end up working more than 50 hours a week. So a lot of my time is spent trying to recover from that.

I really look forward to getting to know all of you. I had been a member of another online support group and they saved my life on more than a few occassions. I just wish I had found them sooner! I just got a brand new laptop as an early birthday present, so I finally have my own computer after three years without one, so I'll be able to post here regulary (I wasn't really able to before as I never knew when I'd be able to get to a computer), and look forward to helping or just giving someone a shoulder to lean on.

BTW - As you can tell, I write a lot! My posts are rarely short....just to forewarn you all! And I really like smileys!

Nice to meet you all! Feel free to contact me any time, for anything!


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anonymous  August 04, 2009 6:49 AM

Hi, and thanks for the invite. I try to keep as active as I can and to be as positive as i can. I beat cancer nearly 20 years ago, and while my current health is not the best, I do the best I can. I think my two young grandaughters keep me going as I want to be in their lives as much as I can. I also work 2 part days a week for a wonderful organisation which lets me work the hours I can and understands if I can't get in some days or get in late. I also do volunteer work for them, helping the elderley who need someone to chat to, take them shopping, or out for a drive or a cuppa - keeps me feeling young. I sold my big house when my youngest moved out, and bought a lovely little unit by the ocean, but while I moved in over a year ago, my garage is still full of boxes and other things to unpack - sometimes it just takes too much effort and have had a couple of hospital stays in this time, but obviously they are things i don't really need as am getting along just fine. My 3 cats look after me very well and get me up every day, even if just to feed them - no staying in bed around here, thought they don't object to sharing an afternoon nap with me or an early night.

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 August 04, 2009 6:29 AM

Glad to have you Dianne. I hope you find useful information here for your pain relief and enjoy the support of friends who truly understand.

oie_kittens1-1.jpg welcome picture by CCschenk09

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 July 27, 2009 5:57 AM

  my friend, Amen...Glad you have joined us and I hope you find valuable information to ease your pain and the support of friends who truly understand.

Peace & Prayers, C.C.
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 July 22, 2009 4:25 AM

Photobucket HI Sandy and welcome to the group! Please look around and read our intros. I think you will find that we understand the pain you deal with daily. Let us know if we can help in any way....prayer, encouragement, a place to vent etc. thanks for joining and look forward to getting to know you Kim  [ send green star]  [ accepted]
 July 22, 2009 4:04 AM


Hi Angie and welcome to the group!
thanks for sending the intro telling us a little more about you.
You have come to the right place for others who understand the pain you deal with daily....I think everyone here deals with the same thing.
You can see my intro earlier on this thread.  I've only been here a short time myself.
Please look around.....there are lots of good links, articles etc.
Please let us know if there is anything we can do....pray, encourage, listen.....whatever.  we are here to help one another because no one else quite understands what it is to deal with chronic pain.
Hope u have a wonderful day and hope to hear from you again soon.
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 July 21, 2009 3:51 PM

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My dear Sister Sandy! Glad you have joined care2 and our Group.

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REPOSTED for Angie July 21, 2009 4:37 AM

HI there! my name is Angie Mikulcik and I suffer from chronic Paing every day...I try to do everyday activites, but I can't.. sometimes I do and just deal with the excruciating pain, for my kids and husbands sake, and I pay for it dearly for 2-3 days later.   I have RA, cervical Spinal Stenosis, Scolosis, Sclerosis, neuropathy, tourettes syndrome, fibromyalgia, and mitral valve prolapse.  believe me.. I hurt. but, I am trying to stay positive! By working online at Liveperson (tutoring english), selling Gold Canyon Candles ( need reps if anyone is intrested) and by being on here. It really helps ALOT.  I am dreading winter.. the pain is unbearable. So i am looking for people to talk to that have the same pain as I do and that can help me through the days that are going to be extremely tough!

 [ send green star]
 July 20, 2009 2:21 PM

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Doren...Look forward to seeing you in chat!

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 July 20, 2009 12:01 PM

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Angie...feel free to introduce yourself and join us in chat!

Peace & Prayers, C.C.

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 July 20, 2009 3:28 AM

 Jeffrey. Glad to have You!  [ send green star]
 July 17, 2009 4:00 AM

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Erin...Glad you have joined us

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 July 14, 2009 4:48 AM

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Sharon. Thank You for joining us. We look forward to getting to know you and seeing you in chat

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Kim's Intro July 13, 2009 1:11 PM

Hi everyone! I have been here a few days trying to familiarize myself with the site. Figured it was about time to send an intro.
I'll try to keep it brief.
 I am a 43 year old mom of 3, registered nurse, disabled for 6 years due to DDD, disk bulging l5/S1; s1 radiculopathy; facet arthrosis and SI joint disorder. I have been fighting this demon of Chronic pain for 8 years. HAve been in Pain Management for 7 years....been thru the gamut of injections and other procedures with no significant relief....,finally my doc recommended an Intrathecal pump after a failed SCS trial. The pump has been a Godsend! I finally got back part of my life that I lost to the pain.
(of course this is a very condensed version of what I went thru for 6 years prior to getting the pump) Everyday is still a struggle.  I still have constant pain but it is under much better control now.  I still have to B careful not to overdo it and my activity levels are still very limited.  Unfortunately I cannot go back to the job that I so love because of my limitations.
I have battled a great deal with depression and continue to battle it day by day.

I have also been fighting for SSD benefits for 6 years and finally won late last year......the most stressful years of my life!! Between dealing with my disability Ins Co and SSDI along with not being able to work in the profession I am passionate about and dealing with the pain, all the meds, procedures, tests and EXPENSE I thought I would lose my mind.
 I hope to be able to contribute something here and looking forward to getting to know everyone.If anyone has any questions about intrathecal pumps ,  SSDI or any medical ?'s I can answer, I would be more than happy to share.
 I am having a bout of arm/neck pain right now that is limiting my computer time so not sure how much I will be around in the coming weeks but hopefully will get it sorted out soon. I have some very interesting info on Vit D that I am looking forward to sharing with everyone in the near future. I have been researching Vit D recently and the connection between vit d and multiple diseases may surprise you. According to one doctor vit d deficiency is near pandemic and is associated with many diseases/disorders including chronic pain/fatigue/depression. All should be having vit d levels checked's becoming a standard test due to the research that has been done in recent years.
 well.....thanks for reading. Sorry for the long intro. Hope you all have a great, low-pain week!
 God Bless Kim/VA

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 July 10, 2009 11:21 AM

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Guy! Look forward to getting to know you

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 July 08, 2009 1:34 PM

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Care V. and thank you for contributing right off the bat...

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 July 08, 2009 6:34 AM

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Eva! Glad you've joined us...we look forward to seeing you in the chat room

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Welcome & Plz. Introduce Yourself 5 July 07, 2009 5:35 PM


Alotacats...I love your name...I am a cat lover myself. Glad you have joined us, plz. introduce yourself when you are able

Peace & Prayers, C.C.

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