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PLEASE HELP: Save Children Dying From DMD: UK Citizens Please Sign!


Health & Wellness  (tags: children, death, disease, prevention, government, health, healthcare, research, study )

Lauren
- 716 days ago - epetitions.direct.gov.uk
Duchenne Muscular Dystrophy is 100% fatal. There is no cure. Children are losing the ability to walk, eat, draw, play, hug & breathe every day. DMD isn't well known, so charities for research into DMD don't get many donations. DMD devastates families.



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Comments

Lauren S. (28)
Saturday January 5, 2013, 3:52 am
For more information, please see this video:
http://www.youtube.com/watch?v=xnCvhpxsgjc&list=PLIVnkXmUlgpTdTQP2c1EcXgDNYDWPjwcJ&index=1&feature=plpp_video

or this playlist:
http://www.youtube.com/playlist?list=PLIVnkXmUlgpTdTQP2c1EcXgDNYDWPjwcJ
 

Lauren S. (28)
Saturday January 5, 2013, 3:53 am
For further actions that can be taken by non-UK citizens please see:

Automated message to US policy-makers:
https://secure2.convio.net/ppmd/site/Advocacy?pagename=homepage&page=UserAction&id=169
If anybody could spare the time to do this I would appreciate it so much as I am not a US citizen and so can't! It only takes a few seconds. Thank you!
 

Lauren S. (28)
Saturday January 5, 2013, 3:54 am
and:
Petition for the selling of DMD awareness items (anybody can sign):
http://www.change.org/petitions/ask-walmart-and-toys-r-us-to-offer-duchenne-muscular-dystrophy-awareness-items
 

Beth W. (0)
Saturday January 5, 2013, 9:08 am
What a great cause- thank you for sharing!
I hadn't heard of Duchenne Muscular Dystrophy before this, so I'm glad I now know about this terrible disease.
I also watched the playlist of videos in the comments- I haven't stopped crying; they're so beautiful and inspiring, but so sad! My heart goes out to all the families affected by this disease!
 

Chrissie H. (22)
Sunday January 6, 2013, 9:14 am
A dreadful disease,I've never heard of.My heart goes out to everyone affected by it.
 

Lauren S. (28)
Monday January 7, 2013, 1:44 am
Please see www.duchennenow.org as they're an incredible charity, but unfortunately don't get many donations (or any funding). 100% of donations to them go to funding research- something which I am finding is a rarity for charities!
Thank you!
 

Lauren S. (28)
Monday January 7, 2013, 1:50 am
Thank you Elizabeth and Chrissie for signing the petition and for caring! I am truly and eternally grateful!
Please do share the petition with family/friends/internet acquaintances if you can/want- a lot more signatures are needed before it will even be eligible to be viewed by the Department of Health, let alone actually considered! :) Thank you so much again for your kind words and actions!
 

Beth W. (0)
Wednesday January 9, 2013, 4:24 pm
It's my pleasure Lauren! It renews my faith in humanity to see someone so passionate about a cause! :D
Already done! (Shared the petition, that is). It's shared on Facebook, Twitter and Tumblr and I'm getting all my family and friends to sign it! :)
I really hope it gets the attention it deserves and that it all works out!
 

Beth W. (0)
Wednesday January 9, 2013, 4:25 pm
I'll also check out Duchenne Now as well!
 

Jim Phillips (3202)
Thursday January 17, 2013, 12:21 pm
Petition signed.

Help find and cure Duchenne Muscular Dystrophy.

Ty, Lauren.
.
 

Lauren S. (28)
Thursday January 17, 2013, 3:52 pm
Thank YOU Jim! For your kindness and for taking time to sign the petitions, I truly appreciate it and am eternally grateful! Please do not hesitate to contact me if I can return the favour at all :)
Thank you again; it's lovely to know that people like you exist.
Warm wishes,
Lauren.
 

Lauren S. (28)
Monday November 25, 2013, 6:50 am
I just thought I'd update this and say that whilst the previous petition failed to get enough signatures before it closed, there is hope for this new version:
http://epetitions.direct.gov.uk/petitions/54373
Please do sign if this is still of interest to you! :)
 
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