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The Fibromyalgia Myth - With Video

Health & Wellness  (tags: americans, disease, fibromyalgia, lymes disease, investigation, medicine )

- 1891 days ago -
Fibromyalgia (FMS) is one of the most elusive diseases that affect the human body. Given its many vague symptoms - numbness, anxiety, insomnia, irritable bowel syndrome, depression and more - it's very hard to diagnose, which explains why the cause of FMS


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Kit B (276)
Monday July 22, 2013, 9:37 am
Image Credit: Getty

Fibromyalgia (FMS) is one of the most elusive diseases that affect the human body. Given its many vague symptoms – numbness, anxiety, insomnia, irritable bowel syndrome, depression and more – it’s very hard to diagnose, which explains why the cause of FMS is currently unknown. Like any idiopathic disease or medical condition, not fully understanding the cause and treatment can be the most devastating part.


Some experts believe FMS is related to hormonal disturbances and chemical imbalances affecting the nervous system. Others link the condition to illness, trauma or just plain stress. Still other researchers blame genetics or claim there is no explanation at all. Indeed, even today, fibromyalgia is often labeled as a somatoform disorder, meaning “it’s all in the head,” but anyone actually suffering from FMS will tell you this not the case.

Therefore, it’s important to note that our clinical experience with numerous patients points to Lyme disease (or what other LLMD’s have dubbed chronic Lyme disease complex,) as having something to do with fibromyalgia’s origins for some patients.

To make this easier to understand, let’s define Chronic Lyme Disease Complex (CLDC), based on our ten years of clinical experience and our Lyme literate medical doctors’ experience with treating chronic infections, fibromyalgia and autoimmune diseases. Shea Medical defines CLDC as involving one or more factors: Lyme disease; its coinfections; the reactivation of dormant infections, such as viruses; and an immune compromised state that can be further complicated by heavy metal and chemical toxicities. How this differs from the CDC’s definition is, they are treating Lyme disease in a vacuum as one infection and not clinically correlating it to the complete complex diagnosis that is typically seen in patients.

A Deeper Look at Fibromyalgia’s Link to Lyme Disease Complex has this to say about Lyme disease complex: “It is thought that between 15% and 50% of those patients diagnosed with Lyme disease actually have fibromyalgia. It is important that you be tested for Lyme disease using a variety of different diagnostic tests, in order to rule out this disease.”
Not only that, Lyme disease will produce a vast range of symptoms, but not all patients suffering from Borrelia burgdorferi sensu stricto (the bacteria that causes Lyme disease) will produce all of the symptoms, many of which are not even specific to Lyme disease.

First, let’s explain what Lyme disease is. Like syphilis, Lyme is a spirochete bacteria that is spread through blood-sucking insects, especially deer ticks. However, the symptoms can relate to a vast variety of other symptoms, including: swollen lymph nodes; fever and chills; headache and stiff neck; muscle and joint paint; and the most common symptom, lack of energy.
After a month, if Lyme disease is not treated, these symptoms will soon include skin rashes; pain weakness or numbness in the arms and legs; paralysis of facial nerves; recurring headaches or fainting; poor concentration and memory recall; pink eye (conjunctivitis); and heart palpitations. Late persistent infections include increased swelling in the knees; numbness and tingling in the hands; severe fatigue; chronic Lyme arthritis, (which can cause recurrent swelling, redness and fluid buildup in the joints); and even neurological changes, affecting memory, mood, sleep and even difficulty speaking.

To further complicate matters, many tests for Lyme disease can come back false positive or false negative. As you can see, early stages of Lyme disease can be very difficult to diagnose, even with a blood test. In addition to physical examination results, most doctors will rely on environmental factors such as exposure to ticks carrying the disease and medical history. But let’s go back to fibromyalgia. Some of these symptoms certainly overlap, especially muscle pain and fatigue. But is there a link?
Let’s get scientific for a moment. Consider the connection between Chronic Fatigue Syndrome (CFS) and FMS through the Hypothalamic-pituitary-adrenal axis. Don’t let that long string of words confuse you – the HPA is merely a communication network of direct influences and feedback interactions between the hypothalamus, the pituitary gland and the adrenal gland. Think of it as an Internet connection in your brain. In many cases, abnormal levels of certain chemicals that are regulated by the HPA axis have been proposed as a potential cause of CFS.

In Lyme disease, patients can contract the infection and its coinfections at any point in their lifetime, but the symptoms may not raise their head until the patient is weakened, usually by a traumatic experience such as a major injury, giving birth, receiving a vaccine or even extreme emotional trauma such as divorce or death. Such trauma will undoubtedly affect the HPA axis, however, how much will vary, depending on the patient.

Let’s bring it all back – if chronic Lyme disease can effect the Hypothalamic-pituitary-adrenal axis and the HPA axis can lead to chronic fatigue syndrome, which is related to fibromyalgia, then it seems there is a link from Lyme disease to FMS.

Lyme disease treatment is relatively simple and can be done with antibiotics, if diagnosed and treated in early stages, which is rarely the case. Unfortunately for fibromyalgia, there is no universally accepted cure. Treatment generally consists of symptom management, i.e. exercise therapy to relieve muscle pain.

There is a form for more information at VISIT SITE -

Kit B (276)
Monday July 22, 2013, 9:39 am

I know many people a diagnoses of Fibromyaigia and I hope this article offers some insight and help for those with the disease or those family members that want to help.

Carrie B (306)
Monday July 22, 2013, 9:50 am
Thanks Kit. You are right on cue~My FMS started rearing its ugly head about 12:30 a.m. My particular "case" is thought to be caused by a combination of illness, major surgery, and a medication for TB.

