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My Son Will Die - Why Is It Being Denied?

Health & Wellness  (tags: illness, children, death, disease, medicine, drugs, ethics )

- 1658 days ago -
A mother fights for her son's life - please read...


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Hahn H (167)
Wednesday March 12, 2014, 12:21 am
Here is the petition :


please sign!!!


Wednesday March 12, 2014, 12:41 am
Noted, sorry Sabine I have already signed this petition, but I have shared it again. Thanks

Frans Badenhorst (582)
Wednesday March 12, 2014, 12:44 am
........heartbreaking Sabine.......

you can help by sharing

Ted W (127)
Wednesday March 12, 2014, 12:48 am
ihad alrady signed but I shared it on facebook!!

Artur B (135)
Wednesday March 12, 2014, 12:51 am
Hab ich scho längst

Lynn Carin (410)
Wednesday March 12, 2014, 1:10 am
Noted. I have already signed this petition, Sabine.

Aud nordby (737)
Wednesday March 12, 2014, 1:20 am

Michaela Carlsson (248)
Wednesday March 12, 2014, 2:04 am
Done and thank You Sabine.

Lynn Carin (410)
Wednesday March 12, 2014, 2:18 am
Tweeted again!

Wednesday March 12, 2014, 2:19 am
Noted, signed and shared, this is heartbreaking ;(

Animae C (506)
Wednesday March 12, 2014, 2:21 am
you took action on February 08, 2014
428 signatures

There's also this petition which i have also signed & forwarded;

you took action on December 17, 2013
# 57,469 signatures


Past Member (0)
Wednesday March 12, 2014, 2:25 am
noted, signed and left comment on site

kate K (481)
Wednesday March 12, 2014, 3:00 am
thank you sweetie signed and shared previously .Poor baby :(

Past Member (0)
Wednesday March 12, 2014, 3:28 am
Noted, already signed.

Sylvie A (194)
Wednesday March 12, 2014, 3:42 am
Notée, déjà signée et partagée. Merci.

Ljiljana Milic (115)
Wednesday March 12, 2014, 4:24 am
Petition form Sabine's post signed > #430 & Thank you Sabine
Petition for AniMaeChi's comment signed > # 57,473 & Thank you AniMaeChi
All done with hope!

Judy T (227)
Wednesday March 12, 2014, 5:07 am
Judy, you took action on December 23, 2013

Thank you so much for posting this petition again, dear Sabine! At last count there are 57,068 signatures for this petition. Why does it have to get to to 75,000 signatures (where it may never get) before it's submitted! to Shire Pharmaceuticals? I am growing really impatient here This little boy's life is on the line here and it seems just waiting for even more signatures is wasting precious time that little Jack may not have. I signed this petition back in December and it's been too long already. Just turn it in now, please!

Judy T (227)
Wednesday March 12, 2014, 5:17 am
I just asked Sara Conover, the petition's author, to turn it in now and keep us updated. 57,068 signatures are a pretty big amount of signatures. Now let's hope the decision makers at Shire Pharmaceuticals open their heart a bit and reconsider. Thank you all so much for signing little Jack's petition! Much, much love to you all!!!!

Judy T (227)
Wednesday March 12, 2014, 5:23 am
Sarah Conover's petition: (mentioned in the article/ different petition with the same purpose, than the one that Sabine stated above (with only over 400 signatures).

Judy T (227)
Wednesday March 12, 2014, 5:31 am

John Holton (344)
Wednesday March 12, 2014, 5:50 am
S and N Pray to the true God, not the one of this world! God bless you!

Past Member (0)
Wednesday March 12, 2014, 6:08 am
Noted and signed.

Solitary Eagle (324)
Wednesday March 12, 2014, 6:11 am
Prev.signed and shared the both petitions. Shared again. Thank you Sabine.

Marianne R (95)
Wednesday March 12, 2014, 6:24 am
you took action on February 06, 2014

This is heartbreaking

Cindy Miars (101)
Wednesday March 12, 2014, 6:25 am
Signed & noted.
Shire Pharmaceutical- do the right thing. Put life over profit.

Past Member (0)
Wednesday March 12, 2014, 6:26 am
I already took action, thanks, that's incredible...

Darlene W (303)
Wednesday March 12, 2014, 6:28 am
Signed and shared--Prayers and blessings sent his way.

Past Member (0)
Wednesday March 12, 2014, 6:59 am
Already signed and shared.

Karen Martinez (18)
Wednesday March 12, 2014, 7:10 am
Thank you for this article. Signed and shared. Drug companies are only trying to save the all might dollar, not the people they are supposed to be helping.

Elena J (191)
Wednesday March 12, 2014, 7:28 am

Mike M (40)
Wednesday March 12, 2014, 7:50 am

Laurie H (818)
Wednesday March 12, 2014, 8:05 am
Oh Sabine, I certainly have previously signed & shared this heart breaking story!! I have gladly shared this again~I don't understand WHY this has not been fixed---this boy needs help NOW!!!!!!!!!!!! Very angry it should be about $$$ when a child or ANYONE"S life is hanging in the balance~~ My Prayers & Many Thanks, Sabine~~~

marta d (13)
Wednesday March 12, 2014, 8:13 am
Noted & signed

Michela M (3964)
Wednesday March 12, 2014, 8:22 am
you took action on February 01, 2014

Sandra K. Walker (92)
Wednesday March 12, 2014, 8:53 am
Was very hard for me to read with my tender heat and tears.I will pray for this Family every Day.Do you my Friends believe in the Power of Prayer? I hope Joey Howell does make a Film called Boys with Bigger Hearts.

sylvie C (46)
Wednesday March 12, 2014, 1:34 pm
you took action on February 05, 2014

Sharon Davidson (371)
Wednesday March 12, 2014, 1:35 pm

Jaime Cammarata (466)
Wednesday March 12, 2014, 1:37 pm
Noted, signed, & Tweeted

Past Member (0)
Wednesday March 12, 2014, 2:27 pm
Signed, thank you Sabine

Birgit W (160)
Wednesday March 12, 2014, 2:32 pm
What a heartbreaking article. Little Jack and his family should not have to endure such pain and suffering. God bless them.

