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Video:Meet The Woman Who Has A 20% Chance Of Living Because Of One Company's Greed


Business  (tags: abuse, cancer, death, health, humans, illness, prevention, protection, safety, society, warning, risks, money, business, consumers, corporate, corruption, cover-up, dishonesty, ethics, society, usa )

JL
- 2239 days ago - upworthy.com
This woman's cancer could have been prevented. You won't believe why it wasn't.



   

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JL A (281)
Friday April 5, 2013, 8:21 pm
Meet The Woman Who Has A 20% Chance Of Living Because Of One Company's Greed

This woman's cancer could have been prevented. You won't believe why it wasn't.

Mansur Gidfar

ORIGINAL: By the American Civil Liberties Union. You can learn more about the fight against gene patenting at the ACLU's official case page.
 

Jason S (50)
Friday April 5, 2013, 8:28 pm
Good posting, thanks
 

JL A (281)
Friday April 5, 2013, 8:37 pm
You are welcome Jason
 

Millie O'Connor (153)
Friday April 5, 2013, 8:57 pm
This is appalling. Greed is behind so many big Companies' total disregard for innocent peoples' lives. They have to be held accountable for all the preventable illnesses and deaths of thousands of innocent people that they are responsible for either directly or indirectly, but with the same outcome. This poor young woman, my heart goes out to her and her family. I hope this can be resolved in our favor.
 

Angelika R (143)
Friday April 5, 2013, 9:24 pm
sounds like something really nasty so I may be spared more bad stories as upworthy just won't come up tonight..
 

JL A (281)
Friday April 5, 2013, 9:46 pm
Gene patenting has some ugly impacts--so true Millie and Angelika.
 

Joanne Dixon (37)
Friday April 5, 2013, 10:18 pm
Unfortunately, I have no trouble believing it. It exactly conforms with typical corporate behavior. That is not to say that I am not outraged! But I find myself being outraged multiple times every day.
 

Sherri G (128)
Saturday April 6, 2013, 1:52 am
This is really important. I shared and twittered this information to my followers, Senator Sanders, and Senator Boxer. I think it is time for all of us to find out what other things Myriad is or has patented that should be free access. If there is anyway I can help by not buying a product I will. Thanks JL how about starting a petition directed at Myriad I am confident it would be signed by many.
 

Terry V (30)
Saturday April 6, 2013, 2:32 am
We are lioving in a Human JUNGLE and only the GREEDY will survive
 

Lynn D (0)
Saturday April 6, 2013, 2:48 am
sad..........
 

Lindsay Kemp (6)
Saturday April 6, 2013, 7:05 am
This is such a sad story! Let's hope that people learn from the mistakes.
 

JL A (281)
Saturday April 6, 2013, 7:38 am
If anyone starts a petition, please add the petition's link to this thread.
You cannot currently send a star to Sherri because you have done so within the last day.
 

Past Member (0)
Saturday April 6, 2013, 9:00 am
When people invent medical stuff like this i dont think it should be allowed to stay in the hands of private companies they just play with peoples lives because of the costs Its not right Should have a better system than this

Noted thanks
 

LucyKaleido ScopeEyes (82)
Saturday April 6, 2013, 9:02 am
This is absolutely appalling -- it is not ethical business practice it is homicide! Murder!

At least if they'd developed a fool-proof test - it would nonetheless be unethical to hold a commercial monopoly & a patent on human genes (that appear in nature), but at least no one would have been in danger of having inaccurate cancer test results & finding out too late about serious risks that would threaten their lives.

But here, the medical profession & medical researchers had their hands tied by the legality of patenting those genes. They knew there were women falling into the cracks, women whom the test did not test accurately and yet the researchers were PROHIBITED from pursuing research to find a test that would provide the proper findings for those women & ultimately save their lives.

I'm an atheist, but all I can say is 'Thank god for the ACLU!' I can't think of another way of putting it.

Unregulated business practices, be it the derivatives market of the banking & finance industry, or the patenting of nature in human genes, represent a terrible danger for us humans (& our animal brothers & sisters).

