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H.O.P.E for Victims of Alzheimer’s Disease

H.O.P.E for Victims of Alzheimer’s Disease

 

The thought of losing all of the beautiful memories you have created throughout your lifetime is inconceivably frightening. Every 69 seconds, another American develops Alzheimer’s disease. Every minute, a heart breaks. It is the only disease in America’s top 10 that has no cure or any way to slow its progression. That doesn’t, however, mean that there is nothing that we can do to help those affected.

The HOPE Act was proposed five months ago as an amendment to a portion of the Social Security Act. The Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act aims to ensure that Alzheimer’s patients get an actual formal diagnosis that is recorded on their medical record. It is estimated that more than half of people who suffer from Alzheimer’s are not even diagnosed.

The earlier someone can receive a formal diagnosis, the better. Researchers have recently discovered that early detection of the disease can be extremely beneficial. Huffington Post quoted Beth Kallmyer, Senior Director of Constituent Services at the Alzheimer’s Association: “People who are diagnosed early can participate in the planning of their future — they can talk to their families about advanced directives, how they want to have their finances handled, what they want to have happen when they can’t drive anymore.”

Early diagnosis also provides researchers with more patients who could potentially participate in clinical trials. Having a formal, early diagnosis opens doors to invaluable services that benefit patients and their families. It increases access to information, care and support for newly diagnosed patients and those who care for them.

Concerned citizens and those affected by this heartbreaking disease are fighting everyday to get this act passed in Congress. Supporters of the 5.4 million Americans affected by Alzheimer’s disease donate 17 billion hours of unpaid care to their loved ones. The economic total of that unpaid care would come out to a whopping $202.6 billion dollars.

Help join the fight for victims of Alzheimer’s and support the HOPE Act by signing this petition.

 

Related Stories:

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Bilingualism Linked to Later Onset of Alzheimer’s Symptoms

Aging Boomers Will Be Dependent on Poor, Immigrant Women

 

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13 comments

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6:57AM PDT on May 10, 2013

Thank you for sharing.

2:41PM PST on Dec 1, 2012

thank you

3:03AM PST on Jan 17, 2012

Thanks.

10:49AM PDT on Oct 20, 2011

I signed the petition because it may have helped my Mom. It is too late now, since we lost her to this horrible disease in March of 2010.

I am afraid my sister or I will have it also, and this may help.

11:40AM PDT on Oct 17, 2011

Thanks for the Article. Signed the Petition. Its always difficult & heartbreaking for the caregiver of an Alzheimer's patient to see them in such a state.

8:44PM PDT on Oct 13, 2011

Unless this horrible disease affects someone close to you, one cannot fathom the heartache for the caretakers. Losing all memory of loved ones or a lifetime of experiences, reverting to infancy and TOTAL helplessness and diapers is not my idea of joyful. Petition signed.

2:00PM PDT on Oct 13, 2011

Beautiful issue and post. Alzheimer is nothing you hide in the closet and forget. Those who suffer this are humans as well as everyone else. They shouldn't be treated as an outcast. Huge Giant Bear Hug to those who have Alzheimers. You are loved.

1:59PM PDT on Oct 13, 2011

Beautiful issue and post. Alzheimer is nothing you hide in the closet and forget. Those who suffer this are humans as well as everyone else. They shouldn't be treated as an outcast. Huge Giant Bear Hug to those who have Alzheimers. You are loved.

11:10AM PDT on Oct 13, 2011

i'm happy to see that someone is ready to help with dementia patients. believe me, you don't know what it's about until someone you love begins to show signs of dementia. my own mother is 88 and began to show signs in March, just a little after her birthday. we had her in a local hospital where her meds were evaluated. she left still hearing voices and was still somewhat afraid that someone was going to hurt her, but some new meds have her almost back to where she was before the first episode. we know we can't keep her forever, but we do want her to be comfortable and to be able to live at home for as long as possible. we can only hope that this bill will pass so when others find themselves in our shoes, there'll be some options for them to get a correct diagnosis w/o all the headaches we had initially.

7:45AM PDT on Oct 13, 2011

thank you

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