Birgit W (160)
Wednesday March 12, 2014, 2:33 pm
I signed the petition on February 05, 2014.

Patsy Olive (0)
Wednesday March 12, 2014, 2:48 pm
God, bless you and little Jack.

Gabriele Jefferson (147)
Wednesday March 12, 2014, 3:05 pm
noted,signed,shared on fb,twitter, der Bitte um Hilfe! thx.

Past Member (0)
Wednesday March 12, 2014, 3:09 pm

Jim Phillips (3257)
Wednesday March 12, 2014, 3:14 pm
Petition already signed.

Shire's CEO should give the medication(s) to this boy and help the family.

ty, Sabine.

Debra Van Way (12)
Wednesday March 12, 2014, 3:25 pm
Signed this 2/13/14. Hope the drug company give's the medication to this little boy.

. (0)
Wednesday March 12, 2014, 3:29 pm
they have decided to give him the med. i hope it is not too late for him

Aurea Aurea Walker (226)
Wednesday March 12, 2014, 3:49 pm
Have signed, shared and pray for little, innocent Jack and his family that he gets the meds he so desperately needs. I wonder how the CEO of this company would act if it was his son facing this tragedy. Medical trials go on all over the world, some with very negative effects on the participants, but since 90% of the test are done in third world countries. We do not hear about those results! Jack would not only be empowered to live the life he has left with greater dignity but the pharma company could learn so much from him taking the medications. What is the arsewipe CEO thinking? It could be a win/win situation by doing the right thing. May we hit the 75,000 signatures needed and Shire pharma get it's head out of their arse otherwise known as their P & L.

Terrie Williams (798)
Wednesday March 12, 2014, 4:41 pm
TERRIE, YOU TOOK ACTION ON FEBRUARY 01, 2014 Re-shared and noted.


Joanne Dixon (38)
Wednesday March 12, 2014, 5:05 pm
Signed this one today, and the other one AniMaeChi references on Feb 13.

Tina Schaeffer (44)
Wednesday March 12, 2014, 5:07 pm
Noted I have signed earlier but I shared again.

Gloria H (88)
Wednesday March 12, 2014, 5:08 pm
signed way back in january....sure hope there is more progress with the petition. Poor little kid, wish he and his parents success

Els J (50)
Wednesday March 12, 2014, 5:17 pm
There is a link to the petition with the 57000 + signatures in the article. I have previously signed both petitions.

Thank you Sabine.

Shirley B (5)
Wednesday March 12, 2014, 5:27 pm
N&S, Prayers

Vicky P (476)
Wednesday March 12, 2014, 6:05 pm
a/s I hope he gets treatment :/

Neill Abayon (667)
Wednesday March 12, 2014, 6:58 pm
Noted. Thanks Sabine!

Walter F (129)
Wednesday March 12, 2014, 7:11 pm
Signed Sabine,

Nancy C (806)
Thursday March 13, 2014, 2:29 am
Thanx Sabine. s, sh in fb groups

Inge Bjorkman (202)
Thursday March 13, 2014, 2:58 am
ON FEBRUARY 05, 2014


Past Member (0)
Thursday March 13, 2014, 3:23 am
Signed in Jan-thx Sabine

Past Member (0)
Thursday March 13, 2014, 6:32 am
Because if the boy dies then that puts the continuing use of the medication for everyone else at risk.

Syd H (0)
Thursday March 13, 2014, 6:57 am
If Shire gave this new drug to the child, what ever the outcome, it could only do their company image good.
If it did not save the child's life they would be praised for at least trying to help Jack.
If it did save or at least extend the child's life, they would be honoured for creating a miracle drug.
Which ever way it went, it would be a WIN - WIN situation for Shire.

Manuela Gewert (88)
Thursday March 13, 2014, 8:46 am
Bereits unterschrieben jetzt nochmal geteilt!

Panchali Yapa (26)
Thursday March 13, 2014, 11:43 am
Thank you

Lois Jordan (63)
Thursday March 13, 2014, 2:46 pm
"You took action on Feb. 4, 2014." Noted. Thanks, Sabine.

AWAY AWHILE Cal Mendelsohn (1065)
Thursday March 13, 2014, 5:30 pm
petition signed

Melania Padilla (123)
Friday March 14, 2014, 8:39 am
Petition signed... Wish you the best!!!

Mary T (178)
Friday March 14, 2014, 1:39 pm
Signed and shared

. (0)
Friday March 14, 2014, 7:16 pm
Signed. like it. thank you
Friv 3
Friv 2

Edith B (146)
Friday March 14, 2014, 9:43 pm
Noted and it let me sign again. Shared on Facebook. I hope they allow the treatment.

Beth Nipper (70)
Saturday March 15, 2014, 8:43 pm
Noted, signed, and shared. I hope and pray Shire Pharmaceuticals will help this boy. I have been following this story and signing petitions. I cannot understand why Shire hasn't helped him.

Arlene C (30)
Sunday March 16, 2014, 9:14 am
merci Sabine, je leur souhaite ce qu'il désire pour leur fils

Charlene Rush (79)
Sunday March 16, 2014, 9:29 pm
AND, imagine that some lunatics in our society don't think we need 'health care reform'.

Rosa C (384)
Sunday March 16, 2014, 10:36 pm
Wishing you and your lovely family the very best. I hope everything will work out alright.
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