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information/Links May 30, 2005 4:09 PM

Heres some web sites that I have found usefull- American Chronic Pain Assoc. www.theacpa.org Perscription Assistance www.pparx.org Medicine Info and help www.needymeds.com North American Chronic Pain Association of Canada A national directory of pain clinics and specialists. Provides an educational and advocacy resource, forums, chats and online conferences. www.chronicpaincanada.org/ NCPOA :: National Chronic Pain Outreach Association The National Chronic Pain Outreach Association, Inc. (NCPOA) is a non-profit organization . www.chronicpain.org/  [ send green star]
 
more links June 10, 2005 11:24 AM

Amercian Chronic Pain Association
http://www.theacpa.org/

National Pain Foundation
http://www.painconnection.org/

American Pain Foundation
http://www.painfoundation.org/default.asp

British Pain Society
http://www.britishpainsociety.org/

International Association for the Study of Pain
http://www.iasp-pain.org/defsopen.html

Canadian Pain Society
http://www.canadianpainsociety.ca/

Australian Pain Society
http://www.apsoc.org.au/

Medline Plus
http://www.nlm.nih.gov/medlineplus/pain.html

American Academy of Pain Management
http://www.aapainmanage.org/

Pain.com
http://www.pain.com/frameindex.cfm

Dept. of Pain Medicine & Palliative Care at Beth Israel Medical Center http://www.stoppain.org/

Pain Online
http://www.painonline.org/index.htm

Partner's Against Pain
http://www.partnersagainstpain.com/

Mayday Pain Project
http://www.painandhealth.org/

National Foundation for the Treatment of Pain
http://www.paincare.org/

Pain & the Law
http://www.painandthelaw.org/

"THE RELIEF OF PAIN SHOULD BE A HUMAN RIGHT"
http://www.painreliefhumanright.com/  [ send green star]
 
more links June 10, 2005 11:27 AM

http://www.nih.gov
This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation.

http://www.wemove.org
WeMove is a comprehensive resource for movement disorder information and a hub for movement disorder activities on the Web.

http://www.aacfp.org
The American Academy of Craniofacial Pain's stated mission is to fulfill a need for more widespread knowledge of the diagnosis and treatment of temporomandibular disorders and to seek specialty status for those whose main professional interest is in the clinical treatment of head, neck and face pain patients.

http://www.afsafund.org
The American Fibromyalgia Syndrome Association, Inc. is a non-profit organization dedicated to research, education and patient advocacy for fibromyalgia syndrome (FM and chronic fatigue syndrome (CF.

http://www.nysora.com
New York School of Regional Anesthesia

http://www.oyston.com/anaes/
Virtual Anesthesia Textbook

http://www.depts.washington.edu/anesth/regional/Page1.html
Illustrated Notes in Regional Anesthesia

http://www.mypacu.org/id20.htm
My PACU

http://gasnet.med.yale.edu/maillist/
Regional Anesthesia Discussion Group

http://www.obgyn.net
Ob/Gyn.net

http://www.pelvicpain.org
International Pelvic Society

http://www.fpnotebook.com/gyn153.htm
Family Practice Notebook

http://www.ichelp.org/welcome.html
Interstitial Cystis Association  [ send green star]
 
government benifits June 11, 2005 3:05 PM

http://www.govbenefits.gov/govbenefits/index.jhtml

GovBenefits.gov is a partnership of Federal agencies with a shared vision - to provide improved, personalized access to government assistance programs.

Mission

bulletUse the Internet to connect citizens to government benefit program eligibility informationbulletIncrease access to information, particularly for people with disabilitiesbulletReduce expense and difficulty of doing business with the governmentbulletContinue to add programs to become the single source for Federal, state, and local government benefit programs

Are there government benefit programs available to help you?

GovBenefits.gov will help you answer that question. Our online screening tool is free, easy-to-use, and completely confidential. We do not require your name, phone number, Social Security number, or any other information that could be used to identify you. You answer a series of questions about yourself, and then GovBenefits.gov returns a list of government benefit programs you may be eligible to receive along with information about how you can apply.

Whether it's a direct payment, loan, insurance, training, or other services - there may be government benefit programs available to help you. To get started, go to the homepage, choose either Locate Federal or State Benefits, Browse by Category, or Get Results by Questionnaire.

