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Petition | FDA: Give Liza Cozad Access to the Cancer Drug That Could Save Her Life! | Change.Org


Health & Wellness  (tags: FDA, Liza, DIPG, ANP, Phase III drug )

Krish
- 368 days ago - change.org
Liza was diagnosed with a deadly brainstem tumor - called a DIPG. The drug - ANP - has been approved for Phase III clinical trials by the FDA.(Safe drug), it documented 27% success rate.



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Comments

Krish Away (43)
Tuesday December 17, 2013, 10:55 pm
Liza Cozad is 46 years old and has always spent her time helping others - now she needs our help in her fight against brain cancer, because the FDA is refusing to give her the treatment that could save her life. Liza served as an attorney in California for 15 years before retiring to help people more directly. She started a senior in-home care agency to help seniors stay safe in their homes, as well as two fitness centers designed to keep older adults healthy. She also served on the board of directors of Whistlestop - the local non-profit serving older adults. She spent all her free time helping others - and playing competitive tennis - and now she needs our help. Six months ago, Liza was diagnosed with a deadly brainstem tumor - called a DIPG - it rarely strikes in adults (only about 20 in the U.S. each year) but is unfortunately common among brain tumors in children - and just as deadly - a year to a year and a half to live. No doctor can perform surgery to remove due to its location, chemo has consistently shown to be ineffective on Liza's type of tumor, and even the radiologist tells her her best case scenario with radiation is it would return in 1-2 years, more aggressively, and they could no longer radiate. There is one drug that could save Liza's life. The drug - ANP - has been approved for Phase III clinical trials by the FDA. This means it has been deemed safe (Phase I trials) and effective (Phase II trials). The FDA has continually denied Liza's request for the treatment under a Single Patient Protocol (the FDA format under which she could be approved), saying they have questions for the manufacturer about the drug based on one patient out of hundreds' response to sodium levels. They have cotinued with this for a year - each time the manufacturer answers all their questions, the FDA keeps coming back with more - all the time denying any new patients - including Liza - from receiving this drug the FDA has itself acknowledged to be safe and effective. This precious and caring young woman has been fighting her fight since April, but her health is declining. This drug has a documented 27% success rate on her exact kind of tumor - which is 27% better than her odds with all standard therapies - and with some children still cancer-free over 20 years later. Please take action now - sign this petition and, just as importantly, share this petition with all your online friends, asking them to sign and share. You may remember the little girl in the news a few months ago who received FDA approval for an adult pair of lungs - this is exactly how she did it - WE CAN MAKE A DIFFERENCE!
 

AniMae Chi (432)
Tuesday December 17, 2013, 11:07 pm
Signed
with 12,583 supporters
87,417 NEEDED
 

jess b (24)
Tuesday December 17, 2013, 11:07 pm
signed ty
 

(0)
Wednesday December 18, 2013, 1:06 am
Noted and signed - Let's make a difference for her!
 

Constance F. (431)
Wednesday December 18, 2013, 1:09 am
well this is just heartbreaking. i know about brain cancer. chemo and radiation with this kind of cancer are merely palliative and should never to be used. but people do in their desperation. better to do alternative therapies and save your dignity from the ravage of these drugs. i think one would definitely stand a much greater chance of surviving without them ! i really could not find any information about this drug ANP. no drug is "safe" but perhaps it's less toxic with less possibility of serious side effects. i hope this helps her, god, i really do.
s + s ~ Signed
with 12,593 supporters.
 

Alan Lambert (97)
Wednesday December 18, 2013, 1:20 am
Signature 12594 and noted
 

Ondine J. (138)
Wednesday December 18, 2013, 1:25 am
Noted and signed,thanks Krish and AniMaeChi.
 

Frans Badenhorst (560)
Wednesday December 18, 2013, 1:36 am
Signed
with 12,595 supporters
87,405 NEEDED
 

Bridget Robertson (106)
Wednesday December 18, 2013, 2:31 am
Noted and signed. Thanks Krish for the forward .
 

