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 September 22, 2009 2:58 PM

Take Action

http://action.painfoundation.org/site/MessageViewer?em_id=10561.0&printer_friendly=1

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 September 22, 2009 2:29 PM

The FDA's Proposed Ban...

http://chronicfatigue.about.com/b/2009/09/14/the-fdas-proposed-ban-on-popular-fibromyalgia-painkillers.htm?nl=1

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 August 21, 2009 5:53 PM

Dancing with Pain

http://dancingwithpain.com/

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anonymous Debunking the ancient Issue of Pain Medications & Addiction July 26, 2009 4:08 AM

Prescription pain medicine addiction grabs headlines when it sends celebrities spinning out of control. It also plagues many people out of the spotlight who grapple with painkiller addiction behind closed doors.

But although widespread, addiction to prescription painkillers is also widely misunderstood -- and those misunderstandings can be dangerous and frightening for patients dealing with pain.


This is an incredible article that everyone from those with Chronic Pain and Illness, caretakers, spouses, family, friends and all should read. It is time for professionals and us as patients, plus our support team around us need to take a stance to aid us in getting the proper treatments, that often include prescription pain medications in order for us to live with any kind of quality of life. As the article says, and I have also said before, the majority of those who take daily prescription pain medications, use them so we can live a half way normal life, we DO NOT abuse them, we go to our doctors for followups, we sign pain contracts if our doctors ask us to, and we are not the ones abusing or getting "addicted". Addicts are those who seek narcotics for purposes not really due to pain, but more either to sell, or to use as a "recreational high" (just as Cocaine, or any of the illegal drugs on the street). Furthermore, an addiction can be from any drug. It is NOT limited to just narcotics (as this article points out)


It is NOT fair to punish those of us that live in this horrible nightmare of Chronic Daily Pain and Illness, due to media hype surrounding celebrities, or any famous people. We are the ones that try to make it through the days of pain, with proper treatments and medications, so we can work our jobs, raise our children, and be able to continue to enjoy spouses, hobbies, families, and friends.


Please read this article, and pass it on to others if you will.
http://www.webmd.com/pain-management/features/prescription-painkiller-addiction-7-myths

We need to open awareness on this serious matter, and put an end to the propaganda that surrounds medications that do serve a very horrible disease of Chronic Pain.




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advocacy articles July 22, 2009 9:51 AM

  Please read--important and helpful info here.........

The Summer 2009 issue of the American Pain Foundation’s Pain Community News now available. Sample headlines: • Summer heat can be a pain • Health insurance woes • Gender Matters: why Women feel more pain • Fast facts on acute shoulder and neck pain • Gentle exercises for chronic pain

http://www.painfoundation.org/Publications/PCN09Summer.pdf

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 July 16, 2009 5:11 AM

FDA Votes to Restrict Acedaminophen

http://www.medicalnewstoday.com/articles/156256.php

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AMERICAN PAIN FOUNDATION July 16, 2009 4:41 AM

The American Pain Foundation Thanks YOU!  YOUR voice is being heard and YOU are making the difference in the movement to remove barriers to effective pain care for all Americans.

In just six days, 4,075 signatures were collected in support of American Pain Foundation’s petition urging the Food and Drug Administration (FDA) to consider the recommendations provided by the pain  community and endorsed by APF regarding the development of Risk Evaluation and Mitigation Strategies (REM for certain opioid drugs.  Signatures from residents of every state of the union and Washington DC were collected.  In addition residents of 24 foreign countries and U.S. territories submitted their signatures and comments in support of U.S. citizens.  On June 29, 2009, APF submitted its comments and position statement, along with the petition, to the FDA.

APF thanks everyone who supported this position with their signatures and powerful comments.  We could not have done this without the collective voices of the pain community, including individuals living with pain, healthcare providers, family members and friends. 

To read the text of the petition and the heartfelt comments expressed by members of the pain community, click here.

Thank you for all you are doing to improve pain care! We could NOT have done this without YOU!

Together, as we have done with this petition, our collective voices will make a difference!

Sincerely,

American Pain Foundation

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anonymous Thanks CC- This is a great idea to put all of the advocacy/activitism under 1 thread July 11, 2009 9:24 AM

Hi CC and everyone here in the group. CC decided since a large portion of my "role" is in the advocacy and activism realms when it comes to Chronic Pain and Chronic Illness. He has made this thread for just those things. So, anytime I have information about petitions, letters, new legislature, and so forth that you can take action on, or I feel is something important for everyone with these types of health issues, I will post them here.