This makes me inevitably think of Monsanto, with their goal of replacing & eliminating REAL, natural seeds in the agricultural food chain & the unavoidable contamination of non-GE fields & crops, whether we like it or not. Here, too, it is the unregulated patenting of nature that is the root problem. And, of course, their toxic pesticides that kill off every living plant that hasn't been genetically manipulated to resisted RoundUp or RoudUp Ready. This spells the end of biodiversity; not to mention the toxic effects of all those pesticides that are now being used in ever greater quantity (because of the unexpected consequence of GMOs, the development of those monster weeds) also a PUBLIC HEALTH issue of HUGE proportions.

I am going to go to the American Civil Liberties Union site to find what action can be taken against this crime!
Well, I've been & I am disappointed because I've found the action page & there is no action I can personally take on this issue that scandalizes me.

Here is the link to the 'action' page' on genetic patenting, "Take Back Your Genes ", which offers not a petition to sign but instructions on how to join their case as someone whose health has been harmed by the practice. It says:

"The ACLU filed a lawsuit challenging the validity of these gene patents. We won in the district court, which invalidated all of the patents because they claim products of nature. But we lost in federal appeals court, in a split decision, 2-1. It will be argued before the Supreme Court on April 15, 2013. (That's very SOON!!)

JOIN US! Send us a photo of you with your sign and tell us how gene patenting has affected you or a loved one. We’ll use it in an online advertising campaign designed to raise awareness of the threat of gene patenting. Learn more » "
& what follows are instructions how to participate in their campaign.

That's it! If you haven't been affected, there is no action offered, to be taken.

Here is the link to the page with everything on the ACLU site concerning this issue whether articles, lawsuit info, this video, & I don't know what else: press releases? Scientific studies? I got this page by doing an onsite 'search' for 'patenting genes', but have not had time to check out every item in the impressively long list of links provided.

This issue of gene patenting reminds me of an interview I heard (& maybe posted) on DN! not that long ago. Because of the show, I bought a book, "The Immortal Life of Henrietta Lacks," which was not as mind-boggling & soul-gripping as the issues that were discussed on the show.
This DN! show is really right on target for this post & I now realize that I bought the wrong book

October 31, 2011 - "Deadly Monopolies": Medical Ethicist Harriet Washington on How Firms are Taking Over Life Itself:
DN! intro: "One of the major themes raised by the Occupy movement is the increasing power of large corporations over more and more aspects of our lives. We spend the hour looking into the issue of the corporate control of life itself. Our guest, Harriet Washington, is a medical ethicist and has just published a book that examines the extent to which what she calls the medical-industrial complex has come to control human life. In the past 30 years, more than 40,000 patents have been granted on genes alone—many more patents are pending. Washington argues that the biotechnology and pharmaceutical companies patenting these genes are more concerned with profit than with the health or medical needs of patients. Her new book is called "Deadly Monopolies: The Shocking Corporate Takeover of Life Itself—And the Consequences for Your Health and Our Medical Future." [includes rush transcript]

Our guest, medical ethicist Harriet Washington. She has just published a book that examines the extent to which what she calls the medical-industrial complex has come to control human life. In the past 30 years, more than 40,000 patents have been granted on genes alone. More patents are pending. Washington argues that the biotechnology and pharmaceutical companies patenting these genes are more concerned with profit than with the health or medical needs of patients.

Harriet Washington is also the author of Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present.
 

LucyKaleido ScopeEyes (82)
Saturday April 6, 2013, 9:04 am
This is better watched than read, but you've got the link above to watch it!
I know it's long, but it is so important! This is only the 1st part of the interview, too:

AMY GOODMAN: Why did you take on this book?

HARRIET WASHINGTON: I was really disturbed not only by the displacement of the traditional, more altruistic values of medical research, but also by the lack of transparency with which corporations have managed to co-opt not only research itself, but also the generation of new cures and the pricing of drugs.

AMY GOODMAN: You wrote Medical Apartheid before this. How did Deadly Monopolies come out of your previous research?

