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Back-To-School When You or Your Kid Is “Different”

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Parents Write About The Spectrum of School Success With a Child with Disabilities

On her blog, Along Came the Bird: the real life adventures of a special needs family, Lana describes the stellar (learning to use “yes” and “no” cards to answer questions) and the “not so stellar moments” (biting a teacher)  in the first week of kindergarten for her daughter Lily, who was born with a number of medical issues and is autistic.

Lana’s blog and a number of others by parents and individuals with disabilities resonate with my experience as the mother of a child who is “different.” Charlie still needs lots of speech therapy and there are, and will be, times when he bangs his head or throws things. He’s learning how to to express frustration in other ways (going to a quiet place and making noises that are soothing to him). He’s also learning vocational skills and how to read single words.

As the short bus (the smaller school bus kids with disabilities often take) returns, Rob Rummel-Hudson of Fighting Monsters with Rubber Swords writes that there’s worry in the air as his daughter Schuyler, who has a rare neurological condition and does not speak, may be changing schools very soon. But, showing the incredible spirit our kids have, “she nonetheless leapt onto the bus this morning without hesitation, and without so much as a glance back.”

Often I feel like just getting Charlie to the point when he’s stepping onto the school bus on the first day of school is the signature achievement of my year. Jean at Stimeyland has three sons on the autism spectrum and describes my experience times three: this year’s first day of school was even more “interesting” than usual for her because each of her three boys is going to different schools. (The buses didn’t all come on time but everyone got to school, eventually.)

Who doesn’t have a first-day-of-school photo in which you’re wearing some brand new outfit, with a new backpack to match? Tanis at Attack of the Red Neck Mommy is determined to take that first-day-of-school photo, though it takes a bit of effort to get a good one of her two teenagers carrying her youngest (who has multiple disabilities). In the process, Tanis reminisces with humor and insight about her (not, alas, perfect) first day as a junior in high school; I was reminded of how raising Charlie, with all of his challenges, has helped me put the woes of my teenage years into perspective.

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48 comments

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2:24PM PDT on Oct 13, 2012

thank you

5:01AM PDT on Sep 3, 2012

Thank you

9:09PM PDT on Sep 2, 2012

Thanks

9:01PM PDT on Sep 2, 2012

"We don’t do any back-to-school shopping. If Charlie could, he’d wear the same shirt and pants every day, till they were in tatters. He neither notices nor cares one bit about trends: He’s immune to both peer pressure and consumer capitalism."

*grins* exactly like me! I know this was meant to illustrate the diff between auties/aspies and NTs, but all I see is that more people should have their priorities straight. Trends don't matter, go for what you like, be yourself. There is nothing sad about not being into stuff we find mind numbingly boringI I wouldn't swap my way of being for anything the NT world has to offer. No offense meant, but most of it comes off as terribly shallow.

8:55PM PDT on Sep 2, 2012

Never stop supporting your kids.

7:11PM PDT on Sep 2, 2012

Please have a good year in school. I think any step that a student makes whether it is learning to write ABC or learning to stop biting others when something does not go his/her own way is significant. So often we compare ourselves to what others are doing. We just should look at that person's progress! I know we think "I wish I had known about something in the past"; however, the point is "I know it now" and that is the learning experience. And that is what we should celebrate.

6:56PM PDT on Sep 2, 2012

Thanks so much for the kudos, Kristina! I'm so glad the post was useful for you!

Always LOVE your writing!

6:35PM PDT on Sep 2, 2012

There is a public-relations resource available for wheelchair users at mswheelchairamerica.org. After individual states select their own representative, a national Ms. Wheelchair America is selected each year, who goes to various events throughout the country. It's what a beauty pageant should be, but isn't--achievement is recognized over facial appearance.

Check out Ms. Wheelchair America 2009--that's my daughter! She continues to make joint appearances with the current representative from time to time. (She is now a research director for a nationally-known university hospital.)

6:24PM PDT on Sep 2, 2012

The second major problem is that we do not see many disabled people out and about in society. Disabled children in particular are almost invisible. I often give talks to children about special needs. In one school, I asked a large group of ten year old non-disabled children if they knew anyone in a wheelchair. Just one hand shot up. The boy who volunteered his experience told the group that his grandfather was in a wheelchair. Many children tend to associate wheelchairs with elderly people and were surprised that I wasn’t in this group. One other child (a girl) put her hand up - her response to my question was “you” :)

One of the attitudes of society that really frustrates me is the fact that non-disabled people tend to emphasise the things that disabled people cannot do rather than what they can achieve. We have just had a valuable opportunity to witness many people from around the world demonstrate that although they have a disability they can still compete and achieve in sport. In the UK the Para Olympics have been televised every day. However, I have been informed that American television which did screen the Olympics has paid little attention to the Para Olympics which has attracted a total audience figure world wide of 4 billion. If so, I am not surprised that the parents of children with disabilities in the USA have an uphill battle to obtain the specialised help and support they and their child needs.

6:23PM PDT on Sep 2, 2012

Contrary to what some have said, I do not believe that we can ever have too many first-hand accounts from parents of children with special needs. World wide, society is not really ready to accept people with disabilities into mainstream unless they are influenced by both education and disabled people and their families themselves. I am a specialist paediatrician in child mental health who has worked extensively with children who present with autistic spectrum behaviours (I dislike the word “disorders’). However, my personal life has given me an additional insight into special needs, in that I am a wheelchair user and have been since the age of 19. Two factors in relation to the general public’s perception of disability is the fact that very few teachers (and doctors for that matter) have a disability or training in the subject. This means that their understanding of disability and perceptions of a child with special needs is limited. In my experience, many teachers have very low expectations of their disabled pupils.

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Kristina Chew Kristina Chew teaches and writes about ancient Greek and Latin and is Online Advocacy and Marketing... more
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