Notice! Care2 will go offline for site maintenance July 28 at 9pm PST. Thanks
START A PETITION 25,136,189 members: the world's largest community for good
START A PETITION
x
 
 
This thread is closed.
This thread is displayed with the most recent posts first.
anonymous  January 23, 2008 4:52 AM

Please see Fibromyalgia II Thread...

Thanx

 [report anonymous abuse]  [ accepted]
 
 January 19, 2008 1:34 PM

I sent a message to this man and this is what i said am waiting for a reply!

"Sir you need to educate yourself before doing your so called journalism.Have facts!
Fibromyalgia is a disease and i have been diagnosed with this way before it came out into the public view!
You are so wrong in what you wrote in your past article.
Fibromyalgia was once known as fibrotosis...
There are 18 tender points and i have 15 of them.And i am not well and am medicated for this.One goes thru debilitating pain and depression from this.
How dear you call something fake when indeed it exsist.
Where did you get your so called degree?
I am in total awe with you and i hope only that you one day can experience the pain and the suffering (WE)that have fibromyalgia go thru and then lets see what you have to say!
The media ,if it only spoke the truth...Shame on you!"
Sincerely Monalisa
Educate yourself
Images for fibromyalgia
http://images.google.com/images?q=fibromyalgia&hl=en&rlz=1T4GGIC_enUS236US237&um=1&ie=UTF-8&sa=X&oi=images&ct=title
Info on fibromyalgia
http://www.fmaware.org/site/PageServer?pagename=fibromyalgia

 [ send green star]  [ accepted]
 
 January 19, 2008 1:18 PM

Yes Lyrica i am on this new med ,though one thing to be very careful of is the main side effect which is severe adema!Swelling in hands and feet and guess what i got it!So doc is lowering the dose!

And this disease is not fake and its research is finding more and more on what causes it.

Our brains tell us when we hurt and the signals in some of us are crossed which can be caused by stress or a traumatic situation one might be in that causes the cross wires in our brain...

I am going to look into this NY Times Post ..

Thanks for the post dear!Monalisa



This post was modified from its original form on 19 Jan, 13:19  [ send green star]  [ accepted]
 
FIBRO... January 18, 2008 1:50 AM

THE DISEASE IS VERY REAL.THEY ARE RUNNING ADS ON TV AND IN MAGAZINES PROMOTING THE DRUG CALLED LYRICA.THE 1ST DRUG TO BE APPROVED BY THE FDA TO TREAT FIBRO.PLEASE CHECK IT OUT AND SEE IF IT IS FOR YOU. NO ONE NEEDS TO SUFFER! ((((OONA)))) **************Start the year off right. Easy ways to stay in shape. body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489  [ send green star]  [ accepted]
 
URGENT WIRTE TO NY TIMES FIBRO IS FAKE MY ASS January 15, 2008 11:55 AM

Dear Newsletter Readers,

I just found out that we can email the man who wrote the New York Times article questioning if fibromyalgia exists.  Go to http://www.nytimes.com/gst/emailus.html - he needs to be educated on this subject, but be nice!  People already think of us as hysterical hypochondriacs. 

For those who missed the article I just sent out, it is on AOL at Drug Approved. Is Disease Real? - AOL News and you can vote if you think Fibromyalgia exists or not (good grief!)

The article is in the New York Times at http://www.nytimes.com/2008/01/14/health/14pain.html?em&ex=1200459600&en=bac45d5aff5a17d7&ei=5087%0A.

The NFA (National Fibromyalgia Association) will be issuing a response soon, but the author of the article needs to hear from us too!

Your fellow fibromite,

Dominie Soo Bush

My FMS/CFIDS/ME Homepage www.fms-help.com - diagnosed in 1982

My letter to Congress about FMS awareness - www.fms-help.com/congress.htm

 [ send green star]  [ accepted]
 
 January 15, 2008 9:28 AM

Thanks JJ e for the info every bit helps us!

