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3 Books On Raising Children With Disabilities (Slideshow)

3 Books On Raising Children With Disabilities (Slideshow)
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I started blogging seven summers ago with the aim of jump-starting the writing of a book about our adventures, our journey, raising our 15 1/2 year old autistic son Charlie. I’ve gone a lot further with blogging than I ever thought I would but with another summer drawing to a close, the book about Charlie remains unwritten.

One reason is that, I can’t figure out what the end point would be as, everyday, Charlie changes and so whatever might be the focus of a book about him does too.

Another is that, in contrast to when Charlie was diagnosed with autism in July of 1999 at the age of two, there are far more books (not to mention blogs) about children on the autism spectrum and with disabilities and by autistic authors, just as there are far more individuals diagnosed with an autism spectrum disorder today.

As a mother, I’ve been especially drawn to books by women whose children have disabilities. Regardless of a child’s diagnosis, their experiences –their lives full of meetings with special ed personnel, specialists’ appointments and worry about how to fill long hours for children who struggle mightily with peer relationships — are mine. Here are three books, all by mothers, that have resonated with me as I contemplate the start of another school year for my beloved boy.

 

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19 comments

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1:55PM PDT on Aug 14, 2012

thanks

3:48PM PDT on Aug 13, 2012

Thanks

3:47PM PDT on Aug 13, 2012

Thanks

3:35PM PDT on Aug 13, 2012

ty

3:35PM PDT on Aug 13, 2012

ty

2:50PM PDT on Aug 13, 2012

Thanks Kristina.

11:59AM PDT on Aug 13, 2012

Interesting perspective and resources.

So many resources are available in good economic times get cut when the need is greatest.
I have to wonder if any of our lawmakers have been caught in that gap.

11:49AM PDT on Aug 13, 2012

I think a lot of parents of children with disabilities can become fighters, with help & support. It can change the family's lifestyle for good, as the disabilities chart for unplanned challenges & skills. Kudos for those who can hold it together.

10:28AM PDT on Aug 13, 2012

Unfortunately not all people who parent disabled children have wealth. As a disabled person with CP, from a poor community, I have seen many things about disability change over my lifetime. When I was a child, it was mostly poor people who had disabled children, and this was attributed to bad quality of life and bad diet. The common attitude was that the poor were to blame for the disabilities of their children. Then, over the years, it became the middle classes who had the highest percentage of children, and the idea of blame went away. It became more acceptable to be the parent of a disabled child, and the 'rights' movement came to the fore. That was very good for a lot of diabled folks,but also not so good for others. Some parents were 'tigers' - setting their children challenges that they clearly were not up to. Now in the UK, we have a PM who has been the father of a disabled child. Does this mean that he is more sympathetic to the plight of the disabled? I suspect not. Instead, we have the Tory government cutting benefits for the disabled, forcing even the dying back to work (or at least, off the dole) and shutting factories like Remploy where previously the disabled had jobs that were safe. So, parents of disabled children are having a really hard time of it - as if things have come full circle.

9:47AM PDT on Aug 13, 2012

every parent coping with the challenges of raising a differently-abled child can use the supports of connecting with others who face(d) the same type of challenges

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