Kaileen Reynolds (59)
Wednesday December 18, 2013, 3:16 am
Done. Thanks Krish.
 

Cynthia F. (137)
Wednesday December 18, 2013, 4:00 am
Noted and signed. Thank you Krish
 

Kathleen R. (203)
Wednesday December 18, 2013, 4:06 am
Signed and noted. Thank you Krish and AniMaeChi
 

. (0)
Wednesday December 18, 2013, 4:44 am
#12.612 gladly signed and noted - thank to Krish and AniMaeChi for the fw
 

Edwin M. (356)
Wednesday December 18, 2013, 4:54 am
Signed, thank you Krish and thank you AniMaeChi. I have no respect for the FDA.
 

John Holton (361)
Wednesday December 18, 2013, 5:00 am
Sand N
 

kate k (478)
Wednesday December 18, 2013, 5:48 am
Noted and signed
 

Mike M. (56)
Wednesday December 18, 2013, 6:11 am
N&S&T
Signed
with 12,627 supporters
87,373 NEEDED
 

Dogan Ozkan (5)
Wednesday December 18, 2013, 6:13 am
noted and signed
 

Debbie Williamson (276)
Wednesday December 18, 2013, 6:14 am
Signed and shared. Thanks Krish, and AniMaeChi for the forward.
 

Natasha Salgado (578)
Wednesday December 18, 2013, 6:31 am
Signed-thx Krish
 

Daniel Partlow (189)
Wednesday December 18, 2013, 6:53 am
S&N
 

Angelika R. (144)
Wednesday December 18, 2013, 7:26 am
Thanks for signing - Signed with 12,634 supporters 87,366 NEEDED -long way to go..
and yet ANOTHER case of FDA's corruption and slavery to BigPharma...shame shame shame.. thx Krish

 

. (0)
Wednesday December 18, 2013, 7:26 am
Signed and noted. Thanks for sharing, Krish.
 

Angelika R. (144)
Wednesday December 18, 2013, 7:27 am
btw-has there been any progress in those aother cases like for eteplirsen and the other one? any word from ..was it Lauren?
 

john byrne (53)
Wednesday December 18, 2013, 8:11 am


Signed.
 

Aaron Bouchard (145)
Wednesday December 18, 2013, 8:21 am
signed and noted thanks
 

Krish Away (43)
Wednesday December 18, 2013, 8:27 am
Hi Angelika Lauren's Petition says Signed with 4,212 supporters..

As for the progress on drug is concerned.. I guess this website gives latest updates
http://www.duchennenow.org/membership/message-board/research/

I seriously wish there would be a Positive outcome for ALL of them
 

Sara W. (110)
Wednesday December 18, 2013, 8:40 am
This drug doesn't have a very good success rate...although I signed as she obviously doesn't have very many choices.
 

Joan McAllister (1064)
Wednesday December 18, 2013, 8:48 am
N & S. Thanks Krish
 

Mandi T. (431)
Wednesday December 18, 2013, 10:11 am
SS
Cancer :(
 

Angelika R. (144)
Wednesday December 18, 2013, 10:24 am
Sara - for those involved and concerned ANY SUCCESS RATE IS GREAT and better than none at all= death !
 

Stardust Noel (52)
Wednesday December 18, 2013, 10:50 am
Signed & passed
 

Terrie Williams (773)
Wednesday December 18, 2013, 11:04 am
Thanks for signing
Signed with 12,659 supporters
S/S/N
 

Maria S. (95)
Wednesday December 18, 2013, 11:17 am
Noted & signed. Thanks Krish!
Thank you for signing the petition "FDA: Give Liza Cozad access to the cancer drug that could save her life!"
 

Lisa Neste (711)
Wednesday December 18, 2013, 12:31 pm
Thanks for signing Back to petition
FDA: Give Liza Cozad access to the cancer drug that could save her life!
 