Its such a battle with this fibro being they have no text documents on it much but learning more and no test that really indicate this illness.But together we can survive this!

Have a great day all and i hope your pain free!Hugs Monalisa

 [ send green star]  [ accepted]
 
anonymous FIBRO..I HAVE IT AND IBS January 14, 2008 12:51 PM

IBS ...I have it.Some do with their FIBRO..interesting info

http://www.newswise.com/articles/view/536626/?sc=dwhp

 [report anonymous abuse]  [ accepted]

 
 January 12, 2008 7:34 AM

Goodmorning fibro buddies...

Just checking in to see how you are...Even though i have not seen anyone post in here for awhile..I wont give up on you all....

Have a great weekend and know you are thought of daily!

Hugs Monalisa

 [ send green star]  [ accepted]
 
Article Is From November 2007(But Thought It Should Be Posted) January 10, 2008 3:26 PM

Growth hormone may relieve fibromyalgia pain...

NEW YORK (Reuters Health) - Daily injections of growth hormone may help reduce pain and improve the quality of life in some patients with fibromyalgia, new findings of a small study suggest.

Fibromyalgia, which causes muscle pain and fatigue, is seen more often in women than in men. Muscle spasm and tightness can often be elicited by depressing certain "trigger points" overlying the muscles. The cause of fibromyalgia is unknown, but stress, poor sleep, injury, infections, and other conditions have been linked to the disorder.

There is evidence of growth hormone deficiency and growth hormone resistance in some fibromyalgia patients, a Spanish research team explains in the journal BMC Musculoskeletal Disorders.

Dr. Guillem Cuatrecasas at Centro Medico Teknon in Barcelona, and colleagues conducted a study of growth hormone therapy in 24 patients. The patients, mostly female, had severe disease of at least 1-year duration and pain in at least 16 of 18 fibromyalgia trigger points. The patients had been treated with standard therapies, including antidepressant medications, rehabilitation, and counseling.

Twelve patients were randomly selected to receive daily injections of growth hormone therapy. The other 12 patients received no growth hormone injections, but continued their usual treatment.

After 12 months, the number of tender points was much lower in the growth hormone group: an average of 6.50 versus 16.5 in the comparison group. Growth hormone therapy was also associated with improvements in quality of life.

The authors note that a larger, multicenter study is currently underway that may help verify these findings.

SOURCE: BMC Musculoskeletal Disorders, November 30th online issue, 2007.



This post was modified from its original form on 10 Jan, 15:27  [ send green star]  [ accepted]
 
Fibro Tender Points (I have Most) January 02, 2008 7:35 AM

Front tender points

Fibromy_ant.jpg picture by wildwolfangel

Back tender points

Fibromy_post.jpg picture by wildwolfangel

 [ send green star]  [ accepted]
 
Hello Buddies January 02, 2008 7:31 AM

How are you after the holidays...

Holidays create stress wether good or bad situations and i know so well what it can do to the body and mind...

So if you have stress from the holidays,please take a day to relax and pamper yourself....

Be as pain free as possible and i will be catching up on information for us all now that the holiday is over!

I am here if you need me...Hugs Monalisa

 [ send green star]  [ accepted]
 
HI Fibro Buddies... December 20, 2007 6:33 PM

Just checkin in again to see how you are...Please if you need information and or someone to talk to that understands your pain and emotional state with the fibro...Please feel free to reach me at..

stewart65@windstream.net

My fibro has been up and down...Had a good attack the other morning about 5 am.Could not move to get up...i was scared...But i took a few deep breathes and let the spasms do there thing and finally was able to get my tense unit on and it helped work it out!

Today i am okay,just sore in the back and my hips are killing me...

Stay as pain free as you can...Love & Light Monalisa

 [ send green star]  [ accepted]
 
Hi December 16, 2007 12:58 PM

Hello just checkin in to see how you all are doing...Will be off and on today(Sunday)the 16th....