HARRIET WASHINGTON: Interestingly enough, it didn’t come out of it. I was always concerned both about medical research with African Americans and medical research with unconsenting Americans and duplicitous research, and couldn’t combine them all in one huge monster book, so after I did Medical Apartheid, I turned my attention to the issues that affect all of us, not just African Americans.

AMY GOODMAN: Talk about the story of John Moore.

HARRIET WASHINGTON: John Moore, an iconic story. He developed hairy-cell leukemia, and he was told by his doctor, Dr. David Golde, that he needed surgery to save his life, which he underwent. His 22-pound spleen was taken out, and after that, Golde summoned Moore periodically, all the way from Alaska to L.A., for periodic tests. And Golde would do samples of his blood, his semen.

AMY GOODMAN: Golde, his doctor.

HARRIET WASHINGTON: Right, right, his doctor. And this was all in order to make sure there was no recurrence of the cancer. So Moore was told. Actually, without Moore’s knowledge, Golde had taken a patent out on Moore’s spleen and the tissues emanating from it, and with that patent, had designed a huge laboratory, with the backing of Sandoz Corporation. And he was actually—

AMY GOODMAN: Sandoz, a pharmaceutical company.

HARRIET WASHINGTON: Exactly. So he was actually planning to market the products of John Moore’s body, and John Moore was none the wiser, until he finally consulted a lawyer, who found the patent and found the laboratory.

AMY GOODMAN: Who was Golde?

HARRIET WASHINGTON: Hmm?

AMY GOODMAN: Who was the doctor?

HARRIET WASHINGTON: Oh, the doctor was a blood specialist in L.A.

AMY GOODMAN: So he owns the patent to John Moore’s cells?

HARRIET WASHINGTON: He and the university, jointly, held the patent. And with that patent, they had a contract with Sandoz worth $3 million. But John Moore never knew of it.

AMY GOODMAN: How did he learn of it? How did he even seek out whether there was a patent on his own body?

HARRIET WASHINGTON: Golde became belatedly cautious and was pressuring Moore to sign an additional, you know, consent form to give Golde total control over Moore’s discarded, worthless tissues. And Moore was a bit wary. He went to a lawyer, who immediately found the patent and discovered what had been done and that the tissues were not at all worthless, of course.

AMY GOODMAN: What role does the university play in this?

HARRIET WASHINGTON: The university is essentially the patent holder, very often, and it often sells and licenses those patents to private corporations, as this university was going to do to Sandoz. So the university stands to make a great deal of money by selling and licensing patents emanating from our bodies and emanating from molecules that were developed with tax dollars, our tax dollars.

AMY GOODMAN: Talk about these relationships between universities and private corporations.

HARRIET WASHINGTON: They’re very close. In fact, now, I believe, very often, universities have come to look like arms of corporations. They’ve adopted their models. They’ve adopted their culture. Now it is the patent, not the patient, that’s at the center of medical research. And it’s profit and patent that is motivating decisions that universities make, just as always dictated the behavior of corporations.

AMY GOODMAN: Harriet Washington, you have a chapter in your book called "A Traffic in Tissues."

HARRIET WASHINGTON: Mm-hmm.

AMY GOODMAN: You were just talking about John Moore’s tissues. Talk further, in a global way, about this.

HARRIET WASHINGTON: Well, John Moore—what happened to John Moore happened because his tissues were unusually valuable. But today, all of us, with normal tissues, are in danger of having the same fate, because large volumes of normal tissues are also valuable. And now, when we go into surgery in many hospitals, we’re forced to sign—no, we’re asked to sign consent forms, yielding control of our tissues to a private corporation.

AMY GOODMAN: What is that corporation?

HARRIET WASHINGTON: Ardais Corporation is a major one. If you go to—

AMY GOODMAN: Say it again.

HARRIET WASHINGTON: Ardais, A-R-D-A-I-S. If you go to Harvard University hospitals, Duke University hospitals, that’s who ends up with your tissues.

AMY GOODMAN: And what do they do with them?

HARRIET WASHINGTON: And many patients don’t know that. Well, they’re very valuable. They can use them to make new drugs, to test new drugs. They have a great deal of value, especially many, many tissues for which they’ve paid a very low or nominal fee.