Henrik Thorsen (28)
Wednesday December 18, 2013, 12:52 pm
Signed.
 

Lois Jordan (58)
Wednesday December 18, 2013, 1:10 pm
Thought I signed yesterday, but took my signature today. Noted. Thanks, Krish.
 

Apolonia Pl (400)
Wednesday December 18, 2013, 1:58 pm
Signed with 12,684 supporters ...
 

Patricia Raven (442)
Wednesday December 18, 2013, 2:23 pm
Signed and noted
 

norma laborie (33)
Wednesday December 18, 2013, 3:10 pm
signed
 

Angeles Madrazo (293)
Wednesday December 18, 2013, 3:14 pm
Signed!
 

Ruth M. (252)
Wednesday December 18, 2013, 3:43 pm
Done thanks Kirsh
 

Annemie O. (161)
Wednesday December 18, 2013, 3:51 pm
N & S
 

Kamia T. (82)
Wednesday December 18, 2013, 4:24 pm
Hmmm, let's see. The FDA will release into general market production drugs that have known fatal side effects, but refuses to allow a patient who is voluntarily willing to be so have a drug that is ALREADY in clinical trials -- presumably on humans. I'm dumbfounded as to what convoluted thinking gets anyone to the point where that sounds like it makes sense. Unless some company doesn't want their drug to become known for NOT being effective.
 

Vicky P. (466)
Wednesday December 18, 2013, 4:37 pm
noted, signed
 

JOHNLEWIS HODDINOTT (77)
Wednesday December 18, 2013, 6:42 pm
noted and signed
 

Lynn Juozilaitis (141)
Wednesday December 18, 2013, 7:34 pm
Signed & noted and posted on FB Thank you Krish for ALL you do! I hope & pray this beautiful, young woman will be saved.
 

Esther Z. (96)
Wednesday December 18, 2013, 7:57 pm
Noted and signed.
 

Krish Away (43)
Wednesday December 18, 2013, 8:38 pm
Kamia T.. your argument is fine with ANY drug.. what'z your stance on signing this petition?
Patient is well aware of her options and even the success rate(for this drug)..

 

Krish Away (43)
Wednesday December 18, 2013, 8:58 pm
I am not certainly sure what you are saying.. hoping you are WITH us.. Thx
 

Jason B. (141)
Wednesday December 18, 2013, 11:00 pm
Thanks, Signed
 

Charmaine Shannon (45)
Thursday December 19, 2013, 12:27 am
Noted, Signed and Shared !! Praying for a Positive Outcome to this Situation and for this "BEAUTIFUL LADY" !!
She has done SO MUCH for SO MANY now let's do the SAME FOR HER !!!!


Thank-You....
 

Robert O. (12)
Thursday December 19, 2013, 12:39 am
Thanks Krish.
 

Angelene B. (146)
Thursday December 19, 2013, 2:30 am
signed
 

Candy L. (476)
Thursday December 19, 2013, 3:16 am
Thanks, Signed & Tweeted
 

Rhonda B. (114)
Thursday December 19, 2013, 3:21 am
THANK YOU! Noted & signed
 

Past Member (0)
Thursday December 19, 2013, 6:58 am
S&S, thanks
 

Angelika R. (144)
Thursday December 19, 2013, 7:20 am
confusing TO ME AS WELL;what KAMIA Iis saying there -PERHAPS SHE COULD REPHRASE it to a more simple statement?!
 

Franshisca Dearmas (91)
Thursday December 19, 2013, 7:35 am
Noted and signed. TY Krish
 

Krish Away (43)
Thursday December 19, 2013, 7:39 am
Ani told me that Kamia is an Adult English Tutor(it seems).. Can you rephrase your comment.. I ONLY want to know whether you have signed the petition or NOT..
I sent her a message as REPLY to her comment..Will she reply (back)?
 

