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World Map of ME- Chronic Fatigue Syndrome & Fibromyaglia Sufferers - Add Yourself

Health & Wellness  (tags: Myalgic Encephalomyelitis, ME/CFS, FM, fibromyaglia, maps, XMRV retro virus, chronic fatigue syndrome, humans, research, illness, disease )

- 3289 days ago -
first "worldwide" attempt of accounting for those with ME/CFS/FM, and trying to identify outbreaks worldwide since the 1934 & 1954 London UK -1984 USA Lake Tahoe outbreaks, and which in itself may explain why so many in North America and the UK


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Mack David (100)
Tuesday June 22, 2010, 2:53 pm
I am not a sufferer ..It is interesting Cheryl

Elainna Crowell (174)
Wednesday June 23, 2010, 2:19 am
This is a fascinating and may be a key to treating this horrible disorder. I don't suffer from chronic fatigue or Fibromyalgia (SP?) but many of my close friends have. I truly hope this leads to a useful treatment.

Tamme W (7)
Wednesday June 23, 2010, 5:26 am
It is nice to see awareness about this disease, for I've survivied it for over 20 yrs now. It does play havoc with your body, there is a great amount of fatigue & pain of tenderness generally all over.
Thank you for this article & website :)

Pamela S (19)
Wednesday June 23, 2010, 6:34 am
Ti=his is so interesting to see. Thanks for mapping it out.

Deborah C (19)
Wednesday June 23, 2010, 10:16 am
My mom and I have fibromyalgia. It's not fun. Thank you so much for posting this!

Cindy C (125)
Wednesday June 23, 2010, 11:22 am

Bev B (1)
Wednesday June 23, 2010, 1:27 pm
As a Community Health Care Worker for 13 years I encountered several people who suffered from CFS. Most ``Doctors`` dismiss this as real. This makes my blood boil! I wish some doctors could live a day of those who suffer. They might not be so damned arrogant!
Thankyou for this post Cheryl

Fran F (116)
Wednesday June 23, 2010, 5:00 pm
Thanks very much for posting this, Cheryl. I have had fibromyalgia for 21 years, although it wasn't diagnosed until seven years later. (The doctor I saw about the original symptoms said it was probably Epstein-Barr Syndrome, but that it couldn't be diagnosed by testing because everyone carries the virus.)

Cheryl B (373)
Thursday June 24, 2010, 5:52 am
that's not true, I was tested for EBV when I was diagnosed in 1991, most carry it, however, many it becomes active again and they can test antibodies to it to see if it has reactivated, mine has gone up and down but is not the cause of my ME/CFS, or FM. I have both. You can also be tested for FM, with electrodes they put in the tenderpoints, you have to have at least 11 out of 18 although there are more than 18 I have counted 21 on myself. Also rhemtologists can diagnose I was in 1999, it wasn't exactly rocket science. excuse typos' typing not strong point right now

sarah Feehan (0)
Saturday June 26, 2010, 6:07 am
I'm a lab rat and I've been a host of this illness for the best part of 9 years. I've always thought that this condidition has a retoviral root ( the same goes for MS, Altzhimers, Parkinsons, and many other conditions that the medics call autoimmune diseases).

It's not rocket science to work out the rest of the illnesses that XMRV gathers around itself, which, in turn gives the host serious grief. HIV & cancer research have mapped out the path for researchers to follow for this (and other) illnesses.

If the medics are after a new area of research and the plaudits and Nobels that go with it, they should take their courage (and ambition) in both hands and take that first step to finding the cure for this and other so called auto immune diseases

Cheryl B (373)
Sunday June 27, 2010, 7:42 am
welcome to care2

Well said
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