Question for you folks out there, who have been dealing with hearing loss for a loooong time…
What advice would you offer to a person who lost hearing ‘overnight,’ so to speak… it could be due to a variety of things, but: from one day being a part of the hearing world, to suddenly not be able to understand anything that is heard… (even if it is loud enough)
Agreed, Kalaya - lending an ear for venting is always well appreciated... Sometimes, it is not always easy to provide such support, especially if the person is not ready to accept responsibility for listening (even if you are writing notes) to your support! I can't imagine what it would be like to suddenly go from one extreme to a totally different, silent and distorted world. I wish I knew some words of wisdom to offer, but I think that perhaps the stages of grief over the loss must be traversed prior to accepting and learning to live with the new status of things... That is an internal thing, and you are totally right - the best we can do is to be there to listen, lend a shoulder, and let that person begin to process the emotions attached to the loss...
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I have long since accepted my deafness and I do know this, I will not be listening to loud music because it caused further hearing loss.
The only music I now listen to is via this computer and the speakers. The speakers is on low and with help of the hearing aids, I can hear the music.
I played a song today via the computer and I loved listening to it. It truly was bliss when I listened.
Some people chose to listen to a very loud music and then become shocked when they lose their hearing. I'm sorry but they should not put their hearing on risk because, 'what you have, you can lose it'.
This is an interesting topic and i've given it a lot of thought, specifically I've tried to think what I would want if it happened to me. I compared it to when I "suddenly" learned I had breast cancer. Your suggstions of being supportive were of course the most important and obvious answers, but I wonder if it would be helpful to do some research and show up at the person's house with some additional aids. How about tips for lipreading, maybe a list of some times and places for lipreading classes at a local university or speech and hearing facility, some literature about living with hearing loss, a list of support gouprs, website for Audible Gain!, or any other coping ideas your imagination can dream up. All this could be cleverly aranged with a box of chocolates tucked inside the box. One last idea I have is to scedule some activites for getting the person outside the home in an environment that is fun and not to hearing dependent such as going to a zoo or looing at antiques or visitng an art fair or a modern dance show. Great topic for discussion--it really made me think.
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Kalaya, you are so smart to protect your hearing… Music is a beautiful thing, as long as it, too, is taken in moderation.Just like with drugs or alcohol, an overdose of noise has a ‘toxic’ effect on our hearing system!I closed my eyes and listened to some music after reading your post, and it is bliss to hear it and experience it…As far as the music abusers…They will be sorry in a few years, you are right.I also feel for the guys that ride around on those mowers all day, every day – without hearing protection…I have considered carrying a big box of earplugs in my car so that I can hop out and “make a difference” when I see a person mowing as such…I even saw someone using a jackhammer without hearing protection… (this is the sad part) right across the street from a speech and hearing center.Little earplugs wouldn’t be enough for the amount of noise he was generating… I wonder how he is doing now…… we probably all know the answer to that… he should join our group! (whoever he was).
Carol, your words are wise.What a great way to deflect the focus from the ‘problem’ to other, perhaps more productive things, such as the lipreading tips, classes, etc., and try to provide the person with a comfortable support network, especially while they are going through this difficult transition period.The box of chocolates is an awesome idea!I love it!It shows the person in another way that “hey, I care,” and hopefully they will feel extra special with your efforts.Your idea of participating in activities for which hearing is not necessary is awesome too… Going to an art museum, or a modern dance would be really neat ways of renewing a friendship that has been startled by such a sudden change.You sparked an idea there for me, have you heard of the National Theatre of the Deaf?You can visit their website at http://www.ntd.org/ and check out the company.It is theatre for all people, regardless of hearing status.It looks like they even have been to Sesame Street to hang out!All sudden health changes can be devastating, it sounds like you know the experience all too well.Hope that you are okay… Let’s all remember to “click to donate” for breast cancer, in honor of Carol today…. Thanks!!!!
Be prepared to deal with a lot of anger (for awhile) and especially frustration! Take a look at what I just posted over in "Relationships" thread and you'll see what I'm talking about... there's a lot of frustration and other issues to deal with when you have to deal w/the outside world as a hearing impaired person!
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Valerie, your words are wise, and probably a great heads-up for the family members who are accompanying the trip through hearing loss... Thanks for posting your thoughts here, and on the relationship thread... We appreciate every word!