AMY GOODMAN: Talk more about this traffic in tissues, where your tissues can end up.

HARRIET WASHINGTON: A variety of places. They can end up in laboratories that are testing drugs. They can end up in laboratories that are basically looking for medically important molecules. If they find that tissues secrete a certain cytokine, for example, they can sort of farm them out. Large volumes of these tissues are extraordinarily valuable in almost sphere of medicine and medical research. And they are being taken from us, very often—well, usually, without our knowledge.

AMY GOODMAN: Can you talk about the Bayh-Dole Act?

HARRIET WASHINGTON: Yeah, the Bayh-Dole Act was passed in 1980. Birch Bayh and Bob Dole jointly decided to, you know, write a bill that would allow universities for the first time to legally license and sell the products of research to private corporations. That’s where all this paradigm shift actually began, in 1980, with the Bayh-Dole Act.

AMY GOODMAN: And talk about the significance, the effect of this, why you see this as a turning point.

HARRIET WASHINGTON: This is why universities can actually sell products of their research to private corporations. They were banned from doing that beforehand. Also in 1980, the Chakrabarty case allowed living things to be patented. So taking—these two things, taken together, totally transformed medical research.

AMY GOODMAN: Explain that case.

HARRIET WASHINGTON: That case was by Ananda Chakrabarty, was a scientist who wanted to—

AMY GOODMAN: And where was he based?

HARRIET WASHINGTON: He was based at General Electric in Syracuse. He wanted to find a way to turn—create oil-eating bacteria. And he did a lot of innovation, a lot of engineering, and he finally came up with them. So when he applied for a patent, he was first rejected. They said, "It’s a living thing. We can’t patent it. It’s a product of nature." But eventually, Supreme Court decided, yes, you can. And that ruling was taken very widely—very widely—to say that living things can be patented. And so, now, every day, we have things like genes that are patented because of the Chakrabarty decision in 1980.

AMY GOODMAN: We’re going to come back to Harriet Washington, medical ethicist, author of Deadly Monopolies. Harriet Washington is our guest. Deadly Monopolies: The Shocking Corporate Takeover of Life Itself—And the Consequences for Your Health and Our Medical Future. Among other issues we’ll talk about is what she calls "biocolonialism." We’ll also talk about the story of Henrietta Lacks. Stay with us.
[break]
 

LucyKaleido ScopeEyes (82)
Saturday April 6, 2013, 9:08 am
This DN! show was posted by Barbara the next day & got 140 notes, so I figure a lot of us already new about this 'new medical trend' in business.
 

JL A (281)
Saturday April 6, 2013, 9:10 am
Thank you LucyKaleidoscopEyes for providing us all with a wealth of additional information on this significant issue! A green star is headed your way.
You are welcome Carol.
You cannot currently send a star to Carol because you have done so within the last day.
 

Kerrie G (116)
Saturday April 6, 2013, 11:07 am
Noted, thanks.
 

JL A (281)
Saturday April 6, 2013, 12:37 pm
You are welcome Kerrie.
 

Birgit W (160)
Saturday April 6, 2013, 2:50 pm
How low can human beings go? Shame!
 

Kit B (276)
Saturday April 6, 2013, 7:10 pm

Somehow it is a bit comforting to know this will be going before the Supreme Court in the trusted hands of the ACLU. These companies are some dirty things that scurry and creep in the middle of the night.

"The ACLU filed a lawsuit challenging the validity of these gene patents. We won in the district court, which invalidated all of the patents because they claim products of nature. But we lost in federal appeals court, in a split decision, 2-1. It will be argued before the Supreme Court on April 15, 2013."
 

JL A (281)
Saturday April 6, 2013, 7:12 pm
You cannot currently send a star to Kit because you have done so within the last day.
 

Eternal Gardener (734)
Saturday April 6, 2013, 8:07 pm
As unethical as expected... this atrocity really needs to change!
 

JL A (281)
Saturday April 6, 2013, 8:15 pm
You cannot currently send a star to Eternal because you have done so within the last day.
 