Carrie B (306)
Monday July 22, 2013, 9:54 am
Forgot to say the article and video are very interesting and informative. Thanks a million.

Kit B (276)
Monday July 22, 2013, 10:46 am

I think the idea of undiagnosed Lyme disease is worth some study. The more we learn about Lyme disease the more it gets linked to things we had no idea could be linked. Hope you feel better soon, Carrie.

Carrie B (306)
Monday July 22, 2013, 10:48 am
This is something I will bring up with my PCP on my next visit. All of my symptoms started while we were still living in Arizona and there were cases of Lyme disease there.

Kit B (276)
Monday July 22, 2013, 11:02 am

I wonder if they can trace this back to Lyme disease if it can still be treatable. If so it will be a boon to so many people, more women than men from my personal experience.

Past Member (0)
Monday July 22, 2013, 1:00 pm
The key sentence in this article for me is: "Let’s bring it all back – IF chronic Lyme disease can effect the Hypothalamic-pituitary-adrenal axis and the HPA axis can lead to chronic fatigue syndrome, which is related to fibromyalgia, then it SEEMS there is a link from Lyme disease to FMS." If and seems are not definitive statements. Fibromyalgia research needs more funding. We need good science to solve this problem and find effective treatments.

Kath P (9)
Monday July 22, 2013, 2:51 pm
People have been getting good results using Limbic Retraining for both Fibromyalgia and Lyme disease.

Joanne Dixon (38)
Monday July 22, 2013, 3:03 pm
I particularly like, besides the language Brian emphasizes, the phrase "for some patients" in the second paragraph after the video. Certainly science is a better guide than non-science, but science seems to have a touching childlike faith that similar things have a single cause. In human bodies, that just ain't necessarily so. I suppose it's all William of Ockham's fault LOL.

. (0)
Monday July 22, 2013, 3:56 pm
Actually they are in the process of doing that. Fibromyalgia; Lyme's Disease and a lot of others that got placed under the Epstein Barr Syndrome umbrella. I wonder how many of them are Mycoplasmic and man made?

Beth M (46)
Monday July 22, 2013, 4:11 pm
..i can link my probs re the above to a polio/tetanus booster vaccine i had 20 years ago...chronic fatigue..epstein bars..hpa axis meltdown..adrenal probs..early nauseum...and i have found..that for me and my body...anti histamines really help..x

Vallee R (280)
Monday July 22, 2013, 6:56 pm
I have been diagnosed with fibromyalgia - but in my case I don't agree - stress- tension - anxiety - probably attribute to my symptoms

Judith Hand (55)
Monday July 22, 2013, 7:02 pm
Noted. Years ago, on a visit to my father, I went to his doctor because I was having so many aches and pains and no REM sleep. I don't know that fibromyalgia was even a 'popular' diagnosis that long ago, in a midwestern state. He prescribed a low doseage of an early anti-depressant to be taken at bedtime. Within a few days, I was able to sleep and wasn't aware of so many aches. Very impressive to me, as you might imagine. (Not linked with Lyme disease in my case).

JL A (281)
Monday July 22, 2013, 9:43 pm
The Mayo Clinic offers something called brain retraining for treating fibromyalgia based on the theory that the part of the brain that control our fight or flight responses have malfunctioned to remain in a perpetual "on" mode with related biochemical releases as source of the pain symptoms; the retraining teaches that part to reset to "off."

Beth M (46)
Monday July 22, 2013, 10:09 pm
...i have also heard its possible for the pain gate to remain open... once the cause has gone the effect remains...yep..x

Syd H (48)
Tuesday July 23, 2013, 2:20 am
I really think it's related to nutrition, especially gluten (which suppresses it by building mucus in the gute).

I went raw vegan which is naturally gluten-free and everything cleared up within a week.

I do not know why more people don't try it. Nothing tastes better than feeling good does.

Lots of others issues also cleared such as constant cravings/indigestion.

Anyway, no need to believe me. Lots of talk about it on the internets.

Patricia H. (440)
Tuesday July 23, 2013, 10:34 am

marie C (163)
Tuesday July 23, 2013, 5:56 pm
Wish I had the will power to join Syd H
Thanks Kit

Jeanne R (1203)
Tuesday July 23, 2013, 6:37 pm

reft h (66)
Tuesday July 23, 2013, 11:14 pm
thanks for the article

Inge Bjorkman (202)
Wednesday July 24, 2013, 12:51 am

Lona G (67)
Wednesday July 24, 2013, 7:03 am
I think the most important message that comes across is that Fibromyalgia is not "all between the ears" and not some disease mad-made-up by the patient. More research will surely pinpoint FMS in the near future.
Thanks, Kit

Birgit W (160)
Wednesday July 24, 2013, 2:01 pm
Thank you.

Elisa F (235)
Wednesday July 24, 2013, 6:43 pm
Noted. A wealth of information :) Thank you, Kit.

Phil P (94)
Wednesday July 24, 2013, 7:29 pm
Coincidently I read a long article about FMS, osteoarthritis, and related ailments. Many testimonials about SAM-e (if you're not taking psychotherapeutic drugs) and acupuncture, which no one mentioned here for pain relief and balance. just commenting on the article without any recommendations.

Sheila D (194)
Wednesday July 24, 2013, 7:45 pm
Too many times doctors won't know exactly what's wrong and give out a fibromyalgia dignonsis when it really isn't. My doctor did this when I started complaining about muscle spasms and pain in my shoulder that spread to my neck. It isn't but she had no idea what caused it. My neurologist of all people said it was arthritis and the stiffness in my nesck was causing the muscle spasms and pain. Gave me a shot of - forgot name - and haven't had the problems since.
It never hurts toget a second opinion when it comes to fibromyalgia. Good article, noted and thank you.
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