Heres some web sites that I have found usefull-
American Chronic Pain Assoc.
Medicine Info and help
North American Chronic Pain Association of Canada
A national directory of pain clinics and specialists. Provides an educational and advocacy resource, forums, chats and online conferences.
NCPOA :: National Chronic Pain Outreach Association
The National Chronic Pain Outreach Association, Inc. (NCPOA) is a non-profit
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http://www.nih.gov This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation.
http://www.wemove.org WeMove is a comprehensive resource for movement disorder information and a hub for movement disorder activities on the Web.
http://www.aacfp.org The American Academy of Craniofacial Pain's stated mission is to fulfill a need for more widespread knowledge of the diagnosis and treatment of temporomandibular disorders and to seek specialty status for those whose main professional interest is in the clinical treatment of head, neck and face pain patients.
http://www.afsafund.org The American Fibromyalgia Syndrome Association, Inc. is a non-profit organization dedicated to research, education and patient advocacy for fibromyalgia syndrome (FM and chronic fatigue syndrome (CF.
GovBenefits.gov is a partnership of Federal agencies with a shared vision - to provide improved, personalized access to government assistance programs.
Use the Internet to connect citizens to government benefit program eligibility informationIncrease access to information, particularly for people with disabilitiesReduce expense and difficulty of doing business with the governmentContinue to add programs to become the single source for Federal, state, and local government benefit programs
Are there government benefit programs available to help you?
GovBenefits.gov will help you answer that question. Our online screening tool is free, easy-to-use, and completely confidential. We do not require your name, phone number, Social Security number, or any other information that could be used to identify you. You answer a series of questions about yourself, and then GovBenefits.gov returns a list of government benefit programs you may be eligible to receive along with information about how you can apply.
Whether it's a direct payment, loan, insurance, training, or other services - there may be government benefit programs available to help you. To get started, go to the homepage, choose either Locate Federal or State Benefits, Browse by Category, or Get Results by Questionnaire.
The best site I found was www.NeedyMeds.com There is no out right charge and the site lists - 303 programs or companies that will help with medicines either free or a very reduced Co-pay. You can even re print applications to drug companies for assistance
FirstRESOURCE (877) 744-5675 Aromasin®, Camptosar®, Celebrex® (high dose), EllenceTM, Emcyt®, Idamycin®, TrelstarTM and Zinecard® are available through Pfizer's FirstRESOURCE Program. This program provides oncology product assistance to eligible low-income uninsured patients
The Bridge Program (800) 645-1280 Genotropin® and Somavert® reimbursement support programs are designed to assist patients who are either uninsured or underinsured to obtain their medications.
INSPRA® (eplerenone) Patient Assistance Program (866) 707-9565 The INSPRA® Patient Assistance Program provides free prescriptions of INSPRA® to low-income, uninsured patients. Patients work with their physicians to complete an application and submit it to the Program together with a valid prescription for INSPRA® and documents to verify financial eligibility. If the patient meets the eligibility requirements, he or she will receive a 90-day supply of the medicine through the physician's office. Financial verification only needs to be submitted annually.
Fragmin® Reimbursement Assistance Center (866) 272-8804 Fragmin® reimbursement support verifies insurance and researches coverage sources for Fragmin patients. The program also provides Fragmin to low-income uninsured patients who meet eligibility criteria.
The Zyvox® / Vfend® RSVP hotline (888) 327-7787 This program assists patients and providers through reimbursement support and provides product assistance for eligible patients who are either uninsured or underinsured to obtain their medications
U Share Medicare Approved Prescription Drug Discount Card If you have questions about the U Share Prescription Drug Discount Card, please call Customer Service at 1-800-707-3917, Monday-Friday 8:00 am-8:00 pm EST and Saturday 8:00 am-6:00 pm EST (TTY users should call 1-866-234-4138). http://www.usharerx.com/home.html
*Free Medicine Foundation, 573-996-3333 http://www.freemedicinefoundation.com ~Will help yo wih application Process if you do not have the time or resources to apply yourself. NOTE - They charge $5 per medication to help you with paperwork.~
This is my FAVORITE web site.. if you have migraines and you dont know this site, its a MUST SEE! Trust me and please take a look.
Here is a SHOCKING quote that I wasn't even aware of.
"In addition to being disabling, Migraines can be life-threatening. To put this in perspective, more people died from Migrainous Stroke last year than were murdered with handguns. The World Health Organization in 2004 in a Blue Book report noting that Migraine & Headache disorders are a global public health calamity. Dr Peer Tfelt-Hansen, president of IHS, explained:
If you have a web site that you think others could benefit from, please do not hesitate to post here. Educating yourself on your own diseases/conditions is the first, and most important step to COPING and being able to THRIVE dispite the pain you endure everyday.
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For information about chronic pain, you can contact the North American Chronic Pain Association of Canada at 1-800-616-PAIN (7246), 150 Central Park Drive, Unit 105, Brampton, Ontario L6T 2T9; or visit their web site at www.chronicpaincanada.org.
Tests and diagnosis discussion for Chronic pain: There is no way to tell how much pain a person has. No test can measure the intensity of pain, no imaging device can show pain, and no instrument can locate pain precisely. Sometimes, as in the case of headaches, physicians find that the best aid to diagnosis is the patient's own description of the type, duration, and location of pain. Defining pain as sharp or dull, constant or intermittent, burning or aching may give the best clues to the cause of pain. These descriptions are part of what is called the pain history, taken by the physician during the preliminary examination of a patient with pain.
Physicians, however, do have a number of technologies they use to find the cause of pain. Primarily these include:
Electrodiagnostic procedures include electromyography (EMG), nerve conduction studies, and evoked potential (EP) studies. Information from EMG can help physicians tell precisely which muscles or nerves are affected by weakness or pain. Thin needles are inserted in muscles and a physician can see or listen to electrical signals displayed on an EMG machine. With nerve conduction studies the doctor uses two sets of electrodes (similar to those used during an electrocardiogram) that are placed on the skin over the muscles. The first set gives the patient a mild shock that stimulates the nerve that runs to that muscle. The second set of electrodes is used to make a recording of the nerve's electrical signals, and from this information the doctor can determine if there is nerve damage. EP tests also involve two sets of electrodes-one set for stimulating a nerve (these electrodes are attached to a limb) and another set on the scalp for recording the speed of nerve signal transmission to the brain.
Imaging, especially magnetic resonance imaging or MRI, provides physicians with pictures of the body's structures and tissues. MRI uses magnetic fields and radio waves to differentiate between healthy and diseased tissue.
A neurological examination in which the physician tests movement, reflexes, sensation, balance, and coordination.
X-rays produce pictures of the body's structures, such as bones and joints.
I just found this study for people who have chronic pain, if you do this survey over the phone, that takes an hour, you get 60 dolllars. Hers the catch.. I found this on Craigslist.com under Arizona - It doesnt say you have to be resident of AZ. and the phone number is a 1-800 number. If your interested just call to see.. you also have to be over 18- and younger then 80 years old.
Heres the number 1-800-355+3395 ext.171 M-F betwen 9 am to 8 pm Eastern standard time. I will let you all know how it goes, I am going to call later today.