Have a pain free day!Hugs Monalisa

 [ send green star]  [ accepted]
 
Hi Everyone/LadyBleu December 08, 2007 10:22 PM

Hi hope all my fibro buddies are doing okay...I pray you get rest and get some energy....Lord knows we need it so much!

Lady i will be praying for you...Hope your surgery goes well...

Dont feel alone with being drugged up and all...We know the feeling so well.

Tomorrow is going to be a better day for all of us.Just keep positive all....

Please feel free to add me as a friend and we can then (IM)instant message oneanother...

Hugs & Merry Christmas to all...Love Monalisa

 [ send green star]  [ accepted]
 
Monalisa December 03, 2007 12:59 PM

Weather is nasty and so am I, lol. Cold wet, snow, wind, you name it. So I have been drugged up and sitting around feeling sorry for myself. Damn I know better too. Gong to have surgery on my foot again, another fusing and I'm not looking forward to the pain that normally goes with it let alone now with the fibro too. So there you have it, me in a nutshell for now.

Hang in there everyone,

Lady Bleu

 [ send green star]  [ accepted]
 
 December 03, 2007 12:55 PM

Yep, I saw 18 and just about fainted! 15 is a plenty thank you very much.

 [ send green star]  [ accepted]
 
Yes Judi/and for all my fibro-buddies December 03, 2007 9:50 AM

Judi,

Yes humor is good...For the body mind and soul!And it does take more muscles to frown or cry...So get ready girlfriend for lots of laughs,we dont need to have are muscles hurt anymore then they already do!Right? I am glad we are aquainted!

Hi to all you Fibro-Pals....

I hope your finding some relief....I posted another topic thread that has lots of good news in it for the helping in relief of some pain...Tips for Fibro ect...

Lady Bleu i miss seeing you...Are you okay?

Louise,glad you made it aboard our  group...Hope you find some help here...

Dont be shy about your illness,we understand,please open up if you so wish.Will try and be as much a friend and information link as i am able...

Have a pain free day...Hugs,They help,Monalisa

 [ send green star]  [ accepted]
 
anonymous Thank You Monalisa December 02, 2007 3:35 PM

Might as well try and have some humor...I hear it makes less wrinkles to laugh then to frown and cry.!!!





 [report anonymous abuse]  [ accepted]
 
My Dear Fibro Buddies...(JUDI) December 01, 2007 11:15 AM

I just caught on Judi!

103.gif picture by wildwolfangel

At least someone has a lil humor with me...

Greedy 18 ...I just got it...Duh on me....

I am scared at 15 and 3 more would have me bonkers,i am almost there...Hang on Judi!

 [ send green star]  [ accepted]
 
 November 28, 2007 8:06 PM

I will keep you in my prayers Judi...Love * Light* Hugs  [ send green star]  [ accepted]
 
 November 28, 2007 7:15 AM

oh judi your in my prayers, I was hoping this was fixable, so im praying the meds take it away,  [ send green star]  [ accepted]
 
anonymous  November 27, 2007 9:08 PM

Unfortunately I have all 18...boy am I greedy
AND now I have Lichen Planus(mouth ulcers) too,which I've had for over 2 months.IF THEY AREN'T GONE WITH THE MEDS i HAVE NOW,i HAVE TO GO HAVE A MOUTH BIOPSY.So much fun!!!The ENT says with having an autoimmune disease it can happen and it's also found on the skin too.Thank goodness I don't have both.Hopefully the new meds work and will be gone before 12/11. I don't want a biopsy and hopefulyy it's not oral cancer.Prayers!!!
 [report anonymous abuse]  [ accepted]
 
Hi My Fibro-Buddies November 27, 2007 2:52 PM

Hope all is well today...Pain free as i wish for all of us...

Hang in there we have to survive this and live for tomorrow...

