I have suffered with RSD since 18th June 2009 when the local anaesthetic didnít work during a carpal tunnel operation. I was diagnosed by a stand in Head therapist on 20th Aug but not told what RSD stood for, when I found out on the 11th Nov that they had missed the fact that my hand had been broken in approx 50 visits I started to do my own research and have now done over 2000 hrs.
I have become horrified by what I have found because 95% of the medical Profession worldwide have never heard of this condition and even UK Specialists are at least 10 years behind the rest of the world.
The Head Therapist should have referred me to 5 specialists according to NHS Direct yet sent me to none, instead I was given 2 of the worst possible treatments, Hot and Cold Water Contrast Therapy and extremely aggressive therapy. Since then I have been treated by or spoken face to face with 7 specialists including probably the top 2 co-authors on a number of books on the subject.
One gave me Guanethedine blocks 17 years after the first paper was written saying they were no good for RSD sufferers and confirmed in 7 other studies, he also used an ordinary needle when it is well known by real specialists that if you have to use a needle it must be a paediatric one to reduce the risk of spreads.
One sent me for an infusion without telling them what I had or how I needed to be treated as a direct result 6 days later I ended up in another Hospitals Acute care unit with an infection up to my shoulder and 7 DVTís in my arm. I walked out and have refused treatment because the Admitting Doctor would not listen to me and kept trying to grab my affected hand to take blood from it. The same specialist later tried to arrange funds to send me to Germany for the 5 day Ketamine coma 18 months after I knew they had banned it after some patients failed to come out of the coma and at least one death.
A third caused it to spread from below the wrist up to the elbow by using a sensitivity pins 4ins outside what we thought was the affected area.
Not one of the seven had heard of any of the American or Dutch papers I talked about and only one asked for the links to bring himself up to date, thatís why I have been fighting the UK government for 2 years and now have decided to take the fight worldwide.