Donna Hamilton (151)
Thursday December 19, 2013, 10:34 am
N&S. Hope this lady gets all the help she needs and makes a full recovery, soon. Thanks.
 

Mitchell D. (132)
Thursday December 19, 2013, 10:51 am
N and S.
 

Michela m. (3955)
Thursday December 19, 2013, 11:47 am
Signed
with 12,885 supporters
Noted!!
 

Kamia T. (82)
Thursday December 19, 2013, 12:30 pm
I signed the petition, and think that once any drug is in clinical trials, a volunteer should have the opportunity to participate. It shouldn't be limited to only those "select few" who are somehow "chosen." What I don't agree with is the scientific community experimenting on unknowing people, such as prisoners or those who cannot fight back. This woman should be given the drug, but will probably not be, because of the seriousness of her condition and the fact that if she fails to improve, the drug manufacturer has to provide that information as a failure. It's sad, really.
 

Krish Away (43)
Thursday December 19, 2013, 12:44 pm
Thx Kamia for reply
 

Manuela Annofsky (88)
Thursday December 19, 2013, 1:33 pm
Was soll das, warum bekommt sie nicht das Medikament was ihr helfen würde? Freiwillige sind doch gut um etwas zu testen, ich selber habe mich auch schon mal dafür beworben, wurde aber abgelehnt. Lieber an Menschen testen als an Tieren bin ich der Meinung! In Deutschland wird es abgelehnt einer Frau ein Doping-Mittel zu geben, das aber Ihr Parkinson verbessert. :(
 

Birgit W. (152)
Thursday December 19, 2013, 2:48 pm
Signed.
 

Winn Adams (204)
Thursday December 19, 2013, 3:44 pm
Signed
 

Joanne Dixon (40)
Thursday December 19, 2013, 5:03 pm
Signed.
 

Barbara V. (183)
Friday December 20, 2013, 6:11 am
Signed & Noted, Thank you
 

Chaz Berlusconi (83)
Friday December 20, 2013, 10:07 pm
signed
 

Monique Pouchet (236)
Saturday December 21, 2013, 11:13 am
Signed
with 13,155 supporters
 

anonymous X. (93)
Saturday December 21, 2013, 11:19 am
Thank you Krish and AniMaeChi
 

Patsy Olive (0)
Saturday December 21, 2013, 1:48 pm
Noted signed & tweeted. thanks.
 

Ken L. (74)
Saturday December 21, 2013, 2:30 pm
Signed and Noted , Thanks
 

Madhu Pillai (22)
Saturday December 21, 2013, 3:57 pm
Signed
 

Rosa Caldwell (398)
Sunday December 22, 2013, 6:47 pm
I say if she is willing to take the risk, she should have it. Doesn't seem to be many options. I signed and forwarded it. Hope she can get it in time to do good work for her. God bless her and thank you everyone for supporting this very important cause.
 

Sue Clayton (8)
Monday December 23, 2013, 1:03 am
I understood your post Kamia and thank you for signing. If the patient CHOOSES to have the drug then she should be allowed to have it. I'm so glad I live in Australia, our medical system is great. I had a brain tumor some years back, I still have follow up treatment and I still haven't spent a cent.
 

Inge Bjorkman (147)
Monday December 23, 2013, 2:48 am
Signed

Love
 

Kathleen R. (138)
Monday December 23, 2013, 10:28 am
signed & noted
 

Israel Valdez (0)
Monday December 23, 2013, 10:58 pm
Signed
 

Karen Chestney (110)
Tuesday December 24, 2013, 1:57 am
Petition...signed.....good luck...hope this petition helps......Thanks.
 

Penelope Ryan (176)
Tuesday December 24, 2013, 4:12 pm
Done, ty
 

Connie O. (44)
Friday December 27, 2013, 12:37 pm
S + N
 

Neill Abayon (718)
Wednesday January 15, 2014, 5:22 am
Noted, signed, tweeted. Thanks.
 
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