Any questions,or you just need a shoulder to lean on,i am here for you...Hugs Monalisa



This post was modified from its original form on 27 Nov, 14:53  [ send green star]  [ accepted]
 
Thats Great November 25, 2007 11:33 AM

I just added a new thread with tips for fibromyalgia and insomnia which comes with the fibro and chronic Fatigue!

I hope this info i have used for myself and have researched helps some of you if not all in some way or another.Have a pain free day...Hugs,Monalisa

 [ send green star]  [ accepted]
 
anonymous  November 25, 2007 11:30 AM

So much good info here.Thank you It's a shame that we know more about it then our own doctors do and have to BRING them info.I finally lucked out w/a new Dr. who knows about and helps you with Fibro.
 [report anonymous abuse]  [ accepted]
 
How are My FibroFriends today? November 25, 2007 10:34 AM

Hi all...I am in a chronic stage right now...Pain meds are not helping...Been down for a few days now...But today is a lil better...I hope you all are pain free or not in as much pain...

Email me if you would like to have conversation on personal level.

stewart65@windstream.net

Although i am here to reply via posting in this thread as well.

I am not able to be here daily,but i will reply as soon as i am able...

Light and Love Monalisa

 [ send green star]  [ accepted]
 
No need to delete November 15, 2007 5:25 PM

Good luck with your surgery Lady Bleu..

Yes we do move onward...And stay positive,less room for the negativety crap!Even though i know how hard it can be sometimes,but as i always say,free the mind and the body shall follow...Very Much truth to that...

Have a beautiful night or day...Love and light and oh!And Yes! a great big hug...Monalisa

 [ send green star]  [ accepted]
 
 November 15, 2007 9:10 AM

dont know how I ended up here, lol

please delete!!!



This post was modified from its original form on 15 Nov, 9:11  [ send green star]  [ accepted]
 
Monalisa November 15, 2007 8:55 AM

thanks for the hugs, they do help.

I used to wonder if there was a corillation between the number of tender points and the intensity of pain. Now knowing there is I can't imagine how a person with all 18 lives from minute to minute let alone day to day. But then we do somehow manage don't we.

I'm trying to look into herbs and vitamins etc more than pain meds but right now I just need to get to a point where I can maintain for some degree of time. My doc increased my dose yesterday, not in mgs but in frequency so now I take it 3 times a day instead of 2. Today will be a full day at this and so far so good. It's lasting till the next dose and that is definitely a good thing. I'm having to try and not fret because I also found out I am going to have more surgery on my foot, another fuse. Sure not looking forward to the pain involved with that! I had a fuse done 3 years ago and didn't have fibro at that time, was bad enough without it!

So, onward we go. One day at a time and one hug at a time. Knowing you are not alone is the best thing that could have happened to me. Thanks everyone for letting me ramble.

Blessings and gentle hugs,

Lady Bleu

 [ send green star]  [ accepted]

 
The Fibromyalgia Research Blog... November 14, 2007 6:14 PM

An Excellent Blog To Pay Attention Too...

http://fibroresearch.blogspot.com/

 [ send green star]  [ accepted]
 
Transcranial Magnetic Stimulation November 14, 2007 6:11 PM

Transcranial Magnetic Stimulation Induces Long-Term Pain Decrease in Fibromyalgia Patients

As this was also reported in 2006 it is again reported for 2007, transcranial magnetic stimulation is increasingly being studied and found to be effective in pain reduction for fibromyalgia and other conditions. The latest study of transcranial magnetic stimulation comes from the journal Brain (2007 Sep 14) and details an experiment conducted by researchers in France. This study was based upon the premise that "non-invasive unilateral repetitive transcranial magnetic stimulation (rTM of the motor cortex induces analgesic effects in focal chronic pain syndromes, probably by modifying central pain modulatory systems." Because neuroimaging studies have shown that a large number of brain structures, including those involved in pain processing, are activated during rTMS, the researchers purported that this type of stimulation could induce "generalized analgesic effects." They conducted their study with the goal of determining the effects of unilateral motor cortex-focused rTMS on 30 patients with chronic widespread fibromyalgia pain.

