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Invisible Symptoms of M.S. (video)

Artist Cecelia Johnson was diagnosed with multiple sclerosis (MS) at the age of 22. I recently happened upon a video she posted titled, “Invisible Symptoms of MS.” Imagine my surprise at hearing her read my own words — words originally posted right here on Care2. Her quiet, heartfelt reading brought those words to life.

Cecelia concludes by saying, “I’ve tried to put it into my own words, but…that’s pretty damn good.” You’re right, Cecelia, it was — and you brought it home more than mere words could.

As if to underscore the point, Cecelia looks quite good in the year-old video, but her battle with MS has not been an easy one. I reached out to see how she’s doing now.

“It’s very hot here in Houston, so I have to stay indoors. [Heat exacerbates symptoms of MS]. I’m an artist and I live and work in my residence/studio. Being an artist has kept me alive and I found a way to work with this ever-changing disease — at least for now. But I pace myself. I’ve slowed down quite a bit and stopped trying to force round pegs into square holes. Though I’m afflicted, I’m not a victim.”

Her YouTube page is populated with videos about life with MS. “I’m exposing everything about MS that we hate to talk about and people don’t want to hear,” says Cecelia. “I’m researching and reading every day, connecting dots and my different symptoms. Stem cells have been the only effective treatment for my ‘MS.’ MS is simply a symptom meaning ‘multiple lesions.’

“I’m putting pieces together to try to improve my quality of life. It’s a daily battle and I believe in pointing and yelling at the elephant in any room. Ann’s ‘Invisible Symptoms of MS’ was exactly what I needed to read at that time. We all have to find ways to live in our bodies and Ann’s message is right on target.”

So is Cecelia’s.

Related Reading
Dealing with Invisible Symptoms of MS
Savoring the Privilege of Walking
A Typical Life with Multiple Sclerosis

Read more: Blogs, Caregiving, Conditions, Family, General Health, Health, Life, Living with MS, Multiple Sclerosis, Relationships, Self-Help, Spirit, Videos, Videos, Videos, Videos

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Ann Pietrangelo

Ann Pietrangelo is the author of No More Secs! Living, Laughing & Loving Despite Multiple Sclerosis and Catch That Look: Living, Laughing & Loving Despite Triple-Negative Breast Cancer. She is a freelance writer and member of the American Society of Journalists and Authors. Follow on Twitter @AnnPietrangelo

78 comments

+ add your own
5:22PM PDT on Aug 15, 2013

Thanks for sharing

5:17AM PDT on Aug 13, 2013

Thanks for the information.

2:26AM PDT on Aug 6, 2013

Thank you :)

4:47AM PDT on Aug 3, 2013

Thank you very much for this information!

3:45PM PDT on Jul 29, 2013

Thank you Ann, for Sharing this!

1:56PM PDT on Jul 29, 2013

thank you very much for this. So true, but still not everyone gets it.

10:22AM PDT on Jul 29, 2013

healing

4:22AM PDT on Jul 28, 2013

Thanks for sharing.

2:07AM PDT on Jul 28, 2013

thanks for sharing

4:00PM PDT on Jul 26, 2013

ty

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Disclaimer: The views expressed above are solely those of the author and may not reflect those of
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They are enjoying music like peple, even more))) Thanks for sharing! Very cute :)

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