Anna Undebeck (256)
Sunday April 7, 2013, 7:18 am
Thanx JL for posting this! This is so tragic and bad that I can hardly belive it :/
 

JL A (281)
Sunday April 7, 2013, 9:48 am
You are welcome Anna. You cannot currently send a star to Anna because you have done so within the last day.
 

Gene Jacobson (287)
Sunday April 7, 2013, 11:19 am
Okay, that is insane. No company should EVER be allowed to patent anything about the human genome or any part of the genetic system. Patent your drugs, I don't much like that either, it is big pharma's mantra though, research is so expensive, we couldn't do it at all unless in those rare instances when we find a drug that works relatively safely we weren't allowed to "own" it and charge and arm and a leg for it for X number of years. I am will to concede part of that argument, but venture that perhaps this is the reason that all such research should be conducted with government funding and successful efforts then made available for manufacture at reasonable costs and to the benefit of all. This is more of a case for shutting down private testing companies to me because they are a clear and present danger and inimical to the public safety with which government is charged to protect. If anyone thinks this is the only person affected so horribly, well, I'm sorry you are fooling yourself. This is the inevitable result of policies that encourage putting profit before people. And in far too many ways, our economic and governmental models do exactly that. That is immoral. People before dollars is the only model that meets an ethical standard I believe in. Would that the world did too. I don't know how the executives of this company and its soulless minions in their legal department live with themselves, knowing they are condemning people to death with their intransigence and their greed. I couldn't, I just don't get how they can. They are defending the indefensible.
 

JL A (281)
Sunday April 7, 2013, 11:39 am
I like your proposed solution Gene. You cannot currently send a star to Gene because you have done so within the last day.
 

. (0)
Sunday April 7, 2013, 11:40 am
Noted & posted
 

Sharon Davidson (371)
Sunday April 7, 2013, 1:39 pm
it is so sad to hear that someone is at the hands of our goverment and there concern is not about the person as a human being but about money and what its going to cost them
 

JL A (281)
Sunday April 7, 2013, 1:42 pm
You cannot currently send a star to Sharon because you have done so within the last day.
 

Patsy Olive (0)
Sunday April 7, 2013, 1:49 pm
Noted & signed ,this is terrible when a co.greed put a woman lofe in danger. Thanks Cher.
 

Paulett Simunich (0)
Sunday April 7, 2013, 2:31 pm
I read what Gene Jacobson wrote.......and agree with everything......excellent narrative, Gene. People before dollars........there are many of us who believe......My thoughts are of the many people who also believed but were deceived.
 

Gloria H (88)
Sunday April 7, 2013, 3:05 pm
What is the point of "donating" to cancer research when "finds" are withheld from people who are at risk of having it?????
They need OUR money to do research and select who BENEFITS??????
It is interesting that corporations and their allies in deed aka "stockholders" will HIDE behind legalities to prevent information (and in the case of ag gag laws that are pending) to get out?
I hope this woman wins her fight and lives to a ripe old age!!!!
 

reft h (66)
Sunday April 7, 2013, 4:42 pm
thanks for the article
 

JL A (281)
Sunday April 7, 2013, 5:31 pm
You are welcome june.
 

Judith Hand (55)
Sunday April 7, 2013, 6:09 pm
Noted. So very, very sad. I'm glad that the ACLU is involved. There are no sufficient words.
 

JL A (281)
Sunday April 7, 2013, 6:11 pm
You cannot currently send a star to Jude because you have done so within the last day.
 

Shirley B (5)
Sunday April 7, 2013, 8:20 pm
My God! Every time I think I've heard it all another unbelievable injustice rears its ugly head. There are so damn many fights to fight and so few fighters it makes you feel like starting an all out insurrection.I wish I was younger because these fights will endure long after I fight my last fight. These so called "Golden years" are more like Rusty years. Thank all of you for posting, commenting and informing us that we have much to do.
 

Edith B (146)
Friday April 12, 2013, 8:51 pm
Noted and shared on FB. Nothing matters more than money these days, does it.
 
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