In this double-blind study, patients were randomly assigned to receive active rTMS or a sham treatment, both applied to the left primary motor cortex once a day for ten days. Outcome was measured primarily through self-reported pain intensity over the last 24 hours, which was measured before the study, daily during the treatments, and then 15, 30 and 60 days after the treatment sessions began. They also used other assessment tools such as the McGill Pain Questionnaire, Fibromyalgia Impact Questionnaire, Hamilton Depression Rating Scale, the Beck Depression Inventory and the Hospital Anxiety and Depression Scale. In addition, they tested the pain threshold of specific tenderpoints using applied pressure after rTMS treatments.

The study found that "[A]ctive rTMS significantly reduced pain and improved several aspects of quality of life (including fatigue, morning tiredness, general activity, walking and sleep) for up to 2 weeks after treatment had ended. The analgesic effects were observed from the fifth stimulation onwards and were not related to changes in mood or anxiety. The effects of rTMS were more long-lasting for affective than for sensory pain, suggesting differential effects on brain structures involved in pain perception."

They reported very few side effects and concluded that the data shows that unilateral rTMS of the motor cortex has potential as an effective analgesic therapy for fibromyalgia due to its long-term reduction of chronic widespread pain.



This post was modified from its original form on 14 Nov, 18:12  [ send green star]  [ accepted]
 
Gender Difference November 14, 2007 6:09 PM

Gender Differences in Chronic Pain and Depression Rates

In October's Psychosomatics (2007 Oct;48(5):394-399), Canadian researchers present results of an epidemiological study of "gender differences in the prevalence of depression in four chronic pain conditions and pain severity indices in a national database."

In 131,535 adults, the prevalence of depression in women (9.1%) was almost twice that of men (5%). One-third (32.8%) had a chronic pain condition (fibromyalgia, arthritis/rheumatism, back problems, and migraine headaches). The prevalence of depression in individuals with chronic pain conditions was 11.3%, versus 5.3% in those without. Women reported higher rates of chronic pain conditions and depression and higher pain severity than men.... Depression and chronic pain conditions represent significant sources of disability, especially for women
 [ send green star]  [ accepted]
 
Males With Fibromyalgia Versus Women November 14, 2007 6:04 PM

Gender Differences in Fibromyalgia Patients' Medical and Social Experiences

Researchers in Spain set about evaluating the sociodemographic, clinical and psychosocial differences between men and women with fibromyalgia, as well as analyzing the differences in how fibromyalgia symptoms impact male and female patients in their daily activities and work environment, and how they are treated by the healthcare system. In this study, published in Revista Clínica Española [2007 Oct;207(9):433-9], they used a detailed survey, distributed to patients with currently diagnosed fibromyalgia in three different rheumatology clinics in Spain.

The sociodemographic characteristics were very similar in men and women. However, there was a greater proportion of men diagnosed with [fibromyalgia] on sick leave, compared to women with the same diagnosis. Men had a worse perception of their health, a higher percentage of psychiatric history and current mental illness and more impact of the disease.

The researchers explain their belief that these results support their theory that in fibromyalgia, as with other diseases, "there are gender differences in the clinical and psychosocial characteristics of men and women diagnosed with [fibromyalgia]."


This post was modified from its original form on 14 Nov, 18:05

This post was modified from its original form on 14 Nov, 18:05  [ send green star]  [ accepted]
 
Fibromyalgia November 14, 2007 6:00 PM

Abnormalities Found in Nerve Cells in the Skin of Fibromyalgia Patients

In this month's Clinical Rheumatology [2007 Oct 3], researchers at Dongguk University College of Medicine in South Korea published the results of a blinded study conducted to "determine if there are any abnormal electron microscopic (E M) findings in the skin of fibromyalgia syndrome (F M patients, which might contribute to or be due to the increased pain sensitivity seen in this condition."