 [ send green star]
 
even more pain links June 11, 2005 3:32 PM

Some of these are already listed but I copied it from a list. Sorry for the duplicates.
General Pain Information

American Pain Society
http://www.ampainsoc.org

American Pain Foundation
http://www.painfoundation.org

American Chronic Pain Association
http://www.theacpa.org/

Mayday Pain Project
http://www.painandhealth.org/

The National Foundation for the Treatment of Pain
http://www.paincare.org/

American Academy of Pain Management
http://www.aapainmanage.org/index.php

MayoClinic.com Pain Management Center
http://www.www.mayoclinic.com/findinformation/diseasesandconditions/index.cfm

International Association for the Study of Pain
http://www.iasp-pain.org/

National Chronic Pain Outreach
http://www.chronicpain.org

Pain and Policy Studies Group
http://www.medsch.wisc.edu/painpolicy/

Medical Center Pain Sites

Massachusetts General Hospital, Boston
http://www.massgeneral.org/painrelief/

MD Anderson Cancer Center, Houston
http://www.mdanderson.org/topics/paincontrol/

Beth Israel Medical Center, New York
http://www.stoppain.org

Memorial Sloan-Kettering Cancer Center, New York
http://www.mskcc.org/mskcc/html/474.cfm

City of Hope, Duarte, CA
http://www.cityofhope.org/prc

OncoLink, University of Pennsylvania-Abramson Cancer Center
http://www.oncolink.upenn.edu

 [ send green star]
 
even more help June 14, 2005 8:29 AM

The best site I found was www.NeedyMeds.com There is no out right charge and the site lists - 303 programs or companies that will help with medicines either free or a very reduced Co-pay. You can even re print applications to drug companies for assistance


FirstRESOURCE (877) 744-5675
Aromasin®, Camptosar®, Celebrex® (high dose), EllenceTM, Emcyt®, Idamycin®, TrelstarTM and Zinecard® are available through Pfizer's FirstRESOURCE Program. This program provides oncology product assistance to eligible low-income uninsured patients

The Bridge Program (800) 645-1280
Genotropin® and Somavert® reimbursement support programs are designed to assist patients who are either uninsured or underinsured to obtain their medications.

INSPRA® (eplerenone) Patient Assistance Program (866) 707-9565
The INSPRA® Patient Assistance Program provides free prescriptions of INSPRA® to low-income, uninsured patients. Patients work with their physicians to complete an application and submit it to the Program together with a valid prescription for INSPRA® and documents to verify financial eligibility. If the patient meets the eligibility requirements, he or she will receive a 90-day supply of the medicine through the physician's office. Financial verification only needs to be submitted annually.

Fragmin® Reimbursement Assistance Center (866) 272-8804
Fragmin® reimbursement support verifies insurance and researches coverage sources for Fragmin patients. The program also provides Fragmin to low-income uninsured patients who meet eligibility criteria.

The Zyvox® / Vfend® RSVP hotline (888) 327-7787
This program assists patients and providers through reimbursement support and provides product assistance for eligible patients who are either uninsured or underinsured to obtain their medications

Pfizer Pfriends helps many people without prescription medication insurance save more than 1/3 on the retail cash price of Pfizer medicines.
at 1-866-776-3700 http://www.pfizerhelpfulanswers.com/PfizerFriends.aspx#BM_W

U Share Medicare Approved Prescription Drug Discount Card
If you have questions about the U Share Prescription Drug Discount Card, please call Customer Service at 1-800-707-3917, Monday-Friday 8:00 am-8:00 pm EST and Saturday 8:00 am-6:00 pm EST (TTY users should call 1-866-234-4138).
http://www.usharerx.com/home.html

*Free Medicine Program (646) 205-8000. http://www.freemedicineprogram.com

*Free Medicine Foundation, 573-996-3333 http://www.freemedicinefoundation.com
~Will help yo wih application Process if you do not have the time or resources to apply yourself. NOTE - They charge $5 per medication to help you with paperwork.~

Hope this helps.
 [ send green star]
 
 June 14, 2005 11:03 PM

Wow!  Thanks for all the great information!  Take care and Hugs to all............................Kathy in Va.  [ send green star]  [ accepted]
 
