Wednesday March 18, 2009, 4:28 pm
Sunday, 08 March 2009 00:32
Chronic Fatigue Syndrome: Is Oxygen the Problem and Why? A Four-Part Treatment Protocol
In addition to presenting a broad overview of CFS (important principles, case definition, clinical findings, objective data, key medical literature), Dr. Cheney will present information on his latest four-part treatment protocol. His presentation will include in depth information on the following two topics: Oxygen Toxicity as a Controlling Factor and Cell Associated Therapy.

Oxygen Toxicity as a Controlling Factor in CFS
This section of the presentation will focus on the research finding of nearly 100% toxicity in CFS patients when oxygen is administered. (96% @ 4 lpm nasal cannula and 100% at 40% mask.) Dr. Cheney will present evidence that patients categorized according to increasingly powerful treatment protocols were transformed to an increasingly oxygen tolerant state. The most powerful treatment protocol was also associated with significant overall clinical improvement (p10, p

Wednesday March 18, 2009, 4:41 pm
Cell Associated Therapy for Chronic Fatigue Syndrome: Is this the Next Frontier?
Dr. Cheney will discuss the use of low molecular weight (LMW), mammalian tissue derived peptides as therapeutic agents when applied to the skin using novel transdermal gels. These LMW peptides are known to control gene expression and can shift organ function toward normal. Data will be presented from a one-year prospective trial in CFS using these LMW peptides which produced significant improvement in function (KPS>10, p

Thursday March 19, 2009, 3:12 pm
I have all the CFS symptoms, and I'm not going anywhere near allopathic medicine practioners unless I need structural or acute care. What I read on Dr. Cheney's page I could conveniently not understand. Oxygen toxicity ? Hello ? I'd never even consider any toxic "medications" regular doctors dispense. I'd honestly prefer a Witch Doctor. Better still, I'll accept that I'm very, very tired a great deal of the time and do my best.

I truly hope, however, that the people under his care improve. I'm sure he means well, but I have lost my trust in standard medical treatments for misunderstood conditions.

Thanks, Cheryl.

Thursday March 19, 2009, 3:16 pm
Has anyone else red "The Spectrum" by Dean Ornish, M.D.?

Thursday March 19, 2009, 3:50 pm
M.E./CFS, have almost no enzyme of d-h-2-3, that drops of oxygen from ur blood cells around your body, a toronto girl, found this out as part of her thesis, study what 10 years ago, her dad treated me/cfs patients. so, dr. can take giver oxygen test, or put on finger for blood cells, and it may read normal there, but it is not, we are very low on oxygen levels and blood volume, and that is were the toxicity comes in, and oxygen therapy over some time improve, i know 4 me does big time as does saline

as for stem cell, he get from alternative supplier sorta similiar, i get from usa, very expensive, he buys him out, he doing now full stem cell transfustions, and the success sounds great.

Cheney head in this field and had it himself. also the heart, our hearts are bacly affected because of the low blood volume and oxygen levels it has to pump more, 2nd cause death is heart attack and stroke, i may have3 had bad stroke in 2004 when coming off drugs, i don't know, my left side wne tand speech and neck, still is, they just left it with all the rest of the damage.

he also knows, many and often because of MCS and low blood volume, not tolerate medications very well. he way ahead, i would love to get to hopstial with neurological in usa, WITH HIM, they help the damage, stop the dysotina and he could help with my ME/CFS, much worse.

Lapp also very good. Of course naturals are best, however, ampligen was hopeful we been waiting over 20 years for it, it on cost recovery, that mean you pay for it and pay doctor to give it, that $40,000. at least used to be double. almost everyone had much improvement, some cured. it hellish though, and 2 iv's a week.

i follow his work, he way ahead, even with scans, diagnosics, i would trust him and i tell you i have near 0 trust of medical profession and waht done to me, i terrified, which is awful because i need the help so bad.

he very good, if you know alot about this, and follow him for some time, it make more sense, very complicated illness and destruction of CNS as well. they never shgould have called it chronic fatigue sydrome it is not chronic fatigue, that part of it, the nerulogical, all lypmp sytemps, cardiac, lungs, muscles, most get FM with it and MCS. typine hard, typing way speak right now, lol.
ok, thank, for those of us that follow him, and others, and severe, makes sense. i wondering how the stem cell going to go further and i on ning site too, and they have him lecture as well near one of the members so get more info now.
blessings

Thursday March 19, 2009, 3:51 pm
wow i typed alot, look at that, lol

Thursday March 19, 2009, 9:58 pm
Thankyou Cheryl. Great work!! I was diagnosed with CFS and Fibro over 15 years ago and have my own treatment as prescribed by my specialist which works if I rest. Pacing myself can be quite a roller coaster ride at times.
My general practitioner's relative was also diagnosed about 3 years ago and O2 was one treatment offered for consideration. The treatment suggestions also change from doctor to doctor, so I stick to my own specialist whom I can trust. I am also affected cognitively so I utilize much precious energy even with general reading material. I also prefer alternative therapies and much is based on my own research. I will read more when able Cheryl :)