They collected skin biopsy samples from 13 fibromyalgia patients and 5 control subjects, which were read by an individual who did not have any knowledge of whether the biopsy was from a study participant or not. All five skin biopsies from healthy controls "showed relatively even distribution of variegated sized unmyelinated axons sheathed well by complicatedly folded
Schwann cell membranes." However, in the tissue samples from 9 of the 13 fibromyalgia petients, unmyelinated Schwann cells were noted to be ballooned, a finding not found in any of the controls.

Axons in most patients trended towards being localized in the periphery of the unmyelinated Schwann cell sheaths (p = 0.002). Particularly, peripheral localization of axon in the unmyelinated Schwann cell sheath had a strong relationship with ballooning of Schwann cell (p =0.042), simplified folding of Schwann cell sheath (p = 0.039) and smaller axon (p = 0.034). Myelinated nerve fibers were unremarkable.

The skin of fibromyalgia patients showed unusual patterns of unmyelinated nerve fibers as well as associated Schwann cells. The researchers conclude that if these findings can be replicated in a larger study, it could be concluded that these abnormalities contribute or even cause fibromyalgia patients' lower pain threshold.



This post was modified from its original form on 14 Nov, 18:00  [ send green star]  [ accepted]
 
Educating One With Fibromyalgia November 14, 2007 5:58 PM

Also called: FMS

Fibromyalgia makes you feel tired and causes muscle pain and "tender points." Tender points are places on the neck, shoulders, back, hips, arms or legs that hurt when touched. People with fibromyalgia may have other symptoms, such as trouble sleeping, morning stiffness, headaches, and problems with thinking and memory, sometimes called "fibro fog."

No one knows what causes fibromyalgia. Anyone can get it, but it is most common in middle-aged women. People with rheumatoid arthritis and other autoimmune diseases are particularly likely to develop fibromyalgia. There is no cure for fibromyalgia, but medicines can help you manage your symptoms. Getting enough sleep and exercising may also help.

National Institute of Arthritis and Musculoskeletal and Skin Diseases

 [ send green star]  [ accepted]
 
Lady Bleu November 14, 2007 11:40 AM

I know so well about the poking,it has brought tears to me...

Having most of the tender points leaves us in chronic stage of this fybro...I will add you to my prayers...And i pray to cease pain in all forms of humanity,especially for those who physically suffer pain...

Any questions feel free to ask...I will do my best in answering you...

I feel okay today...Just the normal weakness i have everyday...I have become accustome to it.(SAD)To get use to pain...But its all in coping.And i so believe tomorrow will be better...Though i started back on pain med therapy...On and off...I refuse to steadily take chemical pain meds...The damage that pain pills do to your liver and kidneys is only adding other illnesses...So i am very careful here to not over toxify my sytem with them...I try to look more at the natural herbs and vitamins..A healthy diet!

Hope your feeling less pain then yesterdays pain...Hugs,they help...

aaaaa.gif hug gif image by jimjimblundLove Monalisa



This post was modified from its original form on 14 Nov, 11:42  [ send green star]  [ accepted]
 
Monalisa November 12, 2007 9:01 AM

Wow, I also have 15 of the 18 tender points. I am applying for social security disability and am not looking forward to being poked at again. The first time was torture. Blessings to you and know you are not alone in this. I look forward to your postings about your research.

Lady Bleu

 [ send green star]  [ accepted]
 
Hi debbie and sandra November 10, 2007 6:20 PM

Urw ...

I have dealt with this illness for several years and even before they named it...

I have 15 of the 18 tender points..I am in a chronic stage most days..But i do have good days...I really try and stay positive...And the more positive energy you have the less room there is for the negative...