How could I forget!!! June 25, 2005 6:45 AM

This is my FAVORITE web site.. if you have migraines and you dont know this site, its a MUST SEE! Trust me and please take a look. www.migraines.org Here is a SHOCKING quote that I wasn't even aware of. "In addition to being disabling, Migraines can be life-threatening. To put this in perspective, more people died from Migrainous Stroke last year than were murdered with handguns. The World Health Organization in 2004 in a Blue Book report noting that Migraine & Headache disorders are a global public health calamity. Dr Peer Tfelt-Hansen, president of IHS, explained: If you have a web site that you think others could benefit from, please do not hesitate to post here. Educating yourself on your own diseases/conditions is the first, and most important step to COPING and being able to THRIVE dispite the pain you endure everyday. Penny  [ send green star]
 
For Canadians June 25, 2005 3:28 PM

For information about chronic pain, you can contact the North American Chronic Pain Association of Canada at 1-800-616-PAIN (7246), 150 Central Park Drive, Unit 105, Brampton, Ontario L6T 2T9; or visit their web site at www.chronicpaincanada.org.

 [ send green star]
 
Pain tests June 25, 2005 3:39 PM

 Diagnostic Tests for Chronic pain

Diagnostic Test list for Chronic pain: The list of diagnostic tests mentioned in various sources as used in the diagnosis of Chronic pain includes:

Tests and diagnosis discussion for Chronic pain: There is no way to tell how much pain a person has. No test can measure the intensity of pain, no imaging device can show pain, and no instrument can locate pain precisely. Sometimes, as in the case of headaches, physicians find that the best aid to diagnosis is the patient's own description of the type, duration, and location of pain. Defining pain as sharp or dull, constant or intermittent, burning or aching may give the best clues to the cause of pain. These descriptions are part of what is called the pain history, taken by the physician during the preliminary examination of a patient with pain.

Physicians, however, do have a number of technologies they use to find the cause of pain. Primarily these include:

  • Electrodiagnostic procedures include electromyography (EMG), nerve conduction studies, and evoked potential (EP) studies. Information from EMG can help physicians tell precisely which muscles or nerves are affected by weakness or pain. Thin needles are inserted in muscles and a physician can see or listen to electrical signals displayed on an EMG machine. With nerve conduction studies the doctor uses two sets of electrodes (similar to those used during an electrocardiogram) that are placed on the skin over the muscles. The first set gives the patient a mild shock that stimulates the nerve that runs to that muscle. The second set of electrodes is used to make a recording of the nerve's electrical signals, and from this information the doctor can determine if there is nerve damage. EP tests also involve two sets of electrodes-one set for stimulating a nerve (these electrodes are attached to a limb) and another set on the scalp for recording the speed of nerve signal transmission to the brain.
  • Imaging, especially magnetic resonance imaging or MRI, provides physicians with pictures of the body's structures and tissues. MRI uses magnetic fields and radio waves to differentiate between healthy and diseased tissue.
  • A neurological examination in which the physician tests movement, reflexes, sensation, balance, and coordination.
  • X-rays produce pictures of the body's structures, such as bones and joints.
 [ send green star]
 
interesting site June 25, 2005 3:42 PM

I found an interesting site that I thought that some of you might find helpful.  It is called  www.wrongdiagnosis.com  I found some useful info there.  [ send green star]
 
Urgent July 05, 2005 7:02 AM

I found this petition on OxyContin. I know everyone has an opinion on it, so I wont go into how I personally feel. Just go check it out.
http://www.petitiononline.com/OxyPet/petition.html
Thanks guys, I knew I could count on you!
 [ send green star]
 
2 more July 31, 2005 12:49 PM

I am not sure if these got posted but they are good ones.

This is good for reference and even has a symptom checker-

www.webmd.com

This is one with great articles and resouces.

http://www.ncps-cpr.org/index.php
 [ send green star]
 
New stuff November 18, 2005 3:59 AM

I just found this study for people who have chronic pain, if you do this survey over the phone, that takes an hour, you get 60 dolllars. Hers the catch.. I found this on Craigslist.com under Arizona -
It doesnt say you have to be resident of AZ. and the phone number is a 1-800 number.
 If your interested just call to see.. you also have to be over 18- and younger then 80 years old.

Heres the number 1-800-355+3395 ext.171  M-F betwen 9 am to 8 pm Eastern standard time.
I will let you all know how it goes, I am going to call later today.

 [ send green star]
 
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