Friday March 20, 2009, 3:54 am
hi Mary, yes I always asked my doc's prior 4 oxygen adn always turned down they didn't know much. I have stuck mostly with alternatives, long list still on, cost forturne thou when can get the $ and should be able to deduct off income tax when you have to take it, they allow big pharma's drugs to be written off OF COURSE.. however, immuvair (sp) is good, i did kutappression shots in 1994 for 6 months in my legs, at not well enought to g back to work but out of bed and more like living not exisings, but had to stay on them, it didnt' last lon, well a couple of years until the psychaitric drugging started for a neurlogical illness i started deteriorating relly fast. they also don't make them any more or I would do them again in a heart beat, improve my fuctioning level which is like palative. i am bedconfined and houseconfined.

www.prohealth.com is great to subscribe to for research updates and also alot of natural products for me/cfs and fm. also mitacondria damage, the ribose, nadh and other stuff i take help that, also drinking alot of water, for the pain from teh FM, used to be on percocets, not anymore i have no doctor and left like this after they damage me repeatedly, hope that change soon, dlph amnio acid works pretty good for pain, other aminos are very good, you can take separate some, tyosine is good too, also you can search for complete ones, total solution, and prohealth has one. wheatgrass has them all and everythign else you need. also omega 3 and 6 every day, long list, and no processed foods, sugars, meat, that went fast for me, i got MCS too and can't tolerate perfumes, smells etc.
d-ribose
nadh
reduced gluathione 99%
fibrosure
b-12 shots been doing my own since 1993
vitamines./minerals
Q-10
magnisum/calcium
aminio acids, i was very depleted and didnt' start working on those till alst year
long list, should look at that site, www.prohealth.com, load of natural stuff

now using wheatgrass for abit, and getting some more energy, abit, it cleans out alot of toxins. I also use when can $ immune support from usa, if I could get perscription back and had doctor i would go back on the immuviar, and I would try the stem cell, that cheney is using, i would also try amplegin if it ever comes out with a DIN number, but would be a bit hesitatant.

for sleep that hard the insominia is so bad, i was on same sleeping pill for over 13 years at high doses, they think it may have had something to do with the damage they covering for, a doctor left me on it another year after the first major damage and didn't say anything

, so magiusm, there are lots of naturals, although i find, that no matter what i take when hyper insomnia, not of it kicks in until the am.

people, too many think fatigue even if chronic is chonic fatigue syndrome, which it is not I was diagnosed by several specialists, and everything else was ruled out and a long battery of tests to do so, mine also started with a flu more akin to polio unlike anything I ever had before, that 1991, it is better called myalgic encephalomyelitis (M.E.) and the nerulogical problems can be severe, mine are, I had to stop reading books not long after, blocks of type my brain shut off. it is like a light dementia. if you don't have neurlogical problems there you probably don't have me/cfs. the list of symtoms is too long to go into and do change per person, the low blood volume and oxygen levels do not, and a list of others, all have, others fluctuate person to persone

another good site, i am member and they stared the me/cfs definition and got it recognized in ontario canada , supposed to, as neurlogical diagnosic code 795, WHO, it has been recognized for decades as neurlogical and illness of the central nervous system, doctors are arrogant and ignorant and discriminate

www.mefmaction.net/ they have lots of info there, and phamlets for patients and doctors, may post another day some links from there.

also i found belatedly, after repeated brain/body damage from them that, many with me/cfs, are antidepressant/drug dose sensitive or intoeratant. I know severl others who are, i found out too late and in clinical journals on the internet back dated to 1993, my own CFS/ME/FM doctor then didn't know a friggen thing, he just signed prescriptions, and knew about some of the sympoms.

healing blessings

Friday March 20, 2009, 5:02 am
also adrenal insuffienciy always with ME/cfs, dhea, and there are naturals with it, i can't tolerate steriods which they sometimes give, long list and varies upon individual

Friday March 20, 2009, 9:19 pm
Noted and appreciated-thank you for your painstaking work Cheryl.

Wednesday December 16, 2009, 5:06 am
Many chronic fatigue syndrome and fibromyalgia patients have relatively diminished T4 to T3 conversion and a relatively increased T4 to reverse T3 conversion, also resulting in low tissue levels of active thyroid hormone levels despite having a normal TSH.

The combination of factors present in chronic fatigue syndrome and fibromyalgia, including hypothalamic and pituitary dysfunction, diminished T3/rT3 production ratios and thyroid resistance, results in most, if not all, chronic fatigue syndrome and fibromyalgia patients having inadequate tissue thyroid effect.

Ultimately, it is the expertise and dosing of the T3 or T4/T3 combinations and the makeup of the medications that determines the optimal treatment regimen by chronic fatigue doctor may be the solution for the treatment.

Thursday December 17, 2009, 8:12 am
low thyroid is not the cause of ME/CFS, it can be the cause of chronic fatigue there is a difference, often we test normal and people still need treatemtns, while some get improvement, as I said it's no cure for ME/CFS and if they were cured then they didn't have ME/CFS they had chronic fatigue which can come from a zillion illnesses reasons, and is the reason why we are pissed off it ever got included in the name.. the XMRV retrovirus has been discovered, it or antibodies to it were found in every patient tested so far. i haven't posted it on c2 because I haven;t been here much