Happy Saturday and weekend to all... Pam

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 July 10, 2009 3:39 PM

Please SIGN & PASS ON my very important petition...

http://www.thepetitionsite.com/1/expedite-the-process-for-applying-for-ssd-and-ssi-for-disabled-persons

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 July 10, 2009 3:35 PM

URGENT! PLEASE TAKE ACTION IMMEDIATELY! FDA trying to BAN PAIN MEDICATIONS! June 09, 2009 4:39 AM

URGENT! PLEASE TAKE ACTION IMMEDIATELY!
32 secs ago
|

I have put up a news article about this. The FDA is trying to put a possible ban on many of the opioid pain medications that are extended release! This is a critical issue, and they are to meet by June 30th! I urge you to send in your letters, send this to everyone you know, and help stop this ridiculous act. This would take away millions, their quality of life, their jobs, possibly their spouses, and more. Here is the information below.

 

Here is the American Pain Foundations front page. There are pfd's to download for talking points about this and information, plus here is the link where you send your letter directly to the governmental body over this. If you need help filling this out let me know.

 

 

Here is the direct link to the FDA where you can submit your letter:

 

http://www.regulations.gov/fdmspublic/component/main?main=SubmitComment&o=090000648095e49e

 

 

Here is the link to the American Pain Foundations website:

 

http://www.painfoundation.org/

APF URGES YOU TO READ THIS ALERT AND TAKE ACTION TODAY!

To:  All individuals and organizations who care about access to pain care in America.

URGENT CALL TO ACTION!

The Federal Drug Administration (FDA) may remove important pain medications from the market or could very likely limit access to certain pain medications that are currently legally prescribed to millions of Americans suffering from pain.

The FDA needs to hear how vital access to these medications is to people with pain and what tragic results could occur if they were denied access to these medications or if additional barriers were created making access more difficult for people who are legally prescribed these medications.

ACTION REQUESTED

Send a letter to the FDA sharing your story about how their decisions would impact you or your loved one.  The FDA MUST receive your letters by Tuesday, June 30th, so don’t delay.

Please review the following to assist in your letter writing and to provide further information on the issue:

Frequently Asked Questions
Risk Evaluation and Mitigation Strategy (REM Consumer Talking Points
American Pain Foundation's Position Statement on REMS
American Pain Foundation’s Recommendations on REMS
Click here to go directly to the FDA comment submission page to submit your letter electronically or mail your letters to:

Division of Dockets Management (HFA305)
Food and Drug Administration
5630 Fishers Lane, Room 1061
Rockville, MD 20852


Please Note:  All letters sent electronically or through the mail must clearly include the following information at the top of your letter: Docket No. FDA-2009-N-0143. Please send a copy of your letter to advocacy@painfoundation.org so we can also have an opportunity to hear your commentary.

Testimony of Pain Advocates at FDA Hearing, May 27th and 28th. These testimonies may also help you write your letter.

Mark Maginn
Carolyn Noel
Teresa Shaffer
Mary Vargas
FDA’s REMS Information

THANK YOU FOR SUBMITTING YOUR LETTER AND ALLOWING YOUR VOICE TO BE HEARD!

Sincerely,

American Pain Foundation

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** ADVOCACY & ACTIVISM ** July 10, 2009 3:27 PM

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Group History URGENT! PETITION TO PROTECT PAIN PATIENTS MEDICATIONS!! June 24, 2009 5:43 AM

Here is the URL to the petition:

http://action.painfoundation.org/site/TellAFriend?msgId=10001.0&devId=11221

Hello and to let you know this is URGENT! This is a petition we desperately need to get signed by as many as possible, so we can get it to the FDA. This is a petition to protect the rights of Chronic Pain Patients, and their medications! The FDA has been trying to ban "extended release" pain medications! That would mean no quality of life for millions that are true sufferers. They are trying to punish us, due to the minute few that abuse the system. Please join me today, sign the petition, and if you or someone you know suffer Chronic Pain, please add your personal story in the comment box. That will also help to show just how critical our medications are for us to try and live as normal a life as possible. I know for myself, without my extended release daily pain medications, I would not be able to even get off the sofa, due to the excruciating pain. I know there are many, many out there that would lose jobs, spouses, family, and their quality of life also without their medications.

I want to thank each person that takes the time to sign, comment, and help us to finally end this nightmare of us thinking we might not have our medications. It would be like the FDA banning blood pressure medication or insulin! These medications are as vital to our lives, as insulin is to diabetics.

Take care and again thanks for helping out any way you can...

Rhia
I signed the petition "Urge FDA to Protect the Rights of People with Pain". I'm asking you to sign this petition to help us reach our goal of 1,000 signatures. I care deeply about this cause, and I hope you will support our efforts.

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