I feel like the tinman from wizard of oz today...None of my joints want to move...I hate the stiff feeling it gives me...Like i need to stretch and no matter how hard i try i never get a full stretch...Tomorrow will be a better day ....

I will be posting new information as i recieve it from my own researching on it.I will never give up on searchin for a cure.

Hugs Monalisa

 [ send green star]  [ accepted]
 
 November 01, 2007 2:46 PM

Monalisa..I have fibro and most everything that goes with it.  Thank you for posting all the information..it truly is an illness that is so misunderstood.  I get such nasty looks when I park in the handicapped area..of course I have a permit to do so.  People truly don't understand how much pain we endure and as you know, some days are worse than others.

Thanks again for posting the info.

 [ send green star]  [ accepted]
 
 November 01, 2007 9:28 AM

ok this is weird, I have every symptom of that except tmj, most i have had since I was younger, sleep problems, ibs, migrains, others came latter, but ive never been diognosed with fybro. well no insurance to get checked so I guess it doesnt matter.  [ send green star]  [ accepted]
 
Me & Fybromyalgia October 31, 2007 2:26 PM

Fybromyalgia 

I have been diagnosed with fybromyalgia for 5 years and told i have had it much longer then this...At first i was diagnosed with lupus...Hence the lack of scientific knowledge...

The hassles i have gone thru with doctors and  being diagnosed was a total nightmare...

Now it's coping and dealing with the pain on a daily basis.Some days though are better then others.And attacks hit me out of nowhere.I have not discussed this much here on care2.But i think it is time i do.I have a few friends here on care2 that have this same ailment as me.And with that brings me to letting people know what it is and understanding the people that have it and simply a little support topic for those that do have this...

I will try and post as much info on this has i research on it!And with what knowledge i have gained with having it myself.

Trust me! Its not a pleaseant time all the time and this it's self is a big step(Having a topic on it)!

It's very painful,there are 18 tender points on the body.I have 15 of them.Mine are in the neck area the lower back ,the knees and feet.For a longtime i felt like a guinea pig with one medication after another.They finally have come up with a medicine called (Lyrica)which was first prescribe to patients with neuropthy or diabetics with nerve damage.But it works with helping fybromyalgia.Mostly with the sleep patterns of fybromyalgia.With this  lyrica you sleep much better.Before i started taking it my sleeping was a joke.If i got any at all...Due to the pain!

Proper excersize helps as well.Though gradually because of the (PAIN ISSUE)!A good diet of healthy food rich in vitamins.And calcium and vitamin D...

Family and friend support helps a great deal...For the coping part can be very difficult.Especially if your family and friends have no understanding of this fybromyalgia.

So i hope this helps anyone who has this and helps those that dont but needs an understanding about it...Much love Monalisa



This post was modified from its original form on 31 Oct, 14:27  [ send green star]  [ accepted]
 
Fybromyalgia (Symptoms) October 31, 2007 2:24 PM

Symptoms

The primary symptoms of fibromyalgia include widespread musculoskeletal pain, severe fatigue, and disturbed sleep. Fibromyalgia means pain in the muscles, ligaments, and tendons – the soft fibrous tissues in the body.

Most patients with fibromyalgia say that they ache all over. Their muscles may feel like they were pulled or overworked. Sometimes fibromyalgia symptoms include muscle twitches and burning sensations. More women than men are afflicted with fibromyalgia, and it shows up in people of all ages. A conservative estimate of its prevalence is 2% of the general population, but it may be as high as 3-5%.

To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu. Every muscle in their body shouted out in pain. In addition, they felt devoid of energy as though someone had unplugged their power supply. While the severity of symptoms fluctuates from person to person, fibromyalgia may resemble a post-viral state. This similarity is the reason experts believe that fibromyalgia syndrome (FMS and chronic fatigue syndrome (CFS may actually be the same condition. Gulf War syndrome also overlaps with FMS/CFS.

Common symptoms of fibromyalgia and chronic fatigue syndrome:
  • Pain - The pain of fibromyalgia has no boundaries. People describe the pain as deep muscular aching, throbbing, shooting, and stabbing. Intense burning may also be present. Quite often, the pain and stiffness are worse in the morning and you may hurt more in muscle groups that are used repetitively.
  • Fatigue - This symptom can be mild in some fibromyalgia patients and yet incapacitating in others. The fatigue has been described as "brain fatigue" in which patients feel totally drained of energy. Many patients depict this situation by saying that they feel as though their arms and legs are tied to concrete blocks, and they have difficulty concentrating, e.g., brain fog.
  • Sleep disorder - Most fibromyalgia patients have an associated sleep disorder called the alpha-EEG anomaly. This condition was uncovered in a sleep lab with the aid of a machine that recorded the brain waves of patients during sleep. Researchers found that the majority of fibromyalgia patients could fall asleep without much trouble, but their deep level (or stage 4) sleep was constantly interrupted by bursts of awake-like brain activity. Patients appeared to spend the night with one foot in sleep and the other one out of it.
    Sleep lab tests may not be necessary to determine if you have disturbed sleep. If you wake up feeling as though you've just been run over by a Mack truck—what doctors refer to as unrefreshing sleep—it is reasonable for your physician to assume that you have a sleep disorder. Many fibromyalgia patients have been found to have other sleep disorders in addition to the alpha-EEG, such as sleep apnea (as well as the newly discovered form of interrupted breathing called upper airway resistance syndrome, or UARS, bruxism (teeth grinding), periodic limb movement during sleep (jerking of arms and legs), and restless legs syndrome (difficulty sitting still in the evenings).
  • Irritable Bowel Syndrome - Constipation, diarrhea, frequent abdominal pain, abdominal gas, and nausea represent symptoms frequently found in roughly 40 to 70% of fibromyalgia patients. Acid reflux or gastroesophageal reflux disease (GERD) also occurs with the same high frequency.
  • Chronic headaches - Recurrent migraine or tension-type headaches are seen in about 70% of fibromyalgia patients and can pose a major problem in coping for this patient group.
  • Temporomandibular Joint Dysfunction Syndrome - This syndrome, sometimes referred to as TMJ or TMD, causes tremendous jaw-related face and head pain in one-quarter of fibromyalgia patients. However, a 1997 published report indicated that close to 75% of fibromyalgia patients have a varying degree of jaw discomfort. Typically, the problems are related to the muscles and ligaments surrounding the jaw joint and not necessarily the joint itself.
  • Not every one has all these symptoms...Though most will experience them all.


 [ send green star]  [ accepted]
 
Fibromyalgia (Closed) October 31, 2007 2:23 PM

What is fibromyalgia?


Fibromyalgia is a chronic condition causing pain, stiffness, and tenderness of the muscles, tendons, and joints. Fibromyalgia is also characterized by restless sleep, awakening feeling tired, fatigue, anxiety, depression, and disturbances in bowel function. Fibromyalgia was formerly known as fibrositis.

While fibromyalgia is one of the most common diseases affecting the muscles, its cause is currently unknown. The painful tissues involved are not accompanied by tissue inflammation. Therefore, despite potentially disabling body pain, patients with fibromyalgia do not develop body damage or deformity. Fibromyalgia also does not cause damage to internal body organs. Therefore, fibromyalgia is different from many other rheumatic conditions (such as rheumatoid arthritis, systemic lupus, and polymyositis). In those diseases, tissue inflammation is the major cause of pain, stiffness and tenderness of the joints, tendons and muscles, and it can lead to joint deformity and damage to the internal organs or muscles

 [ send green star]  [ accepted]
 
  New Topic              Back To Topics Read Code of Conduct

 

This group:
Chronic Pain Relief
220 Members

View All Topics
New Topic

Track